+

Looking forward the “classical” e-patient: approach to a typology PSINET Research Group

Open University of Catalonia. marmayones@uoc.edu @armayones

III Workshop on Technology for HealthCare and Healthy

Life Polytechnic University of

Valencia

+ Challenges in Health Social

Networks We need to know more about “Law of attrition” here is the

observation that in any eHealth trial/tool a substantial proportion of users drop out before completion or stop using the application. (Eynsebach;2005)

“Our user (APTIC) shows a high level of self-efficacy, perceived social supports in the PRE analysis” …Can we improve more the “key variables”? What about the rest of patients?

Our (unrealistic) vision: “If I create a “wonderful” Social Network , people will come”.

Not taking in account the role of Facilitator/ Community manager? …Are you specialist in human behavior? ….Captology.

+

Why the people “hate” my Social Network?

Why they don’t are “active users” with a high level of participation?

Why they don’t come? It’s “Free” and “Wonderful tool for the patients”

Why we are working for only a part o population?

At list……

Do you have questions like?...

+ Where are the ePatients?

+ We need to know more about

ePatients:

Evaluating all their characteristics:

Educational level

Age

Attitudes

Informatics skills

Informational skills

Reading level

Writing skills

Social skills

Expectative about health/disease

Interest in collaborate in research

+ Our approach

Survey/Focus Group/In-deep interviews about demographic and social information

Use of two specific Scales (or create one)

-eHeals Scale: eHealth Literacy Scale

-Patient Activation Measure Scale.

+

+

+

+ eHealth Literacy Scale

I know what health resources are accessible through the Internet.

I know where to find useful health resources on the Internet.

I know how to find useful health resources on the Internet.

I know how to use the Internet to find answers to health issues.

I know how to use the information you find on the Internet about health for me to be helpful.

I have the skills to assess health resources found on the Internet.

I can distinguish in Internet health resources of good quality of poor quality

I feel safe when using Internet information in making health decisions.

+ Patient Activation Measure (PAM)

When all is said and done, I am the person who is responsible for managing my health condition.

I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health condition.

I know what each of my medications do.

I am confident that I can tell when I need to go get medical care and when I can handle a health problem myself.

+

I know the different medical treatment options available for my health condition.

I have been able to maintain the lifestyle changes for my health that I have made.

I know how to prevent further problems with my health conditions.

I am confident I can figure out solutions when new situations or problems arise with my health.

I am confident that I can maintain lifestyle changes like diet and exercise even during times of stress.

+

eHealth Literacy/ PAM

High eHealth

Low eHealth

High PAM

“Ideal” ePatient

“Analogic patient”

Low PAM

“Digital Citizen”

Risk patient/Exclusion

But, if…we combine both..?

+

+

+

+

+

+

+

+

+

+ At the end…The Personalized intervention with ePatients can be a good strategy to improve our knowledge about

Personalized Medicine: Right Drug, Right Patient, Right Moment

Personalized ePatient Intervention Right Social Media Tool, Right Person,

Right Moment

+

Thanks for your attention!

marmayones@uoc.edu

@armayones