NEWSLETTER - Arthritis ACT · and the program will include English and ... schooling at Telopea...

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Highlights From the CEO ....................... p2 New staff .................................. p3 WWX Report ......................... p4 The Doing Diary..................... p5 Thanks Canberra Hospital ... p6 Arthritis Friendly Kitchen .... p7 Variety Concert ...................... p7 Beef & red wine stew ............ p8 Food & Arthritis ..................... p9 Beware Scams ......................... p10 Henry Cook remembered ... p10 Genetics & RA ........................ p11 Calendar of events ................. p12 NEWSLETTER June 2014 VOLUME 17, ISSUE 2 Including Osteoporosis ACT ACT Volunteer of the Year Award for WWX Team Over 280 people gathered at the National Museum of Australia on Tuesday, 13 th May to celebrate the 2014 ACT Volunteer of the Year Awards in recognition of National Volunteer Week. Volunteering ACT received over 65 nominations this year and 16 unique award winners were honoured during the festivities. To our delight Arthritis ACT’s warm water exercise team won the Sport and Recreation Team award. The team plan, conduct and supervise 16 warm water sessions per week, spanning four Canberra locations. The team’s generous volunteer service enables these therapeutic hydrotherapy sessions to be accessed by participants at low cost, leading to marked improvements in their health and mobility. The Program also provides a social outlet for people with a disability. This dedicated team takes responsibility for the safety and wellbeing of some 6,000 participants over a year so they make sure they stay well trained in pool rescue and CPR. Warm Water Exercise coordinator Shirley Syme accepted the award on behalf of the team. To show their support Arthritis ACT CEO, Helen Krig, Arthritis ACT Volunteer of the Year Barbara Walker and Health Promotion Coordinator, Erica Roughton also attended the awards. Reduce your risk of a fall! Strength & Balance Exercise 8 week program Starts Tuesday, 1 July 2014 11.00 am Venue Gungahlin Community Centre, 47 Ernest Cavanagh Street Gungahlin Cost Members: $20.00 Non-Members $40.00 Instructor Susan Gurr Registration Email - [email protected] or Call (02) 6288 4244 L to R: Barbara Walker, Helen Krig & Shirley Syme

Transcript of NEWSLETTER - Arthritis ACT · and the program will include English and ... schooling at Telopea...

Page 1: NEWSLETTER - Arthritis ACT · and the program will include English and ... schooling at Telopea Park High school, ... listening to your pen touching

Highlights

From the CEO ....................... p2

New staff .................................. p3

WWX Report ......................... p4

The Doing Diary ..................... p5

Thanks Canberra Hospital ... p6

Arthritis Friendly Kitchen .... p7

Variety Concert ...................... p7

Beef & red wine stew ............ p8

Food & Arthritis ..................... p9

Beware Scams ......................... p10

Henry Cook remembered ... p10

Genetics & RA ........................ p11

Calendar of events ................. p12

NEWSLETTER

June 2014 VOLUME 17, ISSUE 2

Including

Osteoporosis

ACT

ACT Volunteer of the Year

Award for WWX Team

Over 280 people gathered at the National Museum of Australia on Tuesday, 13th May to celebrate the 2014 ACT Volunteer of the Year Awards in recognition of National Volunteer Week. Volunteering ACT received over 65 nominations this year and 16 unique award winners were honoured during

the festivities.

To our delight Arthritis ACT’s warm water exercise team won the Sport and

Recreation Team award.

The team plan, conduct and supervise 16 warm water sessions per week, spanning four Canberra locations. The team’s generous volunteer service enables these therapeutic hydrotherapy sessions to be accessed by participants at low cost, leading to marked improvements in their health and mobility. The Program also provides a social outlet for people with a

disability.

This dedicated team takes responsibility for the safety and wellbeing of some 6,000 participants over a year so they make sure they stay well trained in

pool rescue and CPR.

Warm Water Exercise coordinator Shirley Syme accepted the award on behalf of the team. To show their support Arthritis ACT CEO, Helen Krig, Arthritis ACT Volunteer of the Year Barbara Walker and Health Promotion

Coordinator, Erica Roughton also attended the awards.

Reduce your risk of a fall!

Strength & Balance

Exercise

8 week program

Starts Tuesday, 1 July 2014

11.00 am

Venue

Gungahlin Community Centre,

47 Ernest Cavanagh Street

Gungahlin

Cost

Members: $20.00

Non-Members $40.00

Instructor

Susan Gurr

Registration

Email - [email protected]

or

Call (02) 6288 4244

L to R: Barbara Walker, Helen Krig & Shirley Syme

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This past March saw many people come out in the rain for the largest annual Arthritis Awareness Week Launch we have held. The launch was held at the Canberra Croquet Club, under inclement weather, but everyone somehow managed to squeeze inside the clubhouse for the proceedings. The Tai Chi society and Croquet Club members braved the elements for demonstrations out in the

rain.

April saw the addition of two new staff members. Erica Roughton joins as our new full time Health Promotion Coordinator and Felicity Thambyah joins us in a Project Officer/Admin Assistant capacity, while still volunteering on her

off day.

Meanwhile, our Indigenous/CALD Warm Water Exercise program that received funding from the ACT Sport and Recreation Service has attracted a great

number of participants and is now full.

We have also been busy reading over the member surveys we handed out in the previous newsletter. Your thoughts, comments, and feedback are greatly appreciated as they are giving us ideas on how we can help improve our services to

our members.

The Austrian Concert at the Albert Hall will be held on Sunday 15 June and has been renamed the Edelweiss and Bluebells Variety Concert. I know that a lot of our members are looking forward to this very popular event that is put on by the Austrian Choir Canberra. This year sees the event under a new director and the program will include English and German songs as well as Austrian favourites. I look forward to seeing you

there.

That is all for now!

Stay healthy and active during the cold

months ahead.

Kind Regards,

Helen Krig

From the CEO

Page 2

Welcome to the second edition of our newsletter for 2014. With the release of the 2014-2015 budget and the cuts to health we are determined more than ever to meet these challenges and work hard to ensure that people living with musculoskeletal conditions won’t

be left behind as many fear.

I must give a special mention to our large and dedicated pool of volunteers for their tireless efforts whilst being a part of the Arthritis ACT family. Without these dedicated individuals we simply would not be able to exist. Those within the Arthritis ACT community certainly know that the best quality of life comes from an active and generous approach to life. We celebrated their contributions and achievements at our Volunteers Morning Tea on 7 May. This year three

special awards were given out to:

Felicity Thambyah – Promising New

Volunteer of the Year for 2014

Barbara Walker – Volunteer of the

Year for 2014.

H a n s B r u n n e r – L i f e - T i m e

Achievement Award

Thank you to all the members that took the time out to nominate these and other outstanding individuals. This year proved to be a difficult one in picking award recipients as there were so many individuals deserving of

awards.

Most importantly I am so proud that our Warm Water Exercise team were awarded the ACT Volunteer Team Award in the Sports and Recreation category for 2014. This award was presented for their work in operating

this valuable service to our members.

We are always in need of extra assistance, so if you have some spare time to help in the office or in any other capacity, please let us know. We would be delighted to accept your help in any way big or small. Please call us at the office and let us know what you’re interested in and we will find some

matching volunteer work for you.

Arthritis ACT

Level 2B

Cameron Community Centre

27 Mulley Street

HOLDER ACT 2611

02 6288 4244

www.arthritisact.org.au

Arthritis ACT Board

2013-14 Ms Anna Hackett (President )

Dr David Graham (Vice President)

Ms. Karen Jones (Secretary)

Mr. Andrew Fleming (Treasurer)

Mrs. Helen Davies

Ms Helen Tyrell

Ms Leanne Bowen

Advertising policy

statement

Products and services advertised in

this newsletter are not necessarily

recommended by the Arthritis Foun-

dation of the ACT. Some readers

may assume that anything that is

advertised in these pages has been

cleared, vetted or in some way ap-

proved by the charity. This is not so.

The Foundation is not equipped to

test and approve products and

services that are available to the

general public. Please exercise your

own judgment about whether the

item or service advertised is likely to

help you personally and, where

appropriate, take professional ad-

vice from your doctor, specialist or

other specific expert before pur-

chasing.

NEWSLETTER

JUNE 2014

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VOLUME 17 , ISSUE 2

Page 3

Introducing Our New Staff……

Felicity Thambyah

Project Officer I was born in Canberra but moved away with my family when I was 15 to Tamworth. I moved back to

Canberra 3 years ago.

I am a chef by trade. After being in the industry for 10 years, I decided to learn a new set of skills and

studied Business Administration at CIT.

I have been volunteering at Arthritis ACT since September 2013. I recently took on a short term tempting contract for e-health and returned to

Arthritis when that was completed.

I am excited about the opportunities and skills that

Arthritis ACT has presented to me.

Erica Roughton

Health Promotion Coordinator I am Canberra born and bred. I completed my schooling at Telopea Park High school, Narrabundah College and the University of Canberra. My passion has always been health and the provision of health knowledge to individuals so that they can assist

themselves.

I also have a love of food and enjoy cooking and baking when I am not working. It therefore seemed only natural to me that I combine these two passions and pursue a career as a Dietitian. I completed an undergraduate degree in Human Nutrition and a Masters of Nutrition and Dietetics. While studying, I worked mainly within customer service roles and upon completion of my studies I began work at the Canberra Hospital, in the Nutrition Department. I provided patients with nutrition knowledge to assist

in recovery and in management of chronic diseases.

I have recently come on board at Arthritis ACT in the position of Health Promotions Co-coordinator and am excited about the future possibilities and

challenges that it provides.

Please note our office will be closed on Monday 9th June -

Queens Birthday public holiday

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NEWSLETTER

JUNE 2014 Page 4

WWX Report

Firstly, a big congratulations to our Warm Water Exercise Program Team for being awarded winners of the Sport and Recreation Category at the 2014 ACT Volunteer of the Year Awards. Personally I would like to thank all the volunteer supervisors who have helped and supported me in the WWX program. Without their help this program would not exist as it has for so many years. I am extremely

proud of us all.

I would also like to take this opportunity to congrat-ulate WWX supervisors Hans Brunner and Barbara Walker on their Arthritis ACT volunteer awards for

2014.

Sadly, Hans Brunner has made the decision to retire as WWX supervisor at the end of May. As our long-est serving supervisor it will be very sad to see him go after so many years of opening up The Canberra Hospital pool twice a week, by 7am, to supervise sessions. His efforts and loyalty to the program and myself are very much appreciated and he will be greatly missed by all. Good luck for the future Hans

and Renata.

It is now an appropriate time to remind all WWX members there is always a need for more supervi-sors to join the team. This is especially so as we lead into the colder weather and some of us escape the Canberra winter for warmer climates. I am plan-ning to catch up with my son and his family in July

and August in what I hope will be an unusually warm English summer. Hopefully I will find a warm pool there to exercise in. If you would like more infor-mation on becoming a WWX supervisor please talk to your pool session supervisor, myself or keep an eye out for information sessions that we will be run-

ning in the coming months.

I would like to apologise to members who have been affected by recent session cancellations due to cool water temperatures. I endeavour to notify you as soon as I know that there is a problem and will continue to do so. Unfortunately, I do not always have much notice with notifications usually coming

in on the morning of the session.

Lastly, please be aware that some of our sessions are quite popular and can therefore be overcrowd-ed. We recommend that you arrive on time to these sessions to avoid disappointment. We also ask that you remain patient and courteous with the supervi-sors as they are doing their best, the decisions that they make are with your best interests and the safe-

ty of others at the forefront of their mind.

Once again, thank you all for your support.

Shirley Syme

Warm Water Exercise (WWX) Coordinator

6288 0964 (home) or

[email protected]

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VOLUME 17 , ISSUE 2 Page 5

The Doing Diary

Do you keep an arthritis pain journal?

Do you understand WHY you are in pain?

Do you pace your weekly tasks of daily living?

Keeping a daily record of what you do during the day (“Doing-Diary”), gives you feedback and infor-mation that may be useful in order to understand your arthritic pain. The process of writing some-thing down forces you to THINK it through until you understand it. It’s better to think about what YOU CAN DO, rather than what you CAN’T DO.

Hence, the “Doing- Diary”.

Often we are confused by why we are in pain. Why am I always stiff on Thursdays and Fridays? Why

does my shooting pain stop after a weekend?

Keeping a “doing diary”, or " daily positive journal", allows us to see and understand where the pain is originating. If we can pin-point what triggers the pain (e.g.: sitting for too long, standing for too

long), we can attempt to change our week.

Five simple rules of a Doing Diary:

1) An empty journal has no value! Give yourself at least several weeks before you can expect to be able to see the benefits (e.g.: pain patterns, trig-

gers, signs, etc.).

2) WRITE in your journal - not type - it's about the process - it's about opening the book, flicking through the pages, listening to your pen touching the paper (we spend enough time at a comput-er!). We are often more creative when we are

writing with our finger.

3) Get organised. Have subtitles in your journal; which will help prevent "writers block". e.g.: Goals achieved; ideas you created; exercises com-pleted (walking, hydrotherapy, home stability pro-gram; swiss ball program, balancing exercises, etc.); work station (seated/standing); where did I

take my breaks; self-management strategies.

4) Review your diary on a regular basis. Take a little time at the end of the day to go over your daily

notes.

Let me know if the Doing-Diary helps you under-

stand your pain.

Remember: Knowledge is power. And think about

what you CAN do.

Kirra Rankin, Exercise Physiologist

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Page 6

NEWSLETTER

JUNE 2014

Dr Peggy Brown Director-General Health Directorate

I was recently admitted to The Canberra Hospital to undergo surgery for bilateral knee replacement. All the staff I encountered provided me excellent personal care and carried out their work with skill and professional-

ism.

Undergoing knee replacement surgery is a long process which has several major milestones and I would like to thank all the staff I encountered during my process. I am now coming up to month 3 since surgery and the

improvement in my quality of life is already phenomenal.

Starting with the surgical booking team, I would particularly like to thank Rodney who was always polite, very

helpful and kept me informed at all stages of the booking process.

Prior to the surgery I attended an education session led by Judy the Clinical Educator. This session was very useful for gaining an understanding of the process I was about to go through step by step. I had lots of ques-tions for the team including how long my surgery would take (2 hours per knee) and how long I would be in hospital (6 or 7 days). Belinda and Sabrina the occupational therapists outlined what I needed to be able do before I could be released from hospital in terms of being mobile and what assistance I would need to carry

out daily living, once I was home.

Corinne, one of the team of physiotherapists, described the process for getting back on my feet following sur-gery. She gave a blow by blow description of each day post-surgery and the exercises I would need to do to get full movement in my new knees as soon as possible. It all sounded very daunting at that stage, particularly

walking 10 metres on day 2 and more than 10 metres on day 3.

Susie the Social Worker spoke next and she described a range of support services that were available to assist patients who lived alone (for example respite care when they first come out of hospital) and also reminded us to make sure we had our legal affairs in order before we came to hospital, just in case we ended up incapaci-tated. Again, this was a very useful session. The surgery itself was quite daunting initially. I was supported by Blaise throughout the preliminary processes and Richard Hocking led the team during the actual surgery. Georgina’s surgical skills were on display and she assured me that she had ‘done’ 120 knees, before mine. I always thought that surgeons were haughty, arrogant and self- obsessed. Thanks to the team for proving me wrong! Everyone displayed skill and professionalism and were friendly and supportive at all times. The anes-thesiologist was also responsive to the fact that I get excessively sick when waking up from surgery and she assured me she would use the drug with the least side effects. This allowed me to wake up in recovery feeling well almost immediately, which I am sure aided in my quick recovery. Also part of this team was Ron one of the theatre nurses, who did an excellent job reassuring me on the way to theatre and getting me settled once

I was there.

Post surgery was when my work really started and Corinne and the other physiotherapy unit staff I encoun-tered, worked me hard the first four weeks. Joanna and Valerie were very supportive, although very focused on getting me to do the exercises in class correctly and for the appropriate amount of time. I understood how critical it was to get the physio done and during the fifth week I also started doing exercises in my local swim-

ming pool, which has helped me get movement in both my knees to 115 degrees within the first 3 months.

While in hospital the nursing staff of Ward 11B were very professional and carried out their work with dedi-cation and good humour and all of my needs were addressed at all times. Everyone I came into contact with

was a professional and seemed to be genuinely happy to be there.

In summary, Thank you to all the staff at the hospital, I have high praise for The Canberra Hospital and I make

sure everyone I know hears about it.

For your information, a copy of this letter will also be published in the June edition of the Arthritis ACT

Newsletter.

Anna Hackett

President Arthritis Foundation of the ACT

Thanks Canberra Hospital

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Page 7 VOLUME 17 , ISSUE 2

6. Run hot and cold

Store your plastic wrap in the freezer to make it less clingy and easier to tear. As it warms up, it’ll stick to your container perfectly. Also, run hot water over plastic lids—the heat makes them

more pliable, so they’re a cinch to snap in place.

7. Keep a scrap bowl nearby Don’t fumble with under-sink garbage pails. In-stead, keep a large bowl on your countertop and

throw all the scraps into it as you go along.

8. Make cleanup a breeze Save time—and elbow grease—by lining baking dishes with aluminum foil or wax paper before cooking. If you’re hosting a big dinner party, use disposable plates, cups and utensils to make

cleanup easier.

9. Go high-tech Crock pots and other slow cookers are excel-lent ways to make a full meal with little effort. Food processors are an effective way to chop

and dice.

10. Plan ahead When you are feeling good, cook up enough food for a week. Store it in your refrigerator and

freezer.

Arthritis associated pain and stiffness can turn cooking into a real chore. Don’t let it! With just a few modifications, you can create an inviting, ar-thritis-friendly kitchen. So go grab your chef’s hat and try these 10 handy tips—you’ll be cooking up a

storm in no time.

1. Get a grip Swap the knobs on your kitchen drawers and cabinets to U-shaped handles—their greater surface area makes them easier to grab. And if your refrigerator door is heavy, tie a loop of fabric around the handle to pull the door open with less effort. Tip: Organize your pots and pans so that the

ones you use most often are in the front.

2. Take a seat Keep a stool about the height of your counter-top—being able to sit while you pare, chop and

dice can help you preserve energy.

3. Look for “aha” uses Think outside the box with your cooking tools. For example, use an apple cutter to cut up fruits and vegetables if you find it easier to han-dle than a knife. Or try a bamboo steamer that allows you to cook three separate food courses

at once.

4. Choose Arthritis-friendly utensils Make sure your pots are lightweight, with two handles that are easy to grip. Also look for sili-cone kitchen tools, like spoons and spatulas. These are great because silicone is easy to bend and clean—and they also come in an assort-ment of colours that can brighten up any kitch-en! And just to be sure, grip, bend, squeeze and do anything else you can to test a utensil before

you buy!

5. Minimize lifting Place an empty pot on the stove first before you fill it with water. Then use a smaller con-tainer to fill the pot. This avoids putting extra

strain on your joints.

10 Steps to a More Arthritis-friendly

Kitchen

Edelweiss and Bluebells Variety Concert

Order Your Tickets Today! Call 6288 4244

Hosted by Jeremy Hanson - MLA

ALBERT HALL

15 June 2014 2 - 4.30 pm

Entry $30 (adults) $25 (concession) Children under 5 free

Order now securely on line at https://www.arthritisact.org.au/member/misc/events/

The Austrian Choir Canberra under the direction of Liz Fyfe will present a variety concert in

support of Arthritis ACT featuring much loved Austrian and English language songs.

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Page 8

NEWSLETTER

JUNE 2014

Slow Cooked Beef and Red Wine Stew

Ingredients:

1kg gravy beef or round steak, cubed 3cm 2 rashers bacon, chopped into 1cm strips

2 onions, chopped in rough dice 2 potatoes, chopped into 1cm dice

10 button mushrooms, halved I tsp crush garlic

1 carrot, sliced 1 Tablespoon tomato paste

2 Bay leaves ½ cup (125mL) good quality beef stock

½ cup (125mL) red wine Seasoning (salt and pepper)

1 Tablespoon Worcestershire sauce

Method:

1. Chop all ingredients

2. Heat a frying pan. Brown the meat and add to the slow cooker. (Browning the meat adds flavour to the

stew)

3. Place all remaining ingredients in the slow cooker.

4. Cover and cook on low for 8 hours, or high for 3 hours. Alternatively, if you don’t own a slow cooker,

place ingredients in a casserole dish, cover and cook in the oven 170°C for 2 hours.

5. Check that meat is tender. If not, cook a little longer. Season to taste.

6. Serve with mashed pumpkin or rice.

* Tips Don’t worry if it appears that there is not much liquid at the start. The vegetables and meat will produce more

liquid and the potato will act as a thickener.

TAI CHI

A Program for Better Living

6 week program

Starts Friday, 15th August 2014

10.30 - 11.30 am

Venue

Gungahlin Community Centre,

47 Ernest Cavanagh Street

Gungahlin

Cost

Members: $20.00

Non-Members $40.00

Instructor

Taoist Tai Group

Registration

Email - [email protected]

or

Call (02) 6288 4244

Hans Peter Studer

The President and members of Arthritis ACT are saddened

by the passing of Hans Peter Studer former member of the

Foundation. Our sympathies go to his wife Priska, his family

and friends.

Thank you to those who made donations to the foundation

at Han’s request.

Margaret Jones Monica Young

Canberra Swiss Club Beatrice Guppy

Ursula Conan-Davies Mr. & Mrs. Luzzi

Nina Wirth & many others.

Rest in Peace

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Page 9 VOLUME 17 , ISSUE 2

Food and Arthritis

A Dietitian Discussion and Cooking Demonstration

Tuesday 17 June 2014

10:30 am – 12:00 pm

Apollo Room, Canberra Woden Hellenic Club

Featuring Guest Speaker:

Jenelle Croatto

An Accredited Practicing Dietitian who will speak on the topic of nutrition for

management of osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, gout

and psoriatic arthritis.

Followed by a cooking demonstration by

Felicity Thambyah Qualified Chef who will be preparing a delicious arthritis friendly meal with free

taste testing at the completion.

Entry by gold coin donation

RSVP by JUNE 13th to Arthritis ACT

on

Ph: 02 6288 4244

Email: [email protected]

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Page 10 NEWSLETTER

JUNE 2014

HENRY COOK On Monday 12th May several longstanding members of Arthritis ACT attended the Funeral Service for

Henry Cook, who died the previous week.

Henry made a very significant contribution to the Arthritis Foundation of the ACT over many years. He occupied many positions on the Board during those years including Secretary, Treasurer (and on occasions both positions) and President. He also served a period as the ACT representative on the

Board of Arthritis Australia.

Henry gave unstiltingly of his time and expertise and was meticulous in all he undertook, including his photograph records of our activities. All those who knew Henry held him in the highest regard and we

are saddened by his passing.

Watch out for Scams!

Automated scam calls claiming to be from

Qantas with bogus holiday win

How this scam works

You receive a phone call out of the blue to your mobile, home or work phone and, when you answer, it goes straight to an automated message

claiming to be from Qantas.

If you have recently flown or booked with Qantas, the recorded message may sound like it’s the real deal as the caller thanks you for choosing Qantas and claims that you have been chosen to receive $999 in a ‘travel prize’, ‘credit points’ or even ‘frequent flyer points’ towards

your next trip.

The automated message will direct you to press

‘1’ to find out more information.

If you dial ‘1’, you will be put directly through to someone claiming to be a representative of Qantas. The caller may congratulate you on your win before stating that you must answer a series of questions in order to qualify for the prize. The caller will typically ask whether you are aged over 30, have a valid credit card, and then finally ask for your credit card details in order to pro-

cess the prize.

If you hand over your credit card details, you will find that money has been taken rather than de-

posited from your bank account.

More information: Please call 1300 795 995, or visit: http://www.scamwatch.gov.au/content/index.phtml/itemId/1139946

Phone calls about your internet connection SCAM watch and Telstra are warning consumers

to hang up the phone if they receive a call out of

the blue from someone claiming there is a problem

with their internet connection or computer.

How this scam works

You receive a phone call out of the blue from someone claiming to be a representative of Tel-stra or Telstra BigPond®. They may sound like the real deal, claiming to be from ‘Telstra Tech-

nical Support’ and using technical jargon.

The caller claims that you need to take immedi-ate action to avoid your internet connection being terminated or disconnected, as your computer has been hacked or infected with malware and are threatening Telstra’s internet

infrastructure.

In order to fix the problem, the caller will claim that you will need to pay them a service fee (typically around $10) to have a specialist look at your computer. They will also ask you to download a software program so that they can gain remote access to your computer and run a scan.

More information: Please call 1300 795 995, or visit: http://www.scamwatch.gov.au/content/index.phtml/itemId/1134129

Edelweiss and Bluebells Variety

Concert

Order Your Tickets Today!

Call 6288 4244

Hosted by Jeremy Hanson - MLA

ALBERT HALL

15 June 2014 2 - 4.30 pm

Entry $30 (adults) $25 (concession)

Children under 5 free

New Program!!!

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VOLUME 17 , ISSUE 2 Page 11

Centre director Professor Jane Worthington add-ed: "Now that we have established a genetic basis for these two types of rheumatoid arthritis, we hope it will lead to patients receiving a swifter, ac-curate diagnosis and more appropriate, targeted treatment. These findings have opened the door to a better understanding of sero-negative rheumatoid

arthritis."

A new international study has revealed how genetics could explain why different environmental exposures can trigger the onset of different forms of rheuma-

toid arthritis.

A team at the Arthritis Research UK Centre for Ge-netics and Genomics at The University of Manches-ter, part of a large international consortium involving scientists from across 15 academic institutions, be-lieve their findings could have important implications for the way that rheumatoid arthritis is diagnosed

and treated.

Publishing their findings in the journal American Jour-nal of Human Genetics, they say that more accurate clinical testing is now needed to better identify the less-well understood type of rheumatoid arthritis and

to prevent it being misdiagnosed.

Rheumatoid arthritis is a serious inflammatory form of arthritis, affecting almost 400,000 people in the UK, which causes painful, swollen joints, and in se-vere cases, considerable disability. It is known to

have strong genetic and environmental components.

It was already known that a proportion of rheuma-toid arthritis patients test positive for autoantibodies, whilst about 30% remain sero-negative. In this study, the researchers have better defined the genetic dis-tinction between these two disease subtypes: sero-

positive and sero-negative rheumatoid arthritis.

They have now established that different genetic vari-ants of a protein that plays a vital role in how the body's immune system fights infection are associated with the two forms of rheumatoid arthritis. This pro-vides clues to the theory that exposure to different infectious agents, such as bacteria or viruses, trigger the different forms of rheumatoid arthritis in suscep-tible individuals. Sero-negative rheumatoid is less well understood than sero-positive, and patients who have this type of arthritis can be misdiagnosed, lead-

ing to inappropriate treatment.

Dr Steve Eyre from the genetics and genomics centre in Manchester commented: "We recognise that rheu-matoid arthritis is a complex disease that can have variable presentation and outcomes for different peo-ple, in particular in the way they respond to treat-ment. These findings add to our ability to genetically define subtypes of rheumatoid arthritis, which is an important step towards selecting the best treatment

for each patient."

Genetics and Rheumatoid Arthritis

Changes to Rheumatologist

locations

Dr Kathie Tymms* continues to work out of

Canberra Rheumatology

40 Marcus Clarke St (or PO Box 1194) CANBERRA CITY ACT 2601 Phone: 6230 6305

Fax: 6230 6307

*Dr Tymms also specialises in Paediatric Rheumatology

Dr Kenneth Khoo, Dr Anna Dorai Raj and Dr

Suren Jay Aweera* have relocated to

Rheumatology ACT

Level 1, Bowes Place WODEN ACT 2606 Phone: 6260 3796

Fax: 6260 3042

*Dr Aweera is available once a month

Page 12: NEWSLETTER - Arthritis ACT · and the program will include English and ... schooling at Telopea Park High school, ... listening to your pen touching

CALENDAR OF EVENTS

June 2014

Thursday 12 June RA & Sjogren's Interest Group

Time: 10:30 am - 12 noon

Venue: Hellenic Club, Matilda St, Phillip

Sunday 15 Edelweiss and Bluebells Variety Concert

Time: 2.00 pm – 4.30 pm

Venue: Albert Hall, Commonwealth Avenue, Yar-

ralumla

Cost: Adult $30.00 - Concession $25.00

To purchase tickets call (02) 6288 4244

Tuesday 17 Food and Arthritis Presentation

Time: 10.30 am – 12.00 noon

Venue: Apollo Room, Hellenic Club Woden

Cost: Gold coin donation

Speaker: Jenelle Croatto - Accredited Practicing Dietitian

Registration: E: [email protected] or call (02) 6288 4244

Thursday 19 Chronic Conditions Seminar Series

Mindfulness to Reduce Stress

Time: 7.00 pm

Venue: Shout Offices - Large Conference Room,

Pearce Community Centre, Collett Place,

Pearce

Speaker: Sue Hays, Simply Mindful - Canberra Mindful-

ness Centre

July 2014

Tuesday 1 Strength & Balance (Day 1 of 8)

Time: 11:00 am - 12 noon

Venue: Gungahlin Community Centre,

47 Ernest Cavanagh Street, Gungahlin

Cost: Members: $20.00 Non-Members $40.00

Instructor: Susan Gurr

Registration: E: [email protected] or call (02) 6288 4244

Monday 7 Arthritis Support Group

Time: 10:30 am - 12 noon

Venue: Hellenic Club, Matilda St, Phillip

Page 12

July 2014 (cont.)

Thursday 10 RA & Sjogren's Interest Group

Time: 10:30 am - 12 noon

Venue: Hellenic Club, Matilda St, Phillip

Thursday 17 Chronic Conditions Seminar Series

Practical Solutions to Everyday Life

Activities.

Time: TBA - day session

Venue: Shout Offices - Large Conference Room, Pearce Community Centre, Collett Place,

Pearce

August 2014

Monday 4 Arthritis Support Group

Time: 10:30 am - 12 noon

Venue: Hellenic Club, Matilda St, Phillip

Wednesday 6 Canberra's Big Healthy Bones

Morning Tea

Time: 9.30 am - 11.00 am

Venue: TBA

Thursday 14 RA & Sjogren's Interest Group

Time: 10:30 am - 12 noon

Venue: Hellenic Club, Matilda St, Phillip

Friday 15 Tai Chi for Arthritis (Day 1 of 6)

Time: 10:30 am - 11.30 am

Venue: Gungahlin Community Centre,

47 Ernest Cavanagh Street, Gungahlin

Cost: Members: $20.00 Non-Members $40.00

Registration: E: [email protected] or call (02) 6288 4244

Thursday 21 Chronic Conditions Seminar Series

Psycho-neuro-immunology for Pain

Time: 7.00 pm

Venue: Shout Offices - Large Conference Room, Pearce Community Centre,

Collett Place, Pearce

Speaker: Randolph Sparks

randolphsparks.com.au