The Open Health Data Landscape: Data Publ isher s, Consumer s, and Use Cases

Mark Silverberg, Health Data Solutions Architect mark.silverberg@socrata.com @Skram

Socrata Unleashing the power of data to improve the world around us

Data Consumers Data Publishers Data

By providing several ways for publishers to set data free and giving analysts, developers, and consumers multiple ways

to use the data through online UXs, APIs, and integrations

Cities Federal

Counties ML/NGO

States Academia

The Flow of Open Health Data

Data Traditional

Media

Issue Activist Researcher

Staffer / Analyst

Informed Citizen

Civic Hacker / Developer

GIS Analyst

Sr. Program Manager

Traditional Media

Issue Activist

Researcher

Staffer / Analyst

Informed Citizen

Civic Hacker / Developer GIS Analyst

Sr. Program Manager

Desired Granularity

Disaggregated Data Summary Data

Dat

a So

phis

ticat

ion

Dat

a Vi

z /

Das

hboa

rds

Raw

Dat

a /

APIs

Data Consumers

Investigative Journalist

Epidemiological

Clinical Personal Quality Claims Environmental Socio-Economic

The Changing Health Data Landscape

More Closed More Open

Behaviors

Examples of Open Health Data (the free kind!)

Healthcare Facilities Farmer’s Markets Air Quality

Police & Fire Incidents Parks & Public Facilities Traffic Collisions

Food Inspection Data Crime Data County Services

Stat

e Ci

ty

Coun

ty

Federal ML/NGO

Provider Cost & Quality

Approved Drugs

Food Recalls

Behavioral Surveys

Population Statistics

Biomedical Research

Loans and Project Financing

Country Epi Profiles

Development & Health Indicators

Population Statistics

Millenniums Development Goals

Improving Data Discovery with Machine Learning

How Data is Transforming Health

Improving price transparency

Driving quality improvements

Improving population health

Informing clinical decision-making

Fueling research and innovation

Guiding public health investments

Informing and improving health policy

Identifying and serving vulnerable

populations

Epidemiological

Clinical

Personal

Quality

Claims

Environmental

Socio-Economic

Behaviors

Which Provider Should I Choose?

Epidemiological

Clinical

Personal

Quality

Claims

Environmental

Socio-Economic

Behaviors

Which Treatment is Most Effective?

Epidemiological

Clinical

Personal

Quality

Claims

Environmental

Socio-Economic

Behaviors

Why Are Some Populations Healthier?

Chicago Uses APIs to Unlock the Value of Community

HealthPocket & HealthScout get Data to Consumers & Patients

It Doesn’t Have To Be Complicated

Thanks!

Mark Silverberg Health Data Solutions Architect, Socrata

mark.silverberg@socrata.com @Skram

Number of Use Cases

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Maximizing Value for the Long Tail of Health Data

Rapid Development of Mission Critical Data Apps at the Centers for Medicare & Medicaid Services

The Challenge: CMS has embarked on an ambitious strategy to harness the power of data to guide decisions, reduce fraud, increase transparency, and improve services. They needed an enterprise approach to deliver mission-critical data applications and support a wide array of disparate data initiatives.

The Solution: CMS uses Socrata to rapidly prototype, develop, and deploy data-driven applications on mission-critical activities such HealthCare.gov and other CMS sites. Data owners and programs across the organization use Socrata to release public data and share data much more effectively with researchers, industry, policy-makers, and others.

"I just wanted to send a short note thanking you for all the incredible work you guys did building out the Socrata data platform for the physician data. In particular I think the look-up tool is fabulous and a great advertisement for agile development and productive collaboration between contractors and the federal government." Niall Brennan Director - Office of Enterprise Management Centers for Medicare and Medicaid Services

The Impact: •  CMS has vastly increased the reach and impact of their

data with over 50 million views and downloads of CMS data. •  CMS APIs have served over 35 million API requests. •  CMS has saved time and money through an agile, API-

driven approach to app development and deployment.

Medicaid Uses Agile Approach to Data-Driven Performance Management

The Impact: •  Performance data is collected from states in a consistent format. •  Senior staff can answer questions quickly for themselves rather

than make one-off data requests to staff. •  CMS saved hundreds of thousands of dollars versus using a

traditional approach to developing a one-off custom solution.

The Challenge: Medicaid needed a solution to collect, track and report performance measures from all 50 states, and they needed it up and running in less than six weeks. They called Socrata.

The Solution: Socrata worked with the Medicaid team to rapidly develop and prototype a simple form based system for collecting monthly reports of performance indicator data from the states. The team implemented an intuitive dashboard that provides senior Medicaid officials with an “at-a-glance” view of key indicators to track progress, make decisions, and report impact.

2014 Top Dataset Resources U.S. States

Unemployment & Employment Statistics

!  Missouri Monthly Unemployment by Industry

!  Maryland Employment Figures !  New York State Current Employment

Statistics !  Washington State Unemployment

Rates by County

Business Registrations & Licenses

!  Oregon New Businesses Registered !  New York State Active Corporations !  New York State Liquor Authority

Active Licenses !  Missouri Active Alcohol License Data

Expenditures & Spending !  Missouri 2011 State

Expenditures !  Vermont Accounts

Payable Payments

Traffic Volume !  New York State Annual Average

Daily Traffic !  Maryland ICC Vehicle Volume Data !  Illinois IDOT Average Annual Daily

Traffic 2010

Campaign Finances !  Hawaii Campaign Contributions

Healthcare Facilities !  New York State Health Care

Facility Information !  Illinois IDPH Hospital Directory !  California Health Care Facilities

Farmer’s Markets !  New York State Farmers Markets !  Hawaii Farmer’s Markets

Weather Warning Systems

!  Hawaii State Civil Defense Hurricane Shelters

!  Missouri Local Severe Weather Warning Systems

Signed Bills or Laws !  Oregon ills Signed by Governor

Kitzhaber 2012 !  Colorado Signed Bills 2012

Air Quality !  Montana DEQ Ambient Air

Quality Monitoring !  Maryland Ozone Exceedance Days

2014 Top Dataset Resources U.S. Cities

Crime !  Baltimore BPD Arrests !  Boston Crime Incident Reports !  Chicago Crimes (2001 to Present)

311 Service Requests !  San Francisco Case Data

311 (SF311) !  New York City 311 Service Requests

(2010 to Present) !  Austin 311 Unified Data !  Baltimore 311 Customer

Service Requests !  Boston Constituent Requests

for City Services !  Chicago 311 Service Requests

Permits & Licenses !  Raleigh Building Permits

with Parcel ID !  New York City Building Permits !  Austin Economic Development

Compliance !  Baltimore Real Property Taxes !  Boston Approved Building Permits

Businesses !  Baltimore Restaurant Listing !  Los Angeles Listing

of Active Businesses

Police & Fire Incidents !  Hartford Current Year Fire Incidents !  Raleigh Police Incident Data (2013) !  San Francisco Police Dept. Incidents

(Previous 3-Months) !  Austin Police Dept. Incident

Extract YTD

City Payroll !  Los Angeles Payroll !  Baltimore City Employee

Salaries (FY2013) !  Boston Employee Earnings

Report (2012) !  Cambridge Budget Salaries (FY2015) !  Chicago Current Employee Names,

Salaries, & Position Titles

Emergency Shelter & Evacuation

!  San Francisco HSA 90 Day Emergency Shelter Wait List

!  New York City Fire Department Firehouse Listing

!  Kansas City Local Severe Weather Warning System

Parks & Public Facilities !  Los Angeles Dept. of Recreation &

Parks Facility & Park Information !  Chicago Library Information

Adopted Budget & Expenditures

!  Raleigh FY13 Adopted & FY14 Proposed Budget

!  Cambridge Adopted Budget By Department (FY12)

Traffic Collisions !  New York City Police Dept. Motor

Vehicle Collisions !  Los Angeles Police Dept. Crime &

Collision Raw Data (2014)

2014 Top Dataset Resources U.S. Counties

Food Inspection Data !  Montgomery County

Food Inspection !  Alameda County

Restaurant Inspections !  King County Food

Establishment Inspection Data

Crime Data !  Prince George’s County

Crime Incidents !  Alameda County Sheriff

Crime Reports

311 Requests !  Montgomery County MC311

Service Requests !  Prince George’s County Click 311

Budget & Expenditures !  King County General Fund &

Proposed Expenditures (2011) !  Montgomery County Fiscal Year

Budget (2013)

Election Data !  San Mateo County California

Gubernatorial General Election Turnout SMC (2011)

!  King County Election Results General Election (November 2, 2010)

!  Montgomery County Election Polling Places (2012)

Foreclosures !  Prince George’s

County Foreclosures !  Cook County Foreclosures (January

1st-August 9th, 2012)

Census Data !  Alameda County Census Raw

Data (2012) !  San Mateo County Population by

Race by Census Tract (2010)

Contracts !  Cook County Awarded Contracts !  Montgomery County Contracts

County Services !  Prince George’s County

Fires Stations !  Prince George’s County Recreation

Centers !  Alameda County Parks !  Montgomery County Public Schools

Residential & Commercial Permits

!  Montgomery County Commercial Permits

!  Montgomery County Residential Permits

!  Prince George’s County Residential & Commercial Permits

Agenda

!  Socrata = democratizing data from publishers and empowering consumers to use it (publishers => consumers)

--- don’t have to rely on techies and data nerds to get at data and solve problems ! Graphical representation w/ pub/con archetypes

!  Dive into available data sources and data sets ! S/L, Fed, NGO, + (commercial, QS, everyone)

!  Dive into users and use cases !  Show examples of full-on websites

but also API-enabled data viz ! Quick ways to get data from publisher to end users

(patient, decision maker, policy maker)

•  Dept of Health: Should we invest in X or Y in Z?

Consumer: What doctor should I pick for my knee replacement?

Clinician: What drug should I prescribe?

Nonprofit: Which community will benefit most from this grant award?

Data sources and types of data in blobs all around the question

!  Data sources " data intermediaries " application/analyst " end user

Apps

!  Show examples of full-on websites but also API-enabled data viz ! Quick ways to get data from publisher to end users

(patient, decision maker, policy maker) ! Chicago Health Atlas ! High Charts / d3 / leaflet