Blockchain: SDoH and Rare Disease Use Cases Funding, Intellectual Property, and Opportunities

Healthcare Blockchain Summit Washington, DC March 21, 2017

Blockchain: SDoH / Rare Disease Panel

After an accident in 2014, I did not know or could not remember all of the different HCPs, doctors, an groups that I spoke with about my health status. I still do not know. Can a blockchain ledger help?

Clinical Systems 25 Years Ago and Today

Incentives

• Satoshi Paid Miners

• We may have to pay patients.

Blockchain: SDoH / Rare Disease Panel

• Edward Bukstel

• Shereese Maynard, MS/MBA

• Joe Guagliardo

• Nina Kilbride

Internet of Things Telemedicine AI / Machine Learning Sharing Culture Driving Innovation – Open Data Initiatives DLT won't replace healthcare infrastructure (in the near future)

Joe Guagliardo

Technology and Blockchain Practice

@ joeg_techchain

Why the time is right …

Why now? Interoperability – Data and Technology What is consensus on the private or semi-private blockchain? Unstructured Data v Structured Data (“Smart” Data) Ownership “Smaller”, discrete problem, but what's the business model? Other Legal, Regulatory, Ethical

Challenges

Financial Inclusion Analogy Verified Transparency – Access to “Rare” Data Storage Medium v New Class of “Assets” (rewards) Population Health

The Social Impact

• Transaction costs would be reduced, attributable to disintermediation, as well as near-real time processing. This is a lean strategy- making system more efficient.

What keeps us up at night? Opportunity for Blockchain

Given low transaction volumes, this reduces business case for central systems or new edge networks for participating provider organizations

Cost Per Transaction

Population Health Data

What keeps us up at night? Blockchain Opportunities

• Limited access to data

• Available data not actionable

• Distributed, wide access to patient longitudinal health data across the distributed ledger

Interoperability and Waste

What keeps us up at night? Blockchain Opportunities

• Interoperability is a study in futility, especially if cross-state HIEs are allowed, because records are not compatible across systems

• Inconsistent permissions inhibit the health organizations and exchanges from accessing the right patient data at the right time.

• Shared data would enable near real time updates across network to all parties.

• Smart contracts create a consistent, rule-based method for accessing patient data that is permissioned to authorized health organizations

A blockchain-enabled health information exchange could be the answer to unlocking true interoperability. Blockchain-based systems have the potential to drastically reduce costs, eliminate friction and associated waste, and reduce the costs of current intermediaries. These ideas support a more patient-centered system structure.