LISS43 Emília Rodrigues SOS hepatites - VHPB · 2010. 12. 3. · 3/12/2010 1 Liver Patients...
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3/12/2010 1 Liver Patients Association Liver Patients Association Vision and Activities Vision and Activities Emília Rodrigues Emília Rodrigues SOS Hepatites Portugal SOS Hepatites Portugal President President VAL NETO 19/08/1954 -12/12/2005 First “Post” (08/07/2004) in the Blog to support patients with hepatitis C and their Families. This Blog helps to creat the Association SOS Hepatites
Transcript of LISS43 Emília Rodrigues SOS hepatites - VHPB · 2010. 12. 3. · 3/12/2010 1 Liver Patients...
3/12/2010
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Liver Patients AssociationLiver Patients AssociationVision and ActivitiesVision and Activities
Emília RodriguesEmília RodriguesSOS Hepatites PortugalSOS Hepatites Portugal
PresidentPresident
VAL NETO19/08/1954 -12/12/2005
First “Post” (08/07/2004) in the Blog to support patients with hepatitis C and their Families.
This Blog helps to creat the AssociationSOS Hepatites
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2005 – 1st. Direction21 April 2005
Emília Rodrigues Val Neto Win Vandevelde
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Objectives
• Divulgation of viral hepatitis in the portuguese populationDivulgation of viral hepatitis in the portuguese population
• Divulgation among health professionals
• Risk factors, forms of transmission, prevention and treatment
• Support patients and families• Support patients and families
• Programmes and activities of information
Objectives• Edition of publications
• Organize meetings between patientsOrganize meetings between patients
• Promote the formation of psychologists with expertise in
chronic liver disease
• Promote the formation of nurses specialized in palliative carep p
• Colaborate with other national and international organizations
with the same objectives (ELPA, others)
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Office
Office
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SITE www.soshepatites.org.pt/
TVawareness, information
2005‐05‐19 – RTP1 2005‐09‐28 – RTP1
2006 – TVI
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TV2008/05/19 ‐ TVI
SOCIEDADE CIVIL
Newspapers and magazines
2006‐05‐17 ‐ 24 Horas
06‐05‐17 – Jornal Expresso
06‐05‐17 – Jornal Destak
06‐05‐17 ‐ CM
2005‐03‐16 ‐ DN
06‐05‐17 ‐ Diário Económico
06‐05‐17 ‐ DN
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Newspapers and magazines
06‐05‐17 – Jornal Metro (Capa) 06‐05‐17 – Jornal “A União” (Leiria)06‐05‐17 ‐Metro
Newspapers and magazines
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Newspapers and magazines
2008/08/24
News in another sites
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News in scientific/medical societies
News in another sites
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“Join Ventures”
Instituto Nacional de Resposta a Incidentes de Segurança Informática
DelegationsCHAVES
Coordinator
Anabela Taveira
Psychologists Nurse Lawyer Communication
Maira Diniz Sónia Vilaranda Cristina Imaginário Natalina Afonso Elizabete Fernandes
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DelegationsCHAVES
Other places
Coimbra, Faro‐Olhão, Santarém, Oporto
VIPS2006
VENDA PASCOA – C.C.COLOMBO
2006
SIC ‐ CONTACTO2007
CORRIDA DAS “ESTRELAS”
José Pedro Reis Karen Motzenbacher José Pedro ReisJosé Pedro Reis
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National Meetings
National Meetings
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International Meetings
(ELPA Symposium) (ELPA Symposium)
Our Targests
• War veteransS t f i bl d d• Surgery, transfusion, blood donors
• Miscarriage• Elevated ALT, GGT• Piercings, tattoos• Haemophiliacs• Drug addicts• Prisoners• HIV
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Awareness
FIL – APRESENTAÇÃO MASCOTES FEIRA DA SAÚDE ‐ Porto
Karen Matzenbacker
José Pedro ReisMascotes Fátima Oliveira
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2007
LANÇAMENTO LIVRO – “HISTÓRIAS SEM ROSTO” CARRIS
Awareness
World Day ‐ Hepatites2009
Awareness
Porto – Casa da MúsicaChaves – Castelo Coimbra – Câmara Municipal
Lisboa – Baixa Pombalina
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PORTO ‐ FOZ LISBOA – BAIXA POMBALINA
Awareness
PORTO ‐ FOZ LISBOA – BAIXA POMBALINA
HOMENAGEM PROF.DR. RUI TATO MARINHO2010 – DIA MUNDIAL DAS HEPATITES – FLASH MOVIE
Awareness
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Colaboration with other professionals2005/03/16
I WORKSHOP – APRESENTAÇÃO SOS (SINTRA)
Michel Bonjour – Val Neto – Prof. Dr. Rui Tato Marinho – Dr. Luis Tavares Dra. Maria José Campos Representante Câmara de Sintra
2007/09/29
II WORKSHOP ‐ COIMBRA2008/05/14
WORKSHOP AUDITÓRIO DE CHAVES
Colaboration with other professionals
Enf.ª. Elza Alpalhão Dra. Isabel Gonçalves Enf.ª. Cristina Imaginário
Anabela Taveira – Dr. Presa Ramos Dra.
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Publications SOS LIVROS DE INFORMAÇÃO E DISMISTIFICAÇÃO CARTAZ A3 CENTROS DE SAÚDE / HOSPITAIS
Folheto “Campanhas de rua”
Publications SOS
Marcador de Livros
Postais entregues nos bares
e discotecas
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Publications SOS
Folheto “B”
Folheto “C” Poster “Vacinação”
Scientific Committee
Dra. Isabel PedrotoDra. Paula Peixe
Dr. Leopoldo MatosProf. Dr. Armando Carvalho
Dr. David Pires Barreira Enf.ª. Elza Alpalhão
Prof. Dr. Rui Tato Marinho
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1500
2000
2500
Support to Patients and Family
0
500
1000
1500
Doente Homem
Doente Mulher
Familiar Homem
Familiar Mulher
Patient manPatient womanFamiliar manFamiliar woman
0
2005
2006
2007
2008
2009
TOTAL Doentes
TOTAL Familiares
Doentes Homens – 2 226Doentes Mulheres – 891Familiares Homens – 753Familiares Mulheres – 924
SOS HepatitesPatient manPatient womanFamiliar manFamiliar woman
1500
2000
2500
Support to Patients and Family
0
500
1000
1500
Doente Homem
Doente Mulher
Familiar Homem
Familiar Mulher
Patient manPatient womanFamiliar manFamiliar woman
0
2005
2006
2007
2008
2009
TOTAL Doentes
TOTAL Familiares
Doentes Homens – 2 226Doentes Mulheres – 891Familiares Homens – 753Familiares Mulheres – 924
SOS HepatitesPatient manPatient womanFamiliar manFamiliar woman
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Thank You!Merci bien!
Muchas gracias!Dank!Tack!Grazie!Bedankt!
