HANOI HANOI INDEPENDENT INDEPENDENT LIVING CENTERLIVING CENTER

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Hanoi Hanoi

Independent Independent Living Center of Living Center of

People with People with DisabilitiesDisabilities

42 Kim Ma Thuong 42 Kim Ma Thuong st.,st.,

Hanoi, Hanoi, VietnamVietnam

ttsongdoclaphn@gmail.com

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http:/http:/www.ttsongdoclaphn.vwww.ttsongdoclaphn.vnn

Public assistance system Public assistance system in Vietnamin Vietnam

• Viet Nam does not have Public Viet Nam does not have Public Personal Assistance System for Personal Assistance System for people with severe disabilities living people with severe disabilities living in community, just 156 institutions in community, just 156 institutions nationwide. nationwide.

• Population of Persons with severe Population of Persons with severe disabilities: 574,000 (0.7% national disabilities: 574,000 (0.7% national population aged over 5 and 4.7% population aged over 5 and 4.7% PWD population).PWD population).

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Public Assistance System Public Assistance System

in Vietnamin Vietnam• At the institutions, one assistant may take care At the institutions, one assistant may take care

ofof– 3-4 children with disabilities aged under 6, or3-4 children with disabilities aged under 6, or– 4-5 children with disabilities aged from 6 to 16, 4-5 children with disabilities aged from 6 to 16,

oror– 8-10 adults with severe disabilities who still 8-10 adults with severe disabilities who still

can serve themselves, orcan serve themselves, or– 3-4 adults with severe disabilities who can not 3-4 adults with severe disabilities who can not

serve themselves .serve themselves . ((According to Decree 68/2008According to Decree 68/2008/NĐ-CP/NĐ-CP issued 30 May

2008)

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Assistant Service System Assistant Service System at Hanoi ILCat Hanoi ILC

• Presently Hanoi ILC is the only one Presently Hanoi ILC is the only one organization of this kind to provide organization of this kind to provide Personal Assistant (PA) service to Personal Assistant (PA) service to PWD living in communityPWD living in community

• One PWD may be provided with one One PWD may be provided with one or more PAs per day , according to or more PAs per day , according to the user’s needs and the availability the user’s needs and the availability of the PAs, identified by 3 PA of the PAs, identified by 3 PA Coordinators from the CenterCoordinators from the Center

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BasisBasis

International International Policy and Legislative Policy and Legislative Frameworks:Frameworks:

UN Convention on the Rights of Persons with UN Convention on the Rights of Persons with DisabilitiesDisabilities

UN Standard Rules on the Equalization of UN Standard Rules on the Equalization of Opportunities for Persons with DisabilitiesOpportunities for Persons with Disabilities

Millennium Development GoalsMillennium Development GoalsRegional Commitments/Frameworks for action:Regional Commitments/Frameworks for action:BIWAKO +5BIWAKO +5BIWAKO Millennium Framework for ActionBIWAKO Millennium Framework for Action

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BasisBasis

National legislations:National legislations:Ordinance for People with Ordinance for People with

Disabilities 1998Disabilities 1998Vietnam Disability Law 2011Vietnam Disability Law 2011Building Code for Accessibility in Building Code for Accessibility in

Building Environment for People Building Environment for People with Disabilities 2002with Disabilities 2002

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StrategyStrategy• Doing advocacy by working in cooperation Doing advocacy by working in cooperation

with the Media, especially with different with the Media, especially with different television channelstelevision channels

• Cooperation with GOs, NGOs, the Youth Cooperation with GOs, NGOs, the Youth Union universities and DPOsUnion universities and DPOs

• Lobbying the Government for support to IL Lobbying the Government for support to IL model and IL centersmodel and IL centers

• Advertising for the ILC’s services by Advertising for the ILC’s services by networking and websitenetworking and website

• Capacity building and empowerment to PWDsCapacity building and empowerment to PWDs

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Hanoi ILC activities Hanoi ILC activities

1. Peer counseling1. Peer counseling

2. Program of training on IL skills (income 2. Program of training on IL skills (income planning, moving, cooking, outing, planning, moving, cooking, outing, accessibility, organizing events...)accessibility, organizing events...)

3. Capacity building for PWDs (teamwork, 3. Capacity building for PWDs (teamwork, basic leadership, advocacy)basic leadership, advocacy)

4. Training and providing personal assistants 4. Training and providing personal assistants (types of disability, communication, (types of disability, communication, accessibility, specific assistance, time accessibility, specific assistance, time management, conflicts management)management, conflicts management)

Hanoi ILC activities Hanoi ILC activities

• 5. Dissemination of IL philosophy and ILC in 5. Dissemination of IL philosophy and ILC in three other main cities in Vietnam: Haiphong, three other main cities in Vietnam: Haiphong, Danang, Cantho by working with local Danang, Cantho by working with local disabled people, DPOs and, through them, disabled people, DPOs and, through them, with local governments. IL seminars and Peer with local governments. IL seminars and Peer Councelling courses have been organized in Councelling courses have been organized in those three cities.those three cities.

• 6. Other supports (for instance: providing 6. Other supports (for instance: providing information on Vietnamese welfare system, information on Vietnamese welfare system, how to get the house modified for accessibility, how to get the house modified for accessibility, transportation with lift van to PWD…)transportation with lift van to PWD…)

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What has been done?What has been done?

• IL Seminar in HanoiIL Seminar in Hanoi

with the with the

attendance attendance

of DPOs, MOLISA, of DPOs, MOLISA,

other ministries,other ministries,

Government Government

agencies and agencies and

local authoritieslocal authorities

IL Seminar in Hai PhongIL Seminar in Hai Phong

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Peer counseling Peer counseling trainingstrainings

Purposes:•Rebuild self-confidence•Build or rebuild social relations•Help with integration into community

What has been done?What has been done?

• Helped and supported outdoor Helped and supported outdoor activities to the participants of the PC activities to the participants of the PC trainings (shopping and going to the trainings (shopping and going to the parks and on picnic)parks and on picnic)

• Elementary and advanced IL Skills Elementary and advanced IL Skills Trainings to PWD (communication Trainings to PWD (communication skills, moving in the house, cooking, skills, moving in the house, cooking, traveling in wheelchair, planning, traveling in wheelchair, planning, group activities, team work, advocacy)group activities, team work, advocacy)

Going on PicnicGoing on Picnic

IL ProgramIL ProgramLearning experiences

Learning how to travelLearning how to travel

What has been done?What has been done?

• Working with the media to be on TV Working with the media to be on TV talks with supportive speech of talks with supportive speech of Government officersGovernment officers

• Information about Hanoi ILC on most Information about Hanoi ILC on most of the TV channelsof the TV channels

• Using the lift van as a travel service Using the lift van as a travel service for severely disabled personsfor severely disabled persons

• Articles about Hanoi ILC in different Articles about Hanoi ILC in different newspapers and magazinesnewspapers and magazines

Personal Assistant (PA) Personal Assistant (PA) ServiceService

• Provide assistance to people with severe disabilities Provide assistance to people with severe disabilities in everyday life so that they can take their rights to in everyday life so that they can take their rights to full and equal participation in the social activities full and equal participation in the social activities and demonstrate their abilitiesand demonstrate their abilities

• Create a model of assistive service to meet the needs Create a model of assistive service to meet the needs of PWDs, in the hope that the Government will of PWDs, in the hope that the Government will support and provide budget for that in the futuresupport and provide budget for that in the future

• Build cordial and cooperative relation between PWDs Build cordial and cooperative relation between PWDs and non-disabled personsand non-disabled persons

• Making ILC a proof of ability of PWDs to manage and Making ILC a proof of ability of PWDs to manage and provide the service system for their peers in provide the service system for their peers in community.community.

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PA trainingsPA trainings

How to carry PWD How to carry PWD How to put clothes How to put clothes on to PWD on to PWD

PA learning assistive skillsPA learning assistive skills

Companions to PWDCompanions to PWD

Outing with PWDsOuting with PWDs

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Offering certificatesOffering certificates

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Encouraging the best PAsEncouraging the best PAs

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Happy birthday!

PAs and PWDs – always together

IL and ILC ModelIL and ILC ModelIL Dissemination IL Dissemination

ProgramProgram• IL seminars have been organized in Hai IL seminars have been organized in Hai

Phong, Da Nang, Can ThoPhong, Da Nang, Can Tho• An IL Group has been formed in each An IL Group has been formed in each

city and this group has raised the city and this group has raised the awareness and promoted the action of awareness and promoted the action of the local governmentthe local government

• The Group is supposed to be the core The Group is supposed to be the core for the leaders and prepare to establish for the leaders and prepare to establish an ILC in their cities in the future.an ILC in their cities in the future.

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ILC developmentILC development

• In each of the IL groups in the three In each of the IL groups in the three cities is supposed to set up a service cities is supposed to set up a service model of a person and a PAmodel of a person and a PA

• Peer-councelling trainings and Peer-councelling trainings and activities have been doneactivities have been done

• Elementary IL skill trainings Elementary IL skill trainings • Elementary PA trainingsElementary PA trainings

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OutcomesOutcomes

• PWD have become confident and can PWD have become confident and can demonstrate their abilities, even in the demonstrate their abilities, even in the cities where we just have IL groupscities where we just have IL groups

• With help of the PA service, PWDs can With help of the PA service, PWDs can go to school to workgo to school to work

• PWDs have done advocacy by writing PWDs have done advocacy by writing articles in newspapers with help from articles in newspapers with help from PAPA

• A newsletter has been createdA newsletter has been created

OutcomesOutcomes

• Personal assistant has become a job for Personal assistant has become a job for young people, promoting the social young people, promoting the social assistance for PWDassistance for PWD

• IL has been recognized by the Government IL has been recognized by the Government as a good model run by PWD to provide as a good model run by PWD to provide assistive services to PWD, and with the assistive services to PWD, and with the impact of Hanoi ILC, IL has been impact of Hanoi ILC, IL has been introduced into the Disability Law 2011introduced into the Disability Law 2011

• Number of service users: 57 – 65Number of service users: 57 – 65

Number of PA: 60 - 85Number of PA: 60 - 85

StrengthStrength

• Support from MOLISA and NCCD in all Support from MOLISA and NCCD in all the establishment processthe establishment process

• Administrative assistance from DP HanoiAdministrative assistance from DP Hanoi• Good and well-trained staff Good and well-trained staff • Good coordinationGood coordination• PAs are mostly students and university PAs are mostly students and university

graduates → good awareness on the graduates → good awareness on the rights of PWD and good attitude to the rights of PWD and good attitude to the job and the service usersjob and the service users

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Changes in life of the PWDsChanges in life of the PWDs

Some case-studies:Some case-studies:Mr. Văn Đức Hòa used to live with Mr. Văn Đức Hòa used to live with

his 83-year-old mother, who took his 83-year-old mother, who took care of him. He could hardly find care of him. He could hardly find chances to be taken out. His life chances to be taken out. His life has changed since he had PAs. has changed since he had PAs. He could go on a picnic without He could go on a picnic without having a relative with him. He’s having a relative with him. He’s now the editor of Hanoi ILC now the editor of Hanoi ILC members’ newsletter named members’ newsletter named Independent Living. After his Independent Living. After his mother passed-away, he started mother passed-away, he started using 20-hour service.using 20-hour service.

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With their PAs, the With their PAs, the brothers Tuấn and brothers Tuấn and

Tú have taken part Tú have taken part

in social activities, in social activities, developed their developed their

work of work of

collaborator with collaborator with newspapers and newspapers and

become active and become active and dynamic in their dynamic in their daily lifedaily life

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• The PA The PA teaches teaches the PWD the PWD and and takes takes him to him to schoolschool

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Changes in policies of Changes in policies of the Governmentthe Government

• The Disability Law was approved by The Disability Law was approved by the National Assembly, in which was the National Assembly, in which was stated the right to independent stated the right to independent living of PWDliving of PWD

• The Government has recognized that The Government has recognized that ILC is one of the organization to ILC is one of the organization to provide assistance to PWDprovide assistance to PWD

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Raising awareness and Raising awareness and cooperationcooperation

• Worked with MOLISA and trying to Worked with MOLISA and trying to organize seminars and workshops with organize seminars and workshops with attendance of Government officers and attendance of Government officers and local governmentslocal governments

• Worked with DPOs to spread out the IL Worked with DPOs to spread out the IL philosophy and find promising leaders philosophy and find promising leaders for IL movement and ILC in the futurefor IL movement and ILC in the future

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Raising awareness and Raising awareness and cooperationcooperation

• Social Work Department of the Social Work Department of the universities started working with universities started working with Hanoi ILC and PA job has been Hanoi ILC and PA job has been recommended to become a part of recommended to become a part of social worker’s jobsocial worker’s job

• Cooperation with INGOs has been Cooperation with INGOs has been strengthened and they have brought strengthened and they have brought some contribution to the IL activitiessome contribution to the IL activities

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Expectations for the Expectations for the sustainabilitysustainability

• PAs will be more and more professionalPAs will be more and more professional• More PWDs will have PAs, benefits by the service More PWDs will have PAs, benefits by the service

and their lives will change; they can take their and their lives will change; they can take their rights to education and employment, and can live rights to education and employment, and can live independentlyindependently

• The PA service of the Center will be supported and The PA service of the Center will be supported and budgeted partly by the Governmentbudgeted partly by the Government

• The PA job will be recognized by the society as an The PA job will be recognized by the society as an authentic jobauthentic job

• More ILC will be established in Vietnam to help More ILC will be established in Vietnam to help PWD live independently and integrate into the PWD live independently and integrate into the societysociety

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Thank youThank you

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