Jelle van Dijk DESIGN YOUR LIFE - Network Autism · Jelle van Dijk University of Twente,...
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Jelle van Dijk University of Twente, Netherlands Autism and Technology London Sept 20, 2018 (this is a draft version) DESIGN YOUR LIFE
Transcript of Jelle van Dijk DESIGN YOUR LIFE - Network Autism · Jelle van Dijk University of Twente,...
JellevanDijkUniversityofTwente,Netherlands
AutismandTechnologyLondonSept20,2018(thisisadraftversion)
DESIGNYOURLIFE
JellevanDijk• AssistantProfessor• UniversityofTwente
• HumanCentredDesignGroup
• Backgroundincognitive(neuro)science• PhdinIndustrialDesign
• Twitter:@theblub
Thanksto:UniversityofTwente,HANuniversity,UtrechtUniversityofAppliedSciences,ValerieMencke,MelinaKopke,NielsvanHuizen,LauraBeunk,ThomasRaub,AlexClaassenandallotherparticipantsandstudents(unfortunatelytoomanytomentionbyname)Philadelphiahealth-careThePOWERTOOLSproject
AnnieM.G.Schmidt:PlukvandePetteflet.|ArtistFiepWestendorp
Changetheworldsuchthatitfitstowhoyouare
‘Masking’issometimesunavoidable,butshouldneverbethegoalofadesign
Summary• InthistalkIwillpresentanumberofcriticalco-designresearchstudies.Thesestudiesfigurenewconceptsforinteractivetechnologies,designedtosupportyoungautisticadultsinlivingindependently.Basedonthesecasestudies,Iwishtoargueforrejectingsomeconventionalideasoftechnologyasinstructing,astrainingoras‘persuading’peopletoperformindesirable,normativeways.Instead,Iargueforanewtypeofinteractivetechnologydesignedtobecomeanadaptivereflectivescaffold.Withsuchscaffoldsyoungadultsonthespectrummaydeveloptheirownsupportivelifeworlds.Idiscusssomeoftheimplicationsofthisconceptualreframingbothforcarepracticesaswellasforassistivetechnologydesign.
Disclaimers
• Nohardevidenceofanythingwillbepresentedinthistalk• Thetitle‘designyourlife’ishighlymisleading:lifecannotbedesigned,itshouldbe‘lived’• Theproductspresentedinthistalkcannotbeboughtinanystore• Iamnotevenarealdesigner
Design,technology,andautism
(AutismGlassProject,Haberetal2016)
Interactiondesign‘beyondthescreen’Technology is coming to get you
Wearables, -in textile, clothing, shoes, bags ‘Smart objects’, ‘smart homes’ Internet-of-Things Ambient Intelligence Virtual Reality, Augmented Reality Social Robots Brain-Computer Interfaces Not just ‘access to a digital world’ but increasinlgy: ‘interactivity entering the physical world’
ResearchthroughDesign
• Usingtheprocess,methodsandtoolsofdesignto‘research’.• Workingwithallrelevantstakeholders.(Especially“end-users”).
• Whatdoweresearch?• Questioningnormativeframes/implicitassumptionsunderlyingcurrentpracticesinhealth-careandassistivetechology.
Ontheroleofdesign(aswedoit)
• Notjustansweringthequestion,butaskingwhatthequestionreallyis• “Reframing”implicitassumptionsand‘waysoflooking’.• Empoweringusersintheprocess,givethemavoice.• Learningbydoing• Bringingperspectivestogether,creatingsharedunderstanding• Makingthingstangibleandconcrete:some-thingtotalkabout• What‘couldbethecase’,insteadof‘whatisthecase’
Co-design
PowertoolsProjecthttp://www.powertoolkit.nl
Observe Realworld Practice Try Prototype In Practice
Reflect With users and Other stakeholders
Design Cycles
Design & Prototype
Theprocessinpractice
Youngautisticadults
“Iwassleeping.Hadtopuke.AndnowIpitymyselfforhavinghadtochangemyownbed”
“DoIhavefollowersinX?TomorrowIhavetoworkandintheeveningIwillgiveatalkinX.SomeoneIcouldIdropinfordinner?OrshallIgotheMaconce”again?
“TobesureIamhappytakingcareofmyownmeals.Thiswasjustanattemptatbeingsocial”
Awealthofproblems,butoftenmisrepresentedAgoldmineoftalentsandopportunities,butoftenunseen.Growinganddeveloping,awishforindependence.HealthcareintransitionFinancialpressureAutisticindividualsincreasinglygainingavoice
Designingforthelifeworld
• Howcanwehelppeopleadaptandmanagetheirownsupportive‘lifeworlds’?
Thelifeworld• Skills,routines,tools,objects,spatialorganisation• Socialcontext,relations,roles,network• Learning,feelings,reflections,change
Case1:Closetothebody
Reframing• Frombeingmonitoredto‘self-monitoring’• From‘accuratelypredictingstress’to‘scaffolding’bodysensitivity
Dynamic Balance Heartrate displayed in colour on watch. Beyond threshold à phone rings, plays Self-recorded help message
Case2:Inthehome
Reframing:• Notofferingthe‘optimalplan’,butbuildingonexistinghabitsandcontext(thelifeworld).• Notshowing‘whattodo’but‘howareyoudoing?’(from‘planner’to‘reflector’)?
MyDayLight: Interactive light embedded in context connected to Google calendar
MyDayLight
MyTag
Reframing:notpersuadingtheuserto‘dotheirtasks’But:enablingapersontotakeuptasksinthenaturalflowoftheday
Variation:MyTag
Case3:outonthestreet(workinprogress)
MyTracks:apersonalizablelocation-awaresystemthatplaysspecifickindsofsoundandmusicdependingonyourneedsinspecificplaces.
Reflections(1)Whatisthedesignchallengeabout?
Whataboutsocialskills?"Manysocialskillsarenotreallyathing.They'rejustsomearbitraryculturalnormsthatwedecidedtocallsocialskills.”-SueFletcher-Watson
Topicsofpotentialinteresttoautisticyoungadults:• Hypersensitivity
• Gettingintoaction,switchinggears,focusvshyper-focus
• Anxiety,stress
• Managingeverydaylife
• Avoidingburn-outindealingwithneuro-typicalstructures
• Depression
Reflections(2)Whatistheroleoftechnology?
• Not:trainingskillsthatarebasedonnormativeframes• But:helpapersondeveloproutinesthat‘work’ANDaremeaningfultothemselves:theirroutines.
• Not:instructinghowtoorganizelife,orinformingabout‘whatiswrongorright’• Rather:createfeedbackloopsthathelpapersontobuildfurtherontheirownsupportivelife-world
“Helpmetolivelifeonmyterms”-LenehBuckle
Reflections(3)Empowerment,autonomy
• “Wearenotputtingyourcalendarinmylamp”
Buildingonyourownlife-worldancreatingyourownmeaningfulroutinesisafundamentalrequirementforbeingautonomousTechnologyshouldaddtothat,nottakeitawayandreplaceit.
Reflections(4):
Can we see health-care workers and educators engage in co-design with autistic people and help them design, (install, configure, adapt, combine) their own technological support system? (New role for professionals! How about parents/ important others?)
Co-design as part of a larger, self-empowering process.
Designyourlife?• Letmeknowifyouwanttocollaborate!
• I’dbeveryinterestedinfindingpeoplethatwanttohelpbuildelectronicsandorwritesoftwareforanyoftheprojectspresentedsofar.
• IwouldbeparticularlyinterestedinpeoplewantingtocontributetotheTRACKSproject• Co-designer,programmer(helpingtobuildtheapp)• Co-designer,user(tryingouttheapponceitworks)
• Dropmealineat@theblub(twitter)[email protected]
• Thankyou!
• www.jellevandijk.org
