Eds Presentation

A tribute to my fellow zebras and spreading

awareness

By Vanessa Balter

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When you hear hoof beats think ZEBRA!!!

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Some info about EDS

• There are several types of eds, the most common being hypermobile, classical, and vascular.

• EDS affects 1/250,000 people• There is NO cure, and no real treatment for

Ehlers Danlos Syndrome • The vascular type is the most deadly form of

eds • The connective tissue holding the joints together

turns into a gum like structure instead of like a rubber band

Symptoms and Tests

• The most common symptoms of EDS are: joint laxity, subluxations, dislocating, stretchy skin, easy bruising, poor wound healing, organ rupture, and severe pain

• To Diagnose Vascular EDS there is a blood test and a skin biopsy, the other forms are harder to diagnose, they use a scale called the Beighton Scale to diagnose hypermobility and classical.

The Beighton Scale • The scale goes up to 9 points • In order to get a diagnosis you must get a score of 5

or higher • Touching thumb to forearm for each hand you get 1

point • Pulling pinky back past 90 degrees 1 point for each

hand• Hyper extending elbow past 180 degrees 1 point for

each arm• Hyper extending knees back past 180 degrees 1

point for each leg• Touching your palms to the floor WITHOUT bending

your knees.





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In loving memory QuickTime™ and a


Steven Smith

5/8/79 - 3/12/03


Pam Windisch

11/9/61 - 10/7/09



J. Marlon Finley

3/31/54 - 1/18/2004


David Daniel Bowen III

3/21/82 - 7/8/96



James Early Barlow Jr

10/25/45 - 12/12/94



Josh Doss

7/14/70 - 1/30/98

YOU ARE NEVER ALONE

• LOOK AT ALL THE BEAUTIFUL PEOPLE WHEN YOU FEEL ALONE IN THE WORLD

• I LOVE YOU ALL SO MUCH!!!!• YOU ARE ALL BEAUTIFUL PEOPLE• YOU’VE HELPED ME KEEP GOING ON AND

I AM HERE FOR YOU • WE WILL NOT STOP FIGHTING UNTIL WE

FIND A CURE!!!! STAY STRONG!!!!!

I wishI wish I could stand up and talk while going on a walkI wish I could brush my hair without having my shoulders flareI loved to mountain climb, but sadly long ago was my last timeLiving in a bed is so sad, just thinking about it makes me so mad. No one believes the pain, in my life there is only rain.“you look fine” people say, well don’t judge because im not OKconstantly living life on the sideline, has really took a toll on my mind dislocating, scarring, sublixin this is all just so much to take inThe pain is so bad I feel like crying, sometimes I feel like my hope is just dying no matter how old eds can have you soldwhy have you given me this body as my tent, is there any way I can put it up for

rent?Already had depression, having eds certainly does not make it lessen. I wish I could live life as a “normal” college kid, feelings of helplessness are ridOh eds the weight you bear is a ton, there is no time in life for fun Why did you have to come to me, leave me alone and let me be freeOne day free of pain, when maybe the sun could shine in my life, and no rain Just once I want to experience that day, there isn’t anything I wouldn’t pay To all of my eds friends, im always here for you with a shoulder to lend On days when you feel like throwing the towel in, im here for you through thick and

through thin.A poem by Vanessa Balter

THANK YOU ALL FOR WATCHING

REMEMBER YOU ARE NEVER ALONE

YOU ARE ALL SO BEAUTIFUL TO ME

LOVE ALWAYS AND FOREVER

~ your fellow zebra

Vanessa Balter

Eds Presentation

Health & Medicine

Transcript of Eds Presentation