Patient perspective: Is the promise to involve patients being fulfilled?
Hammersmith_The Promise of Patient Engagement_ Bionanotechnology Seminar_01292013
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January 29, 2013
Transcript of Hammersmith_The Promise of Patient Engagement_ Bionanotechnology Seminar_01292013
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BIOLOGICAL SAMPLES
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DATA
Decision-makingFundingPatient access to data – Electronic Health RecordsPatient-curated data
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CLINICAL TRIALS
Data collectionImproved standard of careEvidence-based outcomes
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ADVOCACY
Funding – Grants, LegislativeResearch Questions – YSC Research Think TankRecruitmentMotivationCollaboration
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COMMUNITY OUTREACH
Patient ExperiencePatient CollaborationEducation (Bench to Bedside)Patient Engagement (Social Media?)
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Seeking What Matters: Patients as Research Partners
http://adisonline.com/thepatient/Fulltext/2012/05020/Seeking_What_Matters__Patients_as_Research.1.aspx