partners and others throughout our state who believe in a world · 2019. 1. 8. · The company is...

Multiple sclerosis (MS) is a chronic disease of the central nervous system (the brain, optic nerves and spinal cord). MS is unpredictable. It is as unique as the individual who has it. Its symptoms range from fatigue, memory loss and blurred vision, to numbness, paralysis and blindness. Symptoms may be permanent or temporary, severe or mild.

A million Americans live with MS – the estimated 400,000 women, men and children who have the disease, and all those it affects, including their families, friends, fellow workers and community members.

In Wisconsin, we have one of the highest rates of MS in the country. More than 10,000 individuals who live here have MS. But the disease affects so many more. Mothers, fathers, children, friends. All feel the impact of a diagnosis.

The National MS Society – Wisconsin Chapter is part of a movement. A movement to change the course of a disease… a movement to support life-changing research…a movement to impact those living with MS now! That movement continues to expand, thanks to the thousands of volunteers, donors, corporate

partners and others throughout our state who believe in a world free of MS. These individuals, corporations and organizations all work together so that one day no one will have to hear the words “You have MS.”

2 National MS Society - Wisconsin Chapter > Annual Report 08

TogeTher we are helping people address the challenges of living with MS.

TogeTher we are finding new treatments for MS.

TogeTher we are advocating on behalf of those living with MS.

TogeTher we will find a cure.

3National MS Society - Wisconsin Chapter > Annual Report 08

Last year we created a movement – a movement for a world free of MS. And this year, extraordinary efforts were made by all to make sure this movement succeeded. Volunteers, walkers, bikers, donors and advocates all took it upon themselves to do something about MS now. Nationally and locally, we are moving forward together.

Together we can accomplish great things. And together we have. This year we moved together in research by funding promising initiatives into the cause, treatment and cure for MS. We moved together in client services and provided more than 10,000 people with assistance, information, community referrals and support. And we moved together in advocacy to improve legislation on behalf of people with MS.

We saw great accomplishments all around this past year and it is with great honor that I share them with you in the pages to come. The Wisconsin Chapter is fortunate to have the support of people like you, people who have given their time, energy and talent to help. Thanks to you we are moving forward together.

Warm regards,

Colleen G. Kalt

Message fromthe President


Moving Forward with volunteerisM

Robyn Turtenwald

> an inspirational Face of MsRobyn is a distinguished community volunteer who joined the Wisconsin Chapter Board of Trustees in 2007. Among her myriad of community service, Robyn serves as the director for the Menomonee Falls Parade Committee and is an active member of the Optimist Club and the Menomonee Falls Chamber of Commerce Ambassador Committee. She is also a member of the Greater Menomonee Falls Foundation and Community Memorial Hospital boards. Robyn graduated from Bryant and Stratton Business College and currently resides in Menomonee Falls.

As a person living with MS, Robyn has been inspirational in her involvement with the Chapter’s Act 71 Committee, Golf Committee, and many other programs and events. In honor of her accomplishments and dedication, Robin is the Chapter’s first recipient of the Inspirational Faces of MS Award.

Dan Waters> the epitome of volunteeringA man of many trades, Dan Waters began his involvement with the Chapter almost immediately upon learning he had MS. A war veteran, he worked hard with the VA to prove his MS was active-duty related… and succeeded. Dan volunteers at clinics on behalf of the Society (including the VA Hospital), is a member of the Government Relations Committee, and hosts a community event to raise funds for the mission. He is also a contributing author to Jeffrey Gingold’s book “Mental Sharpening Stones.” Dan is a fixture at Chapter events, such as Bike MS and Challenge Walk MS, organizing groups of volunteers with MS to recognize and thank participants for their involvement. Volunteers cheer on event participants, sign jerseys and greet walkers and cyclists as they cross the finish line. This activity, the brainchild of Dan Waters, has become an emotional and moving part of Chapter events. Dan is a true example of taking matters into one’s own hands and making lemonade out of lemons!

Volunteers are the foundation of our organization. Through their efforts, lives across Wisconsin are impacted. Thanks to their dedication, the following

was achieved in 2008:

> More than 85 individuals served as Wisconsin Chapter leadership volunteers.

> More than 280 people volunteered on advisory and event committees.

> 70 people served as self-help group facilitators and more than 90 donated their time at client programs.

> Three people traveled with Wisconsin Chapter staff and visited federal legislators in Washington, D.C., during the Public Policy Conference.

> A group of 15 key volunteers attended the Society’s National Leadership Conference to share ideas about how to encourage others to join the movement.

> Walk MS and Bike MS were great successes thanks to more than 1400 combined volunteers.

> Approximately 60 people kept those living with MS moving forward by organizing community events.

> More than 10 individuals volunteer at the Wisconsin Chapter office on a regular basis.

in 2008, the wisconsin Chapter was honored to have three individuals inducted into the national volunteer hall of Fame. these dedicated volunteers were selected by a national review committee, based on their commitment to a world free of Ms, their expertise, and their impact on the lives of those living with the disease.

Susan Wilkeynational lifetime achievement awardThe National Lifetime Achievement Award recognizes the lifetime commitment of an individual who is dedicated to seeing a world free of MS. With more than 35 years of distinguished service to the Society, Susan is an icon of courage and determination. She has served on the National Board of Trustees, the National Advisory Council, the Wisconsin Chapter Board of Trustees, the Chapter Major Gifts Council, and the Chapter scholarship and luncheon committees, just to name a few. She was a recipient of the Hope Chest Award, is a Lawry’s Circle member (formerly Pillars of Society) and has made an outstanding contribution to the Chapter Scholarship Endowment Fund in honor of her father, “Fergie.”

Thomas BushPrograms and services volunteer inducteeTom Bush was inducted as the Programs and Services Volunteer for his outstanding commitment to making a difference in the lives of people with MS. Tom is a distinguished attorney and well-respected for his knowledge of Social Security law. For more than 20 years, Tom has served the Wisconsin Chapter as a newsletter contributor, keynote speaker and advocate for individuals with disabilities. In 1992 he published the book “Social Security Disability Practice.” As a legal consultant, Tom served on the Chapter’s Clinical Advisory Committee from 1992 until 2007. In addition to his work with the Wisconsin Chapter, Tom has shared his expertise with a number of organizations serving clients with disabilities.

Ian Duncanhealth Professional and research inducteeDr. Ian Duncan was inducted as the Health Professional and Researcher for his unbending dedication to finding a cure for MS. Ian is an internationally respected research scientist at UW-Madison. He is currently leading one of four multinational, interdisciplinary teams involved in the Society’s Nervous System Repair and Protection initiative, which is part of Promise: 2010 and focuses on reversing the damage caused by MS. Among Ian’s many accomplishments, he was a Fellow of the Royal College of Veterinary Surgeons, received the Pfizer Award for Research Excellence, and was elected Councilor of the American Society for Neurochemistry.

national hall oF FaMe


FY 2008 saw rapid progress in virtually every field of science and medicine that impacts our understanding of multiple sclerosis. thanks to its generous contributors, in 2008 the national Ms society invested nearly $50 million to support more than 440 new and ongoing Ms research projects as part of its international effort to prevent, treat and cure Ms.

KeY researCh highlights>treatments in the Pipeline Walking speed improved significantly in a clinical trial of 240 people with all types of MS taking Fampridine-SR (MS-F204, Acorda Therapeutics, Inc.) compared with those taking inactive placebo. The company is planning to file in 2009 for approval of this drug to treat mobility issues in MS.

Positive results were published from at least three phase 2 trials of drugs in the pipeline for relapsing-remitting MS, including the experimental oral therapies laquinimod (Teva Pharmaceutical Industries) and BG00012 (Biogen Idec, Inc); and alemtuzumab (Genzyme Corporation and Bayer Healthcare), given by yearly infusion. Each was found to reduce MS disease activity by modulating the immune attack. Larger phase 3 trials are ongoing for each of these agents.

> nervous system Protection & repair University of Rochester researchers funded in part by the National MS Society showed for the first time that human glial progenitor cells – immature myelin-making cells – restored the myelin insulation on nerve fibers as well as neurological function when transplanted into the brains of some mice born without the ability to form myelin. Myelin is a key target of the immune attack in MS.

Brigham and Women’s Hospital researchers supported by the National MS Society reported that an experimental compound (a derivative of fullerene, a form of carbon molecule) reduced disease progression, as well as damage to nerve fibers and their myelin insulation, when administered to mice with a progressive MS-like disease.

> risk Factors & disease activity Investigators from the University of Queensland, funded by the National MS Society and MS Australia, published results suggesting that a person’s set of immune- related genes may help determine which parts of the brain and spinal cord are attacked by the immune system during the course of their MS, and may explain why individuals with MS experience tissue damage, and corresponding symptoms, differently.

University of Toronto researchers investigated 117 children at high risk for MS – youngsters who have had one neurologic episode. They reported at the World Congress of MS Research that vitamin D levels were significantly lower in the 16% of the children who went on to develop definite MS. Future studies are needed to determine whether vitamin D supplementation alters disease susceptibility or course.

In a major step toward discovering molecules that may be used as “markers” to predict MS disease activity and progression, researchers at the University of California, San Francisco identified a pattern of gene expression (i.e., patterns of genes being turned on or off ) within immune cells that was associated with quick conversion to MS in a study of 37 people with CIS (clinically isolated syndrome, a first event suggestive of MS). This study was funded in part by the National MS Society.

> driving research & Collaboration For the first time, $5 million has been awarded for MS research within the Congressionally Directed Medical Research Programs, thanks in large part to efforts by MS activists across the country. This line-item allocation for investigator-initiated research projects is funded through the Department of Defense.


Moving Forward in researCh


Moving Forward in researCh

In FY 2008, the National MS Society funded 10 research projects in Wisconsin

The National MS Society’s first Tykeson Fellows Conference was held to spur new ideas and collaborations among young scientists and physicians across North America and to offer insights into ways they can pursue successful careers as MS researchers.

More than 5,000 clinicians, clinical researchers and basic scientists from around to world convened in Montreal, Quebec in September to share findings at the first World Congress on Treatment and Research in Multiple Sclerosis. Research on nervous system repair, pediatric MS, new therapies in the pipeline and much, much more was reported in nearly 1,000 presentations at this exciting meeting.

wisConsin researCh highlightJohn O. Fleming, MD Professor of neurology, university of wisconsin school of Medicine and Public health. Dr. Fleming is the lead researcher for a study to test whether ingesting the eggs of a “helminth” whipworm – can reduce the symptoms of MS.

Studies suggest that very sanitary environments in developed countries may trigger the immune system to damage the body’s own tissues and organs. People in countries where parasites are very common rarely develop diseases like MS.

“Our team has worked very hard to put together this study, ” says Fleming. “This is an easily administered therapy, and if the experimental study demonstrates safety and promise, it may open up a whole new approach to therapy for an intractable disease.”

> Promise: 2010By the end of FY2008, the Wisconsin Chapter met 83% of their $2 million commitment to the targeted research initiative Promise: 2010. This initiative targets four highly promising areas of research:

• The Nervous System Repair and Protection Project focuses on restoring function in people with MS with Dr. Ian Duncan at UW-Madison is one of the key research leaders.

• The MS Lesion Project analyzes MS lesions in brain tissue to determine why people experience the disease so differently, and to individualize a treatment course.

• The Initiative on Pediatric Treatment Centers establishes a network of Pediatric MS Centers, providing comprehensive care to children under 18 who have MS.

• The Sonya Slifka Longitudinal Study follows large, diverse sample of people with MS, looking for patterns that will lead to better treatments and possibly even a cure.


Moving Forward with PrograMs and serviCesevery hour of everyday someone new is diagnosed with Multiple sclerosis. the wisconsin Chapter is determined to give people with Ms what they need to move their lives forward.

> More than 10,500 people affected by MS received assistance, information, community referrals and support from chapter staff and volunteers.

> More than 100 families were helped through our financial assistance program.

> The Holiday Giving program benefited 80 families and 171 children.

> MS Camp for Kids hosted 18 children from families parented by a person living with MS at Camp Minikani.

> More than 450 people living with MS, along with their families and friends, attended client programs held in Madison, Eau Claire, and Milwaukee.

> More than 165 people participated in the nationally sponsored “Knowledge is Power” educational program. Newly diagnosed information was provided to all clients in Wisconsin who contacted the Chapter. Coupled with peer and staff support, this information was crucial in helping people

manage the complex challenges of MS and make them aware of the Chapter’s numerous resources.

> More than 1,100 participants took part in Family Day workshops and celebrations held at the Milwaukee County Zoo and the Kalahari in Wisconsin Dells.

> The Chapter has six affiliated MS Centers in area hospitals throughout Wisconsin. Additionally, the Chapter met with the top seven MS neurologists in Wisconsin to discuss a frame work for providing comprehensive care to all clients with MS in the state.

> Through its physician outreach initiative, the Chapter made more than 60 visits to MS Centers and other healthcare facilities throughout the state, establishing relationships and providing information on MS and the Society.

> Chapter representatives and other health professionals collaborated throughout the state to provide training to a number of professionals working with patients with MS, including yoga instructors, physical and occupational therapists, long-term care workers and MS Center staff.

> The chapter again expanded Circle of Hope support groups to 51 in Wisconsin.

> The chapter worked with volunteer leaders to add support groups specifically designed for men, individuals in their 20s and 30s, moms, and caregivers.

> Mike Krisch Mike is a true example of the power of volunteering. His dedication and passion for a world free of MS is remarkable. Not only has he participated in the MS Snowmobile Tour for 15 years, but he has been instrumental in developing the Circle of Hope self help group program and has been an active committee member for the Fox Cities Walk MS. He is continually fostering awareness of the organization among the general public and is dedicated to bringing the mission to every one.


> the Chapter awarded 41 scholarships for a total of $60,000 to first-year college students who have a parent with Ms or have Ms themselves. two scholars were recognized as national top scholars, and one received the national Presidential scholar award.

an insPiration to us all….Laura Hermanns Presidential Scholar, Laura Hermanns of Racine, was awarded a four-year national scholarship. Laura graduated in the top 10% of her class and was an active member of the National Honor Society, student government and captain of her Walk MS team for four years.

She recently accepted the challenge and walked in the Chapter’s first Challenge Walk. Laura is currently studying environmental science at UW-Madison. She is greatly influenced by her family’s perseverance, and especially her father, who lives with MS. Laura says her family’s determination and devotion will always guide her life.

2008 sCholarshiP

winners

“My dad knows that he is more than his disease. As a pastor, he continues to inspire so many.” ~Laura Hermanns, 2008 Presidential Scholar

through the generosity and kindness of individual donors, event participants, corporate partners and volunteers, the wisconsin Chapter raised nearly $5 million for a world free of Ms.

events> Walk MS was held in 13 cities throughout the state and raised $1.5 million thanks to the dedication of more than 7,800 walkers and volunteers.

> Celebrating 25 years, more than 1,900 cyclists and volunteers came together and raised $1.6 million through Bike MS: Best Dam Bike Ride.

> Also celebrating 25 years, more than 170 snowmobilers and volunteers gathered at the MS Snowmobile Tour, raising over $300,000.

> The MS Luncheon showcased inspirational stories by local faces of MS and featured keynote speakers Sarah White (Green Bay) and Rain Pryor (Madison, Milwaukee). Nearly $200,000 was raised for Promise: 2010.

> More than $77,000 was raised through the Golf MS Invitational, held in the rain at Blue Mound Golf and Country Club.

The following individuals and corporations raised or contributed $10,000 or more toward our mission.

individual Mission drivers> Father Charles Brooks> Dennis Christiansen> Bonnie Drozdowicz> Bob Engel> Jeanie Hart Grunau> Kerri Herrild> Devlynn Ihlenfeld> Ron Knutson> Barb Lenz> Tony Machi> Peggy Mat-Siewert> Ken Minor> Janice Pluer> Rick Romenesko> Jim Sandstrom> Chuck Scherwinski> Bob Schmidt> Paul Stoltman> Dennis Teuscher> Tom Trepczyk> Lenore Van Santen

CorPorate Mission drivers> Acorda Therapeutics> A.O. Smith Corporation> Biogen Idec> Christopher & Banks> EMD Serono> Engel Tool and Forge> Forest County Potawatomi Community Foundation> M&I Bank> Open Pantry Food Marts of Wisconsin> Teva Neuroscience> Toyota Trucks

indePendent event Mission drivers> The Bell Family Rabbit Hunt Don and Eileen Bell, and Greg and Deana Bell> Birdy’s Scramble Fore a Cure Pat and Lisa Haak (Hock)> The Blarney Bash Wendy and Tony Machi Pat and Mary Topp and the rest of Team Wendy> The Croal Open Dan, Mike and Tim Croal> Cynthia’s Run 4 MS Cynthia Gray> The Hopp-Dakota MS Triathlon Brian and Mary Hopp> Knutz Krew 9-Pin Tap Tournament Ron and Toni Knutson Dan and Pam Patterson


Moving Forward bY Funding the Cure


Moving Forward bY Funding the CureendowMents, legaCies and other giFts

> Non-event related gifts generated $1,120,454 for a world free of MS.

> In FY 2008, the Chapter’s MS Scholarship Endowment Fund increased to $158,066, thanks to the generosity of major gift donors. Among the most notable gifts was a $25,000 donation from former National Board member Susan Wilkey, in honor of her father, T. Ferguson Locke.

> Other families, remembering the Chapter in their wills, contributed nearly $180,000 through planned legacy gifts.

> The Pillars of Society was renamed the Lawry Circle in 2008 to honor Sylvia Lawry, founder of the National MS Society. The Lawry Circle is the organization’s honor society, recognizing individuals and families who have remembered the Chapter through a bequest, gift annuity or other deferred gift. The Chapter appreciates the members for the deep commitment to improve the lives of people with MS and their families.

legaCiesJohn W. and Dorothy Nelson Hazel Meyers Candice Tylke Pauline Kiefert Louise Noerenberg Dolores Dornoff Douglas Kiefert Marcel and Helen Trombley

lawrY CirCleAnonymous- 2Mr. Jeffrey A. ArndtMrs. Kendra M. ArndtThe Rev. Charles R. BrooksMs. Anne BrouwerMs. Kathleen Conine+Ms. Lillian Cowan+Mrs. Judith A. DereszynskiMs. Dolores Dornoff+Ms. Leslie Farrell+Ms. Margaret Formanek+Mr. LeRoy HeringMrs. Carol HeringMs. Sandra A. HillsMr. William C. HoffmannMs. Cheryl Keenan+Mr. Douglas E. Kiefer+Ms. Pauline Kiefert+Ms. Jane Knebes+Mr. Michael LutzeMrs. Lori LutzeMr. Glenn E. McCrayMrs. Barbara McDonaldMs. Margaret McManimon+Mr. Herbert MyersMrs. Ronda MyersMr. John W. Nelson+Mrs. Dorothy J. Nelson+Ms. Charlyne A. Perrine

Ms. Sharon PezewskiMr. Felix Pulgram+Ms. Dolores M. RampalskiMrs. Arlene L. RentmeesterMr. Michael L. RentmeesterMr. Thomas H. RobinsonMrs. Arita “Peach” A. RobinsonMr. Robert L. SowinskiMs. Evelyn R. SpoerlMs. Eleanor L. Stevenson+Ms. Gloria StreiMr. William F. StreiMrs. Helen Trombley+Ms. Candice Tylke+Ms. Janet C. VineyMs. Cynthia Weix+Charles Weyker Family Trust+Mrs. Susan L. WilkeyMs. Carol F. Young++ Deceased

“An unrestricted gift allows the chapter the greatest flexibility to fund research and the crucial needs of families,” reminded National MS Society - Wisconsin Chapter Board of Trustees member, Albert C. Elser II of Chenequa, Wisconsin, who was diagnosed with MS 32 years ago. His recent unrestricted gift of $10,000 from his family’s Elizabeth Elser Doolittle Charitable Trust will be used to support research, family programs and services that help people living with MS maintain their independence. The Wisconsin Chapter is grateful to Albert and his family for their generosity and continued commitment to join the movement. - Albert C. Elser II

the wisconsin Chapter and its dedicatedvolunteers relentlessly advocate everyday to advance community and statepolicies and programs that impact thelives of people with Ms. and in 2008,we saw many successes.

> In its second year, taxpayers made a mark for MS and donated more than $88,000 for the charitable giving tax check-off. These funds allowed the Chapter to help more than 80 clients maintain their independence through the use of items such as wheelchair ramps, vehicle hand controls and bathroom modifications.

> Action Alert membership increased from 750 in 2007 to 1,257 in 2008. Advocates participated in a Chapter hosted one-day Advocacy Workshop, two mini-workshops, a Cognitive Issues program and training during “Legislative Affairs Day.” In addition, advocacy tips and tactics were discussed during GRC and staff visits to Circles of Hope groups throughout the state with one support group hosting a Legislator as a guest speaker on Advocacy.

> State and Federal Legislators spoke at the opening ceremonies at 11 Walk MS locations and Bike MS. In addition, legislators attended all three MS Luncheons in Green Bay, Milwaukee and Madison. At the

Milwaukee Luncheon Senator Alberta Darling spoke and shared her story as someone whose family is affected by MS.

> Nearly 100 MS Activists traveled to the State Capitol in March to attend “Legislative Affairs Day” visiting with 64 State Legislators. They discussed the importance of supporting medical research in Wisconsin. In addition, activists successfully advocated for increased funding of Wisconsin’s long term care program and Family Care through legislative visits and testimony.

> Four MS activists and staff attended the Public Policy Conference in Washington, DC in May to meet with Federal legislators about MS Research funding through the Congressionally Directed Medical Research Program (CDMRP), the creation of a national MS disease registry and the elimination of the 24 month waiting period for Medicare.

> Through the efforts of emails, phone calls and state district visits made by MS Activists in Wisconsin and across the country, MS research was awarded $5 million within the Congressionally Directed Medical Research Program (CDMRP).

Scott Hanson“If you bring enough people together, whatever it is, you can change it.” These are true words spoken from a man who is quite an inspirational face of MS. Scott Hanson, diagnosedwith MS in 1998, has

been instrumental in cultivating an engaged grassroots advocacy network within the Wisconsin Chapter. As a member of the steering committee for the Wisconsin Chapter’s first-ever “Legislative Affairs Day” in 2003, he personally persuaded volunteers from across the state to join their peers to advocate against MS. Also founding member of the Government Relations Committee, Scott visited countless self-help groups and continues to do so now offering his personal testimonial to the power of advocacy. He has also lent his skills to educating our volunteer base at Advocacy Workshops throughout the state, providing an overview of the legislative process and offering tips on effective advocacy techniques. Scott is a true example of what one person can do when you put your mind to it and continues to inspire everyone he touches.

Moving Forward with advoCaCY eFForts


2008 board oF trustees

Patricia K. Ackerman TreasurerA.O. Smith Corporation

Carrie Raymond BedoreCarrie Raymond Bedore, LLC

Robert A. BuhlerOpen Pantry

Albert C. Elser IICommunity Volunteer

Robert D. EngelM&I Bank

Jess LevinBank of Elmwood

Michael G. Lutze Vice ChairErnst & Young

Martin J. McLaughlin ChairmanReinhart Boerner Van Deuren, S.C.

Karen J. Minor Community Volunteer

Kenneth A. MinorSonic Foundry, Inc.

Bruce J. OlsonThe Marcus Corporation

Shelley Peterman SchwarzMeeting Life’s Challenges

Jeffery S. Postles, M.D., F.A.C.P.Covenant Medical Group

David J. Raysich Plunkett Raysich Architects

Patricia E. Raysich Community Volunteer

Dave RodgersBriggs & Stratton Corporation

James E. RoseVirchow, Krause, and Company LLP

Robert L. Sowinski SecretaryDiversified Insurance Services, Inc.

John A. SteinhafelSteinhafels Furniture

Maureen Steinhafel Community Volunteer

Jeffrey M. SterenSteren Management/McDonald’s

Robyn A. Turtenwald Community Volunteer

Alyson K. ZierdtVice ChairRetired attorney; Of Counsel, Davis & Kuelthau, S.C.

Colleen G. Kalt President and CEO, National Multiple Sclerosis Society, Wisconsin Chapter

2008 CliniCal aFFiliates

Aurora BaycareGreen Bay, WI 54311www.aurorabaycare.com

Marshfield Clinic MS CenterMarshfield, WI 54449www.marshfieldclinic.org

Medical College of WIMS Clinic at FroedtertMemorial Lutheran HospitalMilwaukee, WI 53226www.mcw.edu

St. Luke’s Medical CenterCenter for Neurological DisordersMilwaukee, WI 53215www.aurorahealthcare.org

University of WIHospital and ClinicsNeurology/MS ClinicMadison, WI 53792www.uwhealth.org

ProHealth Care Neuroscience CenterWaukesha Memorial HospitalWaukesha, WI 53188www.waukeshamemorial.or

2008 CliniCal advisorY CoMMittee


Moving Forward with leadershiP

worKing For a world Free oF Msresearch Commitments in wisconsin FY2008 During 2008, the National MS Society funded 10 research projects in Wisconsin, involving eight researchers. The total investment was more than $6.4 million. Since the Society’s inception more than 60 years ago, the organization has invested more than $550 million to find the cause and cure for MS, as well as create better treatment options.

University of Wisconsin – MadisonShing-yan Chiu, Ph.D. $1,126,580Ian Duncan, BVMS, Ph.D. $3,389,980Zsuzsanna Fabry, Ph.D. $ 44,000John Fleming, M.D. $ 358,660Colleen Hayes, Ph.D. $ 540,470 Julie Olson, Ph.D. $ 400,492 Matyas Sandor, Ph.D. $ 44,000

The Blood Center of Southeastern Wisconsin – Milwaukee Bonnie Dittel, Ph.D. $ 527,408 Total $6,431,590

Loren A. Rolak, M.D.,

Chairman

John O. Fleming, M.D.

Bhupendra O. Khatri, M.D.

Eric F. Maas, M.D.

Stanya Smith, M.D.

Merle Teetzen, M.D.

Douglas Woo, M.D.

FinanCials 2008 2007 Cash and investments $ 2,111,628 $ 2,551,730Contributions receivable 173,708 188,871Other assets 106,456 64,960

Total assets $ 2,391,792 $ 2,805,561

LiabiLiTies and neT asseTs 2008 2007Due to National MS Society $ 273,632 $ 605,672Other liabilities 333,218 257,418Total liabilities 606,850 863,090Net assets 1,784,942 1,942,471

Total liabilities and net assets $ 2,391,792 $ 2,805,561

Condensed stateMents oF aCtivitiesrevenues 2008 2007Support from the public: $ 3,808,842 $ 4,150,695 Special events revenue (includes in-kind donations of $26,709 for 2008 and $25,027 for 2007) Special event expense (489,942) (504,249)

Total received from special events 3,318,900 3,646,446Annual Campaigns 563,437 604,861Legacies 179,209 325,436

Total support from public 4,061,546 $ 4,576,743Other revenue: Combined Federal Service Campaign 123,851 113,089 Received at National 234,729 236,473 Interest income 55,421 77,787 Program fees 11,152 7,563 Miscellaneous income 5,500 13,000Total other revenue 430,653 447,912Total revenues $ 4,492,199 $ 5,024,655

expenses 2008 2007Program services: Research $ 946,675 $ 1,243,812 Client services 815,788 689,524 Community service 473,371 437,482 Professional education and training 236,374 199,272 Public education 845,871 772,870Total program services 3,320,079 3,342,960

Support services: Fundraising 520,653 461,994 Management and general 175,966 109,941Total support services 696,619 571,935Contribution to National - other activities 633,030 719,040Total expenses 4,649,728 4,633,935Change in net assets (157,529) 390,720

Net assets, beginning of year 1,942,471 1,551,751Net assets, end of year $ 1,784,942 $ 1,942,471

exPenses bY CategorY: 2008 2007Total Program Services 71.4% 72.1%Contribution to National - Other Activities 13.6% 15.5%Fundraising 11.2% 10.0% Management and General 3.8% 2.4%

100.00% 100.00%

assets

2008

71.4%

13.6%

11.2%

3.8%

2007

72.1%

15.5%

10.0%

2.4%


The National MS Society is a collective of passionate individuals who want to do something about MS now—to move together toward a world free of multiple sclerosis. MS stops people from moving. We exist to make sure it doesn’t.

We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

• We are moving research forward by relentlessly pursuing prevention, treatment and cure. •Wearemovingtoreachoutandrespondtoindividuals, families and communities living with multiple sclerosis. •Wearemovingpoliticiansandlegislationtochampionthe needs of people with MS through activism, advocacy and influence. •Wearemovingtomobilizethemillionsofpeoplewhowant to do something about MS now.

JOIN THE MOVEMENT

For more information visit wisMS.org

How will you join the movement?

The actions of just one person can make a powerful impact in today’s world. Now, think how powerful we could be if we all joined the movement together. What we do now will make a significant difference in the lives of the more than 10,000 people in Wisconsin living with MS.

•Beavoiceintheonlinecommunity •VolunteerataneventorattheChapteroffice •ParticipateinWalkMSorBikeMS •JointheMSActionNetworkforpublicpolicy •Donategenerously

Help us as we move forward together.

For more ways you can get involved, contact the Wisconsin Chapter at 1.800.242.3358 or [email protected].

about the soCietY


1120 James Drive, Suite A Hartland, WI 53029(262) 369-4400 Telephone(262) 369-4410 Fax

1-800-FIGHT [email protected]

JOIN THE MOVEMENT

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