Meeting the Mental Health Needs of People with

Intellectual Disabilities: Training for Mental Health Providers

Presenter:Katie Kimball, MSW Candidate

Discipline: Social WorkFaculty Mentor: Sally Stuart, PhD, LICSW

Background- Prevalence

• People with ID experience mental illness at an increased rate that is greater than the general population.

• It is estimated that 30-35% of those with ID have a co-occurring mental health disorder compared with 15-19% in the general population.

Background- Barriers to Accessing Services

• Provider capacity and a shortage of professional expertise OvershadowingAtypical presentationDifferences in communication styles

• Design and operation of the existing delivery systems and funding

Background

• Origination of The Guidebook concept

• Collaboration • Intention

Background

• Vision: To optimize mental health services for individuals with intellectual disabilities

• Mission: To provide an effective framework for building awareness, developing competencies and facilitating collaboration

Training

• Consistent with Adult Learning Theory and Social Cognitive Learning Theory, a curriculum was developed which includes an interactive training: power point presentation; supporting activities; scenarios and work sheets; and supporting documents including a guidebook

• The training is intended for mental health providers who serve or would like to serve people who experience ID. It is an in-person, one-time, interactive, 6 hour training with free Continuing Education Units.

Training Objectives

• The Guidebook Project• Background• What is Intellectual Disability? • Mental Health and ID• Accessing Mental Health

Services

Training objectives

• Guiding Principles and Values• Optimizing Mental Health

Services• Benefits of Mental Health

Services

Outcomes

Anticipated Outcomes

Outcome 1: Increased awareness, knowledge and competency of MH providers regarding meeting the MH needs of people with ID.

Outcome 2: Reduced barriers to received MH services

Outcome IndicatorsIndicator 1A: MH providers report increased awareness and knowledge regrading meeting the MH needs of people with ID. Indicator 1B: MH providers understand barriers to consumers receiving MH services. Indicator 2A: MH providers are able to meet the needs of diverse populations.Indicator 2B: MH providers report increased competency regarding meeting the MH needs of people with ID.

Outcomes

Evaluation Criteria

Pre test and post test

Survey

Next Steps

• Pursue CEU’s through DSHS• Finalize plan for launch of training

Wish me luck with implementation!

AcknowledgementsThe Guidebook was presented at the COD Conference 2016.

Original presenters included: Katie Kimball, MSW-c, Phil Diaz, PhD,Jessica Shook, LMHC, & David O’Neal, MS

Developmental Disabilities Council and the artists

(All artwork used with permission/consent)

AcknowledgementsRoads to Community Living, Developmental Disabilities Administration,

Behavioral Health Administration, Sound Mental Health and Kitsap Mental Health Services

References/Resources• American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders 5th ed). Arlington, VA: American Psychiatric Association.

• Department of Developmental Disability Neuropsychiatry (2014). The Guide: Accessible Mental Health Services for People with an Intellectual Disability, a Guide for Providers. University of New South Wales, Sidney, Australia. ISBN 978-0-7334-3431-0.

• Werges, D. (2007). The Other Dual Diagnosis: Intellectual Disability and Mental Illness. NADD Bulletin 5(5).

• Fletcher, R., Loschen, E., Stavrakaki, C., & First, M. (Eds.). (2007). Diagnostic Manual -- Intellectual Disability (DM-ID): A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability. Kingston, NY: NADD Press.

• Bouras, N. and G. Holt, Mental Health Services for Adults with Intellectual Disability: Strategies and Solutions. 2010, Taylor and Francis: Hoboken.

• Cooper, S., Smiley, E., Morrison, J., Williamson, A. & Allan, L. (2007). Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. British Journal of Psychiatry, 190(1), 27–35.

• Larson, S.A., Lakin, K.C., Anderson, L.L., Kwak, N., Lee, J.H., Anderson, D. (2001). Prevalence of mental retardation and developmental disabilities: Estimates from the 1994/1995 National Health Interview Survey Disability Supplements. American Journal on Mental Retardation, 106, 231-252.

• Lunsky, Y., Weiss, J., O’Grady, C., & Skinner, W. (2013). A Family Guide to Dual Diagnosis. Retrieved from http://store.camh.net/home.php

• Dykens, E. M., Hodapp, R. M. & Finucane, B. M. (2000). Genetics and mental retardation syndromes: A new look at behavior and interventions. Baltimore, MD, US: Paul H Brookes.

• Kerr, M. (2006). Improving the general health of people with intellectual disabilities. Directions in Psychiatry, 26, 235–240.

• Deb, S. & Hunter, D. (1991a). Psychopathology of people with mental handicap and epilepsy: II. Psychiatric illness. British Journal of Psychiatry, 159, 826–830.

• Deb, S. & Hunter, D. (1991b). Psychopathology of people with mental handicap and epilepsy: III. Personality disorder. British Journal of Psychiatry, 159, 830–834.

• Hulbert-Williams, L. & Hastings, R.P. (2008). Life events as a risk factor for psychological problems in individuals with intellectual disabilities: A critical review. Journal of Intellectual Disability Research, 52, 883–895.

References/Resources• Robinson, E.G. & Rathbone, G.N. (1999). Impact of race, poverty, and ethnicity on services for persons with mental disabilities: Call for cultural competence. Mental

Retardation, 37, 333–338.

• Masi, G. (1998). Psychiatric illness in mentally retarded adolescents: clinical features. Adolescence, 33, 425–434.

• Lunsky, Y., Bradley, E., Durbin, J., Koegl, C., Canrinus, M. & Goering, P. (2006). The clinical profile and service needs of hospitalized adults with mental retardation and a psychiatric diagnosis. Psychiatric Services, 57(1), 77–83.

• Moseley, C. (2004). Picking Up the Pieces of Our Own Mistakes: Supporting People with Co-Occurring Conditions. Retrieved from http://www.nasdds.org

• World Health Organization (2001). Mental Health and Intellectual Disabilities: Addressing the Mental Health Needs of People with Intellectual Disabilities. Retrieved from http://www.who.int/.../world_report/2011/report.pd

• The Arc (2016). Mission Statement. Retrieved from http://www.thearc.org/who-we-are/mission-and-values

• United States Department of Health and Human Services, Substance Abuse and Mental Health Services Administration (2012). SAMHSA’s Working Definition of Recovery: 10 Guiding Principles of Recovery. Rockville, MD: Author.

• United States Department of Health and Human Services, Administration for Community Living (2000). Administration on Intellectual and Developmental Disabilities (AIDD): The Developmental Disabilities Assistance and Bill of Rights Act of 2000. Public Law 106-402; 106th Congress.

• Washington State Department of Social and Health Services, Developmental Disabilities Administration (2013). Residential Service Guidelines. Retrieved from https://www.dshs.wa.gov/sites/default/files/DDA/dda/documents/rs_guidelines.pdf

• Washington State Department of Social and Health Services, Developmental Disabilities Administration (2013). Residential Service Guidelines. Retrieved from https://www.dshs.wa.gov/sites/default/files/DDA/dda/documents/rs_guidelines.pdf

• State of Maine, Substance Abuse and Mental Health Services (2011). Mental Health Services: Practice Guidelines for Recovery Oriented Care. Retrieved from https://www.maine.gov/dhhs/samhs/mentalhealth/wellness/recovery/documents/recovery-guidelines.doc.

• Substance Abuse and Mental Health Services Administration (2010). Recovery-Oriented Systems of Care (ROSC) Resource Guide. Retrieved from http://www.samhsa.gov/sites/default/files/rosc_resource_guide_book.pdf

References/Resources• Florida Developmental Disabilities Council Incorporated (2009). Guidelines for Understanding and Serving People with Intellectual Disabilities and Mental,

Emotional, and Behavioral Disorders. Florida: Human Systems and Outcomes, Inc.

• Morgan, V., Leonard, H., Bourke, J., & Jablensky, A. (2008). Intellectual disability co-occurring with schizophrenia and other psychiatric illness: population based study. The British Journal of Psychiatry, 193 (5), 364-372. DOI: 10.1192/bjp.bp.107.044461

• Reid, A. H. (1972). Psychoses in adult mental defectives: 1. Manic depressive psychosis. BritishJournal of Psychiatry, 120, 205-212.

• Ruedrich, S. (1993). Bipolar mood disorders in persons with mental retardation: assessment and diagnosis. In R. J. Fletcher & A. Dosen (Eds.), Mental Health Aspects of Mental Retardation: Progress in Assessment and Treatment (pp.111-129). New York: Lexington.

• Deb, S., Thomas, M. & Bright, C. ( 2001). Mental disorder in adults with intellectual disability: prevalence of functional psychiatric illness among a community-based population aged between 16 and 64 years. Journal of Intellectual Disability Research, 45, 495– 505.

• Sobsey, D. (1994). Violence and abuse in the lives of people with disabilities: The end of silent acceptance? Baltimore: Paul H. Brookes Publishing Co.

• Morasky, R. (2007). Making Counseling/Therapy Intellectually Attainable. NADD Bulletin, X, 3. Retrieved from http://thenadd.org/nadd-bulletin/archive/volume-x/

• Avrin, S., Charlton, M., & Tallant, B. (1998). Diagnosis and treatment of clients with developmental disabilities. Unpublished manuscript, Aurora Mental Health Center.

• Hingsburger, D. (1998). Do?Be?Do?: What to Teach and How to Teach People with Developmental Disabilities. Barrie, Ontario: Diverse City Press.

• Hassiotis, A., Serfaty, M., Azam., Martin, S., Strydom, A., & King, M. (2012). A Manual of Cognitive Behavior Therapy for People with Learning Disabilities and Common Mental Disorders, Therapist Version. London: Camden & Islington.

• Razza, N., & Tomasulo, D. (2005). Healing Trauma: The Power of Group Treatment for People with Intellectual Disabilities. Arlington, VA: American Psychiatric Association.

• Yalom, I., & Leszcz, M. (2005). The Theory and Practice of Group Psychotherapy (5th ed). New York, NY: Basic Books.

• Washington Administrative Code chapter 388-823

• Dorland & Dorland (1995). Dorland’s Pocket Medical Dictionary (25th ed). Philadelphia, PA: W.B. Saunders Co.