© Daniel S. Weld 1 Reinforcement Learning CSE 573 Ever Feel Like Pavlov’s Poor Dog?
Does EDS Ever Make You Feel Like This?
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Transcript of Does EDS Ever Make You Feel Like This?
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Sabrina M. Neeley, PhD, MPHDepartment of Community Health
Boonshoft School of MedicineWright State University, Dayton OH
Living with EDS: Developing an Effective Self-Management Strategy to
Maximize Your Health and Quality
of Life
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+ Does EDS Ever Make You Feel Like This?
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+ What is Management?“…the act of getting people
together to accomplish desired goals and objectives using
available resources efficiently and effectively”
-Wikipedia
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+Self-Management of Chronic Health Conditions
MultidimensionalComplexHolisticA path, not a destination
Source: Lorig, et al. 2006. Living a Healthy Life with Chronic Conditions. Bull Publishing Company.
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+ Self-Management TasksTake care of your condition
Building a collaborative care team
Keeping recordsCarry out normal activitiesManage emotional changes
Source: Lorig, et al. 2006. Living a Healthy Life with Chronic Conditions. Bull Publishing Company.
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+ Starting on the Path to Effective Self-Management
Write out your goals and desires (SMART)
List the hurdles - what, when, and how
Have a plan Start a journal Begin where you are now Take one step at a time
Learn from the setbacks Spend time "cleaning
house" Stop comparing yourself to
others Reward yourself
Source: Sparkpeople.com
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+ Keys for Effective Self-Management
Holistic health and wellness perspective
Intrinsic motivationSelf-efficacyPositive support system
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Source: World Health Organization
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+ WellnessWellness is the dynamic process of
becoming aware of, taking responsibility for, and making choices that directly contribute to one's well-being.
Source: Medical Wellness Center, University of Miami
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+ Intrinsic MotivationInternal, rather than externalComes from me, not othersOften goal-oriented, and reinforced by goal achievement
Often diminished by increased extrinsic motivation
Enjoyable, uplifting, energizing
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+ Self-Efficacy = ConfidenceLearning about EDSKnowing what questions to ask a doctor
Making the most of your doctor visitsAdjusting physical activitiesAdjusting dietMaking accommodations to life activities
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+ Building and Maintaining an Effective Support System
Family, friends, co-workers, neighbors, other EDS patients, medical and health professionals
“Independence is being able to get other people to help you.”
Communicate effectivelyBe specific in your requestsDon’t be afraid to fire
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+ Julia Fox GarrisonDon’t Leave Me This Way
“HOPE IS A POWERFUL MOTIVATOR. Hope is always what gets you to the next goal; once achieved, there’s a goal after that. Anyone who tries to kill the hope in your heart is the one you have to be prepared to battle.”
“YOU OWN YOUR CONDITION – and you are generously sharing it with everyone close to you.”
“We’re only victims if we choose to let ourselves be consumed by something. I’m a survivor who continues to thrive.”
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If not now, when?
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Questions?
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+ References Lorig, et al. 2006. Living a Healthy Life with Chronic
Conditions. Bull Publishing Company. Medical Wellness Center, University of Miami.
http://wellness.med.miami.edu/ http://www.sparkpeople.com
Stanford University School of Medicine. Chronic Disease Self-Management Program. http://patienteducation.stanford.edu/programs/cdsmp.html
World Health Organization. http://www.who.int/en/