Dr. Lori Vitale Cox, 2006 Fetal Alcohol Spectrum Disorder Fetal Alcohol Spectrum Disorder Dr. Lori...
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Transcript of Dr. Lori Vitale Cox, 2006 Fetal Alcohol Spectrum Disorder Fetal Alcohol Spectrum Disorder Dr. Lori...
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Fetal Alcohol Spectrum Fetal Alcohol Spectrum
DisorderDisorder
Dr. Lori Vitale CoxDr. Lori Vitale Cox
[email protected]@nb.nb.ca
506-523-8312506-523-8312
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Fetal Alcohol Spectrum Fetal Alcohol Spectrum Disorder-FASDDisorder-FASD
Spectrum of Neurological and Spectrum of Neurological and Physical DisabilitiesPhysical Disabilities
Takes in A Range of Physical and Takes in A Range of Physical and Behavioral Abnormalities Behavioral Abnormalities
Caused by Prenatal Exposure to Caused by Prenatal Exposure to AlcoholAlcohol
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Is FASD A Health Problem Is FASD A Health Problem In Canada?In Canada?
Incidence FASD in North AmericaIncidence FASD in North America Estimated 1%-10% Per 1000Estimated 1%-10% Per 1000
Higher Prevalence In Communities Higher Prevalence In Communities Where There Are High Rates Of Where There Are High Rates Of Substance AbuseSubstance Abuse
Problem In Any Community Where Problem In Any Community Where Women In Their Childbearing Years Women In Their Childbearing Years Consume AlcoholConsume Alcohol
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Researchers Estimate:Researchers Estimate:
Tens Of Thousands Of Canadian Tens Of Thousands Of Canadian Adults Affected Fetal Alcohol Adults Affected Fetal Alcohol Spectrum Disorders Never Diagnosed Spectrum Disorders Never Diagnosed
((Donovan 1992, Boland et al Donovan 1992, Boland et al 1998)1998)
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Fetal Alcohol Syndrome Fetal Alcohol Syndrome DisorderDisorder
Most Preventable Birth DefectMost Preventable Birth Defect One of the Top 3 Causes of One of the Top 3 Causes of
Developmental DisabilitiesDevelopmental Disabilities Ability Levels Lower OverallAbility Levels Lower Overall Often Within ‘Normal’ RangeOften Within ‘Normal’ Range
Kaplan and Saddock’s Synopsis of Psychiatry (1998)Kaplan and Saddock’s Synopsis of Psychiatry (1998)
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Diagnostic CategoriesDiagnostic Categories
New Canadian GuidelinesNew Canadian Guidelines FASFAS- Fetal Alcohol Syndrome- Fetal Alcohol Syndrome
With Disclosure Or Evidence Maternal DrinkingWith Disclosure Or Evidence Maternal Drinking Without DisclosureWithout Disclosure
PFASPFAS- Partial Fetal Alcohol Syndrome- Partial Fetal Alcohol Syndrome
Fetal Alcohol EffectsFetal Alcohol Effects ARNDARND-Alcohol Related Neurodevelopmental -Alcohol Related Neurodevelopmental
DisorderDisorder
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Primary DisabilityPrimary Disability
DeathDeath Growth DeficiencyGrowth Deficiency Characteristic Physical Changes Characteristic Physical Changes Brain-Central Nervous System DamageBrain-Central Nervous System Damage
Related to Pregnant Pattern and Quantity Related to Pregnant Pattern and Quantity Mothers Drinking WhileMothers Drinking While
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Primary Disability/Physical Primary Disability/Physical ChangesChanges
May Have Defining Facial FeaturesMay Have Defining Facial Features Smaller Eyes/Eyes Wider ApartSmaller Eyes/Eyes Wider Apart Long Smooth Phyltrum-Area Between Long Smooth Phyltrum-Area Between
Nose and Upper LipNose and Upper Lip Thin Upper LipThin Upper Lip
May Be Smaller in Size and Stature May Be Smaller in Size and Stature as Child as Child
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Associated Physical Associated Physical DisabilitiesDisabilities
Changes in the Ear--Middle Ear Changes in the Ear--Middle Ear ProblemsProblems
Changes in the Eyes—Cross Eyes, Lazy Changes in the Eyes—Cross Eyes, Lazy Eye, Drooping LidsEye, Drooping Lids
Heart ProblemsHeart Problems Spinal BifidaSpinal Bifida Seizure DisordersSeizure Disorders Skeletal ProblemsSkeletal Problems
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Associated Physical Associated Physical DisabilitiesDisabilities
‘‘Failure To Thrive’-As an Infant Failure To Thrive’-As an Infant Sleep ProblemsSleep Problems Eating ProblemsEating Problems Increased or Decreased Sensitivity to Increased or Decreased Sensitivity to
Pain, Cold, Heat, Touch, Noise etc.Pain, Cold, Heat, Touch, Noise etc.
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
CNS ChangesCNS Changes
But Often No Outward Physical Sign But Often No Outward Physical Sign Just Brain or Central Nervous System-Just Brain or Central Nervous System-CNS-ChangesCNS-Changes
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Alterations-Brain & Alterations-Brain & BehaviorBehavior
Mattson and Riley Found: Mattson and Riley Found: The Absence Of FAS Facial Features The Absence Of FAS Facial Features
Does Not Preclude Alterations In Does Not Preclude Alterations In Brain And Behavior (Brain And Behavior (Mattson and Riley Mattson and Riley 2001)2001)
Noticeable Brain Changes In Non-Noticeable Brain Changes In Non-Dysmorphic Individuals-Those Dysmorphic Individuals-Those Without Characteristic Changes In Without Characteristic Changes In Face-Using Functional MRI’sFace-Using Functional MRI’s
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Mattson and Riley (1996-Mattson and Riley (1996-2001)2001)
Reduction Volume, Change Shape, Reduction Volume, Change Shape, Location:Location: Corpus CallosumCorpus Callosum
Reduction In Volume: Reduction In Volume: Basil Ganglia, Hippocampus, AmagdylaBasil Ganglia, Hippocampus, Amagdyla Overall Cerebrum and CerebellumOverall Cerebrum and Cerebellum
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Pre-Natal Exposure & the Pre-Natal Exposure & the BrainBrain
Alcohol Exposure Seems To Damages Alcohol Exposure Seems To Damages Certain Areas of The Brain While Certain Areas of The Brain While Other Areas Appear UnaffectedOther Areas Appear Unaffected
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Alcohol and the BrainAlcohol and the Brain
Cerebellum—Coordination, Cerebellum—Coordination, Movement, Behavior and MemoryMovement, Behavior and Memory
Basil Ganglia-Spatial Memory/ Basil Ganglia-Spatial Memory/ BehaviorsBehaviors Perseveration, Task Initiation, Innability Perseveration, Task Initiation, Innability
to Switch Gears, Work Towards Goals, to Switch Gears, Work Towards Goals, Perceive Time, Predict Behavioral Perceive Time, Predict Behavioral OutcomesOutcomes
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Alcohol and BrainAlcohol and Brain
Corpus Collosum-Processing Corpus Collosum-Processing Information From Right Brain to the Information From Right Brain to the LeftLeft
Hippocampus-Part of the Limbic Hippocampus-Part of the Limbic System Involved in Memory and in System Involved in Memory and in EmotionEmotion
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Brain Function/Mind Brain Function/Mind FunctionFunction
Dysfunction In These Brain StructuresDysfunction In These Brain StructuresMEANS MEANS
Changes In Executive Functioning, Changes In Executive Functioning, Memory, Logic, AttentionMemory, Logic, Attention
Difficulty Functioning and Behaving Difficulty Functioning and Behaving
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Mattson and Riley (1996)Mattson and Riley (1996)
Individuals Exposed Without Facial Phenotype-Individuals Exposed Without Facial Phenotype-Outward Physical SignsOutward Physical Signs
Displayed Neurobehavioral Deficits Displayed Neurobehavioral Deficits Verbal LearningVerbal Learning MemoryMemory Language Language AttentionAttention Visual-Spatial AbilityVisual-Spatial Ability Lower Overall Cognitive AbilityLower Overall Cognitive Ability
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
FASD and UnderstandingFASD and Understanding Difficulty Abstract ReasoningDifficulty Abstract Reasoning Difficulty Cause and Effect LogicDifficulty Cause and Effect Logic Ability to Process, Organize, Retrieve, Ability to Process, Organize, Retrieve,
and Remember Information Often and Remember Information Often ImpairedImpaired
Difficulty With Sensory Integration Difficulty With Sensory Integration
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
FASD and BehavingFASD and Behaving
Difficulty With Boundaries-Sense of Difficulty With Boundaries-Sense of SelfSelf
Attention ProblemsAttention Problems Impulse Control or Regulation Impulse Control or Regulation
ProblemsProblems Perseveration-Difficulty ‘Changing Perseveration-Difficulty ‘Changing
Gears’ Gears’
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Damage To Fetus Depends Damage To Fetus Depends On:On:
Maternal NutritionMaternal Nutrition Mother’s Age at GestationMother’s Age at Gestation Quantity Alcohol & Pattern of Quantity Alcohol & Pattern of
Drinking Drinking Timing of Drinking in Relation Timing of Drinking in Relation
Fetal Development Fetal Development Genetic makeup of Fetus Genetic makeup of Fetus
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Research Indicates:Research Indicates:
If Individuals Drink Or Take Drugs If Individuals Drink Or Take Drugs Before They Know They Are Pregnant Before They Know They Are Pregnant They Can Protect Their Baby They Can Protect Their Baby By Stopping Drinking And DruggingBy Stopping Drinking And Drugging By Eating Healthy FoodsBy Eating Healthy Foods By Taking Supplements-Folic Acid and By Taking Supplements-Folic Acid and
Anti-Oxidant Vitamins May Have Anti-Oxidant Vitamins May Have Beneficial Effect— Beneficial Effect— New Research New Research MotherRisk MotherRisk
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Adolescent & Adult Adolescent & Adult Diagnosis Still DifficultDiagnosis Still Difficult
Present Diagnostic Guidelines Still Relies:Present Diagnostic Guidelines Still Relies: On Facial Changes Most Prominent On Facial Changes Most Prominent
Between Ages 2- 11Between Ages 2- 11 These Disappear Become Less Prominent These Disappear Become Less Prominent
In TimeIn Time On Confirmation of Maternal DrinkingOn Confirmation of Maternal Drinking
Difficult to Establish For Many Exposed Difficult to Establish For Many Exposed Adults and AdolescentsAdults and Adolescents
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Why is this a Problem?Why is this a Problem?
Without Diagnosis No Without Diagnosis No Possibility Of: Possibility Of:
InterventionIntervention Prevention Prevention
Intervention
Prevention
Diagnosis
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
How Can We Prevent How Can We Prevent What We Do Not See?What We Do Not See?
Recognition-Diagnosis-Intervention-Recognition-Diagnosis-Intervention-PreventionPreventionRecognition
Diagnosis
Intervention
Prevention
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
FASD Is Often Misdiagnosed FASD Is Often Misdiagnosed Constant Frustration for Constant Frustration for
EveryoneEveryone For Individuals Who Suffer For Individuals Who Suffer
Disability Disability For Their FamiliesFor Their Families For SocietyFor Society
Lack Of Appropriate Services and Supports
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Individuals With FASDIndividuals With FASD
Have Challenging Behaviours & Have Challenging Behaviours & Difficulty in LearningDifficulty in Learning
Perceived as Being ProblemsPerceived as Being Problems
Not Perceived as Having A Problem Not Perceived as Having A Problem
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Problems Functioning:Problems Functioning:School-WorkSchool-Work
Cognitive Problems Cognitive Problems Limited Listening Skills But Often Very Limited Listening Skills But Often Very
Talkative So Other People Don’t RecognizeTalkative So Other People Don’t Recognize Inability To Follow Directions-More Than 1 Inability To Follow Directions-More Than 1
At a TimeAt a Time Does Not Learn From MistakesDoes Not Learn From Mistakes Does Not Generalize LearningDoes Not Generalize Learning
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Problems Functioning:Problems Functioning:School-WorkSchool-Work
Social ProblemsSocial Problems Easily IrritatedEasily Irritated Socially Inappropriate Behaviors-Doesn’t Socially Inappropriate Behaviors-Doesn’t
Respond To Normal Social CuesRespond To Normal Social Cues Problems With RelationshipsProblems With Relationships
Sleeping Problems-Up All Night-Sleep All Sleeping Problems-Up All Night-Sleep All DayDay
Tends To Be Late, Absent Tends To Be Late, Absent
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Challenging BehaviorsChallenging Behaviors Social Problems Social Problems
Possible Sexual Boundary ProblemsPossible Sexual Boundary Problems Possible Problems With Confabulation-Possible Problems With Confabulation-
Lying Without DeceptionLying Without Deception Possible Problems With Concept of Possible Problems With Concept of
Ownership-Stealing Without DeceptionOwnership-Stealing Without Deception Lack of Responsibility For Actions-Lack of Responsibility For Actions-
Blames Others For MistakesBlames Others For Mistakes
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Problems FunctioningProblems Functioning
Emotional ProblemsEmotional Problems Confused, Distorted Thinking-Often Confused, Distorted Thinking-Often
AnxiousAnxious Dangerous, Unsafe BehaviorsDangerous, Unsafe Behaviors Attention Problems-DistractibilityAttention Problems-Distractibility Impulsivity, Self ControlImpulsivity, Self Control Anger Management ProblemsAnger Management Problems Substance Abuse ProblemsSubstance Abuse Problems
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
1992-6 Secondary Disability 1992-6 Secondary Disability
StudyStudy
Ann Streissguth et al (1996) Followed Ann Streissguth et al (1996) Followed 473 Individuals- FASD--Longitudinal 473 Individuals- FASD--Longitudinal StudyStudy
90% Mental Health Problems90% Mental Health Problems 60% Trouble with the Law60% Trouble with the Law 50% Confined Jail or Mental Hospital 50% Confined Jail or Mental Hospital 50% Inappropriate Sexual Behaviour50% Inappropriate Sexual Behaviour 30% Drug and Alcohol Problems30% Drug and Alcohol Problems
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Spiralling ProblemsSpiralling Problems
90% of Individuals With FASD 90% of Individuals With FASD Develop Secondary Disabilities in Develop Secondary Disabilities in the Absence of Intervention the Absence of Intervention Appropriate Levels of Support.Appropriate Levels of Support.
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Layers of TraumaLayers of Trauma
At the Core Neurological Problems– At the Core Neurological Problems– FASD, ADD/ ADHD, Specific Learning FASD, ADD/ ADHD, Specific Learning or Memory Disabilitiesor Memory Disabilities
Other Layers: Other Layers: First Layer: Attachment Disorder-First Layer: Attachment Disorder-
Multiple Unstable Placements-Often Multiple Unstable Placements-Often Associated With AggressionAssociated With Aggression
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Layers of TraumaLayers of Trauma
22ndnd Layer: Post Traumatic Stress Layer: Post Traumatic Stress Disorder –Sexual, Physical Abuse, Disorder –Sexual, Physical Abuse, Witnessing Violence/SuicideWitnessing Violence/Suicide
33rdrd Layer: Their Own Substance Layer: Their Own Substance Abuse-Self MedicationAbuse-Self Medication
44thth Layer: Jail, Institutionalization, Layer: Jail, Institutionalization, Social Abuse in Terms of Social Abuse in Terms of Inappropriate Response To FASD Inappropriate Response To FASD DisabilityDisability
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Beliefs Dictate BehaviorsBeliefs Dictate Behaviors
Accurate Identification Of Etiology of Accurate Identification Of Etiology of FASD Important For Effective-FASD Important For Effective-Appropriate InterventionsAppropriate Interventions
Diagnosis And Subsequent Diagnosis And Subsequent Treatment That Ignores Organicity Of Treatment That Ignores Organicity Of FASD Could Lead To Exacerbating FASD Could Lead To Exacerbating The Behavioral Problems. The Behavioral Problems.
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Misinterpretation Of Misinterpretation Of BehaviorsBehaviors
If Psychologists/Physicians Untrained If Psychologists/Physicians Untrained Easy To Misdiagnose Easy To Misdiagnose
Social Workers-Adoptive Parents Untrained Social Workers-Adoptive Parents Untrained Easy Misinterpret Behaviors/Give UpEasy Misinterpret Behaviors/Give Up
Justice Professionals Untrained Justice Professionals Untrained Easy To Punish Behaviors as CriminalEasy To Punish Behaviors as Criminal
Teachers/Employers UntrainedTeachers/Employers Untrained Easy To Expel, to Fire or to Refuse to HireEasy To Expel, to Fire or to Refuse to Hire
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Professional Training Professional Training EssentialEssential
If Professionals UntrainedIf Professionals Untrained Easy To Unknowingly Perpetrate Easy To Unknowingly Perpetrate
Administrative Violence On Administrative Violence On Individuals Whose Problem Individuals Whose Problem Behavior Is Result Of Disability Not Behavior Is Result Of Disability Not DeviancyDeviancy
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
How Many People Are In Prison How Many People Are In Prison When They Simply Need Higher When They Simply Need Higher
Levels of Support For Longer Levels of Support For Longer Times In Order To Work and Live Times In Order To Work and Live
Productive Lives?Productive Lives?
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Strategy-Start With Self Strategy-Start With Self and Peersand PeersFirst StageFirst Stage
Educate SelfEducate Self Each of Us is a Window To Understanding Each of Us is a Window To Understanding
Teacher, Social Worker, Physician, Foster Teacher, Social Worker, Physician, Foster Parent, Nurse, Judge, Lawyer, Neighbor, Parent, Nurse, Judge, Lawyer, Neighbor, Friend, Teacher Ass’t, Native Elder, Friend, Teacher Ass’t, Native Elder, Psychologist, Counselor, Youth Worker, RCMP, Psychologist, Counselor, Youth Worker, RCMP, Journalist, Correction Officers Journalist, Correction Officers
Educate Peers-Fellow Professionals, Educate Peers-Fellow Professionals, Workers, FriendsWorkers, Friends
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Second StageSecond Stage
Recognition and Referral:Recognition and Referral: Recognition Unacceptable Behaviour Recognition Unacceptable Behaviour
Result Of Untreated DisabilityResult Of Untreated Disability Recognition Huge Lag Between Cognitive Recognition Huge Lag Between Cognitive
& Physical Growth& Physical GrowthWork To Change Practice:Work To Change Practice: Ability Levels Average, Low Average, Ability Levels Average, Low Average,
Borderline-Normally Do Not Qualify For Borderline-Normally Do Not Qualify For Special Service or TreatmentSpecial Service or Treatment
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Developmental Developmental ImpairmentsImpairments
Change Eligibility Requirements: Use Change Eligibility Requirements: Use Adaptive MeasuresAdaptive Measures
Adaptive Behavior Measures Indicate Adaptive Behavior Measures Indicate Severe Developmental ImpairmentsSevere Developmental Impairments
Impairment Functional Living Skills: Impairment Functional Living Skills: e.g. Comprehension, Communicatione.g. Comprehension, Communication
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Timelines And FASDTimelines And FASD
Individual With FASDIndividual With FASD Age 18Age 18ComprehensionComprehension Age 6Age 6Money/Time ConceptsMoney/Time Concepts Age 8Age 8Emotional MaturityEmotional Maturity Age 6 Age 6 Physical MaturityPhysical Maturity Age 18Age 18Reading AbilityReading Ability Age 16Age 16Social SkillsSocial Skills Age 7Age 7Living Skills Living Skills Age 11Age 11
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Timelines And FASDTimelines And FASD
Individuals With Alcohol Related Individuals With Alcohol Related Disabilities May Not Usually Ready To Live Disabilities May Not Usually Ready To Live Independently At 18 Independently At 18
Gradual Catch-Up Noted Young Adults Gradual Catch-Up Noted Young Adults With FASDWith FASD
25-30 May Be More Realistic Timeline25-30 May Be More Realistic Timeline 18 Year Old With FASD Who Looks Like An 18 Year Old With FASD Who Looks Like An
Adult May Actually Be More Like A 8 or 9 Adult May Actually Be More Like A 8 or 9 Year Old On The Inside Year Old On The Inside
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Implications For PracticeImplications For Practice
Social WorkersSocial Workers Support Services Continue Beyond 18 Support Services Continue Beyond 18
For Young Adults With FASDFor Young Adults With FASD
CounsellorsCounsellors Cognitive Therapies Need To Be Cognitive Therapies Need To Be
ChangedChanged Individuals With FASD Can Talk The TalkIndividuals With FASD Can Talk The Talk Difficult To Walk The Walk Without SupportDifficult To Walk The Walk Without Support
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Implications For Implications For InterventionIntervention
Correction Officers, Psychologists, Correction Officers, Psychologists, Addictions Workers, ParentsAddictions Workers, Parents:: Behaviour Modification Needs to Be Behaviour Modification Needs to Be
ModifiedModified Reward/Praise Must Be Immediate or SoonReward/Praise Must Be Immediate or Soon
Positive Try-Again Attitude (No Blame)Positive Try-Again Attitude (No Blame) ‘‘Falls’ Do Not Signify Lack of DesireFalls’ Do Not Signify Lack of Desire
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Individuals FASD Have Individuals FASD Have PotentialPotential
They Need Support To Use Their Abilities They Need Support To Use Their Abilities To Set Reasonable Goals For SelfTo Set Reasonable Goals For Self To Manage MoneyTo Manage Money To Organize Time-Tape Schedule On FridgeTo Organize Time-Tape Schedule On Fridge Some Need Support To Care For Themselves-Some Need Support To Care For Themselves-
Teach Proper Hygiene-Tape Schedule In Teach Proper Hygiene-Tape Schedule In Bathroom Bathroom
To Care For Their Families-Mothers With FASD To Care For Their Families-Mothers With FASD Need In-Home CoachingNeed In-Home Coaching
To Understand Social Systems-Like CourtTo Understand Social Systems-Like Court
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Use Practical AidsUse Practical Aids
Use Schedules-SimplifiedUse Schedules-Simplified Use Digital ClockUse Digital Clock Break Down Tasks-Task AnalysisBreak Down Tasks-Task Analysis Use Pictures To Explain—i.e. Court Use Pictures To Explain—i.e. Court
System, WorkSystem, Work
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Use Practical SupportsUse Practical Supports
Teach Picture-Symbol System For Teach Picture-Symbol System For Communication If NecessaryCommunication If Necessary
Use Role Plays, Contextual LearningUse Role Plays, Contextual Learning Teach the Use Of Calculators, Teach the Use Of Calculators,
ComputersComputers Use Social Stories To Teach Use Social Stories To Teach
BehaviorsBehaviors
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
FASD & Sexual IssuesFASD & Sexual Issues
Use Simplified Books With Pictures Use Simplified Books With Pictures Explain In Concrete Terms Explain In Concrete Terms Discuss Possibility Of Long-Term Birth Discuss Possibility Of Long-Term Birth
Control Like Depo-Provera, IUD’s, Control Like Depo-Provera, IUD’s, Norplant- Because of ImpulsivityNorplant- Because of Impulsivity
Teach About STD’s and ProtectionTeach About STD’s and Protection Close Supervision and Structured Close Supervision and Structured
Social Activities Late Teens and Social Activities Late Teens and TwentiesTwenties
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
We Can Change OutcomeWe Can Change Outcome
Primary Disability Can Not be Cured Primary Disability Can Not be Cured But We Can Change OutcomeBut We Can Change Outcome
Build On Strengths Build On Strengths With the Proper Diagnosis and With the Proper Diagnosis and
Support, Individuals with FASD can Support, Individuals with FASD can Learn to FunctionLearn to Function
Prevent Or Heal Secondary Disabilities Prevent Or Heal Secondary Disabilities
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Adapt Environment Instead Adapt Environment Instead Of PersonOf Person
If Someone Is Physically Challenged We If Someone Is Physically Challenged We Adapt or Modify Environment To Support Adapt or Modify Environment To Support NeedsNeeds
If Someone Has Developmental Disability If Someone Has Developmental Disability We Can Change Outcome By Providing We Can Change Outcome By Providing Appropriate Environment To Support Appropriate Environment To Support NeedsNeeds
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Research: Work and Research: Work and HousingHousing
Research Indicates Lack Of Research Indicates Lack Of Appropriate Living & Working Appropriate Living & Working Environments-Lack of Appropriate Environments-Lack of Appropriate Skill TrainingSkill Training
Only 18% of Individuals FASD Lived Only 18% of Individuals FASD Lived Independently Independently
Only 10% Able To Live Independently Only 10% Able To Live Independently Without Employment Problems Without Employment Problems
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Individuals FASD Can Individuals FASD Can LearnLearn
Animal Studies-Functional Behaviour Animal Studies-Functional Behaviour and Learningand Learning
Alcohol Exposed Chicks Look NormalAlcohol Exposed Chicks Look Normal Failed The Detour Learning Test Day Failed The Detour Learning Test Day
1-31-3
Food Chicks
Gla
ss
Day 4 Learned
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Learning And FASDLearning And FASD
We Can Help Individuals With We Can Help Individuals With FASD Learn and Grow By FASD Learn and Grow By Creating Environments In Which Creating Environments In Which They CanThey Can
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Turn Weaknesses To Turn Weaknesses To StrengthsStrengths
Perseveration Perseveration Persistence Persistence
Hyperactivity Hyperactivity Hyper-Energetic Hyper-Energetic
Inflexibility Inflexibility Commitment Commitment
Daredevil Daredevil CourageCourage
Lack Boundaries Lack Boundaries OpennessOpenness
Distorted Logic Distorted Logic Unique UnderstandingUnique Understanding
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Weaknesses To Weaknesses To StrengthsStrengths
Self-CenteredSelf-Centered Strong Sense of Strong Sense of Self Self
Distorted Perception Rich Fantasy LifeDistorted Perception Rich Fantasy Life Confabulation Confabulation Great StorytellingGreat Storytelling
Oversensitivity Oversensitivity Highly Sensitive Highly Sensitive
ImpulsivityImpulsivity SpontaneitySpontaneity
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
Difference In OutcomeDifference In Outcome
Same Primary DisabilitySame Primary Disability
Prenatal Exposure To AlcoholPrenatal Exposure To Alcohol
Assessment and DiagnosisAssessment and Diagnosis
Appropriate School Appropriate School Interventions Interventions
Stable Home LifeStable Home Life
Dr. Lori Vitale Cox, 2006Dr. Lori Vitale Cox, 2006
FASD Is A Life-Long FASD Is A Life-Long DisabilityDisability
Older Youth Like D.F. Who Are FASD Need: Older Youth Like D.F. Who Are FASD Need: DiagnosisDiagnosis Team Work For Guidance-RelationshipsTeam Work For Guidance-Relationships Supportive StructuresSupportive Structures Routines that become HabitsRoutines that become Habits Consistency Consistency SupervisionSupervision Opportunities To Learn And WorkOpportunities To Learn And Work
Sheltered Work-Job CoachesSheltered Work-Job Coaches Assisted Independent LivingAssisted Independent Living Therapeutic Interventions In and Out of Justice Therapeutic Interventions In and Out of Justice
System System