The Helsel Family Story - Foss · PDF fileThe Helsel Family Story ... Basil and tomatoes...
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The Helsel Family Story https://youtu.be/Xa1c4SJoo_w Hunngton’s Disease can take away your voice. The Hunngton’s Disease Society of America describes Hunngton’s Disease (HD) as, “a fatal genec disorder that causes the progressive breakdown of nerve cells in the brain . . . Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s – simultane- ously.” Pauline Helsel, was one of the longest surviving people with HD. She was cared for by Foss staff during a me when she could no longer speak more than a few words. In hopes of finding a cure, Pauline and her family made arrangements to have her brain donated to science so that researchers could understand more about this disease. Pauline’s son, Marvin Helsel Jr., also has this disease and is currently living at Foss. One of Marvin’s Learn more about the Helsel Family’s journey with HD and how Foss has come along side them. 1. Pauline Helsel, Karen and Marvin Helsel Jr. and Mark Helsel. 2. Mark Helsel and his son Lewis vising at Foss. 3. Karen and Marvin in the Foss courtyard. greatest giſts has been his sense of humor. He loves to laugh and play praccal jokes. He has always been an avid reader. Now his nephew Lewis visits him on the weekends and will read stories to him. Karen and Mar- vin use Skype to visit with their children and grandchil- dren who live far away. Marvin’s wife, Karen, is his advocate, “I had felt that my job, and here at Foss it’s sll the same, is to speak for Marvin because he doesn’t speak for himself.” Karen helps the Foss staff understand his preferences and needs. She helps them idenfy his unique facial expressions – whether it’s his sad face, the twinkle in his eye when he’s happy or his silent laughter. 1 2 3
Transcript of The Helsel Family Story - Foss · PDF fileThe Helsel Family Story ... Basil and tomatoes...
The Helsel Family Story
https://youtu.be/Xa1c4SJoo_w
Huntington’sDiseasecantakeawayyourvoice.TheHuntington’sDiseaseSocietyofAmericadescribesHuntington’sDisease(HD)as,“afatalgeneticdisorderthatcausestheprogressivebreakdownofnervecellsinthebrain...ManydescribethesymptomsofHDashavingALS,Parkinson’sandAlzheimer’s–simultane-ously.”
PaulineHelsel,wasoneofthelongestsurvivingpeoplewithHD.ShewascaredforbyFossstaffduringatimewhenshecouldnolongerspeakmorethanafewwords.Inhopesoffindingacure,Paulineandherfamilymadearrangementstohaveherbraindonatedtosciencesothatresearcherscouldunderstandmoreaboutthisdisease.
Pauline’sson,MarvinHelselJr.,alsohasthisdiseaseandiscurrentlylivingatFoss.OneofMarvin’s
Learn more about the Helsel Family’s journey with HD and how Foss
has come along side them.
1. Pauline Helsel, Karen and Marvin Helsel Jr. and Mark Helsel.2. Mark Helsel and his son Lewis visiting at Foss.3. Karen and Marvin in the Foss courtyard.
greatestgiftshasbeenhissenseofhumor.Helovestolaughandplaypracticaljokes.Hehasalwaysbeenanavidreader.NowhisnephewLewisvisitshimontheweekendsandwillreadstoriestohim.KarenandMar-vinuseSkypetovisitwiththeirchildrenandgrandchil-drenwholivefaraway.
Marvin’swife,Karen,ishisadvocate,“Ihadfeltthatmyjob,andhereatFossit’sstillthesame,istospeakforMarvinbecausehedoesn’tspeakforhimself.”KarenhelpstheFossstaffunderstandhispreferencesandneeds.Shehelpsthemidentifyhisuniquefacialexpressions–whetherit’shissadface,thetwinkleinhiseyewhenhe’shappyorhissilentlaughter.
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As I Age . . . David Crouch, President & CEO
“As I Age . . .I become wiser . . . most of the time.”
- David Crouch
Lastyear,attheLeadingAgeannualconventioninNashville,Tennessee,ourseniorteamwasinspiredbyan“AsIAge…”artmural.ThismuralwasanadaptationofartinstallationsbyCandyChangwhose500muralsaresparkingconversationsin70countries.
I’mpleasedtoannouncethatFosshasinstalledagiantchalkboardonthecornerof130thandGreenwoodtoengagethepublicinadiscussionabouthoweachofuswouldliketoage.Iwouldliketoinviteyoutoswingby,grabapieceofchalkandaddyourvoicetothe“AsIAge...”conversation.
Over130ofouremployeeshaveworkedatFossfor10ormoreyears.Thismeansstaffmembersgettoknowourresidents,discoverhow
eachofthemwouldliketoageandthenprovidehealthservicesandactivitiestosupporttheirwishes.ResidentssharepreferenceswithusthroughResidentCouncilmeetingsandinone-to-oneconversations.Familymembersadvocatefortheir
lovedoneswhocannolongerspeak,helpingusknowhowtocareforthem.
Onethingisclear:communityisanessentialpartofagingwell.ComebeapartoftheFosscommunity.Writeonourartmural.AttendourFarmersMarket.BecomeaFoss
volunteer.FollowusonFacebook.Makeafinancialgiftinhonorofanolderadult.
Makeitaprioritytosharewithothershowyouwouldliketoage.
https://youtu.be/4kDiLMPB4sY
Check out a video of what some of our residents say
about how they’d like to age!
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Growing Gracefully is a publication of Foss Home and Village, a not-for-profit organization which promotes living with dignity for older adults. For information about our services please call (206) 364-1300 or see our website at www.fosscare.org. Questions, comments and suggestions for this newsletter can be directed to Foss Outreach at [email protected] or (206) 834-2581.
6th Annual Foss
FARMERS MARKETSaturday, August 29, 2015
10 a.m. - 3 p.m.
MARKET OPPORTUNITIES:
• ArtisanVendors:Doyoumakeone-of-a-kindart,craftsorgifts?Registrationformsavailableatwww.fosscare.org/News-Events/Events.
• Local Businesses:GetyournameouttotheBroadviewneighborhoodandhostacarnivalstylebooth.ContactFossOutreachat(206)834-2581forsponsorshipinformation.
Between800-1,000guestsareanticipatedtovisittheFossFarmersMarket.Therewillbelivemusic,freshproduceforpurchaseandhandcrafteditemsforsale.JoinusforthisannualeventontheFossVillagecourtyard-justoffN.130thStreetand1stAvenueN.W.Shouldyouwishtomakeapurchase,pleasecomepreparedtopaywithcashorcheck.
Summer Produce Tips• STOREFRUITSANDVEGETABLESSEPARATELY.Manyfruitsreleaseethylenegas(theripeningagent)which
cancauseotherfoodstospoilandchangetheflavorofthemoresensitivegreens.
• DON’TREFRIGERATEEVERYTHING.Basilandtomatoesmaintainoptimumfreshnessbystayingoutofthecold.Non-cherrystonefruits,apples,pears,avocados,mangoesandmelonscancontinuetoripenonthecountertop.However,someitemslikebellpeppers,grapesandberriescandeterioratequicklyandwouldbenefitfromrefrigeration.
• USEYOURMOSTPERISHABLEPRODUCEFIRST.Savethehardiervegetablesforlaterintheweek.Also,ifsomeofyourvegetablesarelookingslightlywilted,considerthrowingthemtogetherinastir-fry.
• BAGUPYOURPRODUCE.It’snotagoodideatostoreproducedirectlyintherefrigerator.Takeanytwist-tiesoffthebagsandloosenupthevegetablessotheyarenotbunchedtogether.Youcanevenpokeafewholesinthebagtohelpwithcirculation.Thiswillpreventveggiesfromrotting.
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Music and Memory LastfallFossbecameaMUSIC&MEMORYSM CertifiedCareFacility.Thehopewasthatsomeresidents,whoforavarietyofreasonsaren’talwaysabletofullyparticipateinotheractivities,wouldbenefitfromapersonalmusicplaylist.Uniqueplaylistsforeachpersonbasedonherfavoritesongs,genresandartistsweredevelopedbyourstaff.Thehopeisthatthemusicwouldelicitwonderfulmemoriesandgoodfeelingsofthepast.
Residentsareenjoyingtheirmusicplaylistssomuch,thatstaffarehavingahardtimeconvincingresidentstoletthemchargetheiPodssothatmoremusiccanbeenjoyedlater!
LoisisoneresidenttowhomtheMUSIC&MEMORYSMprogramhasbroughtjoy.Loiscomesfromamusicalfamily.TwoofLois’oldersisters
wouldcallupthephoneoperator,tellhertogetthewholetownonthelineandtheywouldgivethetownaphoneconcert.Sheplayedtheorganandthepiano.ShealsosangOpera.HervoiceteacherwantedhertotryoutfortheSanFranciscoOperaCompany,butLoishadotherplans.Shebecamean
architecturaldrafterfortheCityofSeattle.
Loistypicallylistenstoherplaylistaboutonceadayandfindsitrelaxing.OnheriPodshehasopera,piano,symphonyandclassicalmusic.
ThankyoutoeveryonewhodonatediPodShuffles,iTunesgiftcardsandCDstohelpmake
thisprojectasuccess.Formoreinformationabouttheprogrampleasevisitwww.musicandmemory.org.PleasecontactNancyMohrmanwithquestionsordonationsat(206)[email protected].
SignuptodaybycontactingRuthCapleat(206)[email protected].
What Type of Volunteer Are You?The Socialite
Youlovevisitingwithpeoplewhetherit’sone-to-oneorinagroup.Youenjoylearningaboutaperson’slifehistoryandmakingpeoplesmile.
The IndependentYouprefertasksthatyoucandoprimarilyalone.Youlikeprojectswithaclear
beginningandend.
The GroupieYouprefertovolunteerwithagroup
ofyourfriendsoron
ateam.
The TalentYouhavethegiftofmusic,art,orpublic
speakingthatyou’dbehappytoshare.Youhaveafur-babythatyou’dlovetoshow-off.
The Go-GetterYouwantto
volunteereveryweek!
The SteadfastYouwantto
volunteereachmonthoratleast
annually.
We have opportunities for EVERY type of volunteer!
SOME CURRENT NEEDS:
• WecanusepeopletohelpwithFridaySocialsfrom1:15p.m.-2:45p.m.• Weneedvolunteerstointerviewresidentsabouttheirmusichistoryfor
theMUSIC&MEMORYSMprogram.• WewantearlyriserswhocanhelpsetupattheFarmersMarketfrom7:15
a.m.–9:30a.m.onSaturday,August29,2015.
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SPRING BRUNCH RECAP
Orangecinnamoncroissantbreadpuddingwithasideofcrispybaconwastheyummymealenjoyedbythenearly200guestswhoattendedtheFossannualSpringBrunchheldattheLynnwoodConventionCenter.LibbyWagnerwasanartfulstorytellerweavingpurposeandpoetryintoabeautifulblend.Sheinspiredattendeeswithhermessageonfindingyourtruevoice,whilealsoconveyingtheimportanceofFossHomeandVillage’smissionwithhereloquentandgraciouslanguage.
Guestsaddedtheirvoicetothe“AsIAge...”promptthroughaninspiringcollectionofminichalkboards.AllofthenetproceedsfromthiseventwillsupporttheFossExtraTouchwhichisourcommitmenttopersonalizedquality,comfortandinnovationinagingservicesregardlessofindividualfinancialcircumstancesorlimitedgovernmentfunding.
As I Age . . .
Ifyouwerenotabletoattend,butwouldstillliketomakeagifttosupporttheFossExtraTouch,youcanvisitourwebsitetomakeadonationonlineatwww.fosscare.org.Wewouldliketoexpressourdeepappreciationforallthedonors,sponsors,volunteers,attendeesandstaffwhohelpedmakethisspecialeventpossible.
Thank you to our Collaborator Sponsor: Heritage Bank
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Heartfelt Gratitude to Donors Gifts given from September 23, 2014 - May 21, 2015
Gifts can be made payable to: Foss Home and Village
AegisatNorthgateAegisofLynnwoodAegisofShorelineAIGMatchingGrantsRayAkagiLeilaAldosCarolandHaroldAlleyPonniAnandakumarColeenandNormanAndersonKristyandBrianAndersonAnonymous(42)MonaandRobertAyerJeanLoupandDianeBaerJoanneBakerLindaandKennethBartlettKathyandGregBatesKayandArtBattShawnBazandEllenBezonaRussellBeanNormaBeerweilerLoisBellFlorenceandJohnBellowsBenevityCommunityImpactFundJamesBernardBethelLutheranChurchWomenBetts,Patterson&Mines,P.S.EuniceandWalterBinzBarbaraandDennisBjornsonMaureenandLarryBladesSheilaBobalaVirginiaBobrowSandraandJeromeBoorenNeilandTheresaBorkowskiJudithandJamesBorrowMountainPacificBankJoBoyettSueBrewsterHerbBridgeandEdieHilliardBrown&BrownInsuranceSuzieBurkeJoanBurklandCherylBurnsAmyCanadyLouiseCarboneroCareageHomeHealthCarePartnersDureenCarlbergLucyCasianoCentralMarketLindaChapplePeterandMerrilyChickNancyChristensonLaurieandKenClaryShelbyClaysonCliftonLarsonAllenOrlaConcannonRenaandWayneConnellConsonusHealthcareServicesMaryandJohnCooleyEdandGailCrouch
JamesCunninghamandCarolineChristyKlineGallandAleksandraDaniLovMirjanaDanilovStefanDanilovRobertandDonnaDecouMargaretDidenhoverMedlineMaxineDormanAnthonyDuboseThelmaEgglestonJeannetteEllisEmployeesofRainierIndustriesLtd.AyleenEricksonEvergreenWashelliGiselleFalkenbergandRockwellMoultonFamilyResourceHomeCareFirstLutheranChurchofBothellJosephandLindaFixShirleyFjoslienFoodServicesofAmericaLoriFraryStanleyFremontJohnFriedmanSharonFujiiGentivaHomeHealthKatieandJohnGienappJackGobelDonnaGorderMargaretandAndrewGordonCorineGratonValdisandSusanGraudsSharonandGaryGreenwoodAmyGregoryClairGrubeLindaandCarlosGuangorenaDeborahHansonKimHardwickSamHarpstandRIchardBatesBethHarveyGailHassSheilaHastingsandIanHastings,Jr.SandraHaugKarenHelselPatriciaandMichaelHendrixJeremiHermanoandJenniferAlcantaraDebbieandChrisHicksMaryHindalMaryHinderliterandEricZoecklerBillandMaryHobsonConnieHokansonJeanandEmmettHolmesRichardHoltPatsyHoltRiceLindaHosteJeffandMyraHowardNeilandLoriHudsonLauraHullandJohnAtwillIIILoisHuseby
SylviaandJohnHustadImmanuelLutheranChurchAnnieJacobsenNancyJangaardEdwardandJaniceJanzenMargaretandTheodoreJessenAnnJohnsonRoyJohnsonMaryannJohnstonJaneJonesVesnaJovanovichCecilyKaplanKathyKapplerAliceKarnKathyKayeKelleyImagingSystemsCeceliaKellyGwenKeltsErinKershawLarraineandAndrewKingDonnaKirkDonnaKobelinAnnaandPeterKrippnerGailKronbergBarbaraKrullDawnellLambChrystalandJ.MichaelLanningJudithandArthurLarsonLeonLeBlancDr.AllisonLegendreWilliamandHarrietLewisMariaLindeMaureenLinehanandMartaAcedoSuzanneandKurtLippmannMarilynandRobertLloydBarryandDoloresLombardAuroraandRodolfoLomogdaSharonandKennethLongakerBarbaraLovelessRobinandJohanLuchsingerBirgitLysholSigneandRalphLysholMichelleMarrKarenandPeterMarschalkJamieMarsdenNancyMartinJeanneMartinezThomasandAprilMasseyMaryandJohnMathersBruceMatheyandJoeDasilvaMatrixLTCPharmacyLouiseMcAllisterMirandaMcCarrellAnnieandBenMcCrackenCindyMcRobertsLindaMelstedPaulaMicheleRobynMiddletonandRayGoochDawnMillerDeborahandDennisMillerVirginiaMills
PhyllisMjorudJanetMoberlyHelgaandOddMoenJamesandJoyceMoorePatriciaMooreErinandJonMullinsJohnandSusanMundyHaliandDaveMyersJeanMyersLloydandPeggyNelsonVioletNelsonSoekNgEvaNitscheNorthlakeLutheranChurchOptumSusanOttSallyandLarryOttenOttersenPharmaceuticalServices,Inc.JudyandJerryParsonsSisterMaggiePastroBethPaulJudithPaulsenDougandKarlaPearmanJudyPenningtonBeverlyPetersonLorrainePicardoStensenCarePatrolBetsyPierceArdisandDennisPilzArlyenePinnockDorisPoolePropelInsurancePugetSoundCabulanceElaineRamsaySylvanaandBobRinehartRitaRiojasRosaRiojasRubyRiojasSchukarBevRoachJimandMRobbinsAlandLoriRoehlLukeRoehlDixieRohdeLeslieRoseWolfgangandHedyRosslerMiltonandBerthaRothSueRowellBettySandersandBruceCarterSusanSchneiderGailScottNicoleScottMarySebekJudyandDanSelmannSonjaandWoodrowShafferStanShepherdandKathrynAndersonStacieShermanSilverAgeAmiSilvermanHelenandJosephSkoogJoyceandDavidSkotdal
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SPRINGBRUNCHSPONSORS
Collaborator
PromoterAegisLiving
BettsPattersonMinesCarePartners
ConsonusHealthcareKlineGalland
ThriventFinancial
MotivatorCliftonLarsonAllenEvergreenWashelli
FoodServicesofAmericaGentivaMedline
MountainPacificBankPropelInsurance
PugetSoundCabulanceSoundpathHealthUnityElectric
Ottersen’sPharmaceuticalServices
BoosterBrown&BrownInsurance
CarePatrolCompanionCare
FamilyResourceHomeCareFirstChoiceMedicalSupplyKelleyImagingSystems
TheRightPlaceSeniorOptionsRoyalCupCoffeeSCANorthAmerica
SilverAge
ThomasE.SmidtDebSmithLoisSnyderSoundpathHealthSt.JohnUnitedLutheranChurchElaineStaffordCheriandDennisStefaniAnnaandRudolfSteinhauserJanStrandandPeterHemmenColleenStueveSandraSumnerSharonSvareDianeTachibanaDianaTaylor-WilliamsTeamPrecisionFlooring,Inc.ElizabethandJohnTerreyTheRightPlaceSeniorOptionsTheStratfordatMapleLeafThriventFinancialChoiceJoAnnandDonThuringRannveigTorgersenTransitionalMarketingServicesUnityElectricCarolVangelosGinaVangelosRoyalCupMaryandRichardVollertElizabethWagnerDeliaWardMarshaWeeseWellsFargoFoundationDonnaandGaryWestJeffWestDebraWestermannDianeWestonandWayneKemmishSusanWestphalJoAnneandJerryWiesnerJudithWildesGaryandNancyWillisTerriWilsonMeehyangWinbergWithaLittleHelp,Inc.WoodenCrossLutheranChurchJohnWottJulieYariandBrianMcLeanLorraineandVernonZimmermanGloriaZimmermanScribner
In Memory Of...YuzukiAkagi
CarnellAnderson
JosephineBaker
MarthaBakke
Frances M Bean
Norma Beerweiler
GraceMBell
Rose Benton
Jennie Burwell
TeresaConcannon
GladysCriss
ConsueloFrodsham
Wayne Fujii
GraceZGair
EugeniaGiacchino
JaniceA.Gobel
EvelynHazell
Ann Henry
Lucille Hines
Nora Holmes
Emabell R. Holt
EvelynHoward
Marillyn Johnson
Dorothy L. Johnston
AnnLaRiviere
Ingrid LeBlanc
VioletLippman
Kurt Albert Karl Lippmann
Marie Lundli
Kathleen MacKay
Gloria&RoseMarie
CarolynMichele
R. Marguerite Montgomery
Ruth E Nelson
Doris Olason
ElwoodOtt
RuthOtt
Eugene Pastro
GeorginaPicardo
Emily Reese
AliceK.McCrackenRidley
Margaret Roehl
SynnoveRosvik
MildredSchiovani
CarlScribner
SonjaShaffer
LaVonneShelton
Dolores Shopes
YongSikCho
Agnes Snyder
Jean Strand
MaryanneStruck
Dick&GraceStueve
EdithSukut
CharleneTaylor
ArleneVanderKlomp
In Honor Of...RickHenry
Jane Jones
GwenKelts
Jo Maynes
EliotMorken
Martha Pennington
Elsie Sommerdorf
RayAkagi
Anonymous
Anonymous
ImmanuelLutheranChurch
RussellBean
KatieandJohnGienapp
LoisBell
Anonymous
RayAkagi
OrlaConcannon
GailScott
FlorenceandJohnBellowsHaliandDaveMyersJeanMyers
SharonFujii
LoisBell
LouiseCarbonero
JackGobel
SuzanneandKurtLippmann
RickHenry
LouiseMcAllister
JeanandEmmettHolmes
PatsyHoltRiceRichardHolt
JeffandMyraHoward
KristyandBrianAndersonLaurieandKenClarySamHarpstandRIchardBatesRoyJohnson
JamieMarsden
Anonymous
LeonLeBlanc
SuzanneandKurtLippmann
BarbaraKrull
SharonandKennethLongaker
Anonymous
KathyandGregBates
PaulaMichele
DeborahandDennisMiller
Anonymous
BarbaraandDennisBjornsonChrystalandJ.MichaelLanning
SusanOtt
SusanOtt
SisterMaggiePastro
LorrainePicardoStensenCarolVangelos
SusanOtt
AnnieandBenMcCracken
LukeRoehl
NancyJangaardRannveigTorgersen
JeannetteEllis
GloriaZimmermanScribner
Anonymous
AnonymousMaryandJohnCooleyMargaretDidenhoverJosephandLindaFixShirleyFjoslienCorineGratonSharonandGaryGreenwoodClairGrubeGailHassSheilaHastingsandIanHastings,Jr.EdwardandJaniceJanzenWilliamandHarrietLewisAuroraandRodolfoLomogdaJacquelineandHaroldMitchellJamesandJoyceMooreJohnandSusanMundyLloydandPeggyNelsonSharonSvareMaryandRichardVollert
DawnMiller
MeehyangWinberg
LoisSnyder
JanStrandandPeterHemmen
JamesCunninghamandCarolineChristy
ColleenStueve
SheilaBobala
DianaTaylor-Williams
DawnellLamb
AnthonyDuboseDebbieandChrisHicks
MariaLinde
SandraSumner
AmiSilverman
JoanneBakerJudithandJamesBorrowThelmaEgglestonClairGrubeJudithandArthurLarsonPhyllisMjorudHelgaandOddMoenVioletNelsonDorisPooleJimandMRobbinsDixieRohdeWolfgangandHedyRossler
JudyPennington
DarleneSommerdorf
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