Una mirada bioética a los cuidados paliativos: cultura ......cultura, humanización y...

Una mirada bioética a los cuidados paliativos:cultura, humanización y espiritualidad en la

atención de enfermos

5° SIMPOSIO DE INTERDISCIPLINARIEDAD

EN BIOÉTICA

Viernes 15 de junio de 2018

An International Advisory Working

Group on Diffusionand Development of Palliative Care in the

World

PAL-LIFE Project

Nunziata Comoretto, MD, PhD, LRSPontifical Academy for Life

Scientific Section(Vatican City)

• Pontificia Academia pro Vita (PAV)• Origin & mission

• The PAL-LIFE Project• Background

• Aim

• Methods

• Strategy

3

Outline

• Established by Pope John Paul II in 1994, for the promotion and defense of the value of human life and of the dignity of the person.

• Academic Task

• Social Task

• Communication Task

4

PAV – Origin & mission

More on: www.academyforlife.va

http://www.academyforlife.va/

The PAL-LIFE Project - The background

Magisterium of the Catholic Church has intervened severaltimes in recent years to emphasize the dignity andpreciousness of each human being, even of those who areafflicted with a serious or terminal illness. Specialappreciation is shown for the approach offered by PC.

«… palliative care is a special form ofdisinterested charity. As such it should beencouraged»

(Catechism of the Catholic Church, n. 2279)


«Here it is necessary to stress once againthe need for more palliative care centreswhich provide integral care, offering thesick the human assistance and spiritualaccompaniment they need. This is a rightbelonging to every human being, onewhich we must all be committed todefend»

(Pope Benedict XVI, Message for the 15th

World Day of the Sick, 11 February 2007)

The PAL-LIFE Project - Two recent PAV General Assemblies

“Aging and Disability”

(2014)

“Assisting the Elderlyand Palliative Care”

(2015)


«Palliative care is an expression ofthe truly human attitude of takingcare of one another, especially ofthose who suffer. […] I encourageprofessionals and students tospecialize in this type of assistancewhich is no less valuable for the factthat it “is not life-saving”. Palliativecare accomplishes something equallyimportant: it values the person».

(Pope Francis, Message to the XXIGeneral Assembly of PAV, 5 March 2015)

The PAL-LIFE Project - The aim

• To stimulate the social andcultural attention on the realityof PC and to promote, atdifferent levels, the dialogueand cooperation between thevarious stakeholders in therealization of concrete projectsof PC.

The PAL-LIFE Project - The method

• To promote greater sensitivity inecclesial realities toward the needto develop good PC in differentareas of the world.

• To stimulate the attention by non-ecclesial institutions, NGO´s andassociation working with similaraim.

• To act as an interlocutor foracademic and scientific institutions.

Selection of the experts• The expert group was selected considering diverse

geographical regions and professional backgrounds and professing different faiths.

• The PAV initially chose three experts in PC advocacy with global expertise in PC development. In a second step, additional experts were added to the group through a snowball process of recommendations by at least two peer experts reaching a total of thirteen persons considered to be experts in PC advocacy (“ad hoc group”).

The PAL-LIFE Project - The advisory group

Al-Sirafy, Samy

Bruera, Eduardo

Centeno, Carlos

De Lima, Liliana

Luyirika, Emmanuel

Mosoiu, Daniela

Pettus, Katherine

Puchalski, Christina

Rajagopal, MR

Sitte, Thomas

Yong, Jin-Sun

The PAL-LIFE Project - The advisory group

The PAL-LIFE Project - The strategy

• 1st Meeting PAL-LIFE (2017)

• PAL-LIFE Questionnaire

• Regional events

• Involvement of other Vatican Dicasteries

• Study Commissions

• Seminars

• Advocacy Activities

• White Paper for global PC advocacy


1st Meeting PAL-LIFEVatican, April 2017

1. A basic PC strategy for the PAV

2. The writing of a White Paper for Global PC Advocacy

3. A big event in the Vatican was also proposed


1st Meeting PAL-LIFE

https://doi.org/10.1089/jpm.2017.0237

https://doi.org/10.1089/jpm.2017.0237


PAL-LIFE Questionnaire

Intended to gather information about the medical,social and cultural realities of PC in a Catholic context.


PAL-LIFE Public Launch

PALLIATIVE CARE:

EVERYWHERE &

BY EVERYONE

WORKSHOP PROGRAM

Palliat ive Care in every region.

Palliat ive Care in every religion or belie f

Rom e February 28 - March 1 2018th st

Pontifical Academ y for Life


Involvement of Vatican Dicasteries and EpiscopalConferences

• Dicastery for Integral Human Development

• Dicastery for the Laity, Family and Life

• Secretariat of State

To provide accurate information about PC in theworld, in order to enable the relevant Dicasteries todevelop strategies for further introduction of PC.


Regional events: Background

• PC is cultural sensitive, as it deals with critically important existential meanings such as death and dying.

• Barriers to and opportunities for PC vary according to geography and culture.

• Different regions develop original models of integration of PC into the care of the dying according to their culture.


Regional events: Objective

• To promote cooperation with governmentalentities.

• To promote professional PC training through on-site programs and international cooperation.

• To promote a culture of inclusion.


Regional events: Current activities

• Co-operative venture with the CHAI (India) to promoteconcrete implementation strategies for PC in Catholichealthcare facilities.

• Joint activity with Georgetown University in Doha and thePCU of the National Center for Cancer Care and Researchat the Hamad Medical Corporation in Doha, Qatar.

• Cultural event to advocate for PC, at the Texas MedicalCenter, Houston - TX.

Regional events: Planned activities

• PAL-LIFE Spain – Murcia (Nov 2018).

• PAL-LIFE Italy – Rome (Feb 2019).

• PAL-LIFE Latin America – Brazil? (2019).


Regional events: PAL-LIFE India

Delegation from PAV attended NHC 2017


Regional events: PAL-LIFE India


Regional events: PAL-LIFE Arabic countries


Regional events: PAL-LIFE US

Week’s agenda

Sep 14-15, 2018 - MD Anderson Cancer Center22nd Annual Interdisciplinary Conference on Supporting Care Hospice and Palliative Medicine

Sep 16-18, 2018 - Houston Methodist HospitalPCSLife Conference & Maria Luisa Lectureship for Life Award

Sep 19, 2018 - DallasCMA pre-conference forum on end of life issues



More on: www.pcslife.org

http://www.pcslife.org/



Agenda

Sept 16, 2018Cultural events (open)

Sept 17, 2018PCSLife Conference (open)Maria Luisa Lectureship for Life Award

Sept 18, 2018PCSLife Study Groups (close)

Group #1: Development of an integrated model of PC in the TMCGroup #2: Communication in/on PCGroup #3: How can religions support PC practice and culture?

Closure: A joint declaration on PCSLife by the Catholic Church and the United Methodist Church


Study Commissions

• Ad hoc commissions might be set up to studyspecific issues.

• Particular attention will be given to ethical issues.


Seminars

• “Integrating Spiritual Care into Palliative Care: A Whole Person Approach”, Christina Puchalski, 24th of August 2017.

• https://www.youtube.com/watch?v=WukTFZLIcBE

https://www.youtube.com/watch?v=WukTFZLIcBE


Advocacy Activities

• The Pontifical Academy for Life participates in events that promote PC.


Advocacy Activities


White Paper for Global PC Advocacy

A document to be used by on-site personnel as a workingdocument for the implementation of PC.

See next speech

The PAL-LIFE Project

Thank you for your attention

Una mirada bioética a los cuidados paliativos: cultura ......cultura, humanización y...

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