“Finding the Perfect Balance” - c.ymcdn.com · due to hyperemesis gravidarum while pregnant....

Special thanks to Hospira for underwriting this

conference program book

“Finding the Perfect Balance”

24th Annual Oley Consumer/Clinician Conference

June 29-July 2, 2009 Trade Winds Island Resorts St. Petersburg, Florida

Conference Program

214 Hun MemorialAlbany Medical Center, MC-28

Albany, NY 12208-3478(800) 776-OLEY, (518) 262-5079, FAX (518) 262-5528

[email protected]

We strongly advise that you discuss any

medical information received from the Oley

Foundation through the newsletter, conference

presentations, informal discussions, etc. with your

physician before making any changes in your

health care.

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WelcomeDear Friends:

Welcome to sunny central Florida and to the beautiful beaches of Pinellas County. We want your stay at the Trade Winds Island Resorts to be safe, relaxing, fun, and educational! Here are some tips to make your trip to our “back yard” an enjoyable experience:

Florida Weather: You may have heard of those famous “4 o’clock” showers that often occur at Florida’s amusement parks. Here, at the gulf beach, the showers can occur at any time of day, and though usually short-lived, they can be intense with lightening and driving rain. Having the highest annual frequency of cloud-to-ground lightening strikes, the Tampa Bay area has been called the Lightening Capital of the country, and lightening strikes can occur without any rain in the immediate vicinity. At the first sign of storm clouds or thunder, please immediately seek shelter away from the beach, trees, poles, and metal objects.

Florida Sun: The sun’s rays are strongest between 10:00 a.m. and 4:00 p.m., so fair-skinned people may want to minimize exposure during those hours. Use sunscreen effectively. Apply sunscreen 30 minutes before you go out into the sun, wear an SPF of 15 or higher (30 or higher for children), and reapply it frequently. Don’t forget your lips, ears, and, if you have thin hair, your scalp! Remember that some medications can increase your sensitivity to the sun, so it may be a good idea to seek professional advice about your medications. A large-brimmed hat, dark sunglasses with UV protection, and a bottle of water are also a good idea.

Please check the welcome map that you received at check-in to get familiar with this “Green Certified,” non-smoking resort. The nearest beachfront restrooms are near pool area 5, and guest laundry areas are available in the Jacaranda and Breckenridge buildings. Just one mile south of the resort is the Dolphin Village shopping center, where you can find a grocery store, pharmacy, bank, discount store, and restaurants. Please visit the Concierge Desk in the main lobby for information on other local points of interest.

We’d also like to mention that the Oley conference speakers join us because they truly are dedicated to improving your understating of these complicated therapies, and this conference would not be possible without the financial support of our exhibitors. Please visit with them and thank them for their continued support of the Oley Foundation.

Most of all, visit with old friends, make new friends and enjoy the fun!

Conference CoChairs:

June Bodden, Oley Regional Coordinator

Meg Cass-Garcia, RN, MSN, CNSC, Oley Regional Health Care Advisor

Marianne Duda, MS, RD, LD, CNSD

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Oley Trustees

Rick Davis, PresidentFernandina Beach, FL

Michael Medwar, SecretaryCape Cod TimesHyannis, MA

Jane Balint, MDNationwide Children’s HospitalColumbus, OH

Ann DeBarbieri, HPEN ConsumerGansevoort, NY

Jane Golden, HPEN Consumer Watertown, CT

Kishore Iyer, MBBS, FRCS, FACSMount Sinai Medical CenterNew York, NY

Jim Lacy, RN, BSN, CRNINavilyst Medical, Inc.Draper, UT

Laura Matarese, PhD, RD, LDN, FADA, CNSDUniversity of Pittsburgh Medical CenterPittsburgh, PA

Mary Patnode, MS Ed, LPMaple Grove, MN

Gail Sansivero, MS, ANPCommunity Care PhysiciansAlbany, NY

Doug Seidner, MD, FACG, CNSPVanderbilt University Medical CtrNashville, TN

Rex Speerhas, RPh, CDE, BCNSPCleveland ClinicCleveland, OH

Cheryl Thompson, PhD, RD, CNSDMD Informatics, LLCSalt Lake City, UT

Marion Winkler, PhD, RD, LDN, CNSDRhode Island Hospital Providence, RI

Committee MembersLyn Howard, MB, FRCP, FACPOley Foundation Medical Director, Co-FounderAlbany Medical CenterAlbany, NY

Darlene Kelly, MD, PhD, FACPOley Foundation Research Committee ChairMayo Clinic RochesterRochester, MN

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Oley StaffJoan BishopExecutive Director [email protected] has been with Oley for 25 years! As Executive Director, Joan handles the multi-tude of tasks it takes to keep Oley running and growing, including budget planning, building relationships, fundraising, board development, and coordinating the annual conference. She is dedicated to fulfilling the Foundation’s mission and welcomes your ideas, comments, and criticisms.

Roslyn schEiB DahlDirector, communications & Development [email protected] has served Oley members for fourteen years. She is responsible for producing Oley publications and managing Oley’s Web page and information clearinghouse. She works closely with other staff members and volunteers to raise funds for the Foundation and to promote its services to an ever-growing audience. Call on her to research your questions or to share ideas for Oley publications or promotions.

cathy haRRington, Maadministrative assistant [email protected] has been with Oley since 1998, and before that was the Secretary for Albany Medical Center’s Division of Clinical Nutrition. She has experience in patient care, extensive knowledge of the homePEN arena, and a strong desire to support Foundation activities. Cathy manages the member database, answers most of your calls, and meets the needs of the Foundation office. She is the glue that holds us together!

lisa MEtzgEREditor, LifelineLetter [email protected] has been the Editor of the LifelineLetter since 2007. She has more than twenty years experience in writing and editing, and now has nine terrific issues of the newsletter behind her. Lisa has been a member of Oley for many years following her two stints on HPN due to hyperemesis gravidarum while pregnant. She is eager to hear your suggestions for articles in the LifelineLetter.

KatE swEnsEnoutreach coordinator [email protected] has been involved in outreach work at the Foundation since 2006. Since she began graduate studies last fall, she has cut back her hours, but continues to coordinate Oley exhibits at non-Oley conferences. These efforts help raise clinician and other professionals' awareness of Oley programs. She has firsthand experience with HPN as one of her family members has been HPN-dependent for twenty years. She looks forward to hearing your input and ideas.

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General Information

Registration and Conference InformationInformation about all aspects of the conference is available at the registration desk. The desk will be staffed Monday from 6:00 p.m. to 7:00 p.m., Tuesday from 8:00 a.m. to 4:30 p.m., and Wednesday from 9:15 a.m. to 4:30 p.m. All conference activities will be held at the Trade Winds. A map of the meeting rooms is on the back cover of this program.

Please don’t leave needles laying around in your hotel room. There will be a sharps container at the registration desk, if you didn't bring your own. Syringes without needles or blood can be disposed of in a non-see-through bag in the regular trash.

Medical Support/Emergency ServicesFor an emergency: Contact your primary care physician (if time allows) to discuss the proper treatment plan prior to heading off to the medical center. The following hospitals have been alerted as to the increased potential for a GI and/or home nutrition support incident and are confident and prepared to meet your needs:

• Children: All Children’s Hospital Emergency Center, 801 Sixth Street South

• Adults: Bayfront Medical Center, 701 Sixth Street South

telephonic support/backup for (emergency) nursing and pharmacy infusion during the conference has been graciously offered by Coram Specialty Infusion Services. Call the Tampa Coram branch (800) 683-6897 (24 hour availability) and identify yourself as an Oley Conference participant. They will need contact information for your physician in order to obtain orders. They can dispense prescribed fluids, additives, and supplies with a physician’s order. They can also help troubleshoot a consumer’s pump, provided it is one they are familiar with.

Child CareSponsored by Nutrishare, complimentary child care is available in the Jasmine room, Tuesday from 8:30 a.m. to noon and 2:00 p.m. to 4:30 p.m., and Wednesday from 9:15 a.m. to noon and 2:00 p.m. to 4:30 p.m. Parents are responsible for their children during the lunch break. Signed permission statements are required and are available at the registration desk. Please label your child’s personal items (strollers, sippy cups, backpacks, etc.) that you will be leaving in child care.

Tuesday morning: Children who have been nominated for awards should attend the Awards Ceremony. Each child will be recognized and have his or her picture taken.

Welcome ReceptionJoin us Monday at 7:00 p.m. in the Tarpon/Sawyer Keys rooms. It’s an excellent op-portunity to meet Oley Trustees and staff, and other consumers.

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General Info. (con’t)

Conference OrientationA must attend for first-time Oley Conference goers. Meet Oley staff Tuesday at 8:30 a.m. in the Bird/Indian Keys rooms to learn how to make the most of your first conference experience.

Oley Awards PresentationJoin us in celebrating some outstanding individuals Tuesday morning at 9:00 a.m in Bird/Indian Keys rooms. To read about the winners, see pages 11 to 17. Children who have been nominated for an award should attend the presentation with their parents.

Main SessionsTuesday: Finding the Best BalanceEnjoy enlightening presentations coordinated to enhance your understanding of how others reach their goals; insight regarding intestinal rehabilitation; knowledge of bacterial overgrowth; awareness of the importance of food in your life.

Wednesday: Riding the WavesThis series of presentations is coordinated to assist you in developing a “life preserver” for the sea of challenges you face. Join us to explore and “surf” through the GI tract and absorption; “hang ten” with safe practices for sustaining yourself on HPN; learn about staying afloat with oral rehydration formulas; catch the latest wave of information about Omegaven.

Exhibit HallCome learn more about parenteral and enteral products and services Tuesday and Wednes-day in the Pavilion. The Grand Opening is Tuesday at noon. Wednesday is Raffle Day. Visit the exhibits and qualify to win raffle prizes. You must be present in the hall to win! Complimentary lunch will be available both days.

Youth ActivitySponsored by Nutrishare, the youth activities are designed for kids ages 7 to 15. Signed permission statements are required and available at the registration desk. If your child tires easily or has limited mobility, please notify Oley staff at your earliest convenience, so we can plan accordingly.

Meet in the Jasmine room at 2:00 p.m. Parents should return promptly at 4:30 p.m. to pick up their children. Children should wear sunscreen as some of the activities may be held outdoors.

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Your Choice! Breakout Sessions or WorkshopsAfternoons it’s your choice: join in the workshop in the Indian Key room, or participate in the small group discussion breakout sessions (see pages 8 to 10 for breakout session topics).

Co-sponsored by the Rice Foundation, Tuesday’s Tube Feeding Workshop features a panel of experts who will speak on enteral access for the complicated patient, managing tube feeding complications, blenderizing the diet, and coping. Bring your questions!

Co-sponsored by NutriThrive, Wednesday’s Pediatric Workshop will cover issues specific to pediatric consumers and their parents: IHPs, 504 plans, and IEPs; changes in formulas as your child grows; and transitioning from pediatric to adult healthcare. This is the place to find answers to your questions.

Oley Benefit Auction — An Entertainment Extravaganza! The fun begins Tuesday at 7:30 p.m. when the bidding opens in the Sawyer Key room. Drop off donated items at the registration desk before Tuesday afternoon. Visa, Mas-terCard, and American Express will be accepted.

Beach PartyThe picnic is being held Wednesday evening, 6:00 to 10:00 p.m. on the South Lawn section of the Trade Winds Resort’s beach. (If we have inclement weather we’ll gather in the Bird/Indian Keys rooms.) We look forward to games, lots of fun, and just relaxing with everyone. Dinner will be served. Arrangements have been made with the Trade Winds to have the three-story High Tide Slide open from 6:00-8:00 p.m. for Oley Beach Party goers. Please reserve a wrist band at the Oley Registration/Information Desk before 4:00 p.m. on Wednesday.

Note: Consumers should pay careful attention to their hydration status at all times, but especially during the picnic because of the heat.

Jammin’ Jammies!Sponsored by Abbott Nutrition–PediaSure, a supervised evening of fun for Oley kids and siblings will be held Wednesday from 8 to 10:00 p.m. (ages 7–20+). Sign-up and permission slips are required, and HPEN youth who need to be infusing must come already hooked up. Meet Oley staff member, Roslyn Dahl, on the beach in front of the Oley Beach Party at 7:45 p.m.

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Oley Walk-A-ThonJoin us for a gentle walk along the paths of the resort to the beautiful beach at the Trade Winds Thursday morning. We will begin gathering in the hotel lobby at 8:30 a.m. At 9:00 a.m. sharp we will walk to the beach and follow the water’s edge for twenty minutes, then turn around and return to the hotel for the Town Meeting. Please note: the walk is almost all on sand, which may not be conducive to strollers, and does not allow for vehicle pickup. Walkers who tire easily should monitor their energy and feel free to return earlier to the hotel.

Pledge sheets are available anytime at the Oley Registration Desk. We encourage you to turn in your forms and pledges on Wednesday (all day) at the registration desk. You may also register for the walk Thursday from 8:00 a.m. to 8:40 a.m. in the lobby. T-shirts are available on a first-come, first-serve basis, so if you are particular about your size, be sure to register early on Wednesday.

Town MeetingJoin us for a complimentary breakfast Thursday morning in the Long Key room, im-mediately following the Walk-A-Thon, and discuss the future of the Oley Foundation. We’ll brainstorm ideas with Oley staff, trustees, and supporters. The recipient of the Kyle R. Noble Scholarship will also be announced.

Taking a Dip in the Pool?You are welcome to use any of the pools at

the Trade Winds resort, but if you’d like a better chance of running into other Oley members, try the Beachfront Terrace

Pool. We’ve designated that pool as a gathering spot during free time to help

with networking. Have fun!

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8:00 a.m. — 4:30 p.m.Registration/InformationLobby Complimentary continental breakfast available.

8:30 a.m. — 9:00 a.m.Orientation for First-Time Attendees Indian/Bird Keys Rooms

9:00 a.m. — 9:45 a.m.Welcome/Awards Ceremony Indian/Bird Keys Rooms

9:45 a.m. — 12:00 p.m.Main Session I: Finding the Best BalanceIndian/Bird Keys RoomsModerator: Darlene Kelly, MD, PhDWhat Is My Perfect Balance? Don YoungInsight Regarding Intestinal RehabilitationKishore Iyer, MBBS, FRCS, FACSTackling Bacterial OvergrowthStephen McClave, MDThe Importance of Food in Your LifeMarion Winkler, PhD, RD, LDN, CNSC

2:00 p.m. — 5:00 p.m.Regional Coordinator WorkshopBanyan Room

6:00 p.m. — 7:00 p.m.Early Registration/InformationLobby

7:00 p.m. — 9:00 p.m.Welcome ReceptionTarpon/Sawyer Keys Room

Monday

Tuesday

12:00 p.m. — 2:00 p.m. Grand Opening of the Exhibit HallThe PavilionComplimentary lunch available.

2:00 p.m. — 4:30 p.m.Youth ActivitySee page 6 for details.

2:15 p.m. — 4:30 p.m. Tube Feeding WorkshopIndian Key RoomModerator: Meg Cass-Garcia, RN, MSN, CNSC

Enteral Access for the Complicated PatientMark DeLegge, MD

Managing Enteral Complications Stephen McClave, MD

Blenderizing the Diet Lesley Marino

Coping Cheryl Thompson, PhD, RD, CNSD

2:15 p.m. — 3:15 p.m. 3:30 p.m. — 4:30 p.m.Breakout Sessions I & II(choose two)• Input and OutputPavilion Rex Speerhas, RPh, CDE, BCNSP

• Intestinal Transplantation Banyan Room Kishore Iyer, MBBS, FRCS, FACS

• Catheter Care/Preventing SepsisChart Room Reid Nishakawa, PharmD, BCNSP, FCSHP

• If, When, and How to Transition from HPN to HENCitrus Room Laura Matarese, PhD, RD, LDN, FADA, CNSD

Program

Program (con’t)

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• Avoiding HPN Associated Complications: Liver, Renal, Bone Spotted Curlew Room Doug Seidner, MD, FACG, CNSP

• Gastroparesis/DysmotilityBoard Room Jay Mamel, MD

• Hot Topics in HPNBird Key Room Moderator: Ezra Steiger, MD

*Reduction in CRBSI with Weekly Dosing of 100% Ethanol Lock Therapy in Chronic HPN Marianne Opilla, RN, BSN, CNSC

*Taurolidine vs Heparin Lock to Prevent CRBSI Cindy van Eldijk, RN; Renate Vissers, RN

*Relationships among HPN, Food and Eating, and Quality of Life Marion Winkler, PhD, RD, LDN, CNSC

• Making the Most of Your MD Visit PavilionDeb Pfister, MS, RD, CNSD; Abby Brogan

• Coping Session I: For consumers/patients only• Coping Session II: For caregivers/significant others onlyCompass Room Faye Clements, RN, BS; Donna Yadrich, MPA, CCRP

• Self-Monitorsing Your CarePavilion Marcia Boatwright, RN, CRNI; Kristyn Maixner, RN 7:30 p.m. — 9:00 p.m.Oley Benefit AuctionSawyer Key Room

9:15 a.m. — 4:30 p.m.Registration/InformationLobby Complimentary continental breakfast available.

9:30 a.m. — 9:45 a.m.In Loving Memory Indian/Bird Keys RoomsA tribute to Oley members and friends who have died in the past year.

9:45 a.m. — 12:00 p.m.Main Session II: Riding the WavesIndian/Bird Keys Rooms Moderator: Darlene Kelly, MD, PhD

Explore and Surf through the GI Tract and Absorption Don George, MD

“Hang Ten” with Safe HPN PracticesVanessa Kumpf, PharmD, BCNSP

Staying Afloat with Oral Rehydration FormulasEzra Steiger, MD

Catch the Latest Wave - OmegavenKathleen Gura, PharmD, BCNSP, FASHP

12:00 p.m. — 2:00 p.m. Raffle Day in the Exhibit Hall The PavilionVisit exhibits to enter contests. Must be present to win. Complimentary lunch will be available.

2:00 p.m. — 4:30 p.m.Youth ActivityMeet in the Jasmine Room.

2:15 p.m. — 4:30 p.m. Pediatric WorkshopIndian Key RoomModerator: TBAIssues Specific to Pediatric PatientsDon George, MD

Wednesday

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Program (con’t)

IHP’, 504 Plans, IEPs: What’s the Difference?Donna Noble

Changes in Formulas as Your Child GrowsSarah Peseski, MPH, RD

Transitioning from Pediatric to Adult ProgramsKishore Iyer, MBBS, FRCS, FACS

2:15 p.m. — 3:15 p.m. 3:30 p.m. — 4:30 p.m. Breakout Sessions III & IV(Choose two)• Trace Elements: What Are We Learning?Banyan Room Darlene Kelly, MD, PhD

• Emerging Therapies for Intestinal FailureCitrus Room Doug Seidner, MD, FACG, CNSP *Session I only

• Dating IssuesBird Room Meg Gravenstein/Bettemarie Bond

• Exploring Complementary MedicineCompass Room Marsha Boatwright, RN, CRNI; Kristyn Maix-ner, RN; Liz Tucker

• Food Shopping to Optimize Outcome, Session I• Preparing Food to Optimize Outcome, Session IIBird Key Room Carol Ireton-Jones, PhD, RD, LD, CNSC, FACN; Laura Matarese, PhD, RD, LDN, FADA, CNSD; Marion Winkler, PhD, RD, LDN, CNSC; Cheryl Thompson, PhD, RD, CNSD

Thursday

9:00 a.m. – 10:00 a.m. Walk-A-ThonMeet in Lobby/Walk along Beach See page 7 for details.

10:00 a.m. – 12:00 p.m. Town MeetingLong Key RoomSee page 7 for details.

• Understanding Your Lab ValuesChart Room Steven Plogstead, PharmD

• Accessing Medicare, SSI, etcSpotted Curlew Jody Strain

6:00 p.m. — 10:00 p.m. Beach PartySouth Lawn Section of Trade Winds Beach/(Rain location: Bird/Indian Keys Rooms)See page 7 for details.

8:00 p.m. — 10:00 p.m. Jammin’ JammiesMeet on Beach/Activities in HotelSee page 7 for details.

Welcome Oley’s Grandson!We expect to have Christopher Highbrown with

us for many of the conference activities. Christopher is the grandson of Clarence “Oley” Oldenburg, our

co-founder. Please give him a warm welcome.

The Annual Oley Awards Program recognizes homePEN consumers and family mem-bers who exhibit courage and perseverance in overcoming the adversity of illness and are generous in the effort of helping others. It also recognizes an outstanding clinician volunteer, and HPN researchers. Winners are chosen from a pool of nominees by a panel of previous award winners, Oley board and committee members, and Oley staff (when there is a tie). We rely on YOU to nominate worthy candidates. There are many individuals who deserve this recognition. Please consider nominating these special people for next year’s program. Nomination forms are available in the January/February issue of the LifelineLetter, and online at www.oley.org (between February and April). Join Oley in celebrating their outstanding efforts Tuesday, June 30, at 9:00 a.m. (imme-diately following the Welcome).

Awards To Be Presented This Year:

LifelineLetter Annual AwardIn Honor of Nutrishare Inc., Oley Platinum Partner

Oley Foundation Child of the Year In Honor of NutriThrive, Oley Golden Medallion Partner

Celebration of Life AwardIn Honor of Coram Specialty Infusion Services,

Oley Golden Medallion Partner

Lenore Heaphey Grassroots Education AwardSponsored by Kimberly-Clark, Oley Blue Ribbon Partner

Nan Couts Award for the Ultimate VolunteerCoordinated by Judy Peterson

Nutrishare HomePN Research PrizeSponsored by Nutrishare Inc., Oley Platinum Partner

2009 Awards Program

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Awards Program (con’t)

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LifelineLetter Annual AwardIn Honor of Nutrishare, Inc., Oley Platinum Partner

Mariah Abercrombie • Henderson, NV

Mariah was diagnosed with pseudo-obstruction syndrome when she was only three years old, and has had a central line, a G-tube, and an ileostomy most of her life. Today, despite ongoing health issues, setbacks, and a dependence on home parenteral nutrition (homePN), Mariah is a senior in college who hopes to go on to get a master’s degree. Mariah has never been able to take it for granted that she would make it through college. After a major gastrointestinal surgery, Mariah had to finish high school through a program at home, and over the next few years she battled pain, lack of stamina, and constant nausea. But she persevered in working toward her goals. Last semester Mariah made the dean’s list, and now she’s only two semesters away from a diploma. Mariah has organized and coordinated several youth activities at past Oley conferences, bringing ideas such as scrapbooking to the table. She has been a driving force behind Oley efforts to promote the Paul Newman summer camp experiences for Oley members. At a very young age Mariah began sharing her experiences through formal presentations and roundtable discussions at professional meetings to create a better understanding of the issues and concerns specific to those growing up on homePEN therapies. Her willingness to share has always been extremely helpful for parents who are striving to understand the challenges of being a child/teenager/young adult who is dependent upon homePEN. Mariah maintains a positive outlook in dealing with her illness, and has shown courage in overcoming illness-related problems while attending school and also working as a nanny. Through her willingness to share her story, her active involvement with the Oley Foundation, and her contribution of time and energy, Mariah has demonstrated exceptional generosity in helping others in their struggle with homePEN. She well deserves the LifelineLetter Annual Award. Congratulations Mariah!

Nominees: Mallory CyrLori DeyarminTammi Stillion


Oley Foundation Child of the YearIn Honor of NutriThrive, Oley Golden Medallion Partner

Emily Koprucki • Williamsville, NY

“Emily Koprucki is a wonderful young lady who has always dealt with the issues surrounding her homePEN with a smile and a determined attitude,” says a Koprucki family friend. At fourteen, Emily has learned how to manage her own care, and to advocate for herself wherever she is—at school, at the hospital, or while actively participating in Girl Scout trips and activities. “At school and Girl Scouts, Emily is ready and willing to educate everyone on her condition and homePEN,” says a friend. Emily’s mother tells the story of when an elderly neighbor came home from a serious hospitalization with an ostomy. Emily “decided she needed to go talk to him.” According to the man’s wife, Emily’s “upbeat perspective changed his whole attitude about life as an ostomate. The more Emily reaches out to others,” her mom continues, “the more confident she has become.” At Oley conferences, Emily helps other teens and children feel welcome and comfortable. She is willing to share her story and to lend an ear, both of which help encourage and inspire others. One Oley Regional Coordinator (RC) tells how she spoke with the mother of a nine year old who was on homePN and had never spoken with or met another child in her situation. The RC remembered being impressed by Emily at an Oley conference, and called Emily’s mom, who assured her that Emily would call the girl. Emily already corresponded with several other children on homePN, she added. “Emily did call the girl,” the RC reports, “and they have been communicating ever since. When I followed up with the girl’s mother, she was very grateful for Emily’s efforts.” We’re so proud to have Emily as part of the Oley community, and we’re very pleased to congratulate her on receiving the Child of the Year Award!

Nominees:Bonnie BurchMaisy CyrOlivia DeKoldBenjamin DennisonJonathon HarrisChelsea JohnsonLauren MooreRowan Windham

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Celebration of Life AwardIn Honor of Coram Specialty Infusion Services,

Oley Golden Medallion Partner

Robin Lang • Friendship, ME “If you have the pleasure of knowing Robin Lang,” says one of Robin’s friends, “you know what celebrating life is all about….Robin is here to live life to the fullest.” Robin has been on home parenteral nutrition (homePN) for almost thirty years, but she hasn’t let it, or her underlying health issues, stop her. She is known for her great sense of humor (and in fact used to be a professional clown!), her concern for others, and her many interests and hobbies. Robin served as one of the original Oley volunteers. She has been busy planning and having her dream house built in Friendship, Maine, and then moving and settling in. Now she’s busy planning and planting her gardens. As she’s become established in her new community, Robin also planted a flower garden for the local church, of which she is now a member. To expand the garden and encourage a sense of community, Robin is starting a gardening group at the church. Her idea is that members can split the perennials they have in their gardens at home, and share the plants with the church garden. If Robin isn’t in the garden, you can look for her in the kitchen, or maybe in the woods near her home. She enjoys cooking and sharing her creations with friends and neighbors, and exploring the outdoors with her dog, Doodle. She also loves to travel. One of Robin’s nurses noted, “Despite illness, Robin always has a smile and is genuinely interested in the lives of those around her, extending herself to console, consult, and listen.” A longtime Oley member, Robin has helped at many Oley get-togethers and enjoys the many friends she has made through the Foundation. Friends, family, community; making others laugh; pets; gardening; and cooking—these are just some of the many ways Robin keeps busy, living life to the fullest. Congratulations Robin!

Nominees:Mariah AbercrombieMelinda Bear Mallory CyrLori DeyarminLauren MooreJoanne PlattTammi StillionCraig Wheeler

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Lenore Heaphey Grassroots Education Award

Sponsored by Kimberly-Clark, Oley Blue Ribbon Partner

Davria & Steven Cohen • Crofton, MD

Lenore Heaphey was hired when the Oley Foundation was founded in 1983. With many years of administrative experience and an unmatched amount of energy and enthusiasm, Lenore quickly recognized the importance of our Regional Coordinators as the “face of Oley” in different regions of the country. When Lenore left Oley to pursue a law degree, it seemed only fitting to name this award in honor of her outstanding contributions. This year we are pleased to give the Lenore Heaphey Grassroots Education Award to a husband and wife Regional Coordinator team, Davria and Steven Cohen. Davria (Davi) has been on homePEN for over twenty-five years. She has short bowel syndrome due to injuries sustained in an automobile accident. She and Steve are always available to reach out and educate others about Oley, and about what it means to be dependent on homePEN. They have spoken at Oley conferences, as well as at meetings of the National Association of Vascular Access and the American Society for Parenteral and Enteral Nutrition, and often volunteer to answer calls to the Oley toll-free phone lines. As one of their friends points out, Davi and Steve are also utilizing another, relatively new venue to offer help and support to homePEN consumers and caregivers: the Oley Foundation online forum. The forum is proving to be very popular, and is a great way for people to connect. “Davi and Steve are very active in the forum discussions, frequently offering support and advice,” the friend reminds us. “It’s appropriate that their screen name is daviandsteve as the two of them together make a formidable pair.” Davi is willing to share her extensive knowledge of the nutritional and general health issues confronting long-term homePN consumers, and Steve is always willing to listen and talk to spouses and/or caregivers. As their friend so eloquently states, “We are thrilled to have them give their great insight and energy to Oley members.” Thank you, and congratulations!

Nominees:Bettemarie BondAnna CyrCarla Truman


Nan Couts Awardfor the Ultimate Volunteer

Coordinated by Judy Peterson, RN, MS

Linda Gravenstein • Tomball, TX

Throughout her life Nan Couts volunteered for many groups, including the Red Cross. She founded Grossmount Hospital in San Diego in the 1950s. Nan taught her granddaughter Judy Peterson the meaning of volunteerism, beginning with having Judy help out at a senior home when she was ten. Judy says this is when her interest in nursing began. We are proud to honor clinicians in the homePEN or a related field who demonstrate a willingness to give of themselves—beyond their regular work hours—with an award in Nan’s name. This year the Nan Couts Award for the Ultimate Volunteer goes to Linda Gravenstein. Linda currently works as a consumer advocate with the home healthcare company Coram Specialty Infusion Services. She has many years of experience with homePEN as the mother of a young woman, Megan, who has been on homePEN for over twenty years. Linda’s experiences with Megan have helped prepare Linda for her role as a Coram Partner/consumer advocate, but it is her willingness to give so much of herself that makes her stand out. She reaches out to anyone who may need her, and devotes much of her personal time to helping homePEN consumers find solutions to problems or better their lives. And she approaches it all with a great attitude. Linda was one of a group of homePEN clinicians, consumers, Oley members/staff, and company representatives who attended Capitol Hill Day in Washington, D.C. this spring. The event was organized by the Digestive Disease National Coalition to help put a face to those suffering with digestive diseases and home nutrition therapy. These volunteers met with their—and your—elected representatives to help them understand what it is like to live with a chronic illness and to be able to receive nutrition therapy at home. This is an important event, as it helps these representatives make more informed decisions on bills that may affect homePEN consumers. Way to go, Linda! Keep up the good work!

Nominees:Faye Clements, RN, CBSMarianne Duda, MS, RD, LD, CNSD Lyn Howard, MB, FRCP, and Alan Buchman, MD, MSPH, FACN, FACP, FACG, AGAF

Gail Sansivero, MS, ANP

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Nutrishare HomePN Research PrizeSponsored by Nutrishare, Inc., Oley Platinum Partner

The Nutrishare HomePN Research Prize, sponsored by Nutrishare, Inc., was established in 2007 to encourage clinical studies focused on improving the quality of life for homePN consumers. At this year’s Award Ceremony we will present prizes to:

Marianne T. Opilla, RN, BSN, CNSCNutrishare, Inc. • Midlothian, VA

Reduction in Catheter-Related Bloodstream Infections with Weekly Dosing of 100 Percent Ethanol Lock Therapy in

Chronic Home Parenteral Nutrition Patients

Geert Wanten, MD, PhD, MscRadboud University Nijmegen Medical Centre

Nijmegen, The Netherlands

Taurolidine versus Heparin Lock to Prevent Catheter-Related Bloodstream Infections in Patients on

Home Parenteral Nutrition: A Prospective Randomized Trial

Marion F. Winkler, PhD, RD, LDN, CNSCRhode Island Hospital • Providence, RI

Relationships among Home Parenteral Nutrition, Food and Eating, and Quality of Life

All three of these research papers will be presented at Hot Topics in HPN on Tuesday afternoon from 2:15-3:15 p.m. and again from 3:30-4:30 p.m.

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Kyle R. Noble Scholarship

Kyle R. Noble ScholarshipCoordinated by Richard & Donna Noble

Kyle R. Noble was an inspiration to others. His enthusiasm for life affected many positively, and he is remembered widely with affection and admiration. Kyle passed away in 2006 at the age of eight. In 2007, the Noble family established the Kyle R. Noble scholarship with generous gifts from family, individuals and Abbott Nutrition, to memorialize Kyle, and to recognize others who share the admirable qualities for which he will be remembered. “As soon as you met Kyle,” his father, Richard, notes, “you were hooked on his charming personality and contagious smile. Even when he wasn’t feeling well, Kyle always found a way to make others smile and feel better—especially those with other illnesses or challenges in their lives.” Last year, the scholarship was awarded to Mariah Abercrombie. Mariah was diagnosed with pseudo-obstruction syndrome and put on parenteral nutrition (PN) at the age of two and a half. At that time she also received a gastrostomy tube (G-tube) and a jejunostomy tube (J-tube). Since then, Mariah has undergone additional surgeries and faced complications. Yet, as a nurse involved with Mariah’s care states, “Despite a severe and chronic medical condition, which requires a tremendous amount of day-to-day management, Mariah has persisted in pursuing her educational goals at the college level.” Mariah would like to pursue a bachelor’s degree in psychology or social work, and attends the University of Las Vegas. The scholarship recipient for 2009 will be announced at the Town Hall Meeting on Thursday morning.

Candidates::Kailee BrownDemetra Nakos Rebecca Thompson

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Many thanks to the following companies and individuals for their generous contributions.

Special Sponsorships

2009 Oley Awards: Coram Specialty Infusion Services; Kimberly-Clark; Nutishare, Inc; NutriThrive

Child Care:Nutrishare, Inc.

Conference Badges:Coram Specialty Infusion Services

Conference Bags:Nutrishare, Inc.

Conference T-shirts:Coram Specialty Infusion Services

Co-Sponsor In Loving Memory:NutriThrive

Co-Sponsor Pediatric Workshop:NutriThrive

Co-Sponsor Tube Feeding Workshop:Daniel F. and Ada L. Rice Foundation

General Conference Support:Pat Brown, RN, CNSN, OCN; Ann & Paul DeBarbieri; Portia & Wallace Hutton; Kimberly-Clark; Lesley Marino; Kathleen & Larry McInnes; Joan & Eli Medwar; Sheila Messina, MA, RN; Cheryl Thompson, PhD, RD, CNSD; Donna Macan Yadrich, MPA, CCRP

Jammin’ Jammies:Abbott Nutrition-PediaSure

Medical Support:Coram Specialty Infusion Services

Oral Rehydration Solution:Cera Products, Inc.

Silent Auction:A big “Thank You!” to volunteers who helped orchestrate the event, and to those who donated, brought and/or will purchase items!!

Speaker Support:Ambient Healthcare; Children’s Hospital Boston; Coram Specialty Infusion Services; Cleveland Clinic; Lee Moffitt Cancer Center; Mayo Clinic; MD Informatics; Medical University of South Carolina; Mount Sinai Medical Center; Nationwide Children’s Hospital; Nemours Children’s Clinic; Nestlé HealthCare Nutrition; Nutrishare, Inc.; NutriThrive; Rhode Island Hospital; University of Kansas School of Nursing; University of Louisville School of Medicine; University of Pittsburgh Medical Center; Vanderbilt University Medical Center; Walgreens-OptionCare St. Petersburg branch

Sunscreen For Your Protection:Ocean Potion & NO-AD

Travel Scholarships for Consumers:Anonymous; Jarol Boan, MD; Melissa Chaney Memorial Fund; Coram Specialty Infusion Services; Critical Care Systems; Bruce Groeber Memorial Fund; Janet Platt & Christopher Hlatky

Videotaping:Baxter Healthcare

Walk-a-Thon:Coram Specialty Infusion Services; Covidien; Emmaus Medical; Nutrishare, Inc.; NutriThrive...and thank you to everyone who will walk or otherwise support the effort!!

Welcome Massage:Lesley Marino

Youth Activities:Nutrishare, Inc.

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aBBott nUtRition, aBBott laBoRatoRiEs*625 cleveland avecolumbus, oh 43215Abbott Nutrition supports the Oley Foundation to enhance the lives of home nutrition support patients, their families, and their caregivers. Abbott Nutrition manufactures and distributes medical nutritional products such as PediaSure® Enteral Formulas, Vital jr™, Jevity® 1.2 CAL.

ALCAViS HDC, LLC 8322 helgerman ctgaithersburg, MD 20877Alcavis HDC, LLC is dedicated to supporting the acute, sub acute and long term care communities with innovative and progressive antiseptics, disinfectants and medical devices. Its core products are electrolytically produced sodium hypochlorite-based solutions available in several concentrations for applications including skin cleansing and wound care, vascular catheter cap and connection disinfection and surface decontamination.

aMBiEnt hEalthcaRE, inc. 12689 challenger pkwy, #100Orlando, FL 32826Ambient Healthcare, Inc is a southeastern home infusion company with multiple locations in

ExhibitorsFlorida, Alabama, Georgia and South Carolina. It offers an interdisciplinary approach to the management of nutritional support patients. The company’s team consists of nutritional support pharmacists, certified dietitians and infusion nurses with extensive experience in home infusion.

AMERiCAN SOCiETY FOR paREntERal & EntERal nUtRition (a.s.p.E.n.)

8630 Fenton St, Ste 412silver spring, MD 20910The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) is dedicated to improving patient care by advancing the science and practice of nutrition support therapy. Founded in 1976, A.S.P.E.N. is an interdisciplinary organization whose members are involved in the provision of clinical nutrition therapies, including parenteral and enteral nutrition.

appliED MEDical tEchnology (aMt)*

8000 Katherine BlvdBecksville, oh 44141Applied Medical Technology, Inc. was present at the birth and development of the Percutaneous Endoscopic Gastrostomy (PEG) movement. Its founder co-invented the first Button low profile feeding device. Since then, AMT has introduced innovative designs and materials to advance PEG by increasing patient comfort while improving patient outcomes.

* Indicates a company is also a corporate donor

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Exhibitors (con’t)

claRian tRansplant550 University Blvd, Room 4601indianapolis, in 46202Clarian Transplant / Indiana University School of Medicine, ranked the fifth largest U.S. transplant center by volume, is the only Medicare-approved center to perform adult and pediatric intestine and multivisceral transplants in its region and one of only eight nationally. Median wait times: Clarian 1.6 months, US 7.7 months.

CORAM SpECiALTY iNFuSiON SERViCES*

1675 Broadway, ste 900Denver, co 80202Coram is proud to support the Oley Foundation, and is dedicated to empowering TPN and enteral consumers through individualized customer service, clinical expertise, education and support. Visit Coram’s booth to learn about its Nourish Nutrition Support Program, offering 30+ years of experience, comprehensive therapy management, consumer advocacy services, online resources, through national coverage and local expertise.

BAXTER HEALTHCARE*25212 west illinois Route 120wg1-inRound lake, il 60073Baxter Healthcare Corporation has 75-plus years experience in developing parenteral nutrition solutions that work together to improve patient outcomes. Baxter offers clinicians and patients CLINIMIX injections, a commercially manufactured multi-chamber bag of parenteral nutrition formulations; INFUVITE multiple vitamins for infusion; lipid emulsions for infusion; AUTOMIX 3+3 and MICROMIX automated compounding equipment; and LOGIX compounding software.

cERa pRoDUcts, inc9017 Mendenhall ctcolumbia, MD 21045Manufacturer of CeraSport and CeraLyte, high performance hydration products used by the military, elite athletes and hospitals nationally for preventing and correcting dehydration. Cera’s products speed absorption and release of energy, while averting cramping or other side effects typical of sports drinks, optimizing hydration and performance, and promoting early recovery.

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COViDiEN 15 hampshire stMansfield, Ma 02048Covidien is a leading global healthcare products company that creates innovative medical solutions for better patient outcomes and delivers value through clinical leadership and excellence. Covidien manufactures, distributes and services a diverse range of industry-leading product lines in four segments: Medical Devices, Imaging Solutions, Pharmaceutical Products and Medical Supplies.

EMMaUs MEDical, inc.*20725 s western ave, #136torrance, ca 90501-1884Emmaus Medical, Inc. is dedicated to treatments and therapies for rare diseases. Its product, Nutre-Store™ [L-glutamine powder for oral solution], together with Zorbtive™ [somatropin (rDNA origin) for injection] and a specialized oral diet, is the only FDA-approved therapy for short bowel syndrome.

g-pact106 spencer ctchapel hill, nc 27514-1921G-PACT is a non-profit dedicated to providing assistance to patients and families affected by gas-troparesis and/or intestinal pseudo-obstruction in order to improve quality of life and decrease fears

surrounding the conditions. It aims to provide hope to those who have lost it, support to those who need it, and knowledge to those who do not understand this condition.

iNFuSCiENCE*1225 tri-state pkwy, ste 510gurnee, il 60031-9163As the “next generation of comprehensive infusion providers,” InfuScience is proud to be an Oley partner. InfuScience excels in the delivery of nutrition services, antibiotic and other infusion therapies in the home. Visit the InfuScience booth to learn more about their commitment to serving patients with integrity, quality and accountability.

iNTERNATiONAL FOuNDATiON FOR FuNCTiONAL gastRointEstinal DiSORDERS (iFFGD)

po Box 170864Milwaukee, wi 53217The International Foundation for Functional Gastrointestinal Disorders (IFFGD) is a nonprofit education and research organization dedicated to informing, assisting and supporting people af-fected by functional gastrointestinal and motility disorders.

KiMBERly-claRK*1400 holcomb Bridge RdRoswell, ga 30076Kimberly-Clark develops, manufactures and markets the comprehensive line of MIC* and MIC-KEY* Feeding Tubes and is now introducing the Kimberly-Clark* MIC*, MIC-KEY* Introducer Kit providing physicians with an innovative solutionto facilitate the initial placement of balloon-retained enteral feeding tubes making patients’ lives better and physicians’ lives easier.

Mitoaction14 pembroke stMedford, Ma 02155MitoAction is a Boston-based 501(c)(3) charity incorporated in 2005 that provides support, advocacy and educational resources FREE for all patients and caregivers affected by mitochondrial disease. MitoAction is entering its fifth year and provides dedicated support and advocacy for those living with the disease.

Moog, inc*4314 zevex park lnsalt lake city, Ut 84123MOOG Medical Devices / Curlin Infusion-Zevex Enteral offers a full line of Infusion pumps and Enteral pump devices, disposable administration sets and accessories. Its pumps combine the convenience of small size ambulatory pumps, and the sophistication of hospital devices.

MsD, llc905 lakeside Drgurnee, il 60031MSD is a leading national supplier of healthcare products and biomedical equipment to the home infusion and nutrition market. MSD works with the manufacturers of health care products to ensure that the products and equipment you need are available to you and your Home Care Provider.

nEstlé hEalthcaRE nUtRition, inc.*

10801 Red circle DrMinnetonka, Mn 55343Nestlé HealthCare Nutrition, part of the world’s largest food company, supports nutrition, health and wellness, and provides a comprehensive line of enteral nutrition formulas to the healthcare community for both adults and pediatrics.


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nUtRishaRE, inc*10519 E stockton Blvd, #110Elk grove, ca 95624Can you believe it? Nutrishare has been exclusively serving Home TPN consumers throughout the country for 18 years now. Creating the Oley platinum sponsorship two years ago symbolizes Nutrishare’s commitment to grow, hand in hand, with Oley. Be sure to stop by the Nutrishare booth both days to receive this year’s surprise giveaway package.

NuTRiTHRiVE*10828 Kenwood Rdcincinnati, oh 45242NutriThrive is proud to be a Golden Medallion sponsor of the Oley Foundation. The company is dedicated to providing customized customer service and clinical care for homePEN consumers. Its mission is to ensure quality care that fosters independence and empowers patients and their families. Come to the NutriThrive exhibit and learn more about the Strap Wrap!

THE OLEY FOuNDATiON214 hun Memorial, Mc-28 albany Medical center albany, ny 12208 Stop by the registration desk and introduce yourself to the Oley staff — we’d love to meet you and find out how we can better serve your needs. And while you’re there, you can discover more about the programs offered by the Foundation, including our online education tool, MY HPN, and Web forum for networking with other consumers.

thE pEDiatRic aDolEscEnt GASTROESOpHAGEAL REFLuX association (pagER)

po Box 486 Buckeystown, MD 21717 Founded in 1992, PAGER’s English web site takes 2.5 million hits per month, has 300 information pages and 120,000 searchable postings. New discussion forum for adults. Spanish outreach is its focus for 2009. Its basic site is now translated into Spanish. Free handouts in PDF format are available.


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pROMpTCARE HOME iNFuSiON, llc

51 terminal aveclark, nJ 07066-1002PromptCare Home Infusion is a regional provider of home infusion therapies and services in the New York and New Jersey area. Experienced home infusion nurses and pharmacists allow consumers to receive treatment in the comfort of their homes. The company provides a full spectrum of home infusion therapies including enterals and TPN for consumers.

UnitED MitochonDRial DiSEASE FOuNDATiON (uMDF)

8085 saltsburg Rd, ste 201pittsburgh, pa 15239The United Mitochondrial Disease Foundation (UMDF) was founded in 1996 to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. National headquarters are in Pittsburgh, PA.

walgREEns-optioncaRE* 485 half Day Rd, ste 300 Buffalo grove, il 60089 Walgreens-OptionCare is committed to outstanding clinical programs and quality care. The company’s dietitians and home care professionals balance patient needs with those of the healthcare team to achieve successful results. Walgreens-OptionCare offers accredited home infusion, respiratory therapy/oxygen, nutrition support, and home medical equipment in thirty-six states.

Conference FacultyMaRcia BoatwRight, Rn, cRnicoram, specialty infusion2345 waters Dr.Mendota heights, Mn 55120Marcia holds national certification in infusion therapy nursing and specializes in nutrition therapy nursing and central venous catheter management. Marcia provides education regarding specialty infusion therapy management of the homecare client, provides homecare nursing education, and serves as a clinical resource consultant. Her clinical background includes extensive nutrition support nursing and specialty IV therapy, nursing education, and critical care nursing. Marcia is an active member of Infusion Nurses Society (INS), Association of Vascular Access (AVA), Minnesota AVA, Association of Parenteral and Enteral Nutrition (A.S.P.E.N.), and Crohn’s and Colitis Foundation of America (CCFA).

BEttEMaRiE BonDhomepn consumer22 gridiron Rd.levittown, pa 19057Bettemarie was diagnosed with biliary dyskinesia with smooth muscle disorder and an overall digestive dysmotility disorder. She is on parenteral nutrition and is connected at all times to a PCA pump. She works full time as a pediatric occupational therapist. Bettemarie also has experience with NG tube feedings.

aBBy BRogannutrition consumer advocate,

nutrithriveparkland Dr.wayland, Ma 01778As a consumer advocate with NutriThrive, Abby works to help adults, children, and their families adapt to life at home on enteral and/or parenteral nutrition (EN and/or PN). Abby’s daughter Ellie was born in 2006 with short bowel syndrome due to jejunal atresia leaving her with 30cm of small bowel and 70 percent of her colon. Ellie has

been on homePEN with Omegaven since birth. At NutriThrive, Abby represents the interests of NutriThrive clients within the company and provides clients with ideas and techniques to help them thrive on nutrition support. Abby lives in Massachusetts with her husband Gib, their daughter Ellie, and Gus, “the best Labrador retriever in the world.”

MaRgaREt (MEg ) cass-gaRcia, Rn, Msn, cnsc

nutritional support clinical specialisth. lee Moffitt cancer center 12902 Magnolia Dr.Tampa, FL 33612-9497Meg has been a nurse for almost 40 years, and has worked as the Nutritional Support Nurse at H. Lee Moffitt Cancer Center for the last 20 years. She sent her first patient home on parenteral nutrition (PN) in 1972; the patient had radiation enteritis. It was before premixed IV nutrition, Meg notes, and the patient’s wife had to mix the PN. Meg has been involved with the Oley Tampa support group since its conception in 1987.

FAYE CLEMENTS, RN, BSUniversity of Kansas school of nursing

Family Care Research3901 Rainbow Blvd. Kansas city, Ks 66160Throughout her 42-year career, Faye has worked in diverse areas of nursing: hospital, home health, telehealth, public health, and extended care. For the last ten years she has worked with Dr. Carol Smith’s nursing team in research. She is currently working with parenteral nutrition (PN) consumers and family caregivers as a primary intervention nurse in PN under a grant.

Names and addresses are provided for educational purposes only. The Oley Foundation requests that in the true spirit of the Oley mission, this listing not be used for the purpose of sales.

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Faculty (con’t)

MaRK h. DElEggE, MD Medical Director, coram specialty infusion

services; professor of MedicineMedical University of south carolinaaRt Building, 25 courtney st., suite 7100acharleston, sc 29425Dr. DeLegge is a gastroenterologist with a special interest in enteral and parenteral nutrition, and enteral access. He began his career in 1989 at the Medical College of Virginia. He has written for numerous publications and made many presentations. He has been involved in the design of multiple enteral access devices. He has co-authored a nutrition support book for clinicians. He is currently Professor of Medicine and Director of the Digestive Disease Center, Medical University of South Carolina, and the Medical Director of Coram, Inc. MaRiannE DUDa, Ms, RD, lD, cnsDpharmacy account Managerambient healthcare, inc.4710 Eisenhower Blvd.Building a, suite 12Tampa, FL 33634Formerly the National Nutrition Program Manager for Walgreens-OptionCare, Marianne has served on several committees for the Association for Parenteral and Enteral Nutrition (A.S.P.E.N.) and is a current member of the examination committee of the National Board for Nutrition Support Certification (NBNSC). Marianne has also served as a reviewer for several nutrition support publications, is a past-president and board member of the Florida Society for Parenteral and Enteral Nutrition (FSPEN), was a 2007 nominee for the Dietitians in Nutrition Support Outstanding Service Award, and is an adjunct faculty member at the University of Tampa.

Don gEoRgE, MDchief, gastroenterology and nutritionnemours children’s clinic807 children’s wayJacksonville, FL 32207Dr. George is a pediatric gastroenterologist who trained with Professor Lebenthal in the late 70s during the early years of parenteral nutrition. His interest in homePEN started in the early 80s while at the University of Florida where he learned from Dr. Jim Cerda. He then went on to establish programs at the University of Texas San Antonio and in Jacksonville, Florida. Dr. George is a long time member of ASPEN and FLASPEN. He has contributed to the American Academy of Pediatrics Guidelines for Home Enteral and Parenteral Nutrition. He currently is a member of the Clinical Guidelines Committee of ASPEN.

MEGAN GRAVENSTEiNhpn consumer The Woodlands, TX Megan graduated high school in 2000. She moved away from home to attend college and has continued to maintain her independence. Due to an automobile accident in 2007 she has had to postpone her education and career goals. She has been dependent on home parenteral nutrition (HPN) due to pseudo-obstruction and malabsorption since birth.

Faculty (con’t)

KathlEEn gURa, phaRMD, BCNSp, FASHp

clinical pharmacist gi/nutritionchildren’s hospital Boston300 longwood ave.Boston, Ma 02115Dr. Gura is the team leader with the surgical program and a clinical pharmacist with the clinical nutrition service in the Division of Gastroenterology and Nutrition at Children’s Hospital Boston. She is also an Assistant Professor of Pharmacy Practice at the Massachusetts College of Pharmacy and at Northeastern University. Her topics of expertise include nutritional support for the critically ill pediatric patient, nutritional support in intestinal failure, sterile products preparation, and PN-associated liver disease. She has written more than 50 peer-reviewed papers and book chapters. In recognition of her work in these areas, Kathy received the 2007 MPhA Innovative Practice Award and the 2008 ASPEN Serlick Award for safe practice in the field of parenteral nutrition.

caRol iREton-JonEs, phD, RD, LD, CNSC, FACN

nutrition therapy specialist/consultant1730 countryside Dr.Carrollton, TX 75007Dr. Ireton-Jones has over 30 years of experience in nutrition and nutrition support. Over the last 18 years, she has worked in home and alternate site care with patients requiring home nutrition support. Her clinical experiences include working as a clinical dietitian and a research dietitian. She is a member of the Clinical Faculty, Department of Clinical Nutrition at the University of Texas Southwestern Medical Center in Dallas. She has published extensively and received numerous awards, and she is a newly elected Research Delegate to the Council on Professional Issues for the American Dietetic Association and serves on the Clinical Nutrition Week Planning Committee for the American Society for Parenteral and Enteral Nutrition.

KiSHORE R. iYER, MBBS, FRCS, FACSoley trustee; Director, adult/pediatric

intestinal transplantation and Rehabilitation; Director, pediatric liver transplantation

Mount sinai Medical centerone gustave l. levy place, Box 1104new york, ny 10029Dr. Iyer trained in England for ten years doing adult, general, and pediatric surgery, the latter with Dr. Adrian Bianchi. He also has trained in liver and intestinal transplantation.. Between 2000 and 2006, he established and directed the Intestinal Rehab Program in Omaha, as well as the Intestinal Rehab and Transplant Program at Children’s Memorial and Northwestern University. He now is establishing an intestinal transplant program at Mount Sinai. His special interest is in non-transplant surgical management of intestinal failure and parenteral nutrition-associated liver disease. Dr. Iyer was among the first to identify plant sterols in lipid emulsion as a possible cause for liver disease in PN.

DaRlEnE g. KElly, MD, phD, FACp

associate professor of Medicine; consultant in gastroenterology and hepatology

Mayo clinic college of Medicine Rochester, Mn 55905 Dr. Kelly started her career as a registered dietitian but subsequently became a professional student, completing her masters, doctorate, and post-doctorate work and then attending medical school. She is an internist and gastroenterologist/hepatologist at the Mayo Clinic where she has been the Medical Director of Mayo’s Home Parenteral Nutrition Program for nearly 19 years. She has had the pleasure of being on the Oley Board for several years and is now the Oley Research Chair.

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Faculty (con’t)

VANESSA KuMpF, pHARMD, BCNSpclinical specialist, nutrition supportVanderbilt Medical Center1211 21st ave. south514 Medical arts Buildingnashville, tn 37232Dr. Kumpf is a pharmacist at Vanderbilt Medical Center who specializes in the area of nutrition support. She has been at Vanderbilt since January 2006 and is involved with its Intestinal Rehabilitation Program, assisting with the management of patients requiring home parenteral nutrition (HPN). She has 20 years of nutrition support experience and worked at Nutrishare, Inc. prior to her current position. Her primary areas of interest include issues related to the safe use of PN therapy and identifying ways to minimize complications and improve quality of life in the HPN patient.

JiM lacy, Rn, Bsn, cRni®

oley trustee; clinical Director, navilyst Medical (formerly Boston scientific)

14382 s Debrian wayDraper, Ut 84020Jim is an RN and works as Clinical Director for Navilyst Medical (formerly Boston Scientific Oncology). He has over 30 years experience in healthcare. He has presented at international, national, regional and local seminars and conferences and has published various articles on infusion therapy, vascular access, reimbursement, and HIV disease. He is a Director-at-Large of the Association for Vascular Access, a Trustee of the Wise Foundation for Vascular Access Education and Research, and a member of the Board of Directors of the Vascular Access Certification Corporation.

KRiSTYN MAiXNER, RNnurse Educator Mayo clinic Rochester, Mn 55905Kristyn has been a nurse for almost ten years, with experience in gastroenterology, home healthcare, and home parenteral nutrition.

JAY MAMEL, MD, FACp, FACG, FACNuniversity of South Florida12901 n 30th st. Tampa , FL 33612Dr. Mamel has been involved with parenteral nutrition for 35 years and has been active at the local, state, and national levels of the American Society for Parenteral and Enteral Nutriton. Dr. Mamel has 32 years of experience with gastrointestinal motility disorders and directs the GI motility lab at the University of South Florida College of Medicine in Tampa.

lEslEy DianE MaRinoChild / Family AdvocateLesley has been a licensed massage therapist since 1989. She is also a certified IEP consultant with special interest in children who have medical issues. For the last several years she has been working with families who have loved ones who are G-tube fed and want to learn how to make their own G-tube feeds with or without the use of formula. Her pride and joy is her ten-year-old daughter Nina Marie, who has been tube fed since she was four days old; she is the reason Lesley learned about using real food via a G-tube. Nina has had over 50 surgeries in her life, with more to come.

Faculty (con’t)

laURa E. MataREsE, phD, RD, LDN, FADA, CNSD

oley trustee; assistant professor of surgery, University of pittsburgh Medical center; Director of nutrition, intestinal Rehabilitation and transplantation center

thomas E. starzl transplantation institute

UpMc Montefiore, 7 south 3459 Fifth Ave. pittsburgh, pa 15213 Dr. Matarese has over 25 years experience in nutrition support. She was involved in the conception and development of the intestinal rehabilitation program at the Cleveland Clinic before moving to Pittsburgh. She currently is responsible for the overall development, direction, and implementation of nutrition care for intestinal rehabilitation and small bowel/multivisceral transplantation at the Starzl Transplantation Institute. Dr. Matarese is an expert in nutritional therapies, including diet for short bowel syndrome, enteral and parenteral nutrition. A longtime supporter of the Oley Foundation and current Board member, she is devoted to improving the quality of life for patients with intestinal failure as well as making enteral and parenteral nutrition safe and effective.

STEpHEN A. MCCLAVE, MDprofessor of MedicineUniversity of louisville school of Medicine

Div. of gastroenterology/hepatology550 south Jackson st.louisville, Ky 40202Dr. McClave is currently the Director of Clinical Nutrition at the University of Louisville School of Medicine and Director of the Nutrition Curriculum for the Introduction to Clinical Medicine Course for first- and second-year medical students. He is a board-certified physician nutrition specialist. He has served the American Society for Parenteral and

Enteral Nutrition (A.S.P.E.N.) in several capacities, including serving on the Board of Directors, and he will be the A.S.P.E.N. president starting June 2009. He has also been active with the American Society for Gastrointestinal Endoscopy (ASGE) and the American Board of Physician Nutrition Specialists. His research interests and clinical expertise involve critical care nutrition and early enteral feeding, endoscopic techniques for enteral access, and indirect calorimetry.

REiD nishaKawa, phaRMD, BCNSp, FCSHp

Director of Research; coordinator, clinical services

nutrishare, inc.10519 E. stockton Blvd., suite 110Elk grove, ca 95624Dr. Nishikawa has been involved with nutrition support for the past 27 years. He is actively involved with the American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) and the American Society of Health-System Pharmacists (ASHP). He has been involved in clinical research that has been presented at local, state, national, and international meetings. Many of the research projects have been published. He was the 2006 recipient of A.S.P.E.N.’s Distinguished Nutrition Support Pharmacist award.

Donna noBlEconsumer advocatenutrithrive5835 coneflower Dr.grove city, oh 43123Donna has a master’s degree in education. She has been a special education teacher for 17 years. Donna’s son was on home parenteral nutrition all of his life. Donna has been a consumer advocate for NutriThrive for almost two years.

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Faculty (con’t)

MaRiannE t. opilla, Rn, Bsn, cnscClinical Care & Research Specialist nutrishare, inc,13702 shirlton ctMidlothian, VA 23114Marianne has been a Certified Nutrition Support Clinician (CNSC) for 18 years. She provides clinical management and support for a group of homePN consumers with a focus on improving quality of life and reducing complications associated with long term TPN.

saRah pEsEsKi, Mph, RD corporate sales trainer nestlé healthcare nutrition, inc. 10801 Red circle Dr.Minnetonka, Mn 55343 Sarah is a registered dietitian with 20 years of clinical nutrition and corporate training experience. She holds a Bachelor of Science degree in Dietetics from Michigan State University and a Master of Public Health Degree from the University of Michigan. Her area of clinical interest and expertise is pediatric nutrition.

DEBORAH E. pFiSTER, MS, RD, CNSDDirector of nutritionnutrithrive10828 Kenwood Rd.cincinnati, oh 01460Deborah joined NutriThrive in 2007 as the Director of Nutrition with the mission to create a home nutrition support program. In that role, she is responsible for the development of the clinical, sales, marketing, and operational integration of NutriThrive. Deborah has held various positions in home nutrition support including; infusion specialist at Apria Healthcare, nutrition manager at Charwell Home Therapies, and clinical nutritionist for the follow-up program at the Nutrition Restart Center. Her specialization is in the areas of intestinal failure and reimbursement for home nutrition therapies. She is a certified nutrition support dietitian.

STEVEN pLOGSTED, pHARMDclinical pharmacy specialistnutrition support servicenationwide children’s hospital700 children’s Dr.columbus, oh 43205Dr. Plogsted is a member of the nutrition support service at Nationwide Children’s Hospital, where he has been employed for the past 17 years. He is also a member of the hospital’s intestinal support service. He is a longtime member of the American Society of Health System Pharmacists and the American Society for Parenteral and Enteral Nutrition and is secretary for the Ohio Society for Parenteral and Enteral Nutrition. He holds appointments as a Clinical Associate Professor of Pharmacy at Ohio Northern University College of Pharmacy and an Adjunct Clinical Professor of Pharmacy at Ohio State University. He is a nationally recognized expert in celiac disease.

DOuG SEiDNER, MD, FACG, CNSpoley trustee; Director, center for human

Nutrition,Vanderbilt university Medical center

1211 21st ave. south, suite 514 MaBnashville, tn 37232Dr. Seidner has extensive experience in home parenteral and enteral nutrition. His interests include malabsorptive syndromes, inflammatory bowel disease, and endoscopy.

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Faculty (con’t)

REX SpEERHAS, RpH, CDE, BCNSpoley trustee; nutrition support clinical

specialist, cleveland clinic Dept of pharmacy, JJn1-209500 Euclid ave.cleveland, oh 44195Rex has worked at the Cleveland Clinic as a staff pharmacist and staff development specialist, and currently serves as a nutrition support clinical specialist. He has been a certified diabetes educator since 1990 and a board certified nutrition support pharmacist since 1994. He holds professional appointments at the Ohio State University and University of Toledo Schools of Pharmacy. His areas of interest include blood glucose management and trace elements. He has been managing home parenteral nutrition patients with Dr. Ezra Steiger since 1991 and currently serves on the Board of Trustees for the Oley Foundation.

EzRa stEigER, MDprofessor of surgerycleveland clinic9500 Euclid ave., Mc a100cleveland, oh 44195Dr. Steiger worked with Dr. Dudrick during his residency at the Hospital of the University of Pennsylvania from 1966 to 1973. Dr. Steiger started the nutrition support team and the home parenteral nutrition and intestinal rehabilitation programs at the Cleveland Clinic. He is currently an active clinician on the nutrition support and intestinal rehab and transplantation teams at the Cleveland Clinic. His current interests include parenteral nutrition at home and in the hospital, short bowel syndrome, and intestinal transplantation and rehabilitation.

JoDy stRainReimbursement Managernutrishare, inc.9850 Kent st.Elk grove, ca 95624Jody has worked in the home infusion industry for 25 years. Her primary focus for the past 15 years has been with long-term PN/home infusion consumers.

chERyl w. thoMpson, phD, RD, cnsD

Oley Trustee; Vice president for Health promotion and Education, MD informatics, llc

salt lake city, Ut 84103Dr. Thompson is the principal investigator on a National Institutes of Health grant to educate clinicians on safe and effective delivery of enteral nutrition. It is her belief that educating both clinicians and consumers about home parenteral and enteral nutrition will help enhance consumers’ lives. She has a doctorate in health promotion and education, which has enabled her to promote cost-effective educational resources, such as Web-based instruction.

ElizaBEth tUcKERconsumer18654 Kalmar pathlakeville, Mn 55044A home parenteral nutrition (HPN) consumer for almost 23 years, Liz is now on HPN 24 hours a day. It doesn’t keep her from traveling or doing the things she likes to do. Although now on disability, Liz has been a human resources manager, administrative assistant to the president of a futures company, a financial services representative, and the owner of her own company. She was a motivation speaker and did stress management seminars around the United States and Europe. She also has experience with insurance issues.

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Faculty (con’t)

Thanks to all the faculty who have volunteered to share their expertise in home

nutrition support and related issues. The success of the Oley Conference depends heavily on the efforts of these dedicated

individuals!

CiNDY VAN ELDiJK & RENATE ViSSERS

specialized nurses, hpnUniversity Medical centre st. Radboudp.o. Box 9101nijmegen 6500 hB huispost 501the netherlandsThe Nijmegen Medical Centre started taking care of HPN patients in the early 1970s. Today, the program serves nearly 100 patients (out of 160 in the Netherlands); one has been on HPN for 33+ years. Besides using Hickman catheters and subcutaneous ports, the center uses arteriovenous fistulas for long-term HPN administration. The center’s research efforts are focused on HPN issues such as immune modulation by lipids, decreasing infectious complication rates, and quality of life issues. Renate has been working with HPN patients since 1995. The research that will be presented in the Hot Topics session this year focuses on the use of a new type of catheter lock (Taurolidine).

MARiON F. WiNKLER, pHD, RD, lDn, cnsc

oley trustee; surgical nutrition specialist and senior clinical teaching associate of surgery, Rhode island hospital and alpert Medical school of Brown University

593 Eddy st., naB 218providence, Ri 02903Dr. Winkler is a home care nutrition consultant and surgical nutrition specialist with over 25 years experience in nutrition support practice. She holds the position of Senior Clinical Teaching Associate of Surgery in the Alpert Medical School of Brown University. She is a past-president of the American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) and currently serves on the Board of the A.S.P.E.N. Rhoads Research Foundation and the Oley Foundation. Her current research focuses on the quality of life of home parenteral nutrition consumers. She is the recipient of numerous awards

including the American Dietetic Association’s Medallion and Clinical Excellence Awards, and the Distinguished Achievement in Nutrition Support Dietetics Award from A.S.P.E.N.

Donna Macan yaDRich, Mpa, ccRp

Research operations coordinatorUniversity of Kansas, school of nursing3901 Rainbow Blvd, Ms 4043Kansas city Ks 66160Donna has over 20 years experience in the conduct and administration of academic clinical research of serious and chronic conditions, including Phase I, II and III, and correlative science clinical trials. For the past three years, she has coordinated the day-to-day operations of Carol Smith’s home parenteral nutrition (HPN) clinical trial at the University of Kansas School of Nursing. Donna enjoys working with investigators and research nurses and finds working with HPN consumers and caregivers truly rewarding.

Don yoUngConsumer Advocate, Oley Foundation299 ormsbee Rd.porter corners, ny 12859Don has been on parenteral nutrition (PN) for 34 years due to Crohn’s disease, which he has had for 45 years. In his time on PN, Don has had over 25 different vascular access devices placed, including PICC lines and Hickman catheters. Don has also experienced gallstones, bowel obstructions, and bacterial and fungal infections. He has had an ostomy for 31 years.

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Travel Scholarships

Many thanks to the following individuals for their generous support of scholarships for consumers.

Anonymous When I was born, I was bitten by the travel bug. When I became an HPNer I thought that bug was smashed into the windshield of my car. About one or two years after becoming an HPNer, I was able to attend an Oley picnic, then Oley conferences. I learned so much at these events, my life was forever changed. I have driven across the country (all the while mixing my TPN). I’ve traveled to the Caribbean and made two trips to Europe. I’ve learned life-saving techniques, diet information, cutting edge practices to keep me and my lifeline safe, and so much more. Most importantly, I learned that I am not alone. I have made many friends who have brought me a great deal of happiness. Their friendships mean more to me than words can express. Thank you Oley for all you do for so many, and thanks for giving me the opportunity to help others have similar positive experiences.

Melissa Chaney Memorial Fund I am Victor R. Chaney, the husband of Melissa Chaney, a TPN consumer and Oley contributor. Melissa passed away from natural causes on January 30, 2006. For more than nine years, Melissa battled pseudo-obstruction, polymyocitis, and mitochondrial myopath-transport chain deficiency. Over those years there were many drastic ups-and-downs. In the summer of 2003, Melissa learned of the Oley Foundation, and the network of support and outreach that they specialize in. At that time Melissa’s healthcare management was less than adequate. Her weight was in a downfall—she was 5’1” and she averaged around 75 lbs. After joining Oley, the change in her healthcare and overall quality of life was amazing. We credited the education and contacts she acquired at our first annual conference as the turning point in her health. Melissa’s wishes in life were that any memorial donations given after her passing would be directed to Oley. In keeping with those wishes, we are establishing a travel scholarship to the annual Oley conference in her honor, so that others may have the opportunity she had in attending.

Jarol Boan, MD, MPH As a practicing internist, I have seen patients on home TPN or enteral feeding who struggle with the long term ramifications of their disease. The constant, unrelenting burden of “hooking up” every night takes it toll on self-esteem, work, and family relationships. Additionally, the financial burden of having a chronic disease cannot be underestimated, even if there is insurance coverage for the solutions. The multiple visits to a physician, increased cost of gas, and incidentals that are not covered by insurance add to the burden of home TPN and enteral feeding. I strongly believe in the mission of the Oley Foundation to provide patient support for those affected, as well as educating physicians about home management. I have seen many patients helped by knowing there is an organization that is working on their side. The interaction between patients at an Oley conference is an important positive outcome for the attendees. My gift to the Oley Foundation is intended to help patients and their families attend the Oley conference, and experience the encouraging exchange of ideas that occurs as a result.

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Travel Scholarships (con’t)

Bruce F. Groeber Family Bruce Groeber was an avid fan and regular attendee of the Oley annual conference. He never missed a conference after attending his first one in 1988 until his death in March of 1997. Even though Bruce was on enteral feeding for nine years (beginning in 1979) and on homePN for an additional nine years due to malabsorption, he loved to eat and drink. He also loved boats and the water, computers and talking to people—most of all, though, he loved his family. Bruce and his wife Bobbie (still active in Oley as a Regional Coordinator) have five children. Bruce also has several grandchildren now. The Bruce F. Groeber Family feels it is important to sponsor a travel scholarship to the annual Oley conference because of what the conference has provided our family. The conference provides the opportunity to get together with others who have similar issues and concerns. It provides the opportunity to learn about everything that is new, exciting and relevant, while bringing people together to share information about themselves, their experiences and how they address challenging situations. Many people leave the annual Oley conference knowing that they are not alone, feeling empowered and more positive about their life. They are aware of how much more information they have than when they started. Companionship and knowledge gained at the annual Oley conference can serve to improve an attendee’s quality of life. The Bruce F. Groeber Travel Scholarship hopes to honor the joy Bruce found in the companionship with other Oley families by supporting others in their efforts to attend the conference.

Janet Platt & Christopher Hlatky We are sponsoring a travel grant for this year’s Oley Foundation Consumer/Clinician Conference because we strongly believe in the positive impact attending the conference can have. Three years ago Janet’s brother got his first tubes. We were all scared and depressed. What did this mean for his quality of life? Would he be able to work? What was his life expectancy? The doctors and nurses at the hospital seemed almost as clueless as we were. Then a social worker mentioned Oley casually in passing. I found out the annual conference (that year in Saratoga, NY) was only a few weeks later. I signed Janet’s brother and me up and practically dragged him there from the hospital! From the moment we arrived, we found a warm, supportive and INFORMED group of people. We met lifelong tube users who were in college or working full-time, people who had families, people who, in general, were experiencing an excellent quality of life. We got so many questions answered. We learned about different kinds of tubes and pumps, different kinds of care providers and insurance issues. We left feeling much more positive about life with feeding tubes. Having Oley around to support and inform is priceless. Helping other tube users get the support they need is important to us.

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Family of Shirley Klein

N Jim Lacy, RN, BSN, CRNI

Robin Lang

Hubert Maiden

N Laura Matarese, PhD, RD, CNSD

Kathleen McInnes

N Michael Medwar

Meredith Nelson

Nancy Nicholson

Rodney & Paula Okamoto, RPh

Kay Oldenburg

Judy Peterson, MS, RN

Clemens Pietzner

Beverly Promisel

Abraham Rich

N Gail Egan Sansivero, MS, ANP

Roslyn & Eric Scheib Dahl

N Susan & Jeffrey Schesnol

N Doug Seidner, MD, FACG, CNSP

Judi Smith

Steve Swensen

N Cheryl Thompson, PhD, RD, CNSD,

& Gregory A. Thompson MD, MSc

Cathy Tokarz

Eleanor & Walter Wilson

James Wittmann

Patty & Darrell Woods

Rosaline Ann & William Wu

Horizon Society Members

N Felice Austin

N Jane Balint, MD

John Balint, MD

Joan Bishop

Ginger Bolinger

Pat Brown, RN, CNSN

Katherine Cotter

Jim Cowan

N Rick Davis

Ann & Paul DeBarbieri

N David & Sheila DeKold

Tom Diamantidis, PharmD

Selma Ehrenpreis

Herb & Joy Emich

N Jerry Fickle

Don Freeman

Linda Gold

Linda Gravenstein

The Groeber Family

Valerie Gyurko, RN

Alfred Haas

Shirley Heller

Alicia Hoelle

Jeff & Rose Hoelle

Lyn Howard, MD

William Hoyt

N Portia & Wallace Hutton

N Kishore Iyer, MD

Darlene Kelly, MD

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Do Your Part to Ensure the Future of OleyMany thanks to those whose commitment and dedication to the

Oley Foundation has led them to arrange a planned gift to help ensure continuing support, service and advocacy for homePEN

consumers and their families. This year we have many new members who have joined in honor of

Oley’s Executive Director Joan Bishop’s 25th anniversary with the foundation. These members are indicated

with a star (N) next to their name. Help light the wayfor others by getting a star next to your name.

Thinking of Joining?If Oley was there for you and your family in a substantial way, please

think about joining these individuals as a member of the Oley Foundation Horizon Society.

This is our best chance of making sure Oley is there for the next consumer, and the next. A handout is available at the Registration Desk if

you are interested in reading more about how you can join the Horizon Society. You are also encouraged to

speak with Joan Bishop or Roslyn Dahl about any questions you may have regarding planned gifts. If you miss Joan and Roslyn at the conference you can contact them at the office at (800) 776-OLEY or

[email protected] or [email protected].

Horizon Society (con’t)

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The following companies provide over one-half of the funds needed to support Oley programs all year long. Corporate relationships also strengthen our educational and

outreach efforts. For their continued interest and strong commitment we remain grateful.

pLATiNuM LEVEL pARTNERS ($70,000+) Nutrishare, Inc.

GOLDEN MEDALLiON pARTNERS ($50,000–$69,999)Coram Specialty Infusion Services

NutriThrive

SiLVER CiRCLE pARTNERS ($30,000–$49,999)

BRONZE STAR pARTNERS ($20,000–$29,999)Emmaus Medical, Inc.

BENEFACTOR LEVEL pARTNERS ($10,000–$19,999)Abbott NutritionInfuScience, Inc.

Nestlé HealthCare Nutrition

pATRON LEVEL pARTNERS ($5,000–$9,999)Applied Medical Technology, Inc.

Chemique PharmaceuticalsCritical Care Systems, Inc.

EMD Serono, Inc.Hospira, Inc.

Walgreens-OptionCare

BLuE RiBBON pARTNERS ($2,500–$4,999)Baxter HealthcareB. Braun MedicalKimberly-Clark

Sherwood Clinical

CONTRiBuTORS ($1,000–$2,499)C.R. Bard, Inc.MOOG, Inc.

Oley Corporate Partners

OO for Oley

During this conference you will see seven brighly colored O’s

being passed around. These O’s are meant to acknowledge

anyone who has done a special deed for another Oley attendee.

When someone who has one of the special O’s (Person A) sees

another Oley attendee (Person B) doing something good for

someone else, Person A should give Person B their O and say

something special about what they witnessed. The idea is to keep

the O moving throughout the conference.

This idea was taken from Camp Boggy Creek, Florida’s Camp Hole in the Wall.

Map of the Trade Winds

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