MS cOnnectiOn · Join us for a weekend of fun and excitement at Camp Connect, a kids’ camp hosted...

Spring 2013OhiO buckeye chapter

MS cOnnectiOn newSletter

inSiDe thiS iSSue

4See extreMe MakOver prOject

5learn abOut reSearch StuDy

7check Out walk MS DetailS

12Sign up fOr lOcal prOgraMS

what a Difference a Day MakeS

2 MS connection: Spring 2013

chapter preSiDentcelebrateS 20th anniverSaryJanet Kramer celebrated her 20th year as the President of the National MS Society’s Ohio Buckeye Chapter on January 4, 2013. There have been many changes in the last 20 years but one thing that has not changed is Janet’s desire to improve the quality of life for people living with multiple sclerosis.

Over the years, Janet has seen an increase in the chapter’s service area from 15 to 38 counties and an increase in the number of people served from about 5,000 to 11,100 people. The chapter has also doubled its financial status from a $1.8 million to a $4.5 million organization.

Janet has worked with the Board of Trustees and her leadership team to increase funding and to offer more programs and services. She has seen growth in events like Bike MS, Walk MS, Dinner of Champions and the MS Walleye Fishing Tournament as well as the addition of new events such as Locavore and Run MS. Increased funding has led to many innovative programs including a Couple’s Retreat, Camp Connect for children, “What a Difference a Day Makes” projects and a Young Adult Retreat.

“I could not do what I do without a professional team of staff and volunteers who demonstrate their dedication to helping people with MS on a daily basis,” Janet said.

Janet is one of 12 leaders in the East Region that encompasses the Ohio Buckeye Chapter. She encourages collaboration with other chapters, which has led to shared knowledge and resources especially with data entry, marketing and programming efforts.

“It has been a wonderful and fulfilling career,” Janet said. “I look forward to continued success as we work toward a world free of MS.” n

“it haS been My pleaSure tO Serve peOple with MS.”

cOnnect with uS Online:Ohio Buckeye Chapter MSohiobuckeye.org [email protected]

Like us: facebook.com/msohiobuckeye

Follow us: twitter@nmssohiobuckeye

Watch us: youtube.com/nationalmssociety

On the Cover: Photos from “What a Difference a Day Makes”

Janet Kramer

3msohiobuckeye.org | 1-800-344-4867

natiOnal Multiple SclerOSiS SOcietyOhio Buckeye Chapter Northeast Ohio Office6155 Rockside Rd., Suite 202Independence, OH 44131

Central & Southeast Ohio Office651G Lakeview Plaza Blvd.Worthington, Ohio 43085 1-800-344-4867Board Chair: Roy Smoot President: Janet Kramer Executive Vice President Marketing & Outreach: Jennifer Hamilton Editor: Guyla Wehman

© 2013 National Multiple Sclerosis Society, Ohio Buckeye Chapter

Information provided by the National Multiple Sclerosis Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.

The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use or contents of any product or service mentioned.

nOw: an MS reSearch revOlutiOn

Sweeping aDvanceS in MS reSearchThe National MS Society propels research forward with a comprehensive strategy aimed at stopping MS, restoring function and ending MS forever. During 2012, the Society invested $44 million for 350 new and ongoing projects which included: • Advances in uncovering MS triggering factors• Approval of a second oral therapy for relapsing forms of MS and other emerging

treatments• Completion of the first human trial of an experimental therapy targeting myelin

repair• Launch of the International Progressive MS Collaborative, the largest effort to

date to speed research to stop progressive forms of MS • Progress in restoring functions using innovative rehabilitation techniques including

memory enhancement involving stories and imagery to solidify learning and improve balance

STOP DISEASE PROGRESSION RESTORE LOST FUNCTION END MS FOREVER



StOp

reStOre

enD


extreMe “what a Difference a Day” MakeS prOjectBrian Malion of Cleveland had been extremely active, working as a chef and a corporate travel consultant, traveling and engaging in some very interesting hobbies. He was actually participating in a fencing class when he fell and hit his head. That led to some tests, an MRI, and to his diagnosis of multiple sclerosis on Oct. 3, 2011.

Brian has progressive MS so his mobility has deteriorated significantly. Within a year, he went from using a cane to a scooter to a power wheelchair. The good news is that the National MS Society’s Ohio Buckeye Chapter partnered with the Greater Cleveland Chapter of the National Association of the Remodeling Industry (NARI) to completely remodel Brian’s bathroom. Now, he is able to safely use the bathroom and remain independent in his own home.

Brian received an accessible sink, high-rise toilet, roll-in shower, grab bars, new lighting and new paint, along with a wider doorway for entry into the bathroom. All the labor and the supplies were donated by NARI members as well as the Society.

This was accomplished through the “What a Difference a Day Makes” program where volunteers help people with MS with chores around the home like cleaning, painting and

yard work. This “What a Difference a Day Makes” was an extreme project that took several weeks to complete.

“I am so grateful for all the people that came to do this,” Brian said. “It has made an amazing difference in my life. I cannot express my gratitude with words. I am very blessed. Thank you all.”

Thanks to the companies that donated the materials and the employees who donated their time for this project: NARI Greater Cleveland Chapter, Absolute Roofing and Construction, Granex Industries, Hurst Design, Kitchens by Lograsso, R. B. Schwarz, Schluter Systems, Tamer Construction, Toth Painting Solutions, Triple Peaks Roofing and Construction, Virginia Tile, Welker McKee, West Construction and Window Nation.

If you or someone you know would benefit from a future “What a Difference a Day Makes” project, please contact Tosh Tripi at [email protected] or 216-503-4182. n

tOSh tripi anD brian MaliOn


StuDy participantS neeDeDDo you have difficulty staying motivated enough to engage in physical activity on a regular basis because of fatigue and low motivation? Are you interested in learning how to manage your fatigue so you can be physically active?

Dr. Matthew Plow from the Cleveland Clinic is studying the effects of physical activity and fatigue management on improving the daily life of people with MS. The study, funded by the National MS Society, will measure the change in levels of physical activity and fatigue over a 24-week period.

Via telephone, participants will engage in a series of health education classes, fill out questionnaires and partake in several group and one-on-one phone calls with health experts. Participants will be given a telephone and headset to keep after the study or a $25 gift card.

Dr. Plow is in the process of recruiting patients with MS to participate in the study. To be eligible, you must be between 18-65 years of age, be able to walk with or without a cane and be fluent in English. For more information, please call 216-445-1203. n

Dr. Matthew plOw

Make cOnnectiOnS at caMp cOnnectJoin us for a weekend of fun and excitement at Camp Connect, a kids’ camp hosted by the National MS Society’s Ohio Buckeye Chapter. The 2013 camp will take place Friday, June 7 to Sunday, June 9 at Camp Lazarus in Delaware, Ohio.

Throughout the weekend, kids will have the opportunity to get to know others sharing in a similar situation. Activities will include swimming, canoeing, sports, arts and crafts and more. There will also be informational sessions about multiple sclerosis, feelings experienced and other hard-to-discuss topics for children.

Camp Connect is open to children in Ohio with MS or who have a parent with MS. Campers must be entering grades 2 to 8 in the Fall of 2013. There is a fee of $50 per camper and all meals and overnight accommodations are provided. For additional information about Camp Connect and to request an application, please contact Rebecca Bailey at [email protected] or 614-515-4609. n

chilDren enjOy the experience Of caMp cOnnect.


My MS jOurneyBY DEBBIE GOLIAS, MS AMBASSADOR

I was officially diagnosed with MS on October 7, 2007, when I was 36 years old. I noticed that my right eye was beginning to feel strange. I was due for an eye exam anyway so I went and got it checked out. The doctor told me that I had a condition called optic neuritis which is associated with MS.

I was told to see an ophthalmologist who can examine the eye for deeper findings. I went in for a cat scan and got a call back the next morning telling me that my MRI lit up like a Christmas tree. I wasn’t sure what that meant.

The doctor explained that I had lesions and white spots on my brain. The next step was an appointment with a neurologist who told me that I had MS. Then, I set up an appointment with the Cleveland Clinic’s Mellen Center and it didn’t take the doctors too long to diagnose me because the last MRI confirmed it.

Okay, I have MS! Now what? Well I could do one of two things. I could sit down, dwell over

the what-ifs, cry my eyes out, get all depressed and wonder why me? Or I could get up, get out and get moving so that is exactly what I did.

I registered with the Ohio Buckeye Chapter so I could learn about the latest research efforts and get notices of upcoming events. I also surfed the Internet and got more information about MS.

I decided that I wanted to join a local self-help group or start my own group. I found out about the Strongsville Self-Help Group and started working with a fellow MS member, Norma Ivancic. I learned a lot by working alongside her. I have to say that I am much more educated about MS than when I was first diagnosed five years ago. I feel that I can talk to anyone about MS and feel good about sharing information and helping someone who is newly diagnosed.

I am co-facilitating the self-help group with Joe Bold and I’m having a great time. I am also glad that the National MS Society is there to guide me every step of the way. I think that helping others with the same condition you have is the best gift you can give yourself.

I have to admit having a disease that is incurable is scary, but I chose to rise above it. I am still

the same person even though I had to learn to do things at a slower pace. I can still do everything I set out to do. I will not let my MS stand in my way. I believe if you carry a positive attitude with you at all times you can get through any and all obstacles. n

StrOngSville Self-help grOup MeMberS


tranSpOrtatiOn reSOurceS The availability of accessible transportation resources is largely decided by the area in which you live. Some of the more visible resources are the local transit authorities, which have regular routes with wheelchair access and in most cases, a door-to-door service. The door-to-door service typically requires an application process to be completed in advance. A couple of examples are the Greater Cleveland Regional Transit Authority (Cleveland) and the Central Ohio Transit Authority (Columbus). We recommend that you contact your local transit authority to get the details of what they can provide.

Private providers are a good accessible resource. However, they have varying rates and it is always good to shop around. Please check your health insurance to see what they might cover when seeking accessible medical transportation. Many of the private providers will accept insurance to help offset the cost of the ride.

The Ohio Buckeye Chapter offers financial assistance for bus passes to be utilized for specific needs such as medical appointments. We also offer financial assistance for vehicle modifications.

If you have any questions about community resources or need accessible transportation referrals, please call 1-800-344-4867. n

Celebrate the 25th year of walk ms!

be InspIred. Get ConneCted. walk ms.Walk MS connects people living with MS and those who care about them. It is an experience unlike any other — a day to come together, to celebrate the progress we’ve made, and to show the power of our connections.

RegISteR & StaRt fundRaISIng today: MSohiowalk.org or 800.344.4867.

walk tocreate a worldfree of MS

25th Year

april 13 Cleveland

april 19 McConnelsville

april 20 athens, Columbus, Lancaster, newark

april 27 Mahoning Valley, Massillon, Mentor, north Canton, Wooster

april 28 akron


treaSurer’S repOrtThe Ohio Buckeye Chapter of the National MS Society remained firmly focused on our mission using fiscal discipline while developing brand recognition. The chapter’s total revenues of $4,375,719 for the fiscal year ended September 30, 2012 represented an increase of $494,408, or 12.7 percent over the prior year. In 2012, the chapter was the beneficiary of Legacies totaling $461,444, a dramatic increase of $183,454, or 66 percent over 2011. Fundraising results show that we experienced our most successful Bike MS event in 26 years. Over 2,400 riders participated and our bike revenues totaled $1,549,029. Overall, fundraising in our special events experienced a 3 percent increase over the previous year. Despite difficult economic times these results allowed us to increase our direct financial assistance to individuals with MS. Disbursements for persons with MS increased 24.7 percent from $234,450 in 2011 to $292,364 in 2012.

It also enabled us to fund $1,285,023 in client

and community programs throughout our 38- county service area, a 10 percent increase over the prior year. In addition, $663,035 was used for professional and public education.

Even though revenues increased 12.7 percent from 2011, our fundraising and management expenses were basically unchanged from the prior year resulting in more funds available to support our mission. The chapter will continue to look for cost savings while seeking to increase our revenue streams.

In 2012, $1,238,956 was sent to the National MS Society home office for national programs and research. The amount sent for research was $737,815, including a special Honor Roll payment of $100,000. In 2011, the chapter sent $1,038,040, with $650,076 of that going to research.

The firm of Meaden & Moore, Ltd. performed our annual audit. A copy of the audit can be reviewed by calling 1-800-344-4867. n

Alan M. Zang, Chapter Treasurer

allOcatiOn Of expenSeS revenue SOurceS frOM OperatiOnS

Client & Community Programs 33.2%National Programs &

Research 32.0%

Management & General 4.0% Fundraising

13.6%

Health Education 17.2% Membership &

Contributions15.5%

Fundraising82.6%

Other.2%

United Way1.7%


bike MS: central OhiOchallengeJoin us in the Columbus area for the inaugural Bike MS: Central Ohio Challenge taking place on Saturday, July 20, 2013, at New Albany High School. The event will offer a 50-mile and a 95-mile route. Participants are responsible for meeting a $150 fundraising minimum. For more information and to register, please visit MSohiobike.org or call 216-503-4183.

We are also in need of volunteers for this event to assist with food, working the rest stops, providing massages and more. If you are interested in volunteering, please contact Rebecca Bailey at [email protected] or 614-515-4609. n

bike MS: peDal tO thepOint riDe Join us once again for another amazing year of the Bike MS: Pedal to the Point Ride. Be a part of the movement on August 3-4, 2013, because Bike MS is about fulfilling the challenge within you, all while raising critical funds that make a difference in the lives of people living with MS.

If you’re new to the event, be sure to take advantage of free registration by using the coupon code NEWRIDER2013. Please note that all Bike MS participants are responsible for the $300 fundraising minimum. It’s never too early to register and start fundraising. For more information, please visitMSohiobike.org or call 216-503-4183. n

MS walleye fiShing tOurnaMent The 24th Annual Walleye Fishing Tournament presented by The Shamrock Companies, Inc. will be held June 5 at Midway Marina in Port Clinton. Participants enjoy a day out on Lake Erie with a charter boat captain. Individual seats can be purchased for $250 or a boat for six participants can be purchased for $1200. For more information, please contact Tony Bernard at [email protected] or 614-515-4608. n

MS connection: Spring 201310

clevelanD Dinner Of chaMpiOnSThe Ohio Buckeye Chapter welcomed nearly 300 guests for the 17th Annual Cleveland Dinner of Champions on November 14, 2012, at the InterContinental Hotel & Conference Center. The Norman Cohn Hope Award was presented to The Plain Dealer for decades of commitment to volunteer leadership, philanthropy, community involvement and service.

Themed “The Power of Connection,” the event paid tribute to The Plain Dealer for connecting people to their community and world. Although MS disconnects brains and bodies and disconnects people from those they care about, the event featured how the National MS Society connects people affected by MS.

Guests generously funded Camp Connect, the chapter’s summer experience for kids connected to MS. Campers Elise and Carly Wisner spoke about their favorite camp experiences. The Cleveland Clinic’s Dr. Amy Sullivan detailed

anDy, nichOle, carly anD eliSe wiSner ShareD their caMp cOnnect StOrieS.

18th annualclevelanD Dinner Of chaMpiOnSHonoring Paul Clark Regional President of PNC BankWednesday, November 13, 2013InterContinental Hotel & Conference Center

how important this camp can be to children and families who struggle with the effects of MS every day.

The Cleveland Dinner of Champions raised more than $37,000 for Camp Connect and $200,000 to support programs, services and MS research. n

the nOrMan cOhn hOpe awarD waS accepteD by the plain Dealer eDitOr Debra aDaMS SiMMOnS (center).

msohiobuckeye.org | 1-800-344-4867 11ADVERTISEMENT

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Acthar provides relapse relief for select patients

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Acthar should never be given intravenously (into a vein). Acthar should not be used in patients with a skin condition called scleroderma, bone density loss (osteoporosis), infection throughout the body, eye infection called ocular herpes simplex, recent surgery, history of or a current stomach ulcer, heart problems, high blood pressure, or allergy to pig-derived proteins. Tell your doctor about any health problems or medicines.

Acthar may cause side effects similar to side effects that happen due to treatment with steroid medicines. Not all of these side effects have occurred with Acthar but they may occur. Acthar is a medicine that affects a patient’s immune system, and therefore patients may be more likely to get new infections, or inactive infections may become active. Acthar has effects on the adrenal gland. When a patient is taking Acthar, their adrenal gland may produce too much of a hormone called cortisol. This can cause symptoms of Cushing’s syndrome (upper body fat, rounded face, thin skin), which is more common in patients who take this medicine for a long time. When a patient stops taking Acthar after a long time, the body may not produce enough cortisol on its own (adrenal insufficiency). The doctor may prescribe a steroid medicine to protect the body until the adrenal gland recovers. Do not stop administering Acthar without talking to your doctor first. Blood pressure should be checked during treatment, and your doctor may instruct you to make some dietary changes. Patients should not receive certain vaccines during treatment with Acthar. Talk to your doctor about which vaccines are safe for use. Acthar may hide (or mask) symptoms of other conditions or diseases and it may be more difficult for your doctor to diagnose other conditions or diseases in you or your child during treatment. The person receiving Acthar has an increased risk for bleeding from the stomach or having a stomach ulcer. Inform your doctor about any pain in the stomach area, bloody vomit, or bloody or black stools. While on Acthar changes in mood and behavior such as irritability, depression, or trouble sleeping, may occur.

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The most common side effects of Acthar in infants include: infections, increased blood pressure, irritability and changes in behavior, changes in appetite and weight, diarrhea, and vomiting. Other adverse reactions reported in adults and children over 2 years of age included: abdominal bloating, anxiety, asthma, chest discomfort, congestive heart failure, dizziness, shortness of breath, redness of the face, fluid retention, flushing, headache, injection site pain, tiredness, muscle weakness, nervousness, rapid heart rate and lack of energy. Tell your doctor if there is any side effect that bothers you or your child or that does not go away. These are not all of the possible side effects of Acthar. For more information, ask your doctor, nurse, or pharmacist, go to www.acthar.com, or call 1-800-465-9217.

You may report side effects to the FDA at 1-800-FDA-1088.

H.P. Acthar® Gel and Questcor® are registered trademarks of Questcor Pharmaceuticals, Inc. ©2012 Questcor Pharmaceuticals, Inc. PM-664-01 04/12 Printed in USA.


DateS tO reMeMberthe iMpact Of health inSurance On career DeciSiOnSEver wonder how health insurance considerations might impact your decision to change jobs or leave the workforce? Learn about legal protections and questions to ask when facing a change in your work situation. This call is part of the 2013 Employment Teleconference Series.Date: Wednesday, March 13, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

eMerging therapieS in MSIt was 1993 when the first disease-modifying drug received FDA approval. Now 20 years later, there are a number of approved options including several oral medications. Join us to hear about recently approved medications and clinical trial research being done. The speaker is Patricia Blake, BSN, MSCN, RN with the Oak Clinic for MS and research advocate for the Ohio Buckeye Chapter. Dinner will be provided. Space is limited. Registration deadline is March 6.Date: Wednesday, March 13, 2013Time: 6:00 p.m. - 8:00 p.m.Location: Bistro 131, 131 Bluebell Dr., New Philadelphia, OH 44663

akrOn MOving fOrwarD: a prOgraM fOr the newly DiagnOSeD This program is for people diagnosed with MS in the past three years and adult guests. Participants will learn about MS, symptoms and treatment options. The speaker is DeRen Huang, MD, PhD from the Neuroscience Center at NNA.

Dinner will be provided. Registration deadline is March 6. Date: Thursday, March 14, 2013Time: 6:00 p.m. - 8:30 p.m.Location: Akron General Wellness Center, 4125 Medina Rd., Akron, OH 44333

hOw tO talk abOut MS tO yOur eMplOyerYou’ve decided to disclose - now what? Who do I tell? How to I tell? What do I tell? Hear from employers and disability advocates on how to talk with your employer about your MS. This call is part of the 2013 Employment Teleconference Series.Date: Wednesday, March 27, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

juMpStart in MOtiOnThis one-day program introduces Can Do MS’s wellness philosophy and mission of teaching people with MS how to focus on their health instead of their disease. The topics will focus on issues relating to overall health and mobility. The program is for people living with MS and their support partners. The program is free but you must register as space is limited. To register, visit http://www.mscando.org/multiple-sclerosis-programs/or call 1-800-367-3101.Date: Saturday, March 30, 2013 Location: Holiday Inn Boardman, 7410 South Ave., Boardman, OH 44512

finDing the right care: uSing yOur appOintMent tO the fulleSt This call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, April 2, 2013


Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

relapSeS, exacerbatiOnS, care anD recOveryThis call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, April 9, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

SyMptOM ManageMent – everything frOM heat intOlerance tO SexFatigue, double vision and heat sensitivity are some symptoms that people living with MS experience. Join us to learn more about common symptoms related to MS and how to manage their impact on your life. Dr. Douglas Woo, neurologist with Lancaster Neurology Services, will be presenting. Dinner will be provided. Space is limited. Registration deadline is March 28. Date: Thursday, April 4, 2013Time: 6:00 p.m. - 8:00 p.m.Location: The Lafayette Hotel, 101 Front St., Marietta, OH 45750

cOMpliMentary apprOach tO MS This call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, April 16, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

hOw tO hire hOMe healthThis call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, April 23, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

tipS anD gaDgetSThis call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, April 30, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

fall preventiOnThis call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, May 7, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

nutritiOn-healthy eating anD wellneSSThis call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, May 14, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

the hiDDen effectS Of MS: financial Survivability This call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, May 21, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

Spring SOcial: captainS baSeball Start Memorial Day weekend watching the Lake County Captains take on the West Michigan Whitecaps. Join us for a picnic before the game and fireworks after the game. There will also be some great raffle prizes. Registration is free for a person with MS and $10 for guests. A person with MS can register themselves and up to three additional guests. You must pay registration

cOntinueD On pg.15

MS connection: Spring 201314

Self-help grOupSFor exact times, locations, programs and other details, please call the National MS Society at 1-800-344-4867 or contact the person listed. You are encouraged to attend the group of your choice regardless of its location.

MS OhiO Online grOupEvery Tuesday 11:00 a.m. and every Wednesday 7:00 p.m.Ohio chat room can be accessed through MSWorld. You will need to become a member of MSWorld in order to chat. Membership is free. Visit msworld.org.For Ohio Loop/Support Group E-mail Information: [email protected]

aShtabula cOuntyAshtabula Icons3rd Tuesday 6:00 p.m.KSU Ashtabula CampusMarge 440-415-1092Phyllis 440-466-9443

carrOll cOuntyCarroll Group2nd Thursday 6:30 p.m.Carrollton PonderosaLois 330-484-5382

cuyahOga cOuntyBrunch Bunch2nd Monday 10:30 a.m.Denny’sEric 440-826-3742

Eastside But You Look So Good Group1st Monday 6:30 p.m.Shaker Heights Library Teresa 216-408-7855Eastside Newly DX/Minimally Affected3rd Wednesday 7:00 p.m.Good Shepherd ChurchCharlene 440-349-3936Northwest Satellites2nd Wednesday 7:30 p.m.North Olmsted Senior CenterMarge 440-777-4156Parma Posse of PossibilitiesLast Friday 12:00 p.m.Ridgewood YMCAPam 440-888-1469Strongsville Group3rd Thursday 7:00 p.m.Strongsville Senior CenterDebbie 440-829-5665

Delaware cOuntyDelaware Mighty Souls1st Thursday 6:00 p.m.Willow Brook at Delaware RunThom 740-815-5809Ron 740-815-3837

fairfielD cOuntyLancaster Movers & Shakers2nd Tuesday 7:00 p.m.Fairfield Center for disAbilities and Cerebral PalsyEd 740-653-5501Maria 740-243-4368

franklin cOuntyColumbus Eastside GroupMCL Cafeteria Rachel 614-860-1968Regina 614-863-1911

knOx cOuntyKnox County MS Support Group3rd Sunday 3:00 p.m.Emeritus at HillenValeSharon 740-392-3156

lake cOuntyMentor’s Best2nd Thursday 11:30 a.m.Sabby’s Bagel CafeKathy 440-254-4043

MahOning cOuntyMS Musketeers2nd Thursday 12:30 p.m.4th Thursday 12:30 p.m.Jewish Community CenterDawn 330-782-1845

MeDina cOuntyMedina Evening Group4th Wednesday 7:00 p.m.Medina County Office forOlder Adults1-800-344-4867

msohiobuckeye.org | 1-800-344-4867

MOrgan cOuntyMcConnelsville Group2nd Tuesday 6:30 p.m.Reicker Bldg.Susan 740-962-6686

pOrtage cOuntyPortage Family and Friends Group3rd Tuesday 7:00 p.m.Robinson Memorial Hospital, Medical Arts Bldg., Room 25Joyce 330-325-0458

15Stark cOuntyBut You Look So GoodCall for more informationRay 330-877-3088 Massillon Group2nd Monday 10:00 a.m.Jackson Township Buehler’sKim [email protected]

SuMMit cOuntyAkron Evening2nd Tuesday 7:00 p.m.

Neurology AssociatesPam 330-572-1011 ext. 137Mighty Oaks GroupGreen YMCA & Oak Clinic1st Saturday 11:00 a.m.Micheala 330-861-5252

wayne/hOlMeS cOuntieS Wooster Group2nd Monday 7:00 p.m.Wooster Comm HospitalPixie 330-345-7374

fees when you register. Registration deadline is May 10. Date: Saturday, May 25, 2013Time: Gate opens and picnic starts at 5:30 p.m., game starts at 6:30 p.m.Location: Classic Park, 35300 Vine St., Eastlake, OH 44095

MS reSearch upDateThis call is part of the 2013 LINKS Teleconference Series.Date: Tuesday, May 28, 2013Time: 7:00 p.m. - 8:00 p.m.Location: Phone from Home

prOgraM regiStratiOn iS eaSy1. Register online at MSohiobuckeye.org2. Register by calling 1-800-344-4867Unless noted, all programs are offered free of charge but donations are accepted to defray the cost.

cOntinueD frOM pg.13 SSDi anD eState planningAre you interested in learning about SSDI and estate planning? We are offering free individual consultations by Terry Trimper Jones, Esq. Terry is available for meetings by phone or in person on Fridays from 10:00 a.m. to 2:00 p.m. at the Worthington office. To schedule an appointment, please contact Terry at [email protected] or 614-515-4621. n

financial planning ServiceSSchedule a free financial planning consultation with Michael Kucharson, a certified financial planner and CPA. Appointments are available every Thursday from 9:00 a.m. to 4:00 p.m. by phone or in person at the Independence office. To schedule an appointment, please contact Michael at [email protected] or 216-503-4159. n

NON-PROFITORGANIZATION

U.S. POSTAGEPAID

Cleveland, OhioPermit #3860

Ohio Buckeye Chapter6155 Rockside Rd., Suite 202Independence, OH 44131-2217

Address Service Requested

vOlunteerS

SpOtlight On reeD abraMSThe 2012 holiday season was a bit brighter for more than 600 people living with MS thanks to Reed Abrams and his family. Reed, who is 13 years old, chose to help the Ohio Buckeye Chapter for his bar mitzvah project.

Reed collected more than 300 bottles of shampoo and conditioner to include in holiday gift bags that were delivered to people who were homebound or living in a long-term care facility. Reed also came in to the office to prepare items for the bags and helped deliver the bags with his mom, Hallie; dad, Greg; brother, Joey; and sister, Maggie.

Reed’s great aunt, Ann “Candy” Nickman Jacobson, had lived with MS for more than 40 years. When she died in May 2011, the holiday visitation program was renamed in her memory to Candy’s Compassionate Companion Program. n

NationalMultiple SclerosisSocietyOhio BuckeyeChapter

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MS cOnnectiOn · Join us for a weekend of fun and excitement at Camp Connect, a kids’ camp hosted...

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