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Transcript

Triangle Area Ostomy Association

June 2014

President’s Message:

My first thought seeing how many people attended our breakout session meeting was WOW! 41 people! I believe that is possibly the largest ever to attend any TAOA meeting. My second thought was how lucky we are to have the WOC Nurses working with us as they do. Without them, we would not have the fine organization we witness every month. On June 3

rd, we will have our last get together of this Spring season. I hope that we continue to have a large number

of people attending. I urge you to bring your spouse/significant other along with you to all the meetings. Please consider the open positions of vice-president, secretary, and Newsletter editor. These are being vacated and it is definitely the time for others to “step up.” Thank you in advance for considering to run/volunteer for one of these offices. For those of you I may not be seeing on the 3

rd, I wish you an enjoyable yet restful and healthy Summer.

Respectfully submitted, Sam DeAngelo, President IN THIS ISSUE:

President’s Message Page 1

Annual Dues Reminder Page 1

June Birthdays Page 1

Local Support Group Info Page 2

Member Information Page 2

WOC Nurses Page 2

Minutes Page 4

TAOA Membership Form Page 5

Wanna Wear One Run/Walk Page 5

NEWS AND UPDATES

June Program: Terri Kuczynski, a counselor with the Rex Hospital

Palliative Care team, will lead a discussion about dealing with your feel-

ings about your ostomy . Terri has spoken to our group often and always

leads a great discussion.

Summer Break — No meetings in July and August

The Board will meet over the summer to plan for next year. Please give your suggestions for programs to Stephanie Yates or

any of the Board members.

Still seeking a new newsletter editor - The Bypass is produced in Micro-

soft Publisher currently and a template is set up. E-mail is essential to re-

ceive the content to include. Please contact one of the board members if

you are interested in volunteering.

WannaWearOne Ostomy AWEARness 5K Run/Walk Saturday Octo-

ber 4 — This inaugural event is being organized for Ostomy Awareness

Day in conjunction with the national UOAA organization More informa-

tion is on Page 5 — Also look for their Facebook page “WannaWearOne”

CALENDAR OF EVENTS:

June 3 TAOA Meeting, Rex, 7:15 pm

June 10 TBC Meeting Chapel Hill, 7 pm

June 15 Father’s Day

June 16 CCFA Meeting Rex, 7:30 pm

June 21 Summer Solstice

Sam Bundy June 7 Dimney LaSalla June 9 Ruth Rhodes June 19 Jori Jordan June 21 Alison Lee June 30

DUES $20.00 FOR 2014-2015 PLEASE PAY DUES PRIOR TO AUGUST 31, 2014

BRING/MAIL TO TREASURER WITH MEMBERSHIP FORM THIS IS THE ONLY STATEMENT YOU WILL RECEIVE

TAOA DUES POLICY APPEARS ABOVE MEMBERSHIP FORM ON PAGE 5 THANK YOU FOR YOUR COOPERTATION!

Time

to pay

your

dues!!

TAOA MEETING INFO: MEETING:

The first Tuesday of the month, September – June.

Time: 7:15pm NO meeting in July or August.

LOCATION:

Rex Hospital, 4420 Lake Boone Tr., Raleigh, 27607.

Enter through Main Entrance from parking deck.

Immediately turn LEFT into the Main Waiting Room.

INCLEMENT WEATHER:

To verify a cancellation, call Rex Hospital at 919-784-3100

If the Wake Co. Schools are closed due to weather

conditions, there will be NO meeting that evening.

DISCLAIMER

Articles and information appearing in this newsletter are not necessarily en-

dorsed by the Triangle Ostomy Association and may not be applicable to every-

one. Always consult your physician or WOC Nurse for all medical advice.

TRIANGLE AREA OSTOMY ASSOCIATION (TAOA)

TAOA is a local chapter affiliate of The United Ostomy Associations of America, Inc. Membership is open to ostomates, nurses and friends who support our mission. New members are always welcome. Annual dues include the UOAA fee and a subscription to The BY-PASS, our monthly newsletter.

GROUP OFFICERS AND CONTACT INFO: All officers are available for member support

President: Sam DeAngelo 919-552-7890

Vice President:

Secretary: Bonnie Sessums 919-403-7804

Treasurer: Ruth Rhodes 919-782-3460

Editor:

Webmaster: Ed Withers 919-553-9083

FOW Coordinator: Jeff Burcham 919-847-9669

Visitor Coordinator: Stephanie Hughes 919-480-1172

Prof. Advisor: Stephanie Yates 919-613-2035 Website: www.RaleighUOA.org or

www.triangleostomy.org

CCFA SUPPORT GROUP

Date: Third Monday of the Month

Time: 7:30 pm – 9:00 pm

Place: Rex Healthcare

Contact: Reuben Gradsky

[email protected]

TRIANGLE BLADDER CANCER

SUPPORT GROUP

Date: Second Tuesday of the Month

Time: 7 pm – 8:30 pm

Place: Carolina Pointe, Chapel Hill,

NC

Contact: David Langham

919-948-0589

[email protected]

www.trianglebcs.com

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WOC Nurses

Wake Med

Leigh Ammons 919-350-7668

Melanie Johnson 919-350-7668

Debbie Orr 919-350-7668

Wake Med Cary

Joanna Burgess 919-350-5231

UNC Hospital

Donna Brickman 919-843-9234

Juliet Idiabonya 919-843-9234

Lisa Jenkins 919-843-9234

Barbara Koruda 919-843-9234

Lara Leininger 919-843-9234

John Maotko 919-843-9234

Donna Partin (outpt) 919-966-9344

Janet Rankin 919-843-9234

Duke Regional

Tom Hobbs 919-470-7215

Felicia Street 919-470-6145

Duke

Jane Fellows 919-681-7743

Michelle Rice 919-681-2436

Angela Richardson 919-681-7743

Leanne Richbourg 919-681-6694

Stephanie Yates (outpt) 919-613-2035

Duke Raleigh

Amanda Eltz 919-954-3725

Krys Dixon 919-954-3446

Maria Parham Hospital

Kathy Thomas 252-436-1700

Durham VA Medical Center

Reba Giles 919-286-0411 X 6177

Sara Harbison 919-285-0411 X 5297

Rex Hospital

Angela Joyner 919-784-2048

Rachel Breazeale 919-784-2048

Teri Ourada 919-784-2048

OUR MISSION We strive to assist persons with, or anticipating, an intestinal or urinary diversion. (Colostomy, Ileostomy,

Urostomy, Continent diversion). We provide emotional support, educational opportunities and interaction with our professional community. We support The Friends of Ostomates Worldwide ,(FOW), by donating

supplies for distribution to underprivileged ostomates around the world.

For more information contact our

Customer Interaction Center at

1-800-422-8811 Monday – Thursday,

8:30 a.m. – 8:00 p.m., ET

Friday, 8:30 a.m. – 6:00 p.m., ET

www.ConvaTec.com

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MINUTES OF THE MAY 6, 2014

MEETING OF THE TRIANGLE AREA OSTOMY ASSOCIATION Sam DeAngelo, President, called the May meeting to order at 7:30 PM. He welcomed 41+ members and guests.

He then thanked a very special group of attendees by introducing them and presenting each of them with a gift. These

are our very special WOC nurses: Stephanie Yates, Jane Fellows, and Leanne Richbourg from Duke Medical Center;

Joanna Burgess from Wake Med Cary; Lara Leininger from UNC Hospital and Amanda Eltz from Duke Raleigh.

Happy Nurses Week to all of our WOC nurses.

Sam stated that a vice president is needed to fill his former position. He asked members to think about volun-

teering and/or nominating someone to fill this position at the June meeting.

Sam then presented Sam Bundy with a thank you gift for his two plus years of service as our former President.

Stephanie stated that Terri Kuczynski, Counselor, Palliative Care, Rex Hospital, will be the speaker at our June

meeting. She then introduced Lara Leininger who announced that she and Angela Richardson are teaming up with

United Ostomy Association of America (UOAA) to have a 5K run/walk at the Streets of SouthPoint for Ostomy Aware-

ness Day on October 4th. She will have a sign up sheet for participants and volunteers at the reception desk for members/

guests to sign after the meeting. Lara stated this would be a fun day for families with games and prizes scheduled as

well as education sessions and the 5K run/walk.

Stephanie also reminded members that a newsletter editor is needed as soon as possible. Many thanks to Stepha-

nie for doing this job temporarily, Please contact her if you are interested.

Members and guests were divided into groups by ostomy type as follows: Urostomy (group of 6 facilitated by

Joanna Burgess); Ileostomy (group of 12 facilitated by Jane Fellows); Colostomy (group of 10 facilitated by Leanne

Richbourg and Amanda Eltz); and Caregivers (group of 10 facilitated by Stephanie Yates and Lara Leininger). Informa-

tive discussions of ostomy issues were had in each group. Thanks to our WOC nurses for leading the groups.

Sam adjourned the meeting at 8:30 PM by thanking Bruce Curtis for the delicious refreshments. He also

thanked Bonnie Sessums for her 11 years of service as secretary. She will be moving to Savannah in the near future to

be closer to her family. Sam stated that a new secretary will also be needed at the June meeting. The June meeting will

be held Tuesday, June 3 at 7:15 PM with Diane Hill providing refreshments.

Respectfully submitted,

Bonnie Sessums

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TAOA MEMBERSHIP FORM

Date: ___________________

Name: __________________________________________________ Spouse:_________________

Address: _________________________________________________________________________

Phone: __________________________ Email: __________________________________________

Year of Surgery: ____________ Preference for Newsletter delivery: [ ] Email [ ] U.S. Mail

Type of Ostomy: [ ] Colostomy [ ] Ileostomy [ ] Urostomy (Ileal conduit)

[ ] Other _______________ [ ] Supporter of TAOA/No Ostomy

Comments: ______________________________________________________________________

ANNUAL DUES $20.00 PAY TO: TRIANGLE AREA OSTOMY ASSOCIATION (Abbreviation: TAOA)

PAYMENT ENCLOSED: $_____________ [ ] CASH [ ] CHECK [ ] MONEY ORDER [ ] I request Complimentary Membership. I cannot pay dues at this time. (Information is Confidential) MAIL COMPLETED FORM WITH PAYMENT OF DUES TO:

Ruth Rhodes, Treasurer / 8703 Cypress Club Drive / Raleigh, N.C. 27615

Co-chaired by WOC nurses Lara Leininger from UNC Hospital and Angela Richardson from Duke Hospital. We have teamed up with Doug Yakich who is the Director of Media for the National UOAA, Inc. to host the inaugural WannaWearOne Ostomy AWEARness 5K run/walk on Ostomy Awareness Day on October 4th, 2014 at Omega Sports next to Southpoint Mall in Durham, NC. The race will start and finish at the park-ing lot of Omega Sports and will run 3.1miles along the American Tobacco Trail. Our mission is to bring awareness and education about ostomy surgery to the community and show empathy to ostomates. All proceeds will be donated to the 501 (c) charity, UOAA. We will have ostomy-related sponsorship for the race, Hollister has already committed to being a top sponsor. Convatec and Coloplast are highly con-sidering joining as top sponsorships. Other sponsors will help make this race a huge success. Doug Yakich and the UOAA have announced that our race will be their marquee event for the whole year. Doug will be flying out for the race as well. We will have the pouching companies donate ostomy pouches to be placed in our WannaWearOne race bags to allow the community to understand more about ostomies. Those that do not have an ostomy will be highly encouraged to wear the ostomy pouch during the race.

The WannaWearOne 5k registra-tion site is up and running, so feel free to spread the word and sign up for the race! Here is the link for registration for the race: http://www.active.com/durham-nc/running/races/wannawearone-ostomy-awearness-5k-2014?int If you are unable to participate with

walking or running the race, then please consider volunteering to assist with pre-race, race day or post-race needs. Please contact Lara if you are interested in vol-unteering at [email protected] Here is a link to sign up for specific volunteer roles: www.volunteersignup.org/KRL34 Doug, Angela, and I are also cur-rently working on developing a WannaWearOne website. We are very excited with the Wan-naWearOne 5K and believe this will be a huge success both for

the charity and for community ostomy awareness. Stay tuned for more ex-citing progress with our race!

TAOA ANNUAL DUES POLICY

*YOUR ANNUAL STATEMENT FOR DUES is issued in the June edition of the BY-PASS Newsletter.

*ANNUAL PAYMENT IS DUE PRIOR TO AUGUST 31st EACH YEAR. Issue payment with TAOA Form. *Please notify the Treasurer if your payment must delayed or if you are unable to pay. (Confidential) *Failure to reply will result in termination of membership. Reinstatement may be requested in writing.

NEXT MEETING: Tuesday, June 3, 2014 at 7:15 pm, Rex Hospital PROGRAM: Terri Kuczynski, Counselor, Palliative Care, Rex Hospital “Dealing with Emotions around Ostomy Surgery”

8703 Cypress Club Drive Raleigh, NC 27615

OUR THANKS TO

FOR PROVIDING THE PRINTING OF

THIS NEWSLETTER