High quality healthcare commissioning: why diversity...

16

Transcript of High quality healthcare commissioning: why diversity...

Page 1: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning
Page 2: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

This paper draws on findings from the Evidence and Ethnicity in Commissioning project1, evidence from

practice experience and other research, to demonstrate the importance of putting race (ethnic) equality2 at

the heart of healthcare commissioning.

Key messages

Healthcare commissioning - the process through which health services

are strategically purchased to meet the needs of local populations - has

the potential to tackle inequalities in access, experiences and

outcomes between ethnic groups

To-date, healthcare commissioning organisations have often failed to

meet the needs of their populations effectively because they have not

mainstreamed attention to ethnic diversity and inequality. As such,

commissioning organisations may be failing in their legal duties.

Progress is hampered by national and local policy contexts that fail: to

provide clear guidance on what standards of service provision are

expected or what commissioning responses are appropriate; to ensure

adequate skills and resource; and to performance monitor or

incentivise progress

Rather than being dealt with as a marginal agenda, commissioning

organisations must understand and address ethnic inequalities as part

of their core responsibilities, and exploit synergies with other key policy

agendas, including Quality, Efficiency and Health Inequalities

Strong leadership, a diverse workforce, effective partnership working,

meaningful engagement of local black and minority ethnic communities,

and a reflective, learning culture, could help to create more enabling

strategic environments

Effective generation and use of evidence and knowledge is needed to

raise awareness of the scale and nature of ethnic inequalities and to

challenge and support key actors to find viable solutions.

Page 3: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

Ethnic identity influences the health of individuals and groups through a variety of mechanisms including:

direct and indirect discrimination;

differential access to health-promoting resources;

cultural practices;

migration;

some genetic or biological factors.

(Nazroo, 1997; Salway and Ellison, 2010)

Rather than mitigating the social and economic disadvantage that undermines the health of many minority

ethnic people, the healthcare system can make matters worse. Inaccessible services, unmet need, poor

patient-provider communication, inappropriate diagnoses and treatment, and negative service experiences

remain common and are not confined to new migrants or people who lack English language skills (as

documented in many of the other Better Health Briefings, see for example: Chau, 2008; Moriarty, 2008;

Bharj and Salway, 2008; Latif et al., 2010).

To-date, the contribution of commissioning to tackling these widespread inadequacies has been

disappointing. Findings from the EEiC project, as well as evidence from elsewhere, suggest three broad

obstacles to progress. First, there is ambivalence at national and local level regarding the importance of

addressing ethnic inequality. This is reflected in its marginalisation from other key policy priorities, the

limited resources allocated, and the lack of performance monitoring. Second, individuals charged with

undertaking commissioning work lack the skills and/or confidence to engage with issues relating to ethnic

diversity and inequality. These individuals also commonly fail to draw on available expertise, opting instead

to ignore the issues. Third, the increasing emphasis on evidence-based policy and practice has

inadvertently undermined the ethnic inequalities agenda because data and evidence are lacking, and those

who might champion the cause are often ill-equipped to mobilise the available evidence effectively.

Coupled with a predominant focus on achieving short-term gains measured primarily in terms of cost

savings, these factors hamper action towards understanding and addressing deeply ingrained ethnic

inequalities.

This briefing paper addresses the first of these obstacles, which relates to the need to establish a strategic,

enabling environment. We highlight the overall role that commissioning should play in addressing ethnic

inequalities in access, experiences and outcomes of healthcare services, and illustrate why this focus

complements other key commissioning concerns. A second Better Health briefing paper addresses the

second and third (predominantly operational) obstacles by highlighting actions that commissioners, and

other stakeholders, can take to enhance the contribution of commissioning to reducing ethnic inequalities

(Salway et al., 2012).

Page 4: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

What is healthcare commissioning? Why is commissioning key to reducing ethnic inequalities in

healthcare access, experiences and outcomes?

The term 'commissioning' is peculiar to the UK health system, while terms like 'strategic purchasing' or

'planning and funding' are used elsewhere. A useful definition of commissioning is provided by Woodin

(2006:); "the set of linked activities required to assess the healthcare needs of a population, specify the

services required to meet those needs within a strategic framework, secure those services, monitor and

evaluate the outcomes." Government policy emphasises the pro-active and strategic nature of

commissioning, which should involve both transformational (reshaping the configuration of services) as well

as transactional (custodianship of the budget, contract monitoring) elements (NHS Commissioning Board,

2012). Since 2002, Primary Care Trusts have had responsibility for commissioning most local health

services, including primary care and public health interventions (DH 2001), with some specialist services

and national programmes being commissioned at regional or national level. The current NHS restructuring

sees Clinical Commissioning Groups (CCGs, lead by General Practitioners with support from other

clinicians and commissioning managers) taking up the reins for most local healthcare commissioning. At the

same time, PCT Public Health teams will be relocated to Local Authorities from where they will commission

a range of services and interventions (such as sexual health services and healthy lifestyle interventions).

Primary Care will be commissioned by a national NHS Commissioning Board via Local Area Teams, who will

also have responsibility for commissioning some public health interventions (DH, n.d.).

This restructuring presents an important opportunity to re-emphasise both the strategic role that

commissioning should play; and the responsibility that commissioning organisations have to ensure that this

process delivers benefits for all, regardless of ethnicity. Commissioning organisations are required to

consider the entire population whose health they are tasked with improving and to look across the whole

range of services and interventions on offer (DH, 2011). Commissioning organisations must focus on

improving health, not merely paying for health services, and they should give particular attention to

improving the health of the most disadvantaged and to ensuring that their policies will not unduly affect the

groups protected under the Equality Act. This requirement has been clearly set out in recent government

policies and echoed by many of the key professional bodies involved. For instance, the Royal College of

General Practitioners’ (RCGP) Centre for Commissioning identifies, under its commissioning principles,

"meeting the healthcare needs of the whole population, including the disadvantaged and the vulnerable, to

improve health outcomes"(RCGP, n.d.). In terms of meeting the needs of minority ethnic populations, there

are four broad areas of activity in which healthcare commissioning organisations should therefore be

engaged:

1. Ensuring that existing services and interventions provide equitable access, experiences and outcomes

for all service users and carers regardless of ethnicity.

Page 5: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

2. Ensuring that any transformational work such as the development of new services, the redesign of

existing care pathways, or the decommissioning of provision, pays detailed attention to the potential

negative impact on particular ethnic groups.

3. Examining the fit between existing services and minority ethnic health needs and responding to

significant gaps through design and procurement of specialist services (where there is a clear case for

specialist provision on the basis of higher quality and/or greater efficiency) or enhancement of existing

provision.

4. Shifting spend towards prevention and early intervention (Imison, et al., 2011) (particularly where this

accompanies action on 1-3 above, so that the most disadvantaged groups benefit in proportion to their

greater need).

A failure to commission for multi-ethnic populations

Despite the rhetoric of strategic and transformational commissioning, and significant investment in

commissioning skills over the past few years (particularly under the banner of World Class Commissioning,

DH, 2007), it is widely recognised that structural factors (particularly the power imbalance between PCTs

and large provider Foundation Trusts and the momentum of historical contracts) severely constrain

commissioners' room for manoeuvre (Smith et al., 2010; Checkland et al., 2012). This means that the bulk of

expenditure by Primary Care Trusts continues to be straightforward or passive 'purchasing' - that is, simply

buying what is on offer (Woodin, 2006; Smith et al., 2006). In the words of one of the EEiC respondents,

transformational work is usually confined to 'tinkering at the margins'. That said, the EEiC project, and other

research, has documented instances of active, 'brave' commissioning work (Smith et al., 2006; 2010). This

has included: growth in extended primary care services; pathway redesigns; the use of Commissioning for

Quality Innovation schemes (CQUINS)3 to prompt service improvement; and some decommissioning of

services.

Nevertheless, examples of commissioning action that has actively shaped services to better meet the needs

of minority ethnic patients remain few and far between. Indeed, findings from the EEiC project

overwhelmingly suggest that commissioning organisations do not prioritise this agenda and that most

healthcare commissioners do not view identifying, understanding and tackling ethnic inequalities in

healthcare access, experience and outcomes as part-and-parcel of their job. It found that organisational

cultures did not penalise or reward (in)attention to ethnic inequality and that structures and processes were

ineffective at prompting commissioning staff to consistently address these issues. There was uncertainty

among commissioning managers regarding whether it was appropriate to focus on the needs of minority

ethnic groups, with some expressing concern that to do so would mean 'privileging' these groups, rather

Page 6: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

than viewing such attention as addressing unfair disadvantage. There was also a lack of awareness

regarding what effective strategies might look like, and a tendency to view responsibility for identifying

viable service responses as lying with provider organisations. At the same time, PCT staff with an equalities

and diversity remit, who might offer clarity and guidance on these issues, were few in number and tended to

be isolated from 'core' commissioning work.

'So I always say that people don’t get discriminated any more, the equality and inclusion agenda gets the

discrimination... it’s the area itself that gets the discrimination, that gets less resources, that gets the less

importance... Which of [the] agendas do you think is going to be keeping people awake at night time? It will

not be the inclusion agenda. It will be QIPP4 and commissioning and providing. So there is a hierarchy in the

importance of areas within the NHS.' EEiC National Key Informant, NHS.

'I think locally it still remains a very Cinderella issue I think for many groups, for many areas. ..... I think

overall it’s probably still not that high on people’s radar, is it.' EEiC National Key Informant, Third Sector

'There’s a mind-set that says if we do anything for BME communities that’s on top of what we already do,

rather than what we already do should incorporate the needs of BME communities' EEiC Local Respondent,

Local Authority.

Where service developments aimed at addressing ethnic inequalities have occurred, these have mainly

been project based and often short lived. Providers, rather than commissioners, have tended to be the ones

who highlight need and seek innovative solutions, with little evidence of resultant knock on effects for

commissioning organisational policies or practice. Even large-scale national investments like Delivering

Race Equality and Pacesetters do not appear to have led to systematic attention to ethnic diversity and

inequality within the strategies and work programmes of commissioning organisations, despite important

successes on the ground (EHRC, 2011).

There is clearly a pressing need to make a convincing case for why attention to ethnic diversity and

inequality must be at the heart of commissioning work, and to provide greater challenge and support to

commissioners to take concerted action on this agenda.

Aligning race equality with other drivers

While the 2010 Equality Act provides important renewed impetus for healthcare commissioning

organisations to respond to the public sector equality duty, past experience suggests that a focus on legal

requirements can encourage a compliance mentality, and has been insufficient to embed race equality into

Page 7: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

the mainstream business of NHS organisations (EHRC, 2011). Therefore, while the new focus on outcomes

rather than process, particularly via the requirement to publish equality data and develop equality

objectives, is to be welcomed, there is a need to ensure that this work is adequately resourced, sustained

over the long term, and is positioned centrally within the commissioning process. Findings from the EEiC

project suggest that action on ethnic inequalities remains persistently side-lined from other commissioning

agendas that have greater legitimacy, and that synergies are neither recognised nor exploited.

Given the target-driven, benchmarking culture that has come to dominate NHS governance and

management (DH, 1999; Gridley et al., 2012), there is an urgent need to challenge the marginalisation of

ethnic equality work and establish much more clearly what commissioners can and should be doing to

address this agenda and how progress can and should be measured. There is a need to make the case for

attention to ethnic diversity and equality as integral to all commissioning activity, and to highlight how this

agenda can complement, rather than complicate or undermine, work on other priorities. Three such

important areas where greater synergy is needed are highlighted below.

Quality

The Darzi Next Stage review in 2008 signalled the policy intention to make quality 'the organising principle

of the NHS' (DH, 2008). At the heart of the Darzi review's recommendations was the need for services to be

shaped around the characteristics and needs of the patients they serve, providing care that is 'personal,

effective and safe'. A large infrastructure currently supports this national agenda including: a National

Quality Board; benchmarking against a basket of Indicators for Quality Improvement (IQIs), across the three

domains of safety, effectiveness and experience; annual production of Quality Accounts by NHS provider

organisations; and a rolling programme of production of NICE Quality Standards. At local level, this focus is

reflected in: performance monitoring via indicator dashboards; regular quality review meetings between

commissioners and providers; and associated strategy documents, procedural guidelines and quality

reports being produced by large dedicated teams within PCTs.

Given the wealth of qualitative and quantitative evidence that patients of minority ethnic identity frequently

have poorer service experiences than majority white British patients (DH and HCC, 2008; Lakhani, 2008),

and the growing body of findings that document how communication difficulties and lack of cultural

competence can compromise effectiveness and safety of care (Rhodes and Nocon, 2003; Lewis, 2007; Kai,

2007; Delamothe, 2008), one would expect ethnic diversity and inequality considerations to be part-and-

parcel of the overall quality agenda. In practice, however, these apparently obvious synergies remain

untapped by commissioners. The EEiC project found that quality and equality were worlds apart in the

PCTs studied. Quality indicators were not regularly broken down by ethnic group and CQUINS were rarely

defined in terms of gains for minority ethnic patients. The quality assurance documents that were reviewed

made no reference to equalities issues. Further, while guidance on the Department of Health's newly

adopted Equality Delivery System (EDS) alerts managers to the alignment between the equality objectives

and quality and safety standards (DH, 2012), this appears to be an afterthought. The EEiC project found that

Page 8: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

in practice the EDS was undertaken by equality and diversity staff without reference to the quality agenda

and with no involvement of staff from these teams. This isolated approach means that it is not obvious how

priorities identified by the EDS process are then to be translated into action by other commissioning staff.

Other commentators have also highlighted this extraordinary state of affairs (Murray and Bachus, 2005;

Chin and Chien, 2006). Clearly, there is a need to raise awareness among commissioning managers of the

quality and safety issues that disproportionately affect minority ethnic patients and to strongly indicate that

overlooking these inequalities is unacceptable. Resources devoted to monitoring and addressing quality

issues within provider and commissioner organisations should be harnessed, with appropriate indicators

being reported by ethnic group and procedures being developed that are inclusive of these equality

concerns. Furthermore, breaches of ethnic equality standards should prompt investigation and remedial

action by commissioning managers in the same way that general quality concerns currently do.

Efficiency

Given the current austerity measures, the need for the NHS to curb costs and use resources efficiently is a

major priority, and commissioning activity is largely driven by this agenda. Linked closely to the quality

agenda, under the umbrella of QIPP - Quality, Innovation, Productivity and Prevention - there is a large

infrastructure at national and local level, with regular benchmarking of spend and many other tools

assisting PCT commissioners to identify areas of service provision that might warrant closer scrutiny. While

inefficiency often arises due to a failure to effectively join up elements of service provision, a 'lack of fit'

between services and patient needs is also often a major cause. There is evidence to suggest that a number

of such inefficiency concerns show important variation along ethnic lines (though investigation to-date has

been inadequate). These include: use of unscheduled care (Gilthorpe et al., 1998; Parry, Van Cleemput et

al., 2004); poor uptake and adherence to treatments (Chauhan et al., 2010 ); late presentation and

consequent more costly delayed intervention and poorer outcomes (Breast Cancer Care, 2011; Johnson et

al., 2011; Addo et al., 2012 ); and low access to self-management support (Diabetes UK, 2007). However,

the EEiC project found that commissioners exploring efficiency issues overlooked the relevance of ethnic

diversity and inequality and tended to assume that giving attention to ethnicity would add cost and

complexity, rather than that such consideration might improve their understanding of the issues and

increase the potential for finding effective, efficient solutions. Clearly, highlighting the potential for more

efficient use of resources if services better meet the needs of minority ethnic groups should be a key

strategy. Equipping 'champions' – whether these are commissioning staff or external stakeholders - with the

skills and information to develop convincing business cases for addressing ethnic inequalities was

identified by EEiC respondents as a key priority.

Health Inequalities

Reducing health inequalities has been an explicit policy objective in the UK for the past 15 years, with the

independent review - Fair Society, Healthy Lives (Marmot, 2010) - providing the current policy direction at

national and local level. The repeated failure of this agenda to pay explicit and considered attention to

ethnic diversity and inequality has been highlighted elsewhere (Salway et al., 2010; Ingleby, 2012). The

Page 9: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

health inequalities programme is particularly concerned with tackling the wider social determinants of

health, as well as the prevention of, and early interventions for, long-term conditions through public health

and primary care (DH, 2009). Key social determinants of poor health, including poor housing, poverty and

low educational attainment show important ethnic differentials, with some of the enumerated minority

ethnic groups standing out as particularly disadvantaged (notably people identifying as Bangladeshi/British

Bangladeshi and Pakistani/British Pakistani; Platt, 2007). However, these inequalities reflect the particular

disadvantages faced by minority ethnic people, as socioeconomic deprivation inter-relates closely with

racist exclusion and discrimination across the life-cycle. There is evidence that health outcomes of some

minority ethnic groups are worse than would be expected on the basis of their socioeconomic

circumstances alone, and that the direct and indirect experience of racism in everyday life is an important

contributory factor (Karlsen and Nazroo, 2002; Nazroo 2003). Interventions aimed at tackling the 'up-

stream' social determinants of health have been found to fail to engage and meet the needs of minority

ethnic people (Craig, 2007). Furthermore, there is widespread evidence that uptake of key preventive

interventions including screening services, vaccination, and 'healthy lifestyle' promotion, also show

important ethnic inequalities (Crozier and McNeill, 2003; Webb, 2004; Szczepura, 2005), with services often

suffering the same 'lack of fit' that arises within curative healthcare settings. Clearly, there are strong

reasons why commissioners with responsibility for addressing health inequalities should pay explicit

attention to understanding and addressing ethnic health inequalities. However, findings from the EEiC

confirmed earlier work that shows attention to ethnicity within UK health inequalities policy and practice

remains patchy at best (Exworthy et al., 2006). Public health commissioners were found to be focused on

targets that were not defined in terms of ethnic inequalities, and often exhibited the same uncertainties

around focusing on minority ethnic needs as those commissioning curative health services. There is a need

to challenge this omission, through which public health practice essentially reinforces the exclusionary

processes operating in wider society. There is also a need to emphasise that progress on key outcome

measures (such as infant mortality) will be undermined unless ethnic inequalities are taken seriously,

particularly in the areas of greatest deprivation, which often have high concentrations of minority ethnic

people (Raleigh, 2008).

Putting race equality at the heart of commissioning: creating a strategic, enabling environment

Many readers of this paper will recognise reducing ethnic inequalities in healthcare access, experiences

and outcomes as the most effective way to deliver healthcare to the population as a whole. It is also the

morally right thing to do as well as being supported in law. Nevertheless, experience suggests that without

clear direction, challenge and support, this agenda will remain side-lined, and concerted action rare, within

commissioning. The discussion above has explained why this marginalisation is both unacceptable and

counter-productive, and highlighted the need for action to:

Page 10: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

align race equality with core commissioning agendas, particularly quality, efficiency and health

inequalities;

spell out much more clearly: how and why ethnicity affects health and healthcare; what standards of

service provision are expected; and what commissioning responses are appropriate;

ensure that sufficient resource is allocated to this agenda, and that resources directed to other

priorities also work for, rather than against, action on ethnic inequalities;

performance manage and reward progress on this work;

equip commissioners with the confidence and competence to undertake work to identify,

understand and address ethnic inequalities.

While stronger leadership and greater resource at a national level would be beneficial, there is much that

can be done locally within the emerging commissioning structures. Indeed, findings from the EEiC project,

together with wider experience, suggest that some PCTs and other commissioning bodies, have done better

than others at putting attention to ethnic diversity and inequality at the heart of their work. For instance,

NHS North West's equality grading tool - EPIT (a precursor to the current Equality Delivery System; DH,

2012) - identified Liverpool PCT as 'achieving' across a number of relevant indicators. Key factors that seem

to encourage a strategic enabling environment include:

Leadership and senior management - People at the top of organisations who: make it clear to their staff that

race equality is a priority area for which everyone is responsible; make public statements in high profile

gatherings to this effect; commit adequate resources to this agenda; ensure effective linkages and

synergies across work-streams; establish structures and processes that enhance the confidence and

competence of all staff, hold them to account and reward progress in this area; and actively support and

value the work of 'champions' for this agenda.

A diverse workforce - An organisation that: includes people with a direct connection to the issues at all

levels of seniority; values the diversity of its staff and draws on this to increase the confidence and

competence of its workforce; and has effective mechanisms for connecting senior decision-makers to more

junior knowledge-bearers.

Effective partnership working - An organisation that: builds effective partnerships to increase

understanding of, and action on, race equality issues; recognises service providers as key stakeholders

and knowledge-bearers; recognises the key role of the Voluntary Community and Faith sector and facilitates

its active engagement and development as a service provider; and creates a commissioning arena in which

partners are encouraged to be 'external agitators' both challenging and supporting commissioners in their

role.

Page 11: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

Meaningful engagement of local black and minority ethnic communities - An organisation that: recognises

the often large social distance between commissioners and the people whose interests they serve;

promotes involvement of minority ethnic patients and public via focused as well as broad mechanisms for

gaining input and guidance; and accepts its responsibility for ensuring sustained and meaningful

relationships.

A reflective, learning environment - An organisation that: gives time and space for reflection and critical

analysis; shares learning around failures as well as successes; discourages silo working; and manages

collective knowledge effectively both internally and across partnerships.

Effective generation and mobilisation of evidence

In addition to the core characteristics of an enabling environment identified above, progress towards ethnic

equality requires more effective generation and mobilisation of evidence and knowledge. This is important

both to raise awareness of the scale and nature of ethnic inequalities and to challenge and support key

actors to find viable solutions. Commissioning organisations must: draw on a wide range of relevant

evidence and knowledge to describe, understand and seek solutions to ethnic inequalities; appropriately

appraise and synthesise different sources; identify inadequacies in data/intelligence on ethnic inequality

and actively work to improve systems of data collection; and contribute to and learn from networks and

forums to improve the evidence base around ethnic health inequalities and effective intervention.

The potential for commissioning to leverage improved access to, experiences and outcomes of healthcare

for minority ethnic people has not yet been realised. Race equality remains a side-lined concern with

insufficient resource and expertise. The current restructuring of the NHS presents an important opportunity

for commissioning organisations to recognise their responsibility and establish a strategic environment

which embeds attention to ethnic diversity and inequality into all commissioning work, and a strong case

can be made for its inclusion. A second Better Health briefing paper from the EEiC project sets out in more

detail actions that can be taken during the commissioning cycle by commissioners and other stakeholders

to improve healthcare for minority ethnic people (Salway, et al., 2013).

Page 12: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

General guidance on commissioning can be found on the National Audit Office website:

http://www.nao.org.uk/guidance__good_practice/third_sector/successful_commissioning/successful_comm

ission_toolkit/toolkit_home.aspx?alreadysearchfor=yes

Various commissioning toolkits have been produced to support commissioners, some of which make some

reference to the needs of minority ethnic patients and carers. These documents can be helpful for those

who want to understand more about commissioning processes and how they might influence them to

prompt greater attention to ethnic diversity and inequality. Examples include:

Commissioning services for people with dementia:

http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/Browsable/

DH_127381

Commissioning a cardiac rehabilitation service:

http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/Browsable/

DH_117504

Some organisations have produced commissioning guidance with a focus on the needs of migrants and/or

minority ethnic people:

Maternity Action - Guidance for Commissioning Health Services for Vulnerable Migrant Women

http://www.maternityaction.org.uk/sitebuildercontent/sitebuilderfiles/guidancecommissioninghealthservvul

nmigrantwomen2012.pdf

Race for Health - Towards Race Equality in Health: A guide to policy and practice for commissioning

services http://www.raceforhealth.org/storage/files/Race_for_Health_Commissioning_Guide.pdf

The London Health Observatory has produced a series of publications in its Commissioning for Equity

Series. http://www.lho.org.uk/viewResource.aspx?id=12831

The EEiC project has produced a range of tools and resources to support this agenda in commissioning.

www.eeic.org.uk

Page 13: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

Addo, J., Ayis, S, Leon, J, Rudd, A G, McKevitt, Wolfe, C D A (2012) Delay in presentation after an acute stroke in a multiethnic population in South London: The South London stroke register, Journal of the American Heart Association. 1: e001685 http://jaha.ahajournals.org/content/1/3/e001685.full [last accessed March 2013] Bharj, K K & Salway, S (2008) Addressing ethnic inequalities in maternity service experiences and outcomes: responding to women's needs and preferences, Better Heath Briefing Paper 11, Race Equality Foundation: London http://www.better-health.org.uk/sites/default/files/briefings/downloads/health-brief11.pdf [last accessed March 2013] Breast Cancer Care (2011) Breast cancer and inequalities: a review of the evidence, Breast Cancer Care: London http://www.breastcancercare.org.uk/sites/default/files/files/pdf/breast_cancer_inequalities_review_-_summary.pdf [last accessed March 2013] Chau, R (2008) Health experiences of Chinese people in the UK, Better Health Briefing Paper 10, Race Equality Foundation: London http://www.better-health.org.uk/briefings/health-experiences-chinese-people-uk [last accessed March 2013] Chauhan, U, Baker, D, Lester, H (2010) ‘Exploring uptake of cardiac rehabilitation in a minority ethnic population in England: a qualitative study’, European Journal of Cardiovascular Nursing, 9, pp. 68–74 Chin, M H and Chien, A T (2006) ‘Reducing racial and ethnic disparities in health care: an integral part of quality improvement scholarship’, Qual Saf Health Care ;15:79-80 doi:10.1136/qshc.2006.017749 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2464839/pdf/79.pdf [last accessed March 2013] Craig, G et al (2007) Sure Start and Black and minority populations DfES: London http://www.ness.bbk.ac.uk/implementation/documents/33.pdf [last accessed March 2013] Crosier A and McNeill A (2003) Mapping black and minority ethnic tobacco prevention resources http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4080885.pdf [last accessed March 2013] Delamothe, T (2008) ‘Reviewing progress in the NHS at 60: Universality, equity, and quality of care’, British Medical Journal 336(7656, pp. 1278–1281 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2413332/ [last accessed March 2013] Department of Health (n.d.) Commissioning Development: Key Facts http://www.commissioningboard.nhs.uk/files/2012/06/fact-comm-dev.pdf [last accessed March 2013] Department of Health (1999) The NHS Performance Assessment Framework http://webarchive.nationalarchives.gov.uk/+/www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4009190 [last accessed March 2013] Department of Health (2007) World Class Commissioning: vision http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_080956 [last accessed March 2013] Department of Health (2008) High quality care for all: NHS Next Stage Review final report http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_085825 [last accessed March 2013] Department of Health and Health Care Commission (2008) Report on the self-reported experience of patients from black and minority ethnic groups http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_084937.pdf [last accessed March 2013]

Page 14: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

Department of Health (2009) Tackling health inequalities: 10 years on A review of developments in tackling health inequalities in England over the last 10 years http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalasset/dh_098934.pdf [last accessed March 2013] Department of Health (2011) Developing Clinical Commissioning groups: Towards authorisation. http://www.commissioningboard.nhs.uk/files/2012/01/NHSCBA-02-2012-7-Guidance-Developing-Clinical-Commissioning-Groups-Towards-Authorisation.pdf [last accessed March 2013] Department of Health (2012) Equality Delivery System for the NHS http://www.eastmidlands.nhs.uk/about-us/inclusion/eds/ [last accessed March 2013] Diabetes UK (2007) Survey of South Asian people with diabetes 2006: access to healthcare services at a glance http://www.diabetes.org.uk/upload/Professionals/SouthAsian_survey.pdf [last accessed March 2013] Equality and Human Rights Commission (2011) The Public Sector Equality Duty: A way forward for the health sector http://www.equalityhumanrights.com/uploaded_files/EqualityAct/PSED/health_policy_web.pdf [last accessed March 2013] Exworthy, M Bindman, A, Davies, H and Washington, A E (2006) ‘Evidence into Policy and Practice? Measuring the Progress of U.S. and U.K. Policies to Tackle Disparities and Inequalities in U.S. and U.K. Health and Health Care’, Millbank Quarterly, 84, 1, pp 75-109 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2690156/pdf/milq0084-0075.pdf [last accessed March 2013] Gilthorpe M S, Lay-Yee R, Wilson R C, Walters S, Griffiths R K, & Bedi R (1998) ‘Variations in hospitalization rates for asthma among black and minority ethnic communities’, Respiratory Medicine, 92, pp. 642–8. Gridley, K, Spiers, G, Aspinal, F, Atkin, K and Parjer, G (2012) ‘Can general practitioner commissioning deliver equity and excellence? Evidence from two studies of service improvement in the English NHS’, Journal of Health Services Research & Policy 17, 2, pp. 87-93 http://www.york.ac.uk/inst/spru/pubs/pdf/jhsrpApril2012.pdf [last accessed March 2013] Imison, C, Naylor, C, Goodwin, N, Buck, D, Curry, N, Addicott, R and Zollinger-Read, P (2011) Transforming our Health Care System: Ten priorities for commissioners, Kings Fund http://www.kingsfund.org.uk/sites/files/kf/field/field_publication_file/transforming-health-care-system-ten-priorities-commissioners-may11.pdf [last accessed March 2013] Ingleby, D (2012) ‘Ethnicity, migration and the 'Social Determinants of Health Agenda', Psychosocial Intervention 21, 3, pp. 331-341 http://www.copmadrid.org/webcopm/publicaciones/social/in2012v21n3a9.pdf [last accessed March 2013] Johnson, M R D, Vinette, C Scase, M O, Szczepura, A, Clay, D, Hubbard, W, Claringbull, K, Simkiss P, and Leamon, S (2011) A review of evidence to evaluate effectiveness of intervention strategies to address inequalities in eye health care, De Montfort University, RNIB http://www.rnib.org.uk/aboutus/Research/reports/prevention/Pages/evaluation_interventions.aspx [last accessed March 2013] Kai, J (2007) ‘Safety and achieving equality amid diversity in healthcare’, British Journal of General Practice, 57, pp. 774-776 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2151808/pdf/bjpg57-774.pdf [last accessed March 2013] Karlsen, S and Nazroo, J Y (2002) ‘The relationship between racial discrimination, social class and health among ethnic minority groups’, American Journal of Public Health, 92, 4, pp. 624-31 http://www.lancs.ac.uk/fass/apsocsci/hvp/pdf/nl5art6.pdf [last accessed March 2013] Lakhani, M (2008) No Patient Left Behind: how can we ensure world class primary care for black and minority ethnic people?, Department of Health: London http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_084973.pdf [last accessed March 2013] Latif, S (2010) Effective methods of engaging black and minority ethnic communities within health care settings, Better Health Briefing Paper 18, Race Equality Foundation http://www.better-health.org.uk/briefings/effective-methods-engaging-black-and-minority-ethnic-communities-within-health-care [last accessed March 2013]

Page 15: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

Lewis G (ed.) (2007) Saving Mothers' Lives: Reviewing Maternal Deaths to Make Motherhood Safer – 2003-2005, The Seventh Report on Confidential Enquiries into Maternal Deaths in the United Kingdom. The Confidential Enquiry into Maternal and Child Health (CEMACH): London. Moriarty, J (2008) The health and social care experiences of black and minority ethnic older people, Better Health Briefing Paper 9, Race Equality Foundation http://www.better-health.org.uk/briefings/health-and-social-care-experiences-black-and-minority-ethnic-older-people [last accessed March 2013] Murray, S and Bachus, L (2005) ‘Patient safety and adverse maternal health outcomes: the missing social inequalities ‘lens’’, British Journal of Obstetrics and Gynaecology 112 pp. 1339-1343 http://onlinelibrary.wiley.com/doi/10.1111/j.1471-0528.2005.00693.x/pdf [last accessed March 2013] Nazroo, J (2003) ‘The structuring of ethnic inequalities in health: economic position, racial discrimination and racism’, American Journal of Public Health, 93, 2, pp. 277-284 http://www.humanities.manchester.ac.uk/socialchange/research/social-change/summer-workshops/documents/thestructuringofethnicequalitiesinhealth.pdf [last accessed March 2013] NHS Commissioning Board (2012) Developing Commissioning Support: Towards service excellence. http://www.commissioningboard.nhs.uk/files/2012/01/NHSCBA-02-2012-8-Guidance-Developing-commissioning-support-Towards-service-excellence.pdf [last accessed March 2013] Platt, L (2007) Poverty and ethnicity in the UK, Joseph Rowntree Foundation http://www.jrf.org.uk/sites/files/jrf/2006-ethnicity-poverty-uk.pdf [last accessed March 2013] Rhodes P & Nocon A (2003) ‘A problem of communication? Diabetes care among Bangladeshi people in Bradford’, Health and Social Care in the Community 11, 1, pp. 45–54. Royal College of General Practice Centre for Commissioning (n.d.) Principles of Commissioning Summary. http://www.rcgp.org.uk/revalidation-and-cpd/~/media/6C164D7796EA49A3AC25AD5383AEC653.ashx [last accessed March 2013] Salway, S, Turner, D, Mir, G, Carter, L, Ellison, G, Skinner, J and Bostan, B (forthcoming) High Quality Healthcare Commissioning: Obstacles and opportunities for progress on race equality. Salway, S and Ellison, G (2010) Nursing research for a multi-ethnic society. In: Gerrish, K and Lacey, A, (eds.) The research process in nursing. Wiley-Blackwell: Oxford, pp. 50-61. Salway S, Nazroo J, Mir G, et al. (2010) Fair Society, Healthy Lives: a missed opportunity to address ethnic inequalities in health. bmj.com http://171.66.124.147/cgi/eletters/340/feb09_1/c684#234369 [last accessed March 2013] Szczepura, A (2005) ‘Access to healthcare for ethnic minority populations', Postgraduate Medical Journal 81, pp. 141-147 http://wrap.warwick.ac.uk/99/3/WRAP_Szczepura_zAccess_Paper_Review_Revised_Send.pdf [last accessed March 2013] Smith, J, Curry, N, Mays, N and Dion, J (2010) Where next for commissioning in the English NHS? The Nuffield Trust: London http://www.nuffieldtrust.org.uk/sites/files/nuffield/publication/Where_next_commissioning_KF_NT_March%202010.pdf [last accessed March 2013] Smith, J, Lewis, R and Harrison, T (2006) Making commissioning effective in the reformed NHS in England. Health Policy Forum: London http://www.npa.co.uk/Documents/Docstore/PCO_LPCs/HPF_Effective_Commissioning_Report_Dec_2006.pdf [last accessed March 2013] Webb, R et al (2004) 'Uptake of cervical screening by ethnicity and place-of-birth: a population based cross-sectional study', Journal of Public Health 26, 3, pp. 293-296 http://jpubhealth.oxfordjournals.org/content/26/3/293.full.pdf [last accessed March 2013] Woodin, J. (2006) ‘Commissioning’, in Walshe, K. and Smith, J. (eds) Healthcare Management, Open University Press: Maidenhead.

Page 16: High quality healthcare commissioning: why diversity ...raceequalityfoundation.org.uk/wp-content/uploads/... · inequality within the strategies and work programmes of commissioning

Sarah Salway

Professor of Public Health, Sheffield Hallam University

Daniel Turner

Research Fellow, Sheffield Hallam University

Ghazala Mir

Principal Research Fellow, University of Leeds

Lynne Carter

Head of Equality and Diversity, NHS Bradford and Airedale

John Skinner

Research and Evaluation Manager, Sheffield City Council

Bushara Bostan

Health Improvement Specialist, NHS Leeds

Kate Gerrish

Research Professor, Sheffield Hallam University

George Ellison

Epidemiologist , Leeds Medical School

Readers

Mina Jesa

Brian Colman

We welcome feedback on this paper and on all aspects of

our work. Please email [email protected]

Race Equality Foundation

Unit 17, Deane House Studios

27 Greenwood Place

London NW5 1LB

T: 020 7428 1880 F: 020 7428 0912

www.raceequalityfoundation.org.uk

Copyright © Race Equality Foundation

March 2013

ISBN: 978 1 873912 98 6

Notes

The EEiC project was funded by the National

Institute for Health Research HS&DR

programme (project number 09/1002/14). The

views and opinions expressed here are those

of the authors and do not necessarily reflect

those of the HS&DR programme, NIHR, NHS or

the Department of Health.

In keeping with the terminology of the Equality

Act (2010) and the Race Equality Foundation,

we use the term 'Race Equality' to refer to the

broader agenda of promoting equality between

racial/ethnic groups and removing racist

discrimination. However, elsewhere in the

paper we use the terms 'ethnicity', 'ethnic

group' and 'minority ethnic group', as these are

in more common usage in the UK and are

preferred by those who are wary of the

association of the term 'race' with discredited

19th century work labelled as 'scientific

racism'.

The Commissioning for Quality and Innovation

(CQUIN) payment framework enables

commissioners to reward excellence by linking

a proportion of providers’ income to the

achievement of local quality improvement

goals.

Quality, Innovation, Productivity and

Prevention - a major strategic agenda for the

NHS -

http://www.dh.gov.uk/health/category/policy-

areas/nhs/quality/qipp/