Latest news from the world of childrens palliative care mar 2014

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Page 1: Latest news from the world of childrens palliative care mar 2014

EAPC Report published on core competencies in education on PPC With the support of the Maruzza Foundation, the European Association for Palliative Care

(EAPC) has published a document outlining core competencies for education in children’s

palliative care.An important document has been published and is now available for

download which provides a guide to core competencies for education in children’s

palliative care. The report was compiled by the EAPC’s Children’s Palliative Care

Education Task Force. The writing of the report was supported by the Fondazione

Maruzza Lefebvre D’Ovidio Onlus (The Maruzza Foundation) an independent non‐profit

organization based in Rome, Italy, that advocates globally for effective and sustainable

palliative care and pain management for all those in need. Read more

A good reason to be in Rome this November The 2nd Congress on Paediatric Palliative Care – A Global Gathering, is set to take

place in Rome, Italy from 19 – 21 November 2014. Abstract submission deadline is 15

June. The goal of the 2nd Congress on Paediatric Palliative Care is to engage with

professionals working with critically ill children worldwide by providing an international

forum for interdisciplinary knowledge sharing where experiences, current topics and new

perspectives on key issues regarding palliative care for children and their families can be

debated, compared and discussed. Abstracts should focus on work that introduces new

ideas and/or concepts; new research findings and advances to the field of Paediatric

Palliative Care, as well as analysis of both success and failure. Read more

Support the ICPCN Mumbai Declaration 2014

The ICPCN Mumbai Declaration reads:

We believe that all children (neonates, children and young people) have the right to the

best quality of life. When they have life-limiting conditions they have the right to high

quality palliative care to meet their needs.

We believe that euthanasia is not part of children’s palliative care and is not an alternative

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Page 2: Latest news from the world of childrens palliative care mar 2014

to palliative care. It is imperative that we work together to improve access to children’s

palliative care around the world, including ensuring access to appropriate pain and

symptom control.

We call on all governments to transform children’s lives through the development of

children’s palliative care, and in particular we urge the Belgian government to reconsider

their recent decision to allow euthanasia of children.

This includes:

1. Access to children’s palliative care within the children’s health care system

2. Access to appropriate pain and symptom management (including medications)

for all children

3. Supporting children and their families to be able to live their lives to the best of

their ability for as long as possible.

Support the declaration

Do you get the feeling you are missing out? Sign up for weekly ehospice alerts. Did you know that there is an International Children's edition of ehospice? Stories,

articles, up-to-the-minute news and reviews about what is happening in the international

world of children's palliative care are regularly uploaded to the ehospice site. Click hereto

keep one step ahead by signing up to receive daily or weekly alerts. Contributions to the

children's edition of ehospice in the form of articles, book reviews, opinion pieces and

general news are welcomed. To contribute, please contact the editor [email protected]

Extended abstract deadline for 3rd International Children's Hospice Congress to be held in Pécs, Hungary The ‘Touching rainbows’ 3rd International Children’s hospice Congress will be held

in Pécs, Hungary with the support of the International Children’s Palliative Care Network

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(ICPCN) and the Light of My Eyes Foundation. The broad theme of the congress is pain

management of incurably ill children and young adults. The deadline for abstracts has

been extended to 31 March 2014. Read more

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