NVivo, Ethics and IRBs

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Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Using NVivo Using NVivo Using NVivo Using NVivo www.queri.com Kristi Jackson, MEd PhD [email protected] 303-832-9502

Transcript of NVivo, Ethics and IRBs

Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Using NVivoUsing NVivoUsing NVivoUsing NVivo

www.queri.com

Kristi Jackson, MEd PhD

[email protected]

303-832-9502

� Session Session Session Session 1111◦ NVivo NVivo NVivo NVivo and successfully defended and successfully defended and successfully defended and successfully defended dissertationsdissertationsdissertationsdissertations

� Session Session Session Session 2222◦ NVivo NVivo NVivo NVivo and the dissertation literature and the dissertation literature and the dissertation literature and the dissertation literature reviewreviewreviewreview

� Session Session Session Session 3333◦ NVivoNVivoNVivoNVivo, ethics and , ethics and , ethics and , ethics and IRBsIRBsIRBsIRBs

� Session Session Session Session 4444◦ NVivo NVivo NVivo NVivo and your dissertation defenseand your dissertation defenseand your dissertation defenseand your dissertation defense

� Large group

� Small group

� One-on-one

� Independent work

Stay a 4th day at no extra cost

www.Queri.com

1.1.1.1. History History History History 2.2.2.2. The Belmont ReportThe Belmont ReportThe Belmont ReportThe Belmont Report3.3.3.3. Informed ConsentInformed ConsentInformed ConsentInformed Consent4.4.4.4. Data security and audit trailsData security and audit trailsData security and audit trailsData security and audit trails5.5.5.5. Confidentiality Confidentiality Confidentiality Confidentiality as an eventas an eventas an eventas an event6.6.6.6. Confidentiality as a processConfidentiality as a processConfidentiality as a processConfidentiality as a process7.7.7.7. Conclusion/recommendationsConclusion/recommendationsConclusion/recommendationsConclusion/recommendations

� 1932-1972 Tuskegee Study◦ United States Public Health Services◦ Tuskegee as a partner (traditionally black college)◦ Study of natural progression of untreated syphilis◦ Rural, black men in Alabama◦ Information withheld regarding their diagnosis◦ Deceived into thinking they were receiving treatment

� 1960’s Milgram Study◦ Willingness of participants to obey authority figure� Authority figure (instruct the subject to deliver shock)� Actor in adjacent room (pretend to receive the shock)� Subject (thinks he or she is delivering the shock) ◦ Repeated around the world◦ Article 1963; Book 1974

� National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research ◦ Respect for Persons

� Individual autonomy

� Protection of individuals with reduced autonomy

◦ Beneficence

� Maximize benefits

� Minimize harm

◦ Justice

� Equitable distribution of research costs and benefits

� Consent form: An event◦ Research purpose, duration, procedures◦ Risks/benefits◦ Confidentiality◦ Right to refuse or withdraw◦ Contact information

� Informed consent: A process◦ Full disclosure of the nature of the research and participation is only a starting point◦ Participants may have evolving ideas as they: � Comprehend the process over time

� Voluntarily choose to participate at each step

Microsoft Word files

NVivo makes copies and stores them internally

File � Options

File � Info � Project Properties

File � Info � Open Project Event Log

File � Info � Project Properties � Passwords

� Text

� Audio

� Video

� Photographs

� Tweets

� Prepare for this in your IRB submission

� Check your IRB

Howe, K., Dougherty, K. (1993). Ethics, IRB's, and the changing face of educational research. Educational Researcher, 22(9), 16-21.

Howe, K., Moses, M. (1999). Ethics in educational research. In A. Iran-Nejad & P. D. Pearson Eds., the Review of Research in Education, vol. 24, pp. 21-60. Washington, D.C.: American Educational Research Association.

Doctoral student

Faculty member

Exemplary qualitative

research article

Dissertation

Interview

Kristi: Okay, so, the way you read this portrayal of NVivo in the [dissertation], did it match . . . your sense of how she used it?

Faculty: No.Kristi: In what ways was it off?Faculty: Well I'm being really candid, so you have to be careful if

you use any of this information. . . You erase anything that would reveal my identity.

Kristi: Absolutely.

Kristi: . . . is there anything that you want . . . omitted from my analysis?

Faculty: When I talk about doctoral students and getting into details about someone, I would just hope you’d be sensitive to how you report that . . . So as long as that’s done with sensitivity, I’m good.

� 4 out of 6 students did not want to include the dissertation in the study (fear of identification)◦ Professional reputation

� Unanticipated uses of dissertation – misrepresentation

◦ Permission from funder

◦ Allow the Chair to deduce the speaker

� Not just individual identities, but people and cultures“. . . it's an EXTREMELY IMPORTANT responsibility to be transparent but also be THOUGHTFUL about how you're impacting communities and entire CULTURES of people when reporting your view of what you've learned.”

� Jackson dissertation◦ No participant dissertation quotes◦ Examples from my own database as vignettes◦ No pseudonyms◦ Inconsistent pronouns

� Things to consider◦ Quotes◦ Screen Captures◦ Summary Tables◦ Demographic or other identifying characteristics (e.g., stories)◦ Entire Database

Event

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Event

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Event

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Event

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Event

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So, it's definitely a major dance. I mean, . . . in the past, research has . . . been somewhat hurtful to many of these communities. I don't know that I'm saying this correctly, but it's an EXTREMELY IMPORTANT responsibility to be transparent but also be THOUGHTFUL about how you're impacting communities and entire CULTURES of people when reporting your view of what you've learned

I’m thankful that I’m not the only student who noticed that the ethical handling of data is a dance.

I’ve been so concerned with the protection of the individuals in this study, it never occurred to me that part of the principle of beneficence might pertain to groups or cultures that have been misrepresented or disenfranchised. I would have completely missed this in my own study.

memo/journal interview transcript

� Session Session Session Session 1111◦ NVivo NVivo NVivo NVivo and successfully defended and successfully defended and successfully defended and successfully defended dissertationsdissertationsdissertationsdissertations

� Session Session Session Session 2222◦ NVivo NVivo NVivo NVivo and the dissertation literature and the dissertation literature and the dissertation literature and the dissertation literature reviewreviewreviewreview

� Session Session Session Session 3333◦ NVivoNVivoNVivoNVivo, ethics and , ethics and , ethics and , ethics and IRBsIRBsIRBsIRBs

� Session Session Session Session 4444◦ NVivo NVivo NVivo NVivo and your dissertation defenseand your dissertation defenseand your dissertation defenseand your dissertation defense

� Large group

� Small group

� One-on-one

� Independent work

Stay a 4th day at no extra cost

www.Queri.com

Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Getting Started and Finishing your Dissertation Using NVivoUsing NVivoUsing NVivoUsing NVivo

www.queri.com

Kristi Jackson, MEd PhD

[email protected]

303-832-9502