Heart Failure Awareness Day 2016

Report from: Belgium

Name of reporter: Dr Pierre Troisfontaines ( President of the Belgian Working Group on Heart Failure )

Public event / open clinic

• This year, 22 centres across Belgium have been involved:Since 2010, every year, the Belgian Working Group on Heart Failure, in collaboration with the Belgian Cardiologic League, join forces to organize the campaign on a national level.

Many activities have been organized, such as:

• „Open house‟ in heart failure clinics,

• Lectures to patients, their relatives and the general population about heartfailure:What about heart failure, epidemiology, symptoms, diagnosis, treatments, roleof education

• Presentation of the movie „L'insuffisance cardiaque, un nouveau parcours pour votre cœur „ or “ Hartfalen, een nieuw parcours voor uw hart” (new edition)

• Workshops about „heart failure‟ diets

• Participation of patient representatives to share their experiences

Speaker

Heart Failure Roundtable9 May 2016

Heart Failure Awareness Campaign3-16 May 2016

Heart FailureAwareness Days

• CHR Verviers• CHU Liège• CHR Liège• CHC Hermalle sous Argenteau• Cliniques Saint Luc (Bruxelles) • Clinique à St Luc Bouge• CHU Dinant Godinne• CHU Charleroi• CHU Ambroise Paré (Mons) • CH Jolimont La Louvière• CH de Wallonie Picarde (CHWAPI)

• AZ Sint-Elisabeth (Turnhout)• AZ Klina (Brasschaat)• SJK Izegem• UZ Gent• AZ Glorieux (Ronse)• ZOL GENK (Genk)• KU Leuven (Leuven)• OLVZ Aalst (Aalst)• AZ Sint-Lucas (Gent)•CM du Bois de La Pierre (Wavre)

EUROPEAN HEART FAILURE AWARENESS DAY 2016 SURVEY

Some center have participated to the survey

Roundtable on Heart Failure at the Parliament

(9th of May 2016 )

10H30 – WELCOME & INTRODUCTION

André Frédéric, Vice-President of the House of Representatives

Dr. Pierre Troisfontaines, President of the Belgian Working Group on Heart Failure and Cardiac Function

(BWGHFCF)

Dr. Freddy Van de Casseye, President of Ligue Cardiologique Belge/Belgische Cardiologische Liga

10H45 - PLENARY DISCUSSION AND DEBATE ON HEART FAILURE

Heart failure and its consequences - Dr. Walter Droogne

Heart failure in Belgium (recent data) - Prof. Olivier Gurné

Patient testimonials - Dr. Philippe Blouard

Call for action to the Belgian authorities - Dr. Pierre Troisfontaines

11H45 – CLOSING REMARKS

André Frédéric, Vice-President of the House of Representatives

Dr. Pierre Troisfontaines, President of the Belgian Working Group on Heart Failure and Cardiac Function (BWGHF)

Political Engagement

-) Roundtable on Heart Failure at the Parliament (9th of May 2016 )

• The report (22 pages) of the HF roundtable has been sent to the press and all the deputies .

• Around 34 request from deputies, members of the Health Commission , Health ministersand 10 from organization like KCE, Riziv, mutual insurance funds, ...

-) Meeting with Ms. Muriel Gerkens , president of the Health Commission on the 1st of July

-) Questions on heart failure at the Health commission by deputies to the Health Minister

You can read all the transcript (in Dutch & French) with these links :• http://www.lachambre.be/doc/CCRI/html/54/ic464x.html• http://www.lachambre.be/doc/CCRA/pdf/54/ac464.pdf

-) Opportunities for patients & the BWGHF to have an hearing at the Health commission

Speaker

Newspaper and website coverage

• 52 media coverage (39 press clippings already published)

• reaching 2.959.780 people

• 10 journalists attending the HF roundtable

Speaker

• 2 newswire agencies

• 17 daily newspapers

• 9 televisions

• 5 radios

• 2 magazines

• 14 medical press

MEDIA COVERAGE

Media Coverage

1. Bel RTL – Sylvie Degrelle

2. Le Journal du Médecin – Laurent Zanella

3. Le Journal du Médecin – Nicolas de Pape

4. Plus Magazine –Kari Van Hoorick

5. Vivio – Anne Piret

6. Medipress – Marie-Kristin de Rochelée

7. Medipress – Maurice Einhorn

8. MediQuality – Marc Van Impe

9. Multipharma – Marc-Henri Cornely

10. Medipedia – Ingrid Defrenne

1. Belga – Caroline Finné

2. Belga – Joris Van Roy

3. VTM – Sarah Jacobs

4. RTBF La Première

5. Pure FM

6. Le Soir – Frédéric Soumois

7. La Libre Belgique- Sophie Devillers

8. L‟Avenir –Anne Sandront/Caroline Desorbay

9. La Dernière Heure- Lisa Saoul

10. Metro – Jérome Rombaux

11. Gazet Van Antwerpen –Karin Van Heusden

12. Het Belang Van Limburg –Hanne de Belie

http://www.rtl.be/belrtl/video/580566.aspx

http://deredactie.be/cm/vrtnieuws/videozone/archief/prog

rammas/journaal/2.15588/2.15589/1.1018530

http://nieuws.vtm.be/binnenland/189712-dubbel-zo-veel-hartfalen-

tegen-2040

http://www.rtl.be/info/magazine/sante/l-insuffisance-cardiaque-touche-de-

nombreux-belges-et-ca-ne-va-pas-s-arranger--818664.aspx

http://www.rtc.be/emissions/focus/1470931-focus--

journees-europeennes-de-prevention-contre-

linsuffisance-cardiaque

http://www.televesdre.eu/www/verviers_l_insuf

fisance_cardiaque_au_coeur_des_preoccupati

ons_du_chr_verviers-88933-999-89.html

MEDIA COVERAGE HIGHLIGHTS

Santé Vous bien (BelRTL)

MEDIA COVERAGE HIGHLIGHTS

Materials for patients

• Different websites, DVD and booklets for the education and the help of the patients and their relatives.

Speaker

www.insuffisance-cardiaque.be

www.hart-falen.be

Twitter account: @BWGHF

Patient Engagement

Heart Failure Patients organization:

• Participation of patient representativesto share their experiences.

• Patient testimonials.

• Participation to the HF roundtableat the parliament (9th of May 2016 )

Mon Coeur Entre Parenthèses, The first HF patients association in Belgium.

www.fr.docvadis.be/moncoeur/index.html

Speaker

Belgian Heart Failure Charter

In the Charter on heart failure, we ask to the authorities a series of measures to be taken for heart failure in terms of:screening, awareness, education, multi-disciplinary approach, cardiac rehabilitation and research.

More than 12.000 signatures have been collected.

www.fr.docvadis.be/moncoeur