Health Care Reform Activism: Disability Perspective (NMSS)
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Health Care Reform Activism:
Disability Perspective
(NMSS)APHA Conference
Denver CO Nov 2010
Tammy Pilisuk, MPH
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Presenter Disclosures Tammy Pilisuk, MPHThe following personal financial relationships with The following personal financial relationships with commercial interests relevant to this presentation commercial interests relevant to this presentation existed during the past 12 months:existed during the past 12 months:
No Relationships to discloseNo Relationships to disclose
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Early StartJan’08est. FAC; “HCR Principles” top priority!
Feb-April ‘08Develop principles
May ‘08Ratify principles
May ‘09Activists take to Hill
Fall ‘08Education 7 outreach
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Advocacy Tool 7 principles; chronic
disease/disability focus
Appeal to popular issues
Spur allies
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Summary of Principles 1. Accessible –regardless of pre-existing condition 2. Affordable –coverage limits for chronic conditions
discriminatory 3. Standards for specific treatments —prevent
deterioration 4. Eliminate disparities —accessible exam rooms, transport 5. Comprehensive, quality care —full spectrum benefits,
unfettered access to specialists 6. Coordinated care —reduce redundant tests, utilize EMRs,
patient inclusion in care management 7. Long-term supports & services —not covered in private
insurance
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Strategic Outreach Presented to Hill leaders, coalitions “First family” connection
Harold PollackPosted: October 2, 2008 10:35 AM Health Reform When your Life Depends on it: Seven Essential Principles from the Multiple Sclerosis Society…
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Coalitions Key Consortium of Citizens with Disabilities More groups = 1 voice on core issues
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Organized Grassroots
Over 30 people say it to the camera!
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Educate Members National Call with
Chapters Introduce to local
boards Action alerts to GRCs Be an MS Activist:
Sign up to receive news and updates
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2009 PPC centerpiece
2009: HCR a top issue2010: mixed message
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Unexpected Consequences E-Alert to support
House bill
Say what???
Political vs. traditional issue
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Post ACA passage
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Update on Health Care Reform
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Frequently Asked Questions About Health Care Reform
The following questions and answers represent the most common areas of interest expressed to the Society by people living with MS about the Patient Protection and Affordable Care Act since it was enacted in March 2010. The law is very complex and was designed to be implemented over a number of years…
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Leveraging & Communicating Health Care Reform for the MS Community
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Target Info to MS Community Regional teleconferences E-blasts on ACA updates “Drop-in” newsletter articles Collaborate w/ Families USA, othersCALENDAR ITEM: Heath Care Reform: What it Means for People Living with MS Oct 28th, 2010Marriott - Oakland City Center
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ACA Implementation Actions Consumer rep on Review proposed regs
lifetime caps & phase out annual benefit caps Med loss ratios: chronic care mngmt = proven only!
…External review of rescissions and other non-medical coverage determinations are necessary to ensure that health insurance companies are in full compliance with the law and to protect consumers….
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Ongoing InvolvementChapters & Activists:
Shift to states, Coalition involvement
Shape Health Ins. Exchanges
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Ongoing Involvement (Cont’d)NMSS Leadership:
HCR top strategic goal
CLASS ACT & Community First Choices Act regs (2012 phase-in)
Pursue other legislation
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Lessons Learned “Principles” a good organizing tool Coalitions essential Compromises inevitable Battleground: inform constituency, work
within existing framework, AND advocate for more