Illness Behavior & Perception

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    Illness Behavior andPerceptions of Illness

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    How do people determine when

    theyre ill?

    Illness is a condition of pronounced deviation

    from the normal healthy state

    Illness is a subjective experience

    When do patients report illness?

    When theyre unable to engage in day-to-day activities

    When they have decreased stamina

    When they feel pain, nausea, fatigue

    When they just dont feel well

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    Illness Behavior

    What do you do when you feel ill?

    Most people do not consult a doctor or a

    health professional when they first feel ill

    When and why do people seek

    professional attention?

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    Illness Behavior

    Illness behavior is described as the state

    when the individual feels ill and behaves in a

    particular way

    Illness is a psychological concept:

    It has different meanings for different people

    Its based upon an individuals personalevaluation of his/her bodily state and ability to

    function

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    Illness

    Often it is difficult to decide objectively

    whether someone is ill or not

    Some suggest using scales that define illnessbased on a total score of symptoms

    However, illness is a relative concept, and

    is often functionally based

    Lets return to your thoughts on how you

    know when your ill

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    Symptoms

    Illness is recognized because of the presenceofsymptoms, either physical or mental

    People respond to symptoms in a variety ofways including dismissing, ignoring, denying,and/or maximizing their symptoms

    If we experience unusual symptoms, whichare severe enough, we may feel that we areill and then behave in certain ways

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    Symptoms

    Illness is recognized because of the presence

    of symptoms

    Recognition of symptoms can beaffected by a patient's beliefs and

    expectations

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    Symptoms Patient recognition of a symptom depends on

    the cognitive schemata that the patient has of

    the symptom The more we know, the more our awareness

    of symptoms diagnoses increase

    Health professionals themselves may be very

    aware of physical symptoms and this may

    contribute to professional stress

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    Symptom Reporting

    When do people decide its time to report

    their symptoms?

    People do not necessarily report all of their

    symptoms and certainly choose to whom they

    report them

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    Symptom Reporting

    Factors that influence symptom

    reporting:

    Number and persistence of symptoms Extent of the social and physical disability

    resulting from the symptoms

    Recognition and identification of thesymptom

    Perceived severity of the symptoms

    Symptom change

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    Cultural Influences on Illness

    Behavior

    There are many cultural and demographic

    influences on health and these affect illness

    behavior

    Consider Chinese traditional medicine with

    Western medicine

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    Cultural Influences

    Chinese traditional medicine is based on the

    forces of Yin and Yang and the interaction of

    the five elements (metal, water, wood, fire,

    and earth)

    Traditional Chinese doctors look to balance

    the Yin and Yang by the use of acupuncture,

    Chinese herbs, and massage

    This contrasts with Western medicine which

    uses drugs or surgery to treat symptoms

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    Cultural Influences Culture and the cancer pain experience Taoism: Pain results when Qi is blocked. Pain

    relief comes via removing the blockage and living in

    harmony with the universe

    Buddhism: Pain is suffering; suffering is relieved by

    following the 8 right ways (i.e., right view, right

    intention, right speech, right action, right livelihood,

    right effort, right mindfulness, and right

    concentration)

    Confucian: Pain is an essential element of life;

    hence, endurance is the key

    (Chen, Dodd, & Pantilat, 2008)

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    Sociological and Demographic

    Influences on Illness Behavior

    More illness is found in community surveys in

    lower socio-economic groups

    However, people in higher socio-economic

    groups are more likely to seek health care

    Older people consult their doctorless than

    younger people do in relation to their level of

    illness

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    Illness Representation

    Symptom recognition is not necessarilyenough to make people think that they are ill

    Symptoms on their own have no meaningand are merely bodily sensations

    Different symptoms will be accounted for in

    different ways

    Consider the symptom of a backache

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    Illness Representation

    Illness representations interpret symptoms

    and give them meaning

    The course of action taken will be

    determined by the representation

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    Symptoms

    Symptoms may also suggest the course ofthe illness

    So, if symptoms disappear does this mean

    the illness is over?

    If they are tightly joined to one another, then

    if the symptoms improve, the illness may bethought to have gotten better and the personmay stop treatment

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    Symptoms

    There is an asymmetrical relationshipbetween symptoms and the diagnosticlabel:

    People with symptoms seek a diagnosticlabel

    People given a diagnosis seek symptoms

    Having recognized that they havesymptoms, what do people do?

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    Self Medication

    An Australian study evaluated theactions taken by 360 people who hadminor symptoms or condition in theprevious two weeks

    Their actions included using:

    Left over prescription medicines

    Home remedies

    Over-the-counter medicines

    (Wilkinson et al., 1987)

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    Self Medication

    Elderly people were found to be twice aslikely to treat a minor illness with an over thecounter medication than any other option

    Because drugs are available without aprescription, they may be thought to beharmless

    Poly-pharmacy among elderly people isvery common and prescribed drugs may betaken in combination with over the countermedicines and the combination may change

    their effectiveness

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    Self Medication

    The practice of taking over the counter

    medicines may begin in early adulthood

    Headaches are common in all age groups In a study of adolescents, it was found that

    most of them used medication to cope with

    headaches

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    Self Medication

    Self-medication is extremely common

    It has been suggested that those who

    take non-prescription medicine may beless likely to consult doctors

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    The Sick Role

    The sick role any activity undertaken forthe purpose of getting well by those whoconsider themselves ill

    This is a social role

    A patient who enters the sick role has both

    rights and obligations There are positives and negatives to the sick

    role

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    The Sick Role

    Advantages Exempt from many

    daily activities

    Able to rest and be

    taken care of

    Social support

    Meaning

    Workers

    compensation,

    disability

    Disadvantages Behaviors are

    scrutinized

    Others may view

    behaviors as

    illegitimate attempt to

    gain advantages

    Confusion, discomfort,decreased

    functioning, and

    distress

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    The Sick Role

    People are not expected to will themselvesbetter by effort, and the illness is notconsidered to be their fault

    However, the symptoms must be recognizedby others

    Sick people are expected to want to getbetter

    They are also expected to seek professionalhelp if needed and to comply with healthrecommendations

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    The Sick Role

    The (societal) obligations: The persons symptoms must correspond

    with a diagnosis recognized by society

    There must be overt symptoms before otherswill recognize the illness

    The patient must accept the sick role, and isexpected to take steps to get well

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    The Sick Rolemore (societal)

    obligations

    Sick people are expected to remainoptimistic and cheerful and not displaydistress

    Not everyone is willing to act sick andsome people may conceal their symptoms

    to avoid becoming dependent In some conditions this is seen as desirable

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    The Sick Role

    Most believe being ill is temporary and in mostcases, this is true

    Chronic diseases bring about different

    responsibilities and the person cannot stay inthe sick role forever

    Most people have symptoms of one sort or

    another at any one time, but whether or notthey enter the sick role may be only loosely

    related to the severity or persistence of

    symptoms

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    THANK YOUReported by Tani Stevenson Telow RN, MN-

    NAS(c)