Research Statistics Show Us
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Research Statistics Show Us. 1 Million people are living with HIV in the U.S. 1 Million people are living with Parkinson’s Disease in the U.S. 1.3 Million adults were diagnosed with cancer last year. Number of people living in the U.S. with Pituitary/Hormonal Disorders or Disease?. - PowerPoint PPT Presentation
Transcript of Research Statistics Show Us
Research Statistics Show Us
1 Million1 Million people are living with HIV in the U.S.people are living with HIV in the U.S.
1 Million1 Million people are living with Parkinson’s Disease in the people are living with Parkinson’s Disease in the U.S.U.S.
1.3 Million1.3 Million adults were diagnosed with cancer last yearadults were diagnosed with cancer last year
Number of people living in the U.S. withNumber of people living in the U.S. with Pituitary/Hormonal Disorders or Disease?Pituitary/Hormonal Disorders or Disease?
One in Five.One in Five.An estimated total ofAn estimated total of 60 Million.60 Million.
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One in One in five…five… Nearly a quarter of the world's adult Nearly a quarter of the world's adult population develop pituitary tumors in their population develop pituitary tumors in their lifetime.lifetime.
Hormonal health is vital to total health and Hormonal health is vital to total health and well-being. However, all too often many people, well-being. However, all too often many people, including physicians, do not see the correlation including physicians, do not see the correlation between common symptoms and disorders, and between common symptoms and disorders, and the pituitary gland.the pituitary gland.
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anorexiaanorexiaobesityobesitybulimiabulimiaheadachesheadachesdepressiondepressionmood swingsmood swingsanger anger
loss of memory loss of memory loss of sleeploss of sleepsexual dysfunctionsexual dysfunctionlack of libidolack of libidohigh blood pressurehigh blood pressurejoint and muscle painjoint and muscle painosteoporosisosteoporosis
diabetesdiabetesinfertilityinfertilityirregularirregular menses menseslactatinglactatingunusual hairunusual hair growth growth
One in One in five…five…
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The Pituitary Network Association was The Pituitary Network Association was founded in 1992 by a group of pituitary patients founded in 1992 by a group of pituitary patients in order to communicate and share their in order to communicate and share their experiences and concerns.experiences and concerns.
The PNA has rapidly become the world's The PNA has rapidly become the world's largest and fastest growing patient advocacy largest and fastest growing patient advocacy organization devoted to the treatment and cure organization devoted to the treatment and cure of pituitary disorders.of pituitary disorders.
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IT IS OUR MISSION to support, pursue, IT IS OUR MISSION to support, pursue, encourage, promote and where possible, fund encourage, promote and where possible, fund research on Pituitary Disorders in a sustained research on Pituitary Disorders in a sustained and full time effort to find a cure for these and full time effort to find a cure for these illnesses.illnesses.
The PNA will disseminate information helpful The PNA will disseminate information helpful to the medical community, the public and to to the medical community, the public and to pituitary patients and their families on matters pituitary patients and their families on matters regarding early detection, symptoms, regarding early detection, symptoms, treatments and resources available to patients treatments and resources available to patients with pituitary disease.with pituitary disease.
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To Whom It May Concern:My name is K--- H----. I live in East Africa, I am
36 years old and the mother of one child. After giving birth my BP and sugar is continuing increasing and my body became very fat. After a long follow up, my doctor find out that I am a Cushing’s Syndrome patient, but my country’s big referral hospital could not identify where the hormone comes from and the problem at all. So, they write me a letter to get treatment abroad. Thus, I tried to contact different hospitals and I found X--- University Hospital in America. They told me I have to pay around $85,000 USD. However, the amount of money required for this purpose is beyond my capacity and actually not imaginable to cover by myself. So, I am searching for anyone or any organization who could save my life. Please tell me what you can do to save my existence. If you need any medical information, I will send it as soon as possible. Besides, I need your answer badly. Thank you in advance.K--- H----East Africa
At the PNA, At the PNA, phone calls, phone calls, emails and emails and letters are letters are
received daily received daily from around from around the globe. the globe.
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The PNA is served by a dedicated Board of The PNA is served by a dedicated Board of Directors.Directors.
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An international network of the world’s An international network of the world’s finest physicians and surgeons supports the finest physicians and surgeons supports the PNA.PNA.
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The PNA brings information to the research, medical, The PNA brings information to the research, medical, governmental, and patient communities through governmental, and patient communities through conferences, publications, research efforts and support conferences, publications, research efforts and support --
Our monthly Our monthly Highlights Highlights
newsletter is newsletter is our most our most proactive proactive means of means of
communicatiocommunication.n.
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Although it might be considered more passive, the Although it might be considered more passive, the PNA website is our primary means of communication.PNA website is our primary means of communication.
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On the website, patients and physicians can quickly On the website, patients and physicians can quickly find accurate and comprehensive information on find accurate and comprehensive information on pituitary related disorders -pituitary related disorders -
The PNA The PNA website is the website is the
#1 resource for #1 resource for pituitary pituitary
information for information for the National the National Institutes of Institutes of
Health.Health.
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Links to other informational organizations with Links to other informational organizations with pituitary/hormonal related information are provided -pituitary/hormonal related information are provided -
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Through our Through our Professional Professional membership membership program, the program, the PNA offers PNA offers
international international referrals to many referrals to many
renowned renowned pituitary pituitary
Endocrinologists, Endocrinologists, Neurosurgeons Neurosurgeons and University and University
Medical Centers. Medical Centers.
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Many well-Many well-known known
Universities and Universities and Medical Centers Medical Centers specializing in specializing in
pituitary pituitary medicine are medicine are among our among our members.members.
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Another main feature of the website, is the PNA Another main feature of the website, is the PNA Forum, where patient and physician alike, Forum, where patient and physician alike, communicate their pituitary/hormonal issues and communicate their pituitary/hormonal issues and experiences.experiences.
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2006
MonthUnique
visitorsNumber of
visits Pages Hits
Jan-06 20829 28925 74664 1299676
Feb-06 18427 24871 66673 1196732
Mar-06 23674 32234 88419 1571170
Apr-06 22787 31333 89768 1502822
May-06 22146 30659 84952 1470701
Jun-06 20460 28469 81034 1317535
Jul-06 20450 29244 87091 1369510
Aug-06 21883 31653 88756 1396716
Sep-06 23442 34080 91856 1446267
Oct-06 27918 40637 107421 1680882
Nov-06 24886 36983 97242 1430032
Dec-06 21432 31303 86032 1304096
Total 268,334 380,391 1,043,908 16,986,139
PNA WebsitePNA WebsiteStatistics for 2006Statistics for 2006
Since the Since the introduction of introduction of the Pituitary the Pituitary
Network Network website in 1992, website in 1992,
the usage and the usage and growth have growth have consistently consistently surpassed surpassed
expected gains expected gains each year.each year.
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PITUITARY.ORGWebsite Statistics for November 30th
1148 1337
53901
60726
3226 3951
197.95137.79
2005 2006
Number of visits
Pages
Hits
Bandw idth
PITUITARY.ORGPITUITARY.ORGWebsite Statistics for November 30thWebsite Statistics for November 30th
2005 and 20062005 and 2006 This This
comparison comparison shows the shows the dramatic dramatic
increase of increase of visitors per day; visitors per day; Nov. 30th 2005 Nov. 30th 2005
and 2006. A and 2006. A startling startling
average of average of 73,000 73,000
additional additional visitors per year.visitors per year.
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In the month In the month of November of November 2006, visitors 2006, visitors
from 117 from 117 different different countries countries
came to the came to the PNA website PNA website
for for information.information.
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The Future of the PNAThe Future of the PNA
Four Main Goals For 2007 - 08Four Main Goals For 2007 - 08
FIRST:FIRST:Strengthen and complete our memberships on the PNA Board of Governors
SECOND:SECOND:Continue to work through various sources in order to plan and present a “Hormonal Health Conference” at the White House in 2007.
THIRD:THIRD:Approach various members of Congress to secure the formation and funding of a new National Institute of Hormonal Health and Metabolic Disorders. (NIHHMD)
The FOURTH main goal of the PNA:The FOURTH main goal of the PNA:is the proposed budget for the PNA “Virtual Pituitary/Hormonal Health University and Medical Center”
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Four Main Goals For 2007 - 08Four Main Goals For 2007 - 08
FIRST:FIRST:Strengthen and complete our memberships on the Board of Governors
Our Board of Governors is designed for those who wish Our Board of Governors is designed for those who wish to take an active role in development and growth in the to take an active role in development and growth in the area of pituitary knowledge and awareness.area of pituitary knowledge and awareness.
The Honorary Chairman is the Olympic gold medal The Honorary Chairman is the Olympic gold medal winner and pituitary patient, Scott Hamilton. Co-chairs of winner and pituitary patient, Scott Hamilton. Co-chairs of the Professional Division are Sylvia Asa, M.D., Ph.D., and the Professional Division are Sylvia Asa, M.D., Ph.D., and Shereen Ezzat, M.D.Shereen Ezzat, M.D.
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Four Main Goals For 2007 - 08Four Main Goals For 2007 - 08
SECOND:Continue to work through various sources in order to plan and present a “Hormonal Health Conference” at the White House sometime in 2007.
We need We need youryour help, and the help of every company and help, and the help of every company and organization who will write to this address:organization who will write to this address:
First Lady Laura BushFirst Lady Laura Bush
The White HouseThe White House
1600 Pennsylvania Avenue1600 Pennsylvania Avenue
Washington, D.C. 20500Washington, D.C. 20500
Request that her staff work with us in arranging such a Request that her staff work with us in arranging such a meeting.meeting.
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Four Main Goals For 2007 - 08Four Main Goals For 2007 - 08
THIRD:THIRD:Approach various members of Congress to secure the formation and funding of a new National Institute of Hormonal Health and Metabolic Disorders. (NIHHMD)
The diversity at the National Institutes of Health The diversity at the National Institutes of Health demonstrates how “bits and pieces” of hormonal research is demonstrates how “bits and pieces” of hormonal research is taking place in up to 20 institutes without a clear direction.taking place in up to 20 institutes without a clear direction.
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National Institutes of HealthNational Institutes of Health National Cancer Institute*National Cancer Institute* National Eye Institute*National Eye Institute* National Heart, Lung, and National Heart, Lung, and
Blood Institute*Blood Institute* National Human Genome National Human Genome
Research Institute*Research Institute* National Institute of Aging*National Institute of Aging* National Institute of Alcohol National Institute of Alcohol
Abuse and Alcoholism*Abuse and Alcoholism* National Institute of Allergy National Institute of Allergy
and Infectious Diseases*and Infectious Diseases* National Institute of Arthritis National Institute of Arthritis
and Musculoskeletal and Skin and Musculoskeletal and Skin Diseases*Diseases*
National Institute of National Institute of Biomedical Imaging and Biomedical Imaging and Bioengineering*Bioengineering*
National Institute of Child National Institute of Child Health and Human Health and Human Development*Development*
National Institute of Deafness and National Institute of Deafness and other Communication Disordersother Communication Disorders
National Institute of Dental and National Institute of Dental and Craniofacial Research*Craniofacial Research*
National Institute of Diabetes and National Institute of Diabetes and Digestive and Kidney Diseases*Digestive and Kidney Diseases*
National Institute of Environmental National Institute of Environmental Health SciencesHealth Sciences
National Institute of Mental Health*National Institute of Mental Health* National Institute of Drug Abuse*National Institute of Drug Abuse* National Institute of General Medical National Institute of General Medical
SciencesSciences National Institute of Neurological National Institute of Neurological
Disorders and Stroke*Disorders and Stroke* National Institute of Nursing National Institute of Nursing
Research*Research* National Library of Medicine*National Library of Medicine*
* = Hormonally Related
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Four Main Goals For 2007 - 08Four Main Goals For 2007 - 08
The FOURTH main goal of the PNA:The FOURTH main goal of the PNA:is the proposed budget for the Pituitary Network is the proposed budget for the Pituitary Network Association’s “Virtual Pituitary/Hormonal Health University Association’s “Virtual Pituitary/Hormonal Health University and Medical Center”and Medical Center”
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An Assured FutureAn Assured Future Estimated Budget for Our GoalsEstimated Budget for Our Goals
The estimated budget for our four main objectives equals 6 The estimated budget for our four main objectives equals 6 million dollars; allocated as follows:million dollars; allocated as follows:
$350,000 to achieve goals one through three$350,000 to achieve goals one through three
$650,000 for the creation of the new website including $650,000 for the creation of the new website including software, hardware, design and developmentsoftware, hardware, design and development
Invested funds/annuity for perpetual operation and staffing of this website is estimated at $5,000,000. At 8% return we will have $400,000 for ongoing communications and teaching purposes every year.
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The Future of the PNAThe Future of the PNADepends On YouDepends On You
The world looks to us for the answers.
