ALS Ice Bucket Challenge

Presented by Carrie Munk,

Chief Communications and Marketing Officer

Stats:

• ALS was the sixth most searched term of 2014

• 17 million people uploaded Ice Bucket Challenge

videos to Facebook

• These videos were watched by 440 million

people…10 billion times

2

Origins:

3

ALS

• ALS = amyotrophic lateral sclerosis

• It affects somewhere between 12 and 30,000

people every year

• One drug approved by the FDA Association

• The ALS Association

– 39 chapters across the country

– We fund global research

– Provide care to people living with the disease

– Advocate on their behalf

4

ALS Ice Bucket Challenge

5

ALS Ice Bucket Challenge

6

Slactivism

• “If you've been on Facebook, Twitter or Instagram

in the last week, you've probably seen it: countless

videos of people dumping ice on themselves to

help raise awareness of ALS. It's done a

tremendous job at getting people to talk about a

truly debilitating disease—but that's mostly all it's

done—get people to talk.”

- Huffington Post, August 7, 2015

7

Ice Bucket Challenge

Crisis Communications

“A lie gets halfway around the

world before the truth has a

chance to get its pants on.”

–Winston Churchill

9

Crisis Communications

10

ALS Ice Bucket Challenge

11

ALS Ice Bucket Challenge

12

ALS Ice Bucket Challenge

13

• The ALS Ice Bucket Challenge: “The best problem

a charity could every have.”

Transparency

14

ALS Ice Bucket Challenge

15

16

Thank you!