Punjab Thalassaemia Prevention Programme

(PTPP)

E-Newsletter: Thalassaemia Day Especial

June 2013

Preface

Punjab Thalassaemia Prevention Program (PTPP) is an initiative of Government of Punjab, Pakistan. It aims to prevent Thalassaemia major in the country.

Currently, the programme is operational in 16 districts of Punjab (Lahore, Rawalpindi, Multan, Bahawalpur, Sheikupura, Kasur, Gujranwala, Faisalabad, Vehari, Khanewal, Lodhran, Muzaffargarh, Bahwalnagar, Jhelum, Attock & Toba Tek Singh) and gradually this program will be introduced to all 36 districts of Punjab. The PTPP is providing following services at no cost to the Thalassaemia community and general public:

• Thalassaemia awareness

• Extended Family Screening

• Genetic Counseling

• Pre-natal Diagnosis through CVS

• Pre-marital screening for the general public

Dear friends: enjoy the first e-newsletter of PTPP that will provide you brief details of most recent activities of the organization. Your feedback/suggestions shall be appreciated.

Yours Sincerely,

Editorial Team

Punjab Thalassaemia Prevention Programme

Sir Ganga Ram Hospital, Lahore, Pakistan

Ph: 042-36373872-3 email: navidtahir2003@yahoo.com

navidtahir1122@gmail.com, Web: www.ptpp.pk

Thalassaemia Awareness Week

8th May is celebrated internationally as Thalassaemia awareness Day. Therefore, Punjab Thalassaemia Prevention Program (PTPP) has organized many activities (i.e. Seminars, Awareness camps and Walks) in different districts of Punjab. Following were the major activities in this regard:

Background

• Six Thalassaemia Awareness Seminars were organized in Lahore, Rawalpindi, Faisalabad, Kasur, Multan, Sheikupura and Vehari districts.

• An Awareness activity was also arranged at Chattar Park near Murree. • Thalassaemia Awareness and pre-marital screening camps were organized in 16

districts of Punjab. • Thalassaemia awareness walks were organized in Multan, Muzaffargarh, Vehari,

Bahawalnagar, Khanewal, Bahawalpur and Attock districts.

PTPP Lahore has organized a Seminar with the theme: Preventing Thalassaemia; Saving Generations at main auditorium of Fatima Jinnah Medical College (FJMC) Lahore on 4th May 2013. In this seminar there were over 300 participants that included Thalassaemic children/parents, medical students and faculty/doctors of FJMC, Sir Ganga Ram Hospital Lahore, King Edward Medical University, Lahore General Hospital, Children Hospital Lahore and many other organizations. Following were the guest speakers: Prof. Dr. Rakshanda Tayyab (chief guest), Prof. Dr. Javaria Manan, Prof. Dr. Yasmin Rashid, Lt. General Moin U Din Haider, Major General Dr. Suhaib Ahmad, Prof. Dr. Shamsa Humayun & Dr. Nisar Ahmad.

Thalassaemia Awareness Seminar in Lahore

PTPP Rawalpindi has organized a Seminar at Rawalpindi Medical College (RMC) on 8th May 2013.Following were the guest speakers: Prof. Dr. Raia Asghar, Brig. Dr. Parwez, Maj. Gen. Dr. Sohaib Ahmad, Prof. Dr. Atifa, Prof. Dr. Rizwana Choudary & Prof. Dr. Shoaib Shafi.

Thalassaemia Awareness Seminar in Rawalpindi

PTPP Multan has organized a Seminar at Children Hospital, Multan on 8th May 2013. The main speakers of the event were, Dr. Rana Aftab, Dr. Aslam Sheikh, Mr. Kamran Ishafaq and Dr, Shahid Hafeez.

Thalassaemia Awareness Seminar in Multan

PTPP Kasur has organized a Seminar at TMA Hall, Kasur on 7th May 2013. The main speakers of the event were, Dr. Rana Waqar Sadiq, Dr. Hafiz Qamar Irshad, Dr. Khalid Mahmood and Mr. Muhammad Naveed Tahir.

Thalassaemia Awareness Seminar in Kasur

PTPP Faisalabad and DHQ Hospital Faisalabad have organized a Seminar at Thalassaemia treatment centre on 8th May 2013. The main speakers of the event were: Dr. Nisar Ahmad and Dr.Falakghir.

Thalassaemia Awareness Seminar in Faisalabad

PTPP and Ripah Welfare Foundation sheikupura has organized a seminar at DHQ Hospital, Sheikupura on 22nd May 2013. The main speakers of the event were, Prof. Dr. Shamsa Humayun, Dr. Nisar Ahmad, Dr. Babar Ameen, Dr. Mubashir Ahmad, Mr. Mian Javeed Latif (MNA) and Mr. Hamid Mahmood.

Thalassaemia Awareness Seminar in Sheikupura

Thalassaemia Awareness Camps and Walks

PTPP has also organized Thalassaemia Awareness Camps (TAC’s) and Walks in different districts of Punjab. During these TAC’s besides providing information on Thalassaemia, pre-marital screening camps were also arranged.

Multan: TAC & Walk

Bahawalnagar: TAC & Walk

Bahawalpur: TAC & Walk

Kasur: TAC & Walk

Khanewal: TAC & Walk

Rawalpindi and Attock: TAC

Jhelum and Muzaffargarh: TAC & Walk

Extended Family Screening Results (06-06-2013)

Districts No. of

Families screened

Total No. of

Samples collected

Total samples

screened Carrier Non carrier

Gujranwala 47 531 448 147 289

Kasur 25 353 318 119 196

Bahawalnagar 22 451 379 142 232

Rahem Yar Khan 1 4 4 2 2

Jhelum 14 253 220 72 148

Faisalabad 45 587 493 168 325

Multan 13 287 275 98 169

Vehari 29 592 632 164 459

Bahawalpur 10 206 166 59 99

Attock 17 323 97 33 58

Sheikhupura 18 290 253 89 164

Lodhran 33 703 485 179 295

Toba tek singh 38 865 820 223 593

Lahore 42 340 306 122 182

Khanawal 19 307 266 91 170

Muzaffargarh 29 902 915 300 596

Rawalpindi 16 396 288 77 207

Rajanpur 1 31 31 7 24

419 7421 6396 2092 4208

CVS Tests Report

Contact Us:

Regional Centre (Lahore)

2nd Floor, New Emergency, Sir Ganga Ram Hospital,Lahore. Email:ptprpoject@hotmail.comTel: 042-36373872-3

Focal Person: . Muhammad Navid Tahir

Project Coordinator

Regional Centre (Multan) Children Complex, Hospital, Multan.

Focal Person: Dr. ShahidHafeez

Regional Coordinator, Punjab Thalassaemia Prevention Programme

Children Complex, Hospital, Multan. Cell #: 0333-6220957

Regional Centre (Bahawalpur) Bahawal Victoria, Hospital, Bahawalpur.

Focal Person: Mr. Naveed Ijaz

Regional Coordinator, Punjab Thalassaemia Prevention Programme

Bahawal Victoria Hospital, Bahawalpur Cell #: 0300-9686379

Regional Centre (Rawalpindi) Holy Family, Hospital, Rawalpindi.

Focal Person: Col. ® ShafiUllah

Regional Coordinator Punjab Thalassaemia Prevention Programme

Holy Family, Hospital, Rawalpindi. Cell #: 0306-5248850, 03347727675

40

2012

0

5

10

15

20

25

Carrier Non carrier Major

Total CVS cases= 72