My name is LolaMy name is Lola

I have Sturge-Weber SyndromeI have Sturge-Weber Syndrome

A RARE DISORDERA RARE DISORDER

Honoring all children affected by Honoring all children affected by Sturge-Weber Syndrome and Sturge-Weber Syndrome and Benefiting Research being done at Benefiting Research being done at the Hunter Nelson Sturge-Weber the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Center at Kennedy Krieger Institute. Institute.

All proceeds from this fundraiser will go All proceeds from this fundraiser will go directly to the Kennedy Krieger Foundationdirectly to the Kennedy Krieger Foundation

Sturge-Weber syndrome is a rare Sturge-Weber syndrome is a rare disorder that is present at birth. disorder that is present at birth. A child with this condition will have a A child with this condition will have a port-wine stain birthmark (usually on port-wine stain birthmark (usually on the face) and neurologic problems. the face) and neurologic problems.

Laser SurgeryLaser Surgery

Little is known about the cause of SWS Little is known about the cause of SWS or the full impact on those who suffer or the full impact on those who suffer with the syndrome. Blood vessel with the syndrome. Blood vessel abnormalities in the brain, skin, and abnormalities in the brain, skin, and eyes can cause countless health eyes can cause countless health complications, not all of which are fully complications, not all of which are fully known or understood.known or understood.

It is with great enthusiasm that we It is with great enthusiasm that we work together to raise awareness work together to raise awareness and support for those suffering with and support for those suffering with this devastating and incurable this devastating and incurable syndrome.syndrome.

You can sYou can show your support by how your support by joining us for a day of fun, food joining us for a day of fun, food and prizes at Tropical Realty’s and prizes at Tropical Realty’s Annual Charity Golf Tournament.Annual Charity Golf Tournament.

When:When: April 30, 2011April 30, 2011

Where:Where: Savannahs Golf CourseSavannahs Golf Course Merritt IslandMerritt Island

Time:Time: 7:30-8:15 Registration7:30-8:15 Registration 8:30 Shotgun Start8:30 Shotgun Start

For registration info go to:For registration info go to: www.TropicalRealtyGolf.comwww.TropicalRealtyGolf.com

With your generous support, we With your generous support, we can increase the amount of funds can increase the amount of funds raised and truly make a raised and truly make a difference. difference.

Please help us in our fight to Please help us in our fight to defeat Sturge-Weber Syndrome defeat Sturge-Weber Syndrome and improve the lives of those and improve the lives of those affected.affected.

You do not need to play golf to donate.You do not need to play golf to donate.

All donations are greatly appreciated and All donations are greatly appreciated and can be made online at:can be made online at:

www.Lolasgift.comwww.Lolasgift.com

The generous support of our community The generous support of our community sometimes makes all the difference in the sometimes makes all the difference in the quality of life of persons with developmental quality of life of persons with developmental disabilities. This type of support comprises the disabilities. This type of support comprises the extra quality of life that makes a memorable extra quality of life that makes a memorable impression on individuals with disabilities, their impression on individuals with disabilities, their families and even the staff that work with families and even the staff that work with them. Knowing that the people in the broader them. Knowing that the people in the broader community care enough to donate money or community care enough to donate money or goods makes a difference.goods makes a difference.

Thank You!Thank You!