Public Deliberation Resources - uoguelph.ca
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Public Deliberation Resources Published on Department of Psychology (https://www.uoguelph.ca/psychology) Public Deliberation Resources Deliberation Project Websites Biobanks and biomedical data sharing Sequencing the salmon genome Explosives, the environment, and microbial genetics Academic Literature Publications from Deliberative Democracy Events and Associated Research Burgess, M. M., Longstaff, H. & O’Doherty, K. C. (2016). Assessing deliberative design of public input on British Columbia biobanks. In S. Dodds & R. Ankeny (Eds.). Big Picture Bioethics: Developing Democratic Policy in Contested Domains. Springer International Publishing. doi: 10.1007/978-3-319-32240-7 Chalmers, D., Burgess, M. M., Edwards, K., Kaye, J., Meslin, M. M. & Nicol, D. (2015). Marking shifts in human research ethics in the development of biobanking. Public Health Ethics, 8(1), 63-71. doi: 10.1093/phe/phu023 Burgess, M. M. & Longstaff, H. (2014). Representing the cultural significance of salmon in a west coast public deliberation. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press. Cohen, E. & O’Doherty, K. C. (2014). Perceptions of salmon genomics among the Chinese-Canadian and Indo-Canadian community in BC. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press. O’Doherty, K. C., Longstaff, H. & Burgess, M. M. (2014). Using deliberative democracy to inform policy on applications arising from salmon denomics research. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press. Burgess, M. M. (2014). From ’trust us’ to participatory governance: Deliberative publics and science policy. Public Understanding of Science, 23(1): 48-52. doi: 10.1177/0963662512472160. Moore, A. & O’Doherty, K. (2014). Deliberative voting: Clarifying consent in a consensus process. The Journal of Political Philosophy, 22(3), 302–319. doi: 10.1111/jopp.12028 Chalmers, D., McWhirter, R. E., Nicol, D., Whiton, T., Otlowski, M., Burgess, M., Foote, S. J., Critchley, C. & Dickinson, J. L. (2014). New avenues within community engagement: Addressing the ingenuity gap in our approach to health research and future provision of health care. Journal of Responsible Innovation, 1(3), 321-328. doi: 10.1080/23299460.2014.963002 O'Doherty, K. C. (2013) Synthesising the outputs of deliberation: Extracting meaningful results from a public forum. Journal of Public Deliberation, 9(1). Retrieved from https://www.publicdeliberation.net/jpd/vol9/iss1/art8/ O’Doherty, K. C. & Burgess, M. M. (2013). Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining. Research Ethics, 9(2), 55-77. doi: 10.1177/1747016113488858. Page 1 of 4
Transcript of Public Deliberation Resources - uoguelph.ca
Public Deliberation ResourcesPublished on Department of Psychology (https://www.uoguelph.ca/psychology)
Public Deliberation Resources
Deliberation Project Websites
Biobanks and biomedical data sharingSequencing the salmon genomeExplosives, the environment, and microbial genetics
Academic Literature
Publications from Deliberative Democracy Events and Associated Research
Burgess, M. M., Longstaff, H. & O’Doherty, K. C. (2016). Assessing deliberative design of public input onBritish Columbia biobanks. In S. Dodds & R. Ankeny (Eds.). Big Picture Bioethics: Developing DemocraticPolicy in Contested Domains. Springer International Publishing. doi: 10.1007/978-3-319-32240-7
Chalmers, D., Burgess, M. M., Edwards, K., Kaye, J., Meslin, M. M. & Nicol, D. (2015). Marking shifts inhuman research ethics in the development of biobanking. Public Health Ethics, 8(1), 63-71. doi: 10.1093/phe/phu023
Burgess, M. M. & Longstaff, H. (2014). Representing the cultural significance of salmon in a west coastpublic deliberation. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species: Cod andSalmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press.
Cohen, E. & O’Doherty, K. C. (2014). Perceptions of salmon genomics among the Chinese-Canadian andIndo-Canadian community in BC. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species:Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario: Captus Press.
O’Doherty, K. C., Longstaff, H. & Burgess, M. M. (2014). Using deliberative democracy to inform policyon applications arising from salmon denomics research. In K. Culver & K. O’Doherty (eds.). Fishing andFarming Iconic Species: Cod and Salmon and Social Issues in Genomics Science. Concord, Ontario:Captus Press.
Burgess, M. M. (2014). From ’trust us’ to participatory governance: Deliberative publics and sciencepolicy. Public Understanding of Science, 23(1): 48-52. doi: 10.1177/0963662512472160.
Moore, A. & O’Doherty, K. (2014). Deliberative voting: Clarifying consent in a consensus process. TheJournal of Political Philosophy, 22(3), 302–319. doi: 10.1111/jopp.12028
Chalmers, D., McWhirter, R. E., Nicol, D., Whiton, T., Otlowski, M., Burgess, M., Foote, S. J., Critchley, C.& Dickinson, J. L. (2014). New avenues within community engagement: Addressing the ingenuity gap inour approach to health research and future provision of health care. Journal of Responsible Innovation, 1(3), 321-328. doi: 10.1080/23299460.2014.963002
O'Doherty, K. C. (2013) Synthesising the outputs of deliberation: Extracting meaningful results from apublic forum. Journal of Public Deliberation, 9(1). Retrievedfrom https://www.publicdeliberation.net/jpd/vol9/iss1/art8/
O’Doherty, K. C. & Burgess, M. M. (2013). Public deliberation to develop ethical norms and inform policyfor biobanks: Lessons learnt and challenges remaining. Research Ethics, 9(2), 55-77. doi: 10.1177/1747016113488858.
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Public Deliberation ResourcesPublished on Department of Psychology (https://www.uoguelph.ca/psychology)
Nep, S. & O’Doherty, K. C. (2013). Understanding public calls for labeling of GM foods: Analysis of apublic deliberation on GM salmon. Society & Natural Resources, 26(5), 506-521. doi:10.1080/08941920.2012.716904.
O’Doherty, K. C., MacKenzie, M. K. & Badulescu, D., & Burgess, M. M. (2013). Explosives, genomics, andthe environment: Conducting public deliberation on topics of complex science and socialcontroversy. Sage Open, 3. doi: 10.1177/2158244013478951.
Burgess, M. M. (2012). Deriving policy and governance from deliberative events and minipublics. In M.Howlett & D. Laycock (Eds.), Regulating Next Generation Agri-Food Biotechnologies: Lessons fromEuropean, North American and Asian Experiences. (pp. 220-236). London, UK: Routledge.
O'Doherty, K. C., Gauvin, F.-P., Grogan, C., & Friedman, W. (2012). Implementing a Public DeliberativeForum. Hastings Center Report, 42(2), 20-23. doi: 10.002/hast.28
O’Doherty, K. (2012). Theorising deliberative discourse. In K. O’Doherty & E. Einsiedel (Eds.), PublicEngagement and Emerging Technologies. (pp. 133-147). Vancouver, BC: UBC Press.
O’Doherty, K. C., Hawkins, A. K, & Burgess, M. M. (2012). Involving citizens in the ethics of biobankresearch: Informing institutional policy through structured public deliberation. Social Science andMedicine, 75, 1604-1611. doi: 10.1016/j.socscimed.2012.06.026
O'Doherty, K. C., Ibrahim, T., Hawkins, A. K., Burgess, M. M. & Watson, P. (2012). Managing theintroduction of biobanks to potential participants: Lessons from a deliberative publicforum. Biopreservation and Biobanking, 10(1), 12-21. doi: 10.1089/bio.2011.0029
Secko, D. M. (2012). Swimming with salmon: The use of journalism to public engagement initiative onemerging biotechnologies. In K. O'Doherty & E. Einsiedel (Eds.), Public Engagement and EmergingTechnologies. (pp. 211-228). Vancouver, BC: UBC Press.
MacKenzie, M. K. & O'Doherty, K. C. (2011). Deliberating future issues: Minipublics and salmongenomics. Journal of Public Deliberation, 7(1). Retrievedfrom https://www.publicdeliberation.net/jpd/vol7/iss1/art5
O’Doherty, K. C., Burgess, M. M., Edwards, K., Gallagher, R., Hawkins, A., Kaye, J., McCaffrey, V., &Winickoff, D. (2011). From consent to institutions: Designing adaptive governance for genomicbiobanks. Social Science and Medicine, 73, 367-374. doi: 10.1016/j.socscimed.2011.05.046.
Walmsley, H. L. (2011). Stock options, tax credits or employment contracts please! The value ofdeliberative public disagreement about human tissue donation. Social Science & Medicine, 71(1),209-216. doi: 10.1016/j.socscimed.2011.05.005
Hawkins, A. K. & O'Doherty, K. C. (2010). Biobank governance: A lesson in trust. New Genetics &Society, 29(3), 311-325. doi: 10.1080/14636778.2010.507487
Longstaff, H & Burgess, M. M. (2010). Recruiting for representation in public deliberation on the ethics ofbiobanks. Public Understanding of Science, 19(2), 212-24. doi: 10.1177/0963662508097626
O'Doherty, K.C., Burgess, M. M. & Secko, D. M. (2010). Sequencing the salmon genome: A deliberativepublic engagement. Genomics, Society and Policy, 6(1), 16-33. doi: 10.1186/1746-5354-6-1-15
O’Doherty, K. C. & Hawkins, A. K. (2010). Structuring public engagement for effective input in policydevelopment on human tissue biobanking. Public Health Genomics, 13(4), 197-206.doi: 10.1159/000279621
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Public Deliberation ResourcesPublished on Department of Psychology (https://www.uoguelph.ca/psychology)
O'Doherty, K. C. & Davidson, H. J. (2010). Subject positioning and deliberative democracy:Understanding social processes underlying deliberation. Journal for the Theory of Social Behaviour,40(2), 224-245. doi: 10.1111/j.1468-5914.2009.00429.x
MacLean, S & Burgess, M. M. (2010). In the public interest: Assessing expert and stakeholder influencein public deliberation about biobanks. Public Understanding of Science, 19(4), 486-496.doi: 10.1177/0963662509335410
Longstaff, H & Secko, D. M. (2010). Media influence on biobank deliberations. Journal of Health & MassCommunication, 2, 73-96. Retrievedfrom http://www.csjp.ca/wordpress/wp-content/uploads/2011/11/Longstaff_Secko_JHMC_2010.pdf
Walmsley, H. L. (2010). Biobanking, public consultation, and the discursive logics of deliberation: Fivelessons from British Columbia. Public Understanding of Science, 19(4), 452-468.doi: 10.1177/0963662509335523
Walmsley, H. L. (2010). Witnessing genomics: The design, facilitation and evaluation of inclusivedeliberative public consultation about biobanking in British Columbia (Canada) (Doctoral Dissertation,Lancaster University). Retrieved from http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.547973
Walmsley, H. L., Burgess, M. M., Brinkman, J., Hegele, R., Wilson-McManus, J., & McManus, B. (2010).Ethics of biomarkers: Where are the borders of investigative research, informed consent and patientprotection. In M. Bleravins, R. Rahbari, M. Jurima-Romet & C. Carini (Eds.) Biomarkers in DrugDevelopment: A Handbook of Practice, Application and Strategy. (pp. 625-642) New York, NY: Wiley.
Avard, D., Bucci, L. M., Burgess, M. M., Kaye, J., Heeney, C., & Cambon-Thompson, A. (2009). Publichealth genomics and public participation: Points to consider. Journal of Public Deliberation, 5(1).Retrieved from https://www.publicdeliberation.net/jpd/vol5/iss1/art7
Secko, D. M., Preto, N., Niemeyer, S. & Burgess, M. M. (2009). Informed consent in biobank research:Fresh evidence for the debate. Social Science & Medicine, 68(4), 781-789.doi: 10.1016/j.socscimed.2008.11.020
O'Doherty, K. C. & Burgess, M. M. (2009). Engaging the public on biobanks: Outcomes of the BC BiobankDeliberation. Public Health Genomics, 12(4), 203-215. doi: 10.1159/000167801
Walmsley, H. L. (2009). Mad scientists bend the frame of biobank governance in BritishColumbia. Journal of Public Deliberation, 5(1). Retrievedfrom https://www.publicdeliberation.net/jpd/vol5/iss1/art6
Watson, P. H., Wilson-McManus, J. E., Barnes, R. O., Giesz, S. C., Png, A., Hegele, R. G., Brinkman, J. N.,Mckenzie, I. R., Huntsman, D. G., Junker, A., Gilks, B., Skarsgard, E., Burgess, M. M., Aparicio, S., &McManus, B. (2009). Evolutionary concepts in biobanking - The BC BioLibrary. Journal of TranslationalMedicine, 7, 95. doi: 10.1186/1479-5876-7-95
Wilcox, E. S. (2009). Does "misinformation" matter? Exploring the roles of technical and conceptualinaccuracies in a deliberative public engagement on biobanks (Master’s thesis, University of BritishColumbia, Vancouver, Canada).
Tansey, J. & Burgess, M. M. (2008). The meaning of genomics: A focus group study of "interested" andlay classifications of salmon genomics. Public Understanding of Science, 17(4), 473-484.doi: 10.1177/0963662507076603
Burgess, M. M., O'Doherty, K. C. & Secko, D. C. (2008). Biobanking in BC: Enhancing discussions of the
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Public Deliberation ResourcesPublished on Department of Psychology (https://www.uoguelph.ca/psychology)
future of personalized medicine through deliberative public engagement. Personalized Medicine, 5(3),285 - 296. doi: 10.2217/17410541.5.3.285
Secko, D. M., Burgess, M. M., & O'Doherty, K. C., (2008). Perspectives on engaging the public in theethics of emerging biotechnologies: From salmon to biobanks to neuroethics. Accountability inResearch,15(4), 283-302. doi: 10.1080/08989620802388762
Wilcox, E. (2008). A Lego model to help inform participants at the British Columbia biobankdeliberation. Health Law Review, 16(4), 9- 11.
Publications by Collaborators on Deliberative Events and In Theoretical Literature
Molster, C., Potts, A., McNamara, B., Youngs, L., Maxwell, S., Dawkins, H., & O'Leary, P. (2013). Informingpublic health policy through deliberative public engagement: Perceived impact on participants andcitizen-government relations. Genetic Testing & Molecular Biomarkers, 17(9). doi: 10.1089/gtmb.2013.0044
MacKenzie, M. K., & Warren, M. E. (2012). Two trust-based uses of minipublics in democratic systems. InJ. Parkinson & J. Mansbridge (Eds.), Deliberative Systems: Deliberative Democracy at the Large Scale.(pp. 95-124). Cambridge: Cambridge University Press. doi: 10.1017/CBO9781139178914.006
Molster, C., Maxwell, S., Youngs L., Potts, A., Kyne, G., Hope, F., Dawkins, H., & O’Leary, P. (2012). AnAustralian approach to the policy translation of deliberated citizen perspectives on biobanking. PublicHealth Genomics, 15(2), 82-91. doi: 10.1159/000334104
Molster, C., Maxwell, S., Youngs, L., Kyne, G., Hope, F., Dawkins, H., & O’Leary, P. (2011). Blueprint for adeliberative public forum on biobanking policy: Were theoretical principles achievable inpractice? Health Expectations, 16(2), 11-224. doi: 10.1111/j.1369-7625.2011.00701.x
Submitted or In-Press
Tansey, J & MM Burgess (in press). Complexity of public interest in ethical analysis of genomics. In D.Castle & K. Culver (Eds.) Genomics and Public Policy: Issues and Perspectives for Canada and the World.Vancouver, BC: UBC Press.
Walmsley, H. (under review). From dinosaur clones to infertile super-humans: The temporality ofdeliberative communication in a promissory bio-democracy. Social Studies of Science.
Source URL: https://www.uoguelph.ca/psychology/odoherty-lab/public-deliberation-resources
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