Ethical issues are observed when facts about the risks and benefits of technology use are unclear or controversial2, 3.

Because they may not have the capacity to weigh in on the pros and cons of technology use4, 5, persons with cognitive disabilities are more likely to encounter issues using technology6 .

PRIVACY, SECURITY, AND ETHICS OF THE ADOPTION OF EMERGING TECHNOLOGIESH. Chalghoumi, V. Cobigo, J. Jutai, J. Bickenbach, C. Blanchard, A. Cavoukian, W. Cukier, Y. Lachapelle, J. Lake, R. Mcheimech

WP8

.3: P

RIV-

SEN

SE To develop and validate a framework on ethical factors that

impact technology adoption by aging persons with cognitive

disabilities and their caregivers

PURPOSE OBJECTIVES

MAIN ACTIVITIES NEXT STEPS

MAIN OBJECTIVETo understand ethical factors that impact technology adoption by aging persons with cognitive disabilities and their caregivers, using a longitudinal design

PHASE 11: Review ethical guidelines for the development and adoption of a mobile application to promote safe and rational use of medication2: Determine basic functionalities of the application

PHASE 23: Explore ethical factors that impact technology

adoption

PHASE 34: Develop and validate a framework on ethical

factors that impact technology adoption

PHASE 1 PHASE 2 PHASE 3

Method 6Validation process via a Delphi Survey with AGE-WELL members 

Method 3Focus groups with aging persons with cognitive disabilities and their caregivers

Method 1Comparative analysis of existing policies

Method 2Systematic literature reviews (ethical factors in technology adoption, and safe and rational use of medications)

Method 5Interviews with key stakeholders, e.g. managers and technology developers  

Method 4Analysing data collected through the device

1: Garner, J., & Campbell, P. (1987). Technology for persons with severe disabilities: Practical and ethical considerations. The Journal of Special Education, 21, 24-32.

2 : Luppicini, R. (Ed.). (2008). Handbook of research on technoethics. Hershey, PA: IGI Global.

3: Beauchamp, T. L., & Childress, J. F. (2001). Principles of biomedical ethics. Oxford university press.

4: Carey, A. C., Friedman, M. G., & Bryen, D. N. (2005). Use of electronic technologies by people with intellectual disabilities. Journal of Mental Retardation, 43(5), 322-333.

5: Chalghoumi, H. (2011). Balises pour l’intervention avec les technologies auprès des élèves qui ont des incapacités intellectuelles (PhD Dissertation) . University of Montreal, Canada. Retrieved from https://papyrus.bib.umontreal.ca/jspui/bitstream/1866/5343/2/Chalghoumi_Hajer_2011_These.pdf

6: Perry, J., Beyer, S., & Holm, S. (2009). Assistive technology, telecare and people with intellectual disabilities: ethical considerations. Journal of Medical Ethics, 35(2), 81-86.

7: Baldwin, C. (2005). Technology, dementia and ethics: Rethinking the issues. Disability studies quarterly, 25(3). Retrieved from http://dsq-sds.org/article/view/583/760

“This ethical reflection is no mere distraction or a luxury that can await less pressing times 7.”KEY TAKE AWAY

Phase 1: Data collection

Ethical approval application for phase 1

Functional/technical assessment of the mobile application

Prototype development and testing

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