Judy Bartholomew - Alzheimer's Australia
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Transcript of Judy Bartholomew - Alzheimer's Australia
INSIGHTS INTO THE
HOSPITAL DEMENTIA
EXPERIENCE
Judy Bartholomew
Alzheimer’s Australia NSW
EXPERIENCING DEMENTIA
WORKSHOP
• Modified from original Bundoora Extended Care workshop – aged care workers
• 3 part workshop:
o Introduction
o Simulation
o Debrief
• 2 or 3 hours
• 2 facilitators
WHY EXPERIENCING
DEMENTIA?
Show how the approach and attitude of
others and /or a “disabling” environment
can compound feelings of confusion,
helplessness, frustration, humiliation and
anger thus leading to increased disability,
alienation and the development of
‘behavioural responses’.
OUTCOME
Ultimately, through the development of
deeper insight and understanding, the
exercise aims to foster more positive
attitudes towards individuals with dementia
and lead to more sensitive, improved care
practice.
BASED ON…
• Person-centred care
• Needs-driven Dementia-compromised
model of ‘behaviour’ (Unmet need)
PEOPLE LIVING WITH
DEMENTIA AND THEIR
FAMILIES AND CARERS SAID…
FEEDBACK
Negatives:
• Staff not realising someone has dementia
• Staff not understanding the impacts of
dementia eg. Asking them questions (not
carer), not helping with food, not having call
button in a place they can see.
• Loss of self-esteem/dignity, not picking up on
fear and being talked down to or impatiently,
ignored, talked over (communication)
FEEDBACK
Negatives:
• Waiting for long periods – expected to
stay in a bed
• Short staffed – too busy
• Lack of rehab
• Restraint used – Chair tray table, tied to
wheelchair
• Not crushing up medications
FEEDBACK
Positives:
• ASET nurses
• Some staff understood the impact of
dementia
• Spoke to people kindly, smiled, not rushed
• 4 bed room with 1 nurse stationed there
• Picked up on ‘coded language’ – what they
really meant
FEEDBACK
Positives:
• Staff walked with the person
• TOP 5
• Saw the person more quickly
• Eye contact
• Talked with the carer
NSW PILOTS
• External Reference Group
• Expressions of Interest to NSW Local
Health Districts (LHDs)
• Eight LHDs and nine sites applied - MoUs
Hidden slide
ASSESSMENT QUESTIONS:
• What is your tax file number?
• Name 20 animals starting with Z
• List every medical test you have had and the results and doctor
and place
• Multiple 2009869900 x 1308 / 339090234
• Grandfathers, grandfathers middle name
• Last eye test date and outcome
• Copy the diagram above
DEBRIEF
Feelings Behaviour Need
Confused withdrawn
Angry hoarding
Alone aggression
Rushed stealing
Anxious absconding
Helpless suspicious
FEEDBACK
• Evaluations by Samantha Abbato
• 218 participants
• Significant increase in empathy
• Significant increase in understanding
triggers to behaviour
FEEDBACK
• Nearly 70% stated their intention to use
the skills taught to a great extent
• Intended changes to work practice:
o Improved communication
o Individual approach and empathy
o Share knowledge with other staff
o Environmental adjustments
FEEDBACK
The workshop over all was rated as very
good, with the debrief, simulation, content
and the facilitators skills rated as excellent.
LHDs rolling out further workshops.
NEXT STEPS
• Training Package finalised
• Evaluation report finalised
• Report to DSS / DoH
• Launch of training package
• Promote more widely
CHANGE STORIES
‘It was unnerving because I reflected, “Oh
my god, I’m doing this every day to my
patients”
‘… the first time I was pushed to actually
reflect on how I communicate with people
who have dementia.’
CONTACT
Judy Bartholomew
Alzheimer’s Australia NSW
Ph: (02) 6651 6415
Mob: 0418 412 127
Email: [email protected]