Data in the service of the Patient is Imporving Patient Outcomes and Patient Safety with Better Data

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1 OncoCollect ™ Collection of Real World Data in Oncology Dr Ramesh B V Nimmagadda Director, Medical Oncology Apollo Speciality Cancer hospital, Chennai & Managing Trustee Ramesh Nimmagadda Cancer Foundation

description

Explains about unanswered clinical questions, use of uptodate associate with improved quality.For more information visit: http://www.transformhealth-it.org/

Transcript of Data in the service of the Patient is Imporving Patient Outcomes and Patient Safety with Better Data

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OncoCollect ™Collection of Real World Data in Oncology

Dr Ramesh B V Nimmagadda

Director, Medical OncologyApollo Speciality Cancer hospital, Chennai

&Managing Trustee

Ramesh Nimmagadda Cancer Foundation

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1) E M R

2) Clinical Data Collection for Analysis

Are two different things

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THE HARD TRUTH IN 2015

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Medical Oncologists- USA vs. India

New Cases 1.6 Million / Yr 1 Million / Yr

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Workload standard recommendations Canada

Workload for MO in teaching RCCs be set at 158 new patients per year.

Workload for MO in nonteaching RCCs be set at 173 new patients per year.

Annual workload increase would require an additional medical oncologist .

New workload standards be implemented over a three year period starting

in fiscal 1999/2000.

Additional data be gathered periodically to determine the workload standard

and manpower requirements due to changing treatments.

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MO needed estimations for India

• 170 new patients per MO we need 5882 • 340 new patients per MO we need 2941 • 510 new patients per MO we need 1960 • 680 new patients per MO we need 1470 • 850 new patients per MO we need 1176

1 Million new and 1.8 million prevalent cases

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1) E M R

2) Clinical Data Collection for Analysis

Are two different things and both are needed but should be kept separate, in India for sure.

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Breast Cancer 1999-2008

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Early Breast Cancer 99-08 Lymph Node

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OncoCollect ™

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Localized Database, Enabled for pooling in the Cloud without Patient Identity Information.

- Encrypted patient identity data- Flexible Dynamic Data Elements, screens on the fly- Responsive Design- Medical Coding- Microsoft .NET Platform- SQL Server 2012- Export to excel and Cloud without Patient Identity Parameters- Built-in Formulas to facilitate Analysis, Statistics and follow ups- Graphical representation of Events

What does it Do...?

www.rncf.in

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OncoCollect ™

Institution - AInstitution - B ---- BLADDER CA STUDY ---- COLON CA STUDYInstitution - C --- BREAST CA STUDY ---- COLON CA STUDYInstitution - D --- BREAST CA STUDY ---- BLADDER CA STUDY

Master (Live Update) Studies

A B C D

- Principal Investigator will have access to download Pooled data of his group’s study

- Data pooled without patient / Consultant Identities

www.rncf.in

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Main ObjectiveEstablish a common platform for data collection in oncology for Treatment and outcomes across the country. Enable individuals and institutions to form groups and pool data for analysis .Enable easy analysis of this data by both individuals and the institutions, to constantly refine their treatments to suit their local conditions.

Ramesh Nimmagadda Cancer Foundation

www.rncf.in

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Ramesh Nimmagadda Cancer Foundation

Vision•To Create a repository of Indian data on Treatment and Outcomes to formulate India-Specific treatment guidelines

for cancer Based on Indian Data www.rncf.in

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OncoCollect ™ Installed so far ..1) Apollo Specialty Cancer Hospital, Chennai

2) Mahavir Cancer Sansthan, Patna

3) Tata Medical Centre, Kolkata

4) Basavtharakam Indo American Cancer Hospital & Research Institute, Hyderabad

5) Rajiv Gandhi Cancer Institute & Research Centre, New Delhi

6) Chennai Breast Centre, Chennai

7) G K N M Hospital, Coimbatore

National Cancer

Grid Accepted

Ramesh Nimmagadda Cancer Foundation

www.rncf.in

Approximately 100000 New patients / Year are seen in these centerswww.rncf.in

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1) 1200 Breast Cancer patient data from Chennai Breast Centre, Chennai2) 750 Lymphoma patient data from Tata Medical Centre, Kolkata3) 165 Triple –Ve Breast Cancer patient data from Chennai Breast Centre, Chennai

To be presented at ISMPO ISO Biennial Conference 6-8 Nov 2015 in Mumbai

Ramesh Nimmagadda Cancer Foundation

www.rncf.in

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Ramesh Nimmagadda Cancer Foundation

OncoCollect ™ is owned by RNCF

OncoCollect ™ is provided free of cost to all involved with treatment of Cancer in India and willing to collect Clinical Data.

www.rncf.in

www.rncf.in

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Thank You

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Establishing Common Minimum Data Collection in the Country

• UHID • Sex• District • State• Postal Code

• Age at Diagnosis• Second Oncology Consultation• Site Of Primary• Date Of Diagnosis• Histology• M Metastases• pT TumourSize• pN LymphNodes• Pathalogical Stage• cT Tumor Size• cN Lymph Nodes• Clinical Stage

Consumed from the EMR

Diagnosis & Staging

• Surgery• Surgical Procedure• Date Of Surgery• Radio Therapy• R/T Site• R/T Start Date• R/T End Date• 1st line Systemic Therapy• 1st Line Drug Group• 1st Line Hormone Therapy• 1st Line Systemic Therapy Type• 1st Recurrence Pattern

• Status• Recurrence

Treatment

Outcome

www.rncf.in

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Breast Cancer 1999-2008


Ensuring compliance of patient data with big data

Ensuring compliance of patient data with big data

RPMS Patient Care Component Data Entry

RPMS Patient Care Component Data Entry

How Safe is Your Patient Data?

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Queensland Hospital Admitted Patient Data … Hospital Admitted Patient Data Collection (QHAPDC) Manual - iv - 2014 – 2015 Collection Year v1.2 4.14 Nursing Home Type Patient (NHTP)

Queensland Hospital Admitted Patient Data … Hospital Admitted Patient Data Collection (QHAPDC) Manual - iv - 2014 – 2015 Collection Year v1.2 4.14 Nursing Home Type Patient (NHTP)

2008 JSM - Meta Study Data vs Patient Data

2008 JSM - Meta Study Data vs Patient Data

Patient-Generated Health Data

Patient-Generated Health Data

Pbn baron – best way to imporving your sites results

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3.01 collect patient data

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Patient Data Ownership

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INFOGRAPHIC: IS YOUR PATIENT DATA PROTECTED?

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Introduced animals on Victorian islands: imporving Australia's … · 1 Introduction The Australian Government’s Department of Environment and Water Resources contracted the Arthur

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Patient Data Exchange Server

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Enhancing patient care through better data

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Privacy of patient data versus patient safety. HIMSS Europe, Nov 6, 2014

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Patient Data Exchange BHEPP

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TOWARDS NTELLIGENT PATIENT DATA GENERATOR

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FloTrac Sensor / EV1000 Clinical Platform...new patient data (patient ID, gender, age, height, and weight) or continue same patient. 3. If entering new patient data, use the touch

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HES Admitted Patient Data Dictionary

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