Current law 276 Other jurisdictions 283 Community ... · 13.16 VCAT has the power to consent to any...
Transcript of Current law 276 Other jurisdictions 283 Community ... · 13.16 VCAT has the power to consent to any...
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13Chapter 13Medical treatment
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CONTENTSIntroduction� 276
Current�law� 276
Other�jurisdictions� 283
Community�responses� 285
The�Commission’s�views�and�conclusions� 290
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13Chapter 13 Medical treatment
INTROduCTION13.1 Inthischapter,theCommissionmakesrecommendationsforreformofthelaw
concerningauthorisationofmedicaltreatmentforpeoplewithimpaireddecision-makingcapacity.
13.2 Thecurrentlawiscomplex,largelybecauseitissometimesnecessarytoconsideranumberofoverlappingstatutesaswellasthecommonlawinordertodeterminethelegalrulesthatapplywhenapersonisunabletomaketheirowndecisionsaboutmedicaltreatment.
13.3 Thischapterdealswiththesubstitutedecision-makingarrangementsformedicaltreatmentintheGuardianship and Administration Act 1986(Vic)(G&AAct)andtheMedical Treatment Act1988(Vic)thatapplytoalladultswhoareunabletomaketheirowndecisionsaboutmedicaltreatment.InChapters23and24,weconsidertheDisability Act 2006(Vic) andthe Mental Health Act 1986(Vic),whichalsodealwithsubstitutedconsentformedicaltreatmentforpeoplewithimpairedcapacityduetoparticulardisabilities.ThelawgoverningsubstituteconsentforparticipationinmedicalresearchproceduresisconsideredinChapter14.
13.4 Thereappearstobeawidespreadlackofunderstandingabouthowthelawregulatesmedicaltreatmentforpeoplewholackcapacitytomaketheirowndecisions,perhapsbecauseofitscomplexity.TheCommission’srecommendationsaimtosimplifythelawandtoimprovecommunityunderstandingofitsoperation.
13.5 Thischaptercontainsrecommendationsthatseektoachievethefollowingoutcomes:
• streamliningthelawregulatingpersonalappointmentsofsubstitutedecisionmakersformedicaltreatmentbyreplacingthetwoexistingmechanismswithonenewprocess
• improvingtheprocedureofautomaticallyappointingapersontobecomethesubstitutedecisionmakerformedicaltreatmentwhenthereisnopersonalguardianwiththepowertomakethesedecisions
• providingappropriateexternalauthorisationofimportantmedicaltreatmentdecisionsbymakingthePublicAdvocatethesubstitutedecisionmakeroflastresortinsomeinstances.
CuRRENT Law13.6 Thecommonlawsupportstherightofalladultswithcapacitytomakedecisions
aboutwhathappenstotheirbodies.Thismeansthatitisunlawfulforanymedicalpractitionertotreatanadultwithouttheirconsent,‘exceptincasesofemergencyornecessity’.1Thecommonlawdoesnototherwisecaterforpeoplewhoareunabletomaketheirownmedicaltreatmentdecisions,becauseitdoesnotallowanadulttoauthorisetreatmentforanotheradultinanycircumstances.2
13.7 InVictoria,thecommonlawrulesconcerningmedicaltreatmenthavebeensupplementedbytwopiecesoflegislationthatallowpeopletomakearrangementsformedicaltreatmentdecisionswhentheyareunabletomaketheirowndecisions.Thislegislationwasfirstpassedinthe1980sandsubsequentlybroadenedbyamendmentinthe1990s.
1 Rogers v Whitaker(1992)175CLR479,489.2 SeeBernadetteRichards,‘GeneralPrinciplesofConsenttoMedicalTreatment’inBenWhite,FionaMcDonaldandLindyWillmott(eds),
Health Law in Australia(LawbookCo,2010)93–111.
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13.8 Since1986,theG&AActhaspermittedatribunaltoappointaguardiantomakemedicaltreatmentdecisionsforapersonwithimpaireddecision-makingcapacity.Since1988,theMedicalTreatmentAct,whichsoughttoclarifythecommonlawrightofpeopletorefusemedicaltreatment,hasallowedapersonwithcapacitytogiveawrittendirectionaboutrefusaloftreatmentthat,insomecircumstances,continuestooperatewhenthepersonnolongerhasthecapacitytomaketheirowntreatmentdecisions.
13.9 TheMedicalTreatmentActwasamendedin1990toallowapersonwithcapacitytoappointanagenttomakemedicaltreatmentdecisionsforthem—includingrefusaloftreatment—shouldtheylosecapacityinthefuture.3
13.10 In1999,theG&AAct wasamendedtoallow:
• apersonwithcapacitytoappointanenduringguardiantomakedecisionsforthemiftheylosecapacity,includingdecisionsaboutmedicaltreatment,and
• apersontobeautomaticallyappointedbyoperationofthelegislation,withouttheneedforanytribunalappointment,withauthoritytoconsenttomedicaltreatmentonbehalfofapersonwhoisunabletoconsentthemselves.Thesubstitutedecisionmakerisreferredtointhelegislationasthe‘personresponsible’andtheprocessisreferredtointhischapterasan‘automaticappointment’ora‘statutoryappointment’.
13.11 Bothpiecesoflegislationrespondedtotheneedsofmedicalpractitionersandthecommunityforclearerallocationoflegalresponsibilityformedicaltreatmentdecisions.TheMedicalTreatmentActsoughttoprovidegreaterclarityandsecurityaboutpotentiallylife-endingwithdrawaloftreatment,whilethe‘automaticappointment’amendmentstotheG&AActsoughttoestablishanefficientmeansofobtainingconsenttotreatpatientswholackedcapacitytomaketheirowndecisions.4
13.12 ThewayinwhichthesetwoActsoperatetogetherisnotclearbecauseMedicalTreatmentActagentsandenduringguardiansappointedundertheG&AActhaveverysimilarroles.WhiletheMedicalTreatmentActwasinitiallyconcernedwithendofliferefusaloftreatment,the1990amendmentappearstopermitapersonwithcapacitytoappointanagenttomakedecisionsaboutanymedicaltreatment.Anenduringguardiancanalsobegivenauthoritytomakeanymedicaltreatmentdecisionsforapersonwhoisunabletodoso,otherthandecisionsabout‘specialprocedures’,whichmustbemadebytheVictorianCivilandAdministrativeTribunal(VCAT).5
ThE GuaRdIaNShIp aNd admINISTRaTION aCT 1986 (VIC)
Substitute decision makers13.13 TheG&AActauthorisessixdifferentsubstitutedecisionmakerstomakesome
decisions,insomecircumstances,foranadultwhois‘incapableofgivingconsent’6to‘medicalordentaltreatment’.7Theyare:
• aguardianappointedbyVCATwithpowertomakemedicaltreatmentdecisions
• anenduringguardianappointedbythepersonconcernedwithpowertomakemedicaltreatmentdecisions
3 Thesearetheprovisionsforappointmentofanenduringpowerofattorney(medicaltreatment):seeMedical Treatment Act 1988 (Vic)s5A.4 TherehadbeenalargenumberofapplicationstoVCATforrelativelyminorprocedures.SeeVictoria,Parliamentary Debates,Legislative
Assembly,22April1999,594–5(MarieTehan).5 SeeGuardianship and Administration Act 1986(Vic)pt4Adiv4.6 Thistermisdefinedins36oftheGuardianship and Administration Act 1986 (1986).7 Thistermisdefinedins3oftheGuardianship and Administration Act 1986(Vic).Foreaseofdiscussion,theterm‘medicaltreatment’isused
throughoutthischaptertoincludewhatisdescribedinpart4AoftheActas‘medicalordentaltreatment’.
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13Chapter 13 Medical treatment• apersonwhoisautomaticallyappointedbyoperationofthelegislationasa
personresponsiblewithpowertoconsenttosomeformsofmedicaltreatment
• VCAT,whichcanmakedecisionsaboutanymedicaltreatment,8includingaspecialprocedure
• a‘registeredpractitioner’,9whocanmakedecisionsaboutanymedicaltreatment,includingaspecialprocedure,whenthepractitionerhasreasonablegroundsforbelievingthatthetreatmentis‘necessary,asamatterofurgency’10
• a‘registeredpractitioner’,whocanmakedecisionsaboutanymedicaltreatmentotherthanaspecialprocedure,whenthepractitionerhasbeenunabletoobtainconsentfromapersonresponsiblefortheproposedmedicaltreatmentwhichthepractitionerbelievestobeinthebestinterestsofthepersonconcernedandappropriatenoticehasbeengiventothePublicAdvocate.11
powers of guardians13.14 Theextentofaguardian’sauthoritytomakedecisionsconcerningmedicaltreatment
dependsonthepowersgiventotheguardianbyVCAT,orthepowersgiventoanenduringguardianbyadonor.Aguardiancanbegiventhepowertomakeanymedicaltreatmentdecisionsthattherepresentedpersoncouldmakeotherthanconsentingtoaspecialprocedure.Aguardianappointedtomakehealthcaredecisionsusuallyhasthepowertoconsenttoanymedicaltreatmentofferedbyaregisteredpractitioner,aswellasthepowertorefuseordeclineanytreatment.
VCaT’s powers13.15 VCAThasthepowertomakedecisionsaboutallformsofmedicaltreatment,
includingspecialprocedures,foranadultwhoisunabletomaketheirowndecisions.Specialproceduresaredefinedaspermanentsterilisations,abortions,andremovalofnon-regenerativetissuefordonation,aswellasanyotherproceduresnamedinregulations.12OnlyVCATcanprovidesubstituteconsentforaspecialprocedure.13
13.16 VCAThasthepowertoconsenttoanymedicaltreatment(orspecialprocedure)offeredbyaregisteredpractitioner,aswellasthepowertorefuseordeclineanytreatment(orspecialprocedure).14
powers of the person responsible13.17 Section37oftheG&AActcontainsahierarchyofpeoplewhoarepermittedby
section39oftheActtoconsentto‘medical(ordental)treatment’foranadultwhoisincapableofdoingsowhenthereisnoguardianwiththepowertomakethesedecisions.TheseautomaticappointmentprovisionsoverlapwiththosepartsoftheActthatpermitaguardiantobegiventhepowertomakemedicaltreatmentdecisions,becauseguardiansareincludedinthelistofpeoplewhoareeligibletobeapersonresponsible.
13.18 Thefirstpersononthelistwhoisavailable,willingandabletoactisthepersonresponsible,whohastheauthoritytoconsenttoorwithholdconsenttotheproposedmedicaltreatment.Thesection37listis:
8 VCATcanalsoappointanotherpersontomakethesedecisions:Guardianship and Administration Act 1986(Vic)s42N(6).9 Thistermisdefinedins3oftheGuardianship and Administration Act 1986(Vic)andincludesregisteredmedicalanddentalpractitioners.10 Thisconceptisexplainedfurtherins42A(1)oftheGuardianship and Administration Act 1986(Vic).11 Guardianship and Administration Act 1986(Vic)ss42Kand42L.12 Ibids3.Therearecurrentlynoadditionalspecialproceduressetoutinregulations.13 Guardianship and Administration Act 1986(Vic)pt4Adiv4.14 Ibidss39,42N.
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• anagentwithanenduringpowerofattorney(medicaltreatment)appointedbythepatientundertheMedicalTreatmentAct15
• apersonspecificallyappointedbyVCATtomakedecisionsabouttheproposedtreatment
• apersonappointedbyVCATunderaguardianshiporderthatincludesauthoritytomakedecisionsabouttheproposedtreatment
• aguardianwithenduringpowerofguardianshipappointedbythepatientandwhoseappointmentincludesauthoritytomakedecisionsabouttheproposedtreatment
• apersonappointedinwritingbythepatientwithauthoritytomakedecisionsabouttheproposedtreatment
• thepatient’sspouseordomesticpartner
• thepatient’sprimarycarer
• thepatient’s‘nearestrelative’.16
13.19 Ifthereisnopersonresponsibleavailable,orthemedicalpractitionercannotfindoutwhothepersonresponsibleis,thenthepractitionercanmakethedecisiontocarryoutthetreatmentwithoutconsent,providingtheyfollowcertainprocedures,whichareexplainedbelow.17
The types of treatment covered13.20 ‘Medicaltreatment’isdefinedbroadlybytheG&AActtoincludeanymedical
treatment‘normallycarriedoutby,orunder,thesupervisionofaregisteredpractitioner’.18‘Dentaltreatment’issimilarlydefined.19Thedefinitionalsoexpresslyexcludesanumberofmattersincluding:
• a‘specialprocedure’
• a‘medicalresearchprocedure’
• non-intrusiveexaminationsmadefordiagnosticpurposes
• first-aidtreatment
• administrationofpharmaceuticaldrugsaccordingtoprescriptionor,ifitisadrugforwhichaprescriptionisnotrequired,accordingtothemanufacturer’sinstructions
• anythingelsesetoutinregulations.20
Consenting to a medical procedure13.21 Thepersonresponsiblemustactinaperson’sbest interestswhendecidingwhether
toconsenttomedicaltreatment.TheG&AActrequiresthepersonresponsibletoconsiderarangeofmatterswhenmakingthis‘bestinterests’determination.Thosemattersare:
• thewishesofthepatient,asfarastheycanbeascertained
15 TheauthorityofanagentappointedundertheMedical Treatment Act 1988(Vic)isdiscussedbelow.16 Nearestrelativeisdefinedins3oftheGuardianship and Administration Act 1986(Vic)asthespouseordomesticpartneroftheperson,or
ifthepersondoesnothaveaspouseordomesticpartner,thefirstlistedinthefollowinghierarchywhoisovertheageof18years(withtheeldestmemberofeachcategorygivenpriority):sonordaughter;fatherormother;brotherorsister;grandfatherorgrandmother;grandsonorgranddaughter;uncleoraunt;nepheworniece.
17 Guardianship and Administration Act 1986(Vic)s42K.18 Ibids3.19 Ibids3.20 Therearecurrentlynoadditionalexclusionsinregulations.
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13Chapter 13 Medical treatment• thewishesofanynearestrelativeoranyotherfamilymembersofthepatient
• theconsequencestothepatientifthetreatmentisnotcarriedout
• anyalternativetreatmentavailable
• thenatureanddegreeofanysignificantrisksassociatedwiththetreatmentoranyalternativetreatment
• whetherthetreatmentistobecarriedoutonlyforthepurposesofpromotingandmaintainingthehealthandwellbeingofthepatient
• anyothermattersprescribedbytheregulations.21
13.22 Additionalmatterscanberelevantifthepatientislikelytobeabletomaketheirowndecisionwithinareasonabletime.Ifthepatientobjectstoanearestrelativebeinginvolvedinthedecision,thepersonresponsibleisnotrequiredtotakethatrelative’swishesintoaccount.22Inaddition,thepersonresponsiblecannotgiveconsentatallunless:
• themedicalpractitionerstatesinwritingthattheybelieveafurtherdelayincarryingoutthetreatmentwouldresultinasignificantdeteriorationofthepatient’scondition,and
• thereisnoreasontobelievethattreatmentwouldbeagainsttheperson’swishes.23
13.23 Ifthepersonresponsibleconsentstomedicaltreatment,thatconsenthasthesamelegaleffectasifthepatienthadconsentedtothetreatmentwiththecapacitytodoso.24
withholding consent and refusing treatment13.24 Thepowersofapersonresponsibledifferfromthoseofamedicalagentunderthe
MedicalTreatmentActoraguardianwithbroadmedicaltreatmentpowers,becauseamedicalagentandaguardianmaymakeafinalandbindingdecisiontorefusetreatmentfortherepresentedperson.Apersonresponsiblecanonlyconsentorwithholdconsenttotheproposedtreatment.
13.25 Part4AoftheG&AActdoesnotdealexpresslywithsubstituterefusaloftreatmentforapersonwithimpaireddecision-makingcapacity.WhiletheActgivesthepersonresponsiblethepowertoconsenttomedicalordentaltreatment,italsorecognisesthatconsentmaybewithheld,becauseitpermitsamedicalpractitionertoproceedwithtreatmentinsomecircumstanceswherethepersonresponsibledoesnotconsent.25Thismeansthatifpersonresponsiblewithholdsconsent,itwillnotalwaysamounttoarefusaloftreatment.ThishasledtoconsiderableconfusionaboutthedifferencebetweenwithholdingconsentundertheG&AActandrefusingtreatmentundertheMedicalTreatmentAct.
Carrying out medical treatment without consentEmergencies13.26 TheG&AActauthorisesaregisteredpractitionertoperformmedicaltreatment
withoutconsentinanemergency.Anemergencyexistswhentheprocedureisnecessary:
21 Guardianship and Administration Act 1986(Vic)s38(1).Therearecurrentlynoadditionalmattersprescribedbyregulation.22 Guardianship and Administration Act 1986(Vic)s38(2).23 Ibids42HA(2).24 Ibids40.25 Ibids42L.
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• tosavethepatient’slife
• topreventseriousdamagetothepatient’shealth,or
• topreventthepatientfromsufferingorcontinuingtosuffersignificantpainordistress.26
13.27 Whilethereisalsoacommonlawpowertoperformmedicaltreatmentwithoutconsentinanemergency,27thisstatutorypowerisprobablymoreextensivethantheauthoritygiventomedicalpractitionersbythecommonlaw.28
When the person responsible is unavailable or withholds consent13.28 Ifamedicalpractitionerisunabletoidentifyorcontactthepersonresponsible,they
maystillcarryoutamedicaltreatmentprocedureiftheybelievethatthetreatmentisinthebestinterestsofthepatientandtheygivenoticetothePublicAdvocate.29
13.29 Ifthepersonresponsibleiscontactedbutwithholdsconsenttothemedicaltreatment,themedicalpractitionercanstillproceedwiththetreatment,iftheybelieveitisinthepatient’sbestintereststodosoandtheyadviseboththepersonresponsibleandthePublicAdvocateoftheirintentiontoproceedwiththetreatment.30ThemedicalpractitionercannotproceedwiththetreatmentuntilthepersonresponsiblehasbeengivenatleastsevendaystoapplytoVCATtochallengethatdecision.31VCAThasbroadpowerstomakeordersitbelievesareinthebestinterestsofthepatient.32
ThE mEdICaL TREaTmENT aCT 1988 (VIC)13.30 TheMedicalTreatmentAct originallysoughttoclarifythecommonlawrightofpeople
torefusemedicaltreatment.The1990amendment33thatpermitsapersontoappointanagentasasubstitutedecisionmakerappearstoallowthepersontoauthorisetheagenttomakeanydecisionsthatthepersoncouldmakeaboutanymedicaltreatmentwhenthepersonisincapableofmakingtheirowndecisions.34
Who can consent to or refuse treatment13.31 Threegroupsofpeoplecanmakedecisionsaboutmedicaltreatmentunderthe
MedicalTreatmentAct.Theyare:
• patients themselves,iftheyhavethecapacitytoso35
• agentsappointedbyanenduringpowerofattorney(medicaltreatment)36
• guardians appointed by VCAT,whereVCAThasincludedthepowertomakedecisionsaboutmedicaltreatmentintheguardianshiporder.37
13.32 Apersonwithcapacitytomaketheirowntreatmentdecisionsmayappointanagent‘tomakedecisionsaboutmedicaltreatment’38forthemiftheybecome‘incompetent’.39Theappointmentismadebyusinganenduringpowerofattorney
26 Ibids42A(1).27 Rogers v Whitaker(1992)175CLR479,489.28 SeeRichards,‘GeneralPrinciplesofConsenttoMedicalTreatment’,aboven2,108–10.29 Guardianship and Administration Act 1986(Vic)s42K.30 Ibids42L.31 Ibids42L(2)(a).32 Ibids42N(6).33 Medical Treatment (Enduring Powers of Attorney) Act1990(Vic).34 Seesection5AandSchedule2totheMedical Treatment Act 1988(Vic).While‘medicaltreatment’whenusedinsection5AandSchedule2
mustmean‘medicaltreatment’asdefinedinsection3ofthatAct,thatstatutorydefinitionappearstobemuchbroaderthanthedefinitionof‘medicaltreatment’insection3oftheGuardianship and Administration Act 1986 (Vic).
35 Medical Treatment Act 1988(Vic)s5.36 Ibidss5A(1)(a)(aa).37 Ibids5A(1)(b).TheMedicalTreatmentActdoesnotrefertopersonallyappointedenduringguardians.38 Medical Treatment Act 1988(Vic)s5A(2)(a),sch2[2].39 Ibids5A(2)(b).
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13Chapter 13 Medical treatment(medicaltreatment).Thereferenceto‘decisions’inthelegislation40suggeststhattheagenthasthepowertoconsenttoandrefusemedicaltreatmentwhentheappointmentisoperative.
The types of treatment covered13.33 TheMedicalTreatmentActcontainsaverybroaddefinitionof‘medicaltreatment’,
describingitasthecarryingoutofanoperation,theadministrationofadrugorotherlikesubstance,oranyothermedicalprocedure.Itexpresslyexcludespalliativecare.41
13.34 Thedistinctionbetweenmedicaltreatmentandpalliativecarehasbeenamatterofsomecontroversy,despitethefactthattheMedicalTreatmentActcontainsdefinitionsofbothterms.42In2003,JusticeMorrisoftheVictorianSupremeCourtfoundthatartificialnutritionandhydrationviapercutaneousendoscopicgastronomy(PEG)wasmedicaltreatmentratherthanpalliativecare.43Thisfindingpermittedaguardianwithpowerstomakedecisionsaboutaperson’smedicaltreatmenttorefusePEGforarepresentedpersonbyrelyingupontherefusaloftreatmentprovisionsoftheMedicalTreatmentAct.
13.35 TheCommissionseesnoneedtorevisitthemeaningofthesetermsintheMedicalTreatmentAct.Thematterisbestlefttothecourtsfordecisiononacase-by-casebasis.TheCommissionalsonotesthatthetermsofreferenceprovidethat‘issuesassociatedwithendoflifedecisions,beyondthosecurrentlydealtwithbytheMedical Treatment Act 1988,arenotwithinthescopeofthereview’.
The procedure for refusing medical treatment13.36 Anagentorguardianmustbeinformedaboutapatient’scurrentconditionbefore
theycanrefusemedicaltreatmentonthepatient’sbehalf.Theremustbesufficientinformationaswouldallowthepatienttomaketheirowndecisionaboutwhethertorefusethetreatment.44Theagentorguardiancanrefusetreatmentifitwouldcauseunreasonabledistresstothepatientoriftherearereasonablegroundsforbelievingthatthepatientwouldconsiderthetreatmentunwarrantediftheywereabletomakethedecisionthemselves.45
13.37 Whenanagentorguardiandecidestorefusetreatmentonbehalfofapatient,itisnecessarytocompletea‘refusal of treatment certificate’.46Thiscertificaterequirestheagentorguardiantodeclarethat:
• theyareauthorisedtomakemedicaltreatmentdecisionsforthepatient
• thepatientisatleast18yearsold
• theyhavebeeninformedaboutthepatient’scondition
• theyunderstandthisinformation
• theybelievethatthepatientwouldnotwantthetreatmenttobeadministered.47
13.38 Twowitnessesmustcertifythattheyaresatisfiedthattheagentorguardianhasbeeninformedabout,andunderstands,thepatient’sconditiontotheextentthatwouldbesufficientifthepatientwereabletomaketheirowndecision.Oneofthesetwopeoplemustbearegisteredmedicalpractitioner.48
40 Ibids5A(2)(a).41 Ibids3.42 Ibiddefinespalliativecareasincluding‘theprovisionofmedicalproceduresforthereliefofpain,sufferinganddiscomfort;orthereasonable
provisionoffoodandwater’.43 Re BWV; Ex Parte Gardner(2003)7VR487,504–5.44 Medical Treatment Act 1988(Vic)s5B(1).45 Ibids5B(2).46 Ibids5B(3).47 Ibidsch3.48 Ibid.
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Consenting to medical treatment13.39 TheMedicalTreatmentActdoesnotsetoutanyprocedureforanagenttofollow
whenconsentingtomedicaltreatment.
Carrying out medical treatment when there is a refusal of treatment certificate13.40 Ifanagentorguardianhascompletedarefusaloftreatmentcertificate,theMedical
TreatmentActonlyallowsmedicaltreatmenttobeundertakenifthepoweroftheagentorguardianissuspendedorrevokedbyVCAT.49AnypersonwhohasaspecialinterestintheaffairsofthepatientcanapplytoVCATforthistohappen.50VCATmaysuspendorrevokethepower,orrevokethecertificateitself,ifitissatisfiedthatitwouldnotbeinthepatient’sbestinterestsfortherefusaloftreatmenttocontinue,orfortheagenttocontinuetoholdthepower.51
OThER juRISdICTIONS13.41 AllotherAustralianjurisdictions,excepttheNorthernTerritory,havelegislationsimilar
totheG&AActthatprovidesforautomaticappointeestomakemedicaltreatmentdecisionsforadultswithimpaireddecision-makingcapacity.Itisinstructivetoconsidersomeoftheimportantpointsofdifference.
dISTINCTION bETwEEN mINOR aNd majOR TREaTmENT fOR ThE puRpOSES Of CONSENT13.42 InNewSouthWales,asinVictoria,adoctormaycarryoutamedicaltreatment
procedurewithouttheconsentofthepersonresponsibleiftheyareunabletoidentifyorcontactthepersonresponsible.InNewSouthWales,thiscanhappenonlyiftheprocedurefitstheAct’sdefinitionofminortreatment.52Majortreatmentwouldrequireaguardiantobeappointed,oranapplicationtothetribunalforitsconsent.Minortreatmentisanytreatment,otherthanspecialtreatmentorclinicaltrials,notdefinedbyregulationasbeingmajortreatment.53
13.43 TheNewSouthWalesregulationsdescribemajortreatmentas:
• injectionoflong-actinghormonesforcontraceptionorregulatingmenstruation
• administeringadrugofaddiction
• administeringageneralanaestheticor,insomecases,asedative
• anytreatmenttoeliminatemenstruation
• certaintreatmentsthataffectthecentralnervoussystem
• treatmentsthathaveahighlevelofriskinrelationtodeath,braindamage,paralysis,scarring,distress,prolongedrecovery,etc.
• anytestforHIV.54
13.44 InQueensland,minoranduncontroversialtreatmentmaybecarriedoutwithoutconsent,aslongasthehealthpractitionerbelievesitwillpromotethepatient’shealthandwellbeingandthattherearenoobjectionstoit.TheActdoesnotactuallydefine‘minoranduncontroversial’treatment,leavingthismattertobedeterminedonacase-by-casebasis.55
49 Ibids5D.Otherwisethemedicalpractitionermaycommittheoffenceofmedicaltrespass:ats6.50 ThePublicAdvocateandtheagentoranalternateagentmayalsoapply:Medical Treatment Act 1988(Vic)5C(2).51 Medical Treatment Act 1988(Vic)ss5C(3).52 Guardianship Act 1987(NSW)s37.53 Ibids33.54 Guardianship Regulation 2005(NSW)reg10.55 Guardianship and Administration Act 2000(Qld)s64.
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13Chapter 13 Medical treatment
pRINCIpLES TO GuIdE dECISION makERS13.45 TheAustralianCapitalTerritorylegislationincludesprinciplesthatguidethedecisions
madebyanysubstitutedecisionmaker—anydecisionaboutmedicaltreatmentmustbemadeaccordingtothoseprinciples.56TheQueenslandActcomplementsitsbroaddecision-makingprincipleswithspecifichealthcareprinciples.57
pROVISION Of INfORmaTION13.46 TheAustralianCapitalTerritorylegislationalsoincludesaprovisionrequiringhealth
professionalstogivecertaininformationtoa‘healthattorney’,whoistheAustralianCapitalTerritoryequivalentofapersonresponsible.58TheActalsorequiresahealthprofessionaltoinformthePublicAdvocateifahealthattorneyisconsentingtoaparticularmedicaltreatmentprocedureforaperiodlongerthansixmonths.59
auTOmaTIC appOINTmENTS Of SubSTITuTE dECISION makERS13.47 NewSouthWaleswasthefirstAustralianjurisdictiontorespondtotheproblems
associatedwithsubstitutedconsentformedicaltreatmentbyestablishingaschemeforautomaticstatutoryappointmentsofsubstitutedecisionmakers.60Otherjurisdictionsquicklyfollowed,andnowVictoria,theAustralianCapitalTerritory,61SouthAustralia,62Queensland63andTasmania64alldealwithautomaticappointmentofsubstitutedecisionmakersformedicaltreatmentinlegislationbroadlysimilartothatoperatinginNewSouthWales.
13.48 InQueensland,apersonknownasthe‘statutoryhealthattorney’isautomaticallyappointedtomakedecisionsabouthealthcaremattersifnoonehasbeenappointedundertheGuardianship and Administration Act 2000(Qld)tomakehealthcaredecisions.Healthcaremattersmustfirstbedealtwithaccordingtoanyhealthdirectivemadebythepersonconcerned,thenbyanyguardianappointedbythetribunal,andthenbyanyenduringappointmentmadebytheperson.Ifnoneoftheseappointmentshasbeenmade,the‘statutoryhealthattorney’appointedunderthePowers of Attorney Act 1998 (Qld)becomesthedecisionmaker.
13.49 Thelegislationsetsoutahierarchyofpeoplewhocanbethe‘statutoryhealthattorney’,beingfirstthespouseoftheperson,thentheirunpaidcarer,thentheirclosefriendorrelativeandthen,finally,ifnoneofthosepeopleareavailable,theQueenslandAdultGuardian.65
13.50 Inallofthesejurisdictions,otherthanQueensland,automaticappointeescanonlymakedecisionsaboutmedicaltreatment.InQueensland,admissiontosomenursingfacilitiesisincludedinthelistofhealthcaredecisionstowhichastatutoryhealthattorneycanconsent.66
alberta, Canada13.51 WhilealloftheAustralianjurisdictionshavesomekindof‘standinglist’ofautomatic
appointees,theCanadianprovinceofAlbertatakesadifferentapproach,permittingamedicalpractitionertochoosewhotheappropriatedecisionmakershouldbe.
56 Guardianship and Management of Property Act 1991 (ACT)s32E.57 Guardianship and Administration Act 2000(Qld)sch1.58 Guardianship and Management of Property Act 1991 (ACT)s32G.59 Ibids32J.60 See Guardianship Act 1987(NSW)s33A.61 SeeGuardianship and Management of Property Act 1991(ACT)pt2A.62 SeeGuardianship and Administration Act 1993(SA)s59.63 SeeGuardianship and Administration Act 2000(Qld)s66andPowers of Attorney Act 1998(Qld)s63.64 SeeGuardianship and Administration Act 1995(Tas)s39.65 Powers of Attorney Act 1998 (Qld)s63.66 Guardianship and Administration Act 2000(Qld)sch2s5.
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InAlberta,a‘specificdecisionmaker’isauthorisedtomakevarioushealthcaredecisions.Thispersonisarelativechosenbythehealthcareproviderapplyingcriteriasetoutinthelegislation.67
Tribunal reviews13.52 EachAustralianjurisdictionwithanautomaticappointmentssystemprovidesforsome
limitedtribunalreviewofthewayinwhichthepowersareexercisedinaparticularcase.InQueensland,theactualappointmentcanbereviewed,68whileinNewSouthWales,asinVictoria,69atribunalcanbeaskedtoconsenttotreatmentthatthepersonresponsiblehasrefusedtoauthorise.70
COmmuNITy RESpONSES13.53 Intheconsultationpaper,theCommissionidentifiedanumberofreformproposals
thatsoughttosimplifythelawgoverningsubstitutedecisionmakingformedicaltreatmentforpeoplewithimpairedcapacity.
haRmONISaTION Of ThE G&a aCT aNd ThE mEdICaL TREaTmENT aCT13.54 AnimportantoptionwastheproposaltoharmonisetheG&AActandtheMedical
TreatmentActtoovercometheconfusioncausedbyhavingtwoActsthatallowapersontomaketwodifferentappointmentsofasubstitutedecisionmakerwithmedicaltreatmentpowers.TheCommissionsuggestedthatMedicalTreatmentActagentsandenduringguardianswithmedicaltreatmentpowersshouldmergewithinanew,singlepersonalappointmentofapersontomakesubstitutemedicaltreatmentdecisions.
13.55 WediscusscommunityresponsestothatideainChapter10andtheCommission’srecommendationtocombinethoseappointments.Weconsiderthatrecommendationinmoredetaillaterinthischapter.InChapter17,theCommissionrecommendsnewprinciplestoguidesubstitutedecisionmakers.Laterinthischapter,wealsoconsideradditionalprinciplesthatshouldguidemedicaltreatmentdecisions.
auTOmaTIC appOINTmENTS—ThE pERSON RESpONSIbLE13.56 TheCommissionalsoproposedreformoftheautomaticappointmentsschemeinthe
G&AAct.Intheconsultationpaper,theCommissionnotedtheapparentwidespreadlackofawarenessoftheautomaticappointmentprocessandtheroleofthepersonresponsible.
13.57 TheCommissionproposedretainingthe‘personresponsible’hierarchybutsuggestedchangestoclarifytheroleandresponsibilitiesoftheposition.
The person responsible hierarchy13.58 Communityresponsesandsubmissionsweregenerallysupportiveofthecurrent
‘personresponsible’hierarchyandthecurrentAct’sprovisions,71althoughsomepeoplevoicedconcernsaboutlackofawarenessofthesystembymembersofthecommunityandbymedicalpractitioners.72Otherresponsespointedtothelimitedoversightoftheframeworkandalackofunderstandingbythepersonresponsibleabouttheirrole.73
67 Adult Guardianship and Trusteeship Act,SA2008,cA-4.2,s89(1).68 Powers of Attorney Act 1998(Qld)s113.69 Guardianship and Administration Act 1986 (Vic)s42N(6).70 Guardianship and Administration Act 1987(NSW)s44.71 SubmissionsCP19(OfficeofthePublicAdvocate),CP27(CatholicArchdioceseofMelbourne),CP44(LeadershipPlus),CP59(Carers
Victoria),CP71(SeniorRightsVictoria).72 SubmissionCP68(AustralianNursingFederation),CP73(VictoriaLegalAid).73 SubmissionCP19(OfficeofthePublicAdvocate),CP65(CouncilontheAgeingVictoria).
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13Chapter 13 Medical treatment13.59 TheVictorianEqualOpportunityandHumanRightsCommissionadvocatedchanges
tothecurrenthierarchy,arguingthatallpersonalappointmentsshouldprecedeVCATappointments.74
13.60 Therewereconcernsexpressedaboutthehierarchy’slackofculturalvariabilityandthefactthatitautomaticallyfavourstheoldestpersoninanycategorywhendeterminingtheidentityofthenearestrelative.TheCatholicArchdioceseofMelbournenotedthatthepersonresponsiblemightnotalwaysbethemostappropriateindividualinthecircumstancestomakeadecision.75Thesubmissionconceded,however,thatalegislativeschemeforautomaticdecisionmakerscannotcapturetherangeofpersonalandculturalfactorsthatmakeoneperson,ratherthananother,amoresuitablesubstitutedecisionmaker.76
Scrutiny of automatic appointees13.61 Initsconsultationpaper,theCommissionaskedwhethernewguardianshiplegislation
shouldprovideforenhancedscrutinyofdecisionsofautomaticappointeesbyuseofpracticessuchasrandomauditingbythePublicAdvocateofdecisionsby‘personsresponsible’.
13.62 Thereweremixedresponsestotheproposal.Varioussubmissionsthoughtthatthecurrentprovision,whichpermitsanapplicationtoVCATconcerningaperson’sbestinterestsinthecontextofproposedtreatment,wasadequate.77
13.63 ThePublicAdvocatepointedoutthattheabilitytoapplytoVCATtoremovethe‘personresponsible’israrelyexerciseddespiteseriousdoubtsaboutthewaythatsomeoneismakingdecisions.78
dEfINITION Of mEdICaL TREaTmENT13.64 Intheconsultationpaper,theCommissionproposedexpandingthedefinitionof
‘medicaltreatment’intheG&AActbecauseofconcernsthatitexcludedproceduresforwhichpriorconsentwouldberequiredwhendealingwithapersonwithcapacity.TheCommissionnotedthatbroadeningthedefinitionwouldmeanthatpeopleconnectedtothepersonwithimpairedcapacityratherthanhealthprofessionalswouldberesponsibleformoresubstitutehealthcaredecisionsthaniscurrentlythecase.
13.65 Therewasbroadsupportforwideningthedefinitiontoencompassabroaderrangeoftreatmentsthatfallwithinordinaryperceptionsofmedicaltreatment.Onesubmissioncommentedthatabroaderdefinitionwouldbeconsistent‘withtheincreasingtrendforhealthprofessionalsotherthandoctorstoprovidehealthcare’.79Therangeofavailablehealthcareservicesismuchbroaderthanthatcurrentlycoveredbythedefinitionof‘medicaltreatment’intheG&AAct,andincludesalternativemedicinesandparamedicalservices.
13.66 ThePublicAdvocatesuggestedbroadeningthedefinitiontoincludetheadministrationofpharmaceuticaldrugsaswellasparamedicalandcomplementarymedicalprocedures,whilealsomakingitconsistentwiththedefinitionof‘medicaltreatment’inboththe MedicalTreatmentActandtheMentalHealthAct.80Themostsignificantofthesedifferences,asnotedabove,istheMedicalTreatmentAct’sexclusionof
74 SubmissionCP66(VictorianEqualOpportunityandHumanRightsCommission).75 SubmissionCP27(CatholicArchdioceseofMelbourne).76 Ibid.77 SubmissionCP22(Alzheimer’sAustraliaVictoria),CP27(CatholicArchdioceseofMelbourne),CP59(CarersVictoria),CP73(VictoriaLegal
Aid).78 SubmissionCP19(OfficeofthePublicAdvocate).79 SubmissionCP63(Shin-NingThen,ProfLindyWillmott&AssocProfBenWhite(QUT)).80 SubmissionCP19(OfficeofthePublicAdvocate).
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palliativecarefromitsdefinitionofmedicaltreatment.81ThePublicAdvocatealsosuggestedthatlegislationshouldlistexamplesoftreatmentsthatfallwithinthenewdefinition.82
13.67 Theinclusionoftheadministrationof‘medication’withinthedefinition,asisthecaseinNewSouthWales,wasstronglysupportedbymostsubmissionsthatcommentedonthisissue,includingthePublicAdvocate,EpworthHealthCareandtheCatholicArchdiocese.83
13.68 ThePublicAdvocatepointedoutthatcurrentpracticemakesiteasytoprovidestandardmedicationswherepractitionerscannotobtainconsentfromthepersonresponsible.84However,thePublicAdvocatealsopointedoutthatadministeringcertaindrugsisnotalwaysasimpleanduncontroversialprocedure.ItcanamounttotreatmentthathasmoresignificantconsequencesthansometreatmentscurrentlyregulatedbytheAct,suchaswhenthereareadverseeffectsfromtheadministrationofadrug.85
13.69 Severalsubmissionsexpressedconcernabouttheuseofbehaviourmodifyingdrugs.TheAMAnotedthattheAct’scurrentexclusionofpharmaceuticaldrugsfromitsdefinitionofmedicaltreatmenthasallowedtheexcessiveuseofbehaviourmodifyingdrugsinagedcarefacilities,becauseconsentfortheiradministrationisnotrequired.86AsubmissionbyDrMichaelMurrayarguedthat‘thisisanareasubjecttosignificantabusewithregularfailuretoconsult’.87
13.70 RespectingPatients’Choicesdidnotsupportexpandingthedefinitionofmedicaltreatmenttoincludetheprovisionof‘medication’.Theybelievethatexpandingthedefinitiontoencompasspharmaceuticalswouldmakethetreatmentofpatientsunabletoconsenttooralmedication‘verydifficult’.88
13.71 Broadeningthedefinitionofmedicaltreatmenttoincludecomplementaryandparamedicalprocedureswaswidelysupported.89
mINOR mEdICaL pROCEduRES13.72 IntheconsultationpapertheCommissionalsoaskedwhetheramedicalpractitioner
shouldberequiredtoobtainformalconsentfromthepatientorthepersonresponsibleforminoranduncontroversialmedicaltreatment.
13.73 Thereformoptionpresentedintheconsultationpaperwouldallowmedicalpractitionerstoperformminorprocedureswithoutconsent,subjecttosatisfyingcertainproceduralconditionsthatmightinclude:notifyingVCAT;seekingasecondmedicalopinion;orrecordinginthepatient’sfilethedecisiontoperformtheprocedurewithoutconsentandthereasonsfordoingthis.
13.74 Twoapproachesfordistinguishingbetween‘minor’and‘major’treatmentwerediscussedintheconsultationpaper:
• theNewSouthWalesapproach,whichdefinesmajortreatmentandprovidesthatminortreatmentisthatwhichisnotmajortreatment
81 Medical Treatment Act 1988(Vic)s3.82 SubmissionCP19(OfficeofthePublicAdvocate).83 Ibid,CP20(EpworthHealthCare),CP27(CatholicArchdioceseofMelbourne)andCP69(AustralianMedicalAssociation(Victoria)).84 SubmissionCP19(OfficeofthePublicAdvocate).85 Ibid.86 ConsultationwiththeAustralianMedicalAssociationVictoriaLimited(18May2011).87 SubmissionCP47(DrMichaelMurray).88 SubmissionCP49(RespectingPatientChoicesProgram—AustinHealth).89 Fore.g.,submissionCP19(OfficeofthePublicAdvocate),CP20(EpworthHealthCare),CP24(AutismVictoria),CP33(EasternHealth),
CP59(CarersVictoria),CP68(AustralianNursingFederation)andCP75(FederationofCommunityLegalCentres).
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13Chapter 13 Medical treatment• theQueenslandapproach,whichrefersto,butdoesnotdefine,‘minorand
uncontroversial’treatmentandprovidesexamplesofproceduresthatmayfallintothiscategory.Twoexamplesaregiven:theadministrationofanantibioticrequiringaprescriptionandtheadministrationofatetanusinjection.90Ahealthcarepractitionermustalsobesatisfiedthatthetreatmentwillpromotethehealthandwellbeingofthepatientandthattherearenoobjectionstoit.91
13.75 WhilesomesubmissionsadvocatedadoptingtheNewSouthWalesorQueenslandapproaches,92othershighlighteddefinitionalproblemsandthepotentialforabuseinremovingthesafeguardofconsentforminorprocedures.93SeniorsRightsVictoriasupportedtheQueenslandapproach.94
13.76 ThesubmissionbymembersoftheHealthLawResearchProgramattheQUTFacultyofLawsuggestedthat‘minoranduncontroversial’shouldbe‘narrowlydefined’.95Theydoubtedwhetherproceduralsafeguardssuggestedintheconsultationpaperwouldbeeffectivebecausethereisnooversightofthesedecisions.96
13.77 ThePublicAdvocatesupportedpermitting‘minoranduncontroversial’treatmenttoproceedwithoutconsent.97ThePublicAdvocatefavouredtheNewSouthWalesdefinitionalapproach,whichdefines‘majortreatment’.98Asasafeguard,thePublicAdvocaterecommendedthatpractitionersobtainasecondopinion,notedonthepatient’smedicalrecordandverifiedbythatpractitioner’ssignature.99
13.78 EpworthHealthCareagreedthat‘minor’proceduresshouldnotrequireconsentiftheproceduralconditionsoutlinedintheconsultationpaperaresatisfied.100
13.79 Otherhealthbodiesweregenerallysupportivebutuncertainabouthowtodifferentiatebetween‘minor’andotherformsoftreatment.TheRoyalDistrictNursingServicefavoureditinprinciple,butsaidthattheyneededtoconsiderhowthetwoconceptscouldbedistinguishedinpractice.101
13.80 VictoriaLegalAidandtheVictorianEqualOpportunityandHumanRightsCommission(thecommission)didnotsupportthisproposal.VictoriaLegalAidarguedthatalesserstandardshouldnotapplytoindividualswithdiminishedcapacity.102Thecommissionhighlightedthepracticalproblemofdrawingadistinctionbetween‘minor’andotherformsoftreatment.However,thecommission’smainobjectionwasthattheproposalhadthepotentialtoleadtohumanrightsabuses.103Thecommissionarguedthat‘thecurrentsituationallowingsubstituteconsenttomedicaltreatmentisalreadyfraughtwithhumanrightsimplicationsthatrequirestrictsafeguardstopreventabuse’.104Accordingly,thecommissioncontendedthatwhereapersonreceivingtreatmentisunabletoconsent,liftingtherequirementforconsentbyasubstitutedecisionmakerunacceptablyinfringesacorehumanrightenshrinedintheCharter of Human Rights and Responsibilities Act 2006(Vic)(theCharter).105
90 Guardianship and Administration Act 2000(Qld)s64(1).91 Ibid.92 Foreg,SubmissionsCP19(OfficeofthePublicAdvocate),andCP63(Shin-NingThen,ProfLindyWillmott&AssocProfBenWhite(QUT)).93 SubmissionCP35(UrsulaSmith),CP56(DisabilityDiscriminationLegalService),CP73(VictoriaLegalAid)andCP75(Federationof
CommunityLegalCentres(Victoria)).94 SubmissionCP71(SeniorsRightsVictoria).95 SubmissionCP63(Shin-NingThen,ProfLindyWillmott&AssocProfBenWhite(QUT)).96 Ibid.97 SubmissionCP19(OfficeofthePublicAdvocate).98 Ibid.99 Ibid.100 SubmissionCP20(EpworthHealthCare).101 ConsultationwithRoyalDistrictNursingService(9March2011).102 SubmissionCP73(VictoriaLegalAid).103 SubmissionCP66(VictorianEqualOpportunityandHumanRightsCommission).104 Ibid.105 Ibid.
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13.81 Somesubmissionshighlightedthefactthatindividualsunderstandandexperiencemedicaltreatmentdifferently.Alzheimer’sAustralia(Victoria)saidthattreatmentsareneverinsignificantforindividualswhoareweakandlackcapacity.106AutismVictoriasaidthatapersonlivingwiththeconditionmaybecomedistressedbecausetheydonotcomprehend‘thedifferenceorconsequenceofaprocedurewhetherminorornot’.107
SpECIfIC pRINCIpLES fOR mEdICaL dECISION makERS13.82 Intheconsultationpaper,theCommissionproposedthatautomaticappointeesshould
adoptasubstitutedjudgmentapproachtomedicaldecisionmakingbyseekingtomakedecisionsthatthepersonwouldmakethemselves,iftheyhadcapacitytodoso.TheCommissionnotedthatthisapproachdiffersfromtheexisting‘bestinterests’standardbecauseitfocusesonthelikelywishesoftherepresentedperson.WediscussthisapproachtodecisionmakingmoregenerallyinChapter17.Inthatchapter,theCommissionrecommendsthatdecisionmakersshouldmakedecisionsthatpromotethepersonalandsocialwellbeingofthepersontheyarerepresenting.Thisapproachinvolvesaconsiderationofsubstitutedjudgmentprinciples.
13.83 MostresponsestotheconsultationpapersupportedasubstitutedjudgmentapproachtodecisionmakingalthoughthesubmissionfromAlzheimer’sAustralia(Victoria)pointedoutthedifficultyindeterminingwhatshouldhappenwhenthesubstitutedecisionmakerfacesamedicaltreatmentdecisionthattherepresentedpersonhadnotconsideredwhentheyhadcapacity.108
13.84 ThePublicAdvocatesuggestedthatthepatient’spersonalandsocialwellbeingshouldbethekeyguide.Itwasnotedthattheprincipleofsubstitutedjudgmentisimportantbutshouldnotbetheonlyfactorthatthepersonresponsiblereliesupontomakeadecision.109ThePublicAdvocatesupportedageneralsetofprinciplestoassistdecisionmakersinalltypesofdecisions,andtheinclusionofadditionalprinciplestoguidedecisionmakersinrelationtomedicaltreatment.110
13.85 TheAdHocInterfaithCommitteeandtheCatholicArchdioceseofMelbournearguedthatbestinterestsshouldberetainedastheguidingprincipleforhealthdecisions.111Theyarguedthatthisapproachbestservespeoplewithdisabilities,andthattherearesignificantrisksassociatedwiththeproposaltomakesubstitutedjudgmenttheparamountconsideration.112
SpECIaL mEdICaL pROCEduRES fOR mINORS13.86 ThePublicAdvocatebelievesthatguardianshipprovisionsconcerningmedical
treatment113shouldapplytoallpeoplewithdisabilities,notjustthoseovertheageof18.114Currently,theFamilyCourtmakesmedicaltreatmentdecisionsforchildrenthatarebeyondparentalcapacity.115ThePublicAdvocatenotedthesedecisionsareoften‘ethicallycomplex’.Itquestionedtheappropriatenessofthesedecisionsbeing
106 SubmissionCP22(Alzheimer’sAustraliaVic).107 SubmissionCP24(AutismVictoria).108 SubmissionCP22(Alzheimer’sAustraliaVic).109 SubmissionCP19(OfficeofthePublicAdvocate).110 Ibid.111 SubmissionsCP27(CatholicArchdioceseofMelbourne)andCP52(AdHocInterfaithCommittee).112 Ibid.113 Guardianship and Administration Act 1986(Vic)pt4A.114 SubmissionCP19(OfficeofthePublicAdvocate).115 Department of Health & Community Services v JMB and SMB (Marion’s Case)(1992)175CLR218ruledthatconsenttocertainmedical
proceduresfallsoutsideparentalauthority. Marion’s Caseinvolvedtheproposedsterilisation,forreasonsnotbasedonmedicalnecessity,ofayoungwomanwithanintellectualdisability.AsFehlbergandBehrensnote,thejudgmenthad‘threekeyfeatures’:thesterilisationprocedurewassignificantandirreversible;thelikelihoodthatparentsmisjudgetheirchild’spresentandfutureabilitytoconsentand‘bestinterests’;andthe‘consequencesofawrongdecisionareparticularlygrave’:BelindaFehlbergandJulietBehrens,Australian Family Law: The Contemporary Context(OxfordUniversityPress,2008)261,quoting(‘Marion’s Case)(1992)175CLR218,250.
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13Chapter 13 Medical treatmentdeterminedintheFamilyCourtbecauseoftheadversarialnatureofthatCourtandtheprohibitivecostsofFamilyCourtapplications.116
13.87 ThePublicAdvocatearguedthat,insomecircumstances,VCATwouldbeamoreappropriatebodytomakethesedecisionsforchildrenwithadisabilitythantheFamilyCourt.117ItwasarguedthatVCATisbettersuitedtomakesuchdecisionsbecauseitis‘anaccessibleandinquisitorialforum’withexperienceinhearingcasesconcerningmedicaltreatmentofadults.118ThePublicAdvocatesuggestedthatVCATshouldbeabletomakemedicaldecisionsconcerningchildren.119ThiswouldresultinVCAThavingsharedjurisdictionwiththeFamilyCourttoconsenttospecialproceduresforchildrenwithdisabilities.
13.88 TheCommissiondoesnotbelievethatitisconstitutionallypossibletoimplementthePublicAdvocate’ssuggestion,becausetheVictorianParliamentreferreditsrelevantlegislativepowerstotheCommonwealthin1986.120EvenifitwerepossiblefortheVictorianParliamenttolegislateaboutthismatter,itwouldbeunnecessarilyconfusingforaCommonwealthcourtandaVictoriantribunaltohaveconcurrentjurisdictioninrelationtocomplexmedicaltreatmentissuesthatoftenrequirequickandfinaldecisions.
ThE COmmISSION’S VIEwS aNd CONCLuSIONSa NEw pERSONaL appOINTmENT fOR mEdICaL dECISION makING13.89 TheCommissionbelievesthatitisimportanttostreamlinethelawregulatingpersonal
appointmentsofsubstitutedecisionmakersformedicaltreatmentbyreplacingthetwoexistingmechanismswithanew,simpleprocess.Itisunhelpfultohavetwomechanisms—anagentappointedundertheMedicalTreatmentActandanenduringguardianwithmedicaltreatmentpowersappointedundertheG&AAct—forpersonallyappointingapersontomakemedicaltreatmentdecisionsfortheprincipalwhentheyareunabletomaketheirowndecisions.
13.90 TheCommissionrecommendsthatnewguardianshiplegislationshouldcontainonlyonemechanismforpersonallyappointingasubstitutedecisionmakerformedicaltreatment.Thisproposalwouldeffectivelymergethetwocurrentpersonalappointmentsofsubstitutedecisionmakersformedicaltreatment.
13.91 Theproposednewenduringpersonalguardian,discussedinChapter10,wouldbecomethesolenewmechanismforpersonallyappointingamedicalsubstitutedecisionmaker.Thepersonwhomakestheappointmentwoulddeterminetheextentofthepowersgiventotheirenduringpersonalguardian,whichcouldincludetheendoflifedecision-makingpowersthatmaybegiventoanagentappointedundertheMedicalTreatmentAct.Thisstepwouldbeamatterofchoiceforthepersonwhomakestheappointment.
13.92 Nousefulpurposeisservedbyretainingtwostatutorymechanismsforpersonallyappointingasubstitutedecisionmakertomakedecisionsaboutmedicaltreatment.Giventheneedforcertaintyabouttheextentofasubstitutedecisionmaker’spowerswhenmakingendoflifedecisions,newguardianshiplegislationshouldcontainprovisionsthatmirrortheexistingsectionsoftheMedicalTreatmentActthatpermitagentsandguardianstomakerefusaloftreatmentcertificates.121
116 SubmissionCP19(OfficeofthePublicAdvocate).117 SubmissionsIP8(OfficeofthePublicAdvocate)andCP19(OfficeofthePublicAdvocate).118 SubmissionCP19(OfficeofthePublicAdvocate).119 Ibid.SeealsoOfficeofthePublicAdvocate(Victoria),What Role Should VCAT have for Persons Under the Age of 18 Years?(June2010),4
<http://www.publicadvocate.vic.gov.au/file/file/Research/Discussion/2010/VCAT%20age%20criteria.doc>.120 Commonwealth Powers (Family Law – Children) Act 1986(Vic).121 Medical Treatment Act 1988(Vic)ss5A–5F.
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13.93 WhilethisrecommendationwouldcausethosesectionsintheMedicalTreatmentActthatconcernsubstitutedecisionmakerstoberemovedandfoldedintonewguardianshiplegislation,theremainingsectionsshouldberetainedbecausetheyestablishausefulprocessbywhichapersoncangivedirectionsaboutunwantedmedicaltreatment.
13.94 Toavoiddoubt,itwouldalsobehelpfulfornewlegislationtoprovidethatVCATcanappointapersonalguardianwiththepowertomakedecisionsaboutanyhealthcaremattersthattherepresentedpersoncouldmakeadecisionabout,otherthanspecialprocedures.
13.95 Newguardianshiplegislationshouldalsomakeitpossibleforapersonwhocompletesarefusaloftreatmentcertificate—whetherasaprincipalorasanenduringpersonalguardianwiththepowertodoso—tofilethatcertificatewiththeRegistrarofBirths,DeathsandMarriagesforinclusionintheonlineregisterthatisdescribedinChapter16.
RECOmmENdaTIONSA new personal appointment for medical decision making
199.Newguardianshiplegislationshouldpermitapersontoappointanenduringpersonalguardiantomakedecisionsabouthealthcaremattersforthemwhentheydonothavethecapacitytomaketheirownhealthcaredecisions,includingthepowertocompletearefusaloftreatmentcertificateinthemannerinwhichthisstepcanbetakenbyanagentappointedundertheMedical Treatment Act 1988(Vic).
200.NewguardianshiplegislationshouldintegratetheprovisionsintheMedical Treatment Act 1988(Vic)concerningtheappointmentofanagenttomakemedicaltreatmentdecisionsforapersonwholackscapacitywiththeprovisionsinthenewlegislationconcerninghealthdecision-makingpowersthatcanbegiventoanenduringpersonalguardian.
201.IftheprovisionsintheMedical Treatment Act 1988(Vic)concerningtheappointmentandpowersofanagentarefullyintegratedwithprovisionsinnewguardianshiplegislationconcerningtheappointmentandpowersofanenduringpersonalguardian,theprovisionsoftheMedicalTreatmentActconcerningtheappointmentofanagentshouldberepealedinsofarastheyapplytoappointmentsmadefromthedateofthecommencementofnewguardianshiplegislation.
202.Itshouldbepossibleforthetribunaltoappointapersonalguardianwiththepowertomakedecisionsabouthealthcaremattersforapersonwhodoesnothavethecapacitytomaketheirownhealthcaredecisions.
203.ItshouldbepossibleforapersonwhomakesarefusaloftreatmentcertificateforthemselvesinaccordancewiththeprovisionsoftheMedical Treatment Act 1988(Vic),oranenduringpersonalguardianwiththepowertomakearefusaloftreatmentcertificatefortheprincipal,tofilethatcertificatewiththeRegistrarofBirths,DeathsandMarriagesforinclusionintheonlineregister.
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13Chapter 13 Medical treatment
auTOmaTIC appOINTmENTS13.96 WhiletheCommissionrecommendsretentionofthestatutoryschemeofautomatically
appointingapersontomakemedicaltreatmentdecisionsforapersonwhoisunabletomaketheirowndecisions,itproposesanumberofimprovements.
health decision makers13.97 Thenameofthepersonwhoisautomaticallyappointedtomaketreatmentdecisions
byvirtueoftheirrelationshiptothepersonwholackscapacitytomaketheirowndecisionsshouldbechangedbecausethecurrentterm—‘personresponsible’—isnotwidelyknownorunderstood.TheCommissionrecommendsthatthispersonshouldbereferredtoasthe‘healthdecisionmaker’becausethistermclearlydescribesthenatureoftherole.
Guardians distinguished from health decision makers13.98 Theautomaticappointmentschemeformedicaltreatmentdecisionsshouldbeclearly
distinguishedfrompersonalguardianswiththepowertomakemedicaltreatmentdecisions.
13.99 TheG&AActdoesnoteffectivelydifferentiateaguardianwithmedicaltreatmentpowersfromapersonwhoisautomaticallyappointedasapersonresponsible,becauseitincludesguardianswithinthehierarchyofpeoplewhocanbethe‘personresponsible’.Thisunnecessarystepappearstolimitthepowersofaguardianwhoactsasapersonresponsible,becauseapersonresponsibleisonlypermittedtoconsenttotreatmentorwithholdconsent.Incontrast,aguardianwithmedicaltreatmentpowerscanconsenttotreatmentorrefusetreatmentfortherepresentedpersonwhenactingasaguardian.ItisunlikelythatthiswastheintendedoutcomewhenguardiansandMedicalTreatmentActagentswereincludedinthelistofpeoplewhocouldbeapersonresponsible.
13.100 TheCommissionbelievesthatifsomeonehasappointedapersonalguardianwiththepowertomakemedicaltreatmentdecisions,orifVCAThasmadesuchanappointment,thepersonalguardianshouldbethefirstpersonwhoisaskedtomakedecisionsforapersonwhoisunabletomaketheirowndecisions.Thispersonshouldactasapersonalguardianwhentheymakethesedecisionsandnotasastatutory‘healthdecisionmaker’.
13.101 Theautomaticappointmentschemeshouldonlyoperatewhenthereisnopersonalguardianwiththeappropriatepowersorwhenthatpersonisnotavailabletomakethenecessarytreatmentdecisions.Theautomaticappointmentschemeshouldnotincludeapersonalguardianamongthehierarchyofsubstitutedecisionmakers,becauseapersonalguardianwiththeappropriatepowersisalreadyauthorisedtomakemedicaltreatmentdecisions.Theautomaticappointmentschemeisadefaultmechanismforappointingasubstitutedecisionmakerwhenthereisnoonewiththeauthoritytomakethedecisioninquestion.
RECOmmENdaTIONAutomatic appointment of a health decision maker
204.Newguardianshiplegislationshouldprovidefortheautomatic(statutory)appointmentofasubstitutedecisionmaker—tobeknownasahealthdecisionmaker—tomakemedicaltreatmentdecisionsforapersonwholacksthecapacitytomaketheirowndecisionsandwhodoesnothaveanenduringpersonalguardianorapersonalguardianwiththepowertomakethosedecisionsforthem.
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The powers of guardians and health decision makers13.102 Thedifferencebetweenthemedicaltreatmentpowersofapersonalguardianand
thoseofahealthdecisionmakershouldbeclearlyexplainedinnewlegislation.Undercurrentlaw,theextentofaguardian’spowersdiffersfromthoseofapersonresponsiblewhenmakingmedicaltreatmentdecisionsforapersonwhoisunabletomaketheirowndecisions.WhilethedraftingoftheG&AActgeneratessomeconfusion,122aguardianwithhealthcarepowershasthepowertomakeanymedicaltreatmentdecisionthattherepresentedpersoncanmake,otherthanconsentingtoaspecialprocedure.Asanadulthasacommonlawrighttorefuseanymedicaltreatment,123aguardianwithappropriatepowersmustalsohavetheauthoritytorefusetreatmentonbehalfoftherepresentedperson.
13.103 TheCommissionrecommendsthatnewguardianshiplegislationshouldclearlyindicatethatapersonalguardianwiththepowertomakehealthcareormedicaltreatmentdecisionshastheauthoritytoconsenttoanytreatmentortorefusethattreatment.AnypersonwhosoughttochallengearefusaloftreatmentwoulddosobyaskingVCATtoconsiderwhetherthepersonalguardianshouldretainauthoritytomakesomeorallmedicaltreatmentdecisionsfortherepresentedperson.
13.104 UndertheG&AAct,a‘personresponsible’hasthepowertoconsenttoanymedicaltreatmentfortherepresentedperson,otherthanaspecialprocedure.124Thepersonresponsiblealsohasthepowertowithholdconsenttoanymedicaltreatment.Withholdingconsentdoesnotconstituterefusaloftreatment,becausetheregisteredpractitionerispermittedtoproceedwiththetreatmentifthepersonresponsibleandthePublicAdvocatehavebeengivenanopportunitytoapplytoVCATforadeterminationaboutwhatshouldhappeninthecircumstancesandtheydeclinetotakethisstepwithinadesignatedperiod.125
13.105 Therearegoodpolicyreasonsfordistinguishingbetweenthepowersofanenduringguardianandahealthdecisionmakertoactinawaythatcausesarepresentedpersonnottoreceivetreatmentrecommendedbyaregisteredpractitioner.PersonalguardiansarepeoplewhohavebeenchosenbythepersonconcernedorVCATtomakeimportantdecisionsforthatperson.Itisappropriatethattheyhavethepowertomakeanydecisionsthattherepresentedpersoncouldmakeinthecircumstances.Healthdecisionmakersareautomaticordefaultappointees—theyarechosenbecauseoftheirrelationshiptothepersonconcernedratherthanfollowinganindividualdeterminationoftheirsuitabilitytomakemedicaltreatmentdecisions.Itisappropriatethatthesepeoplehavemorelimitedpowersthanpersonalguardians.
13.106 TheCommissionrecommendsthatahealthdecisionmakershouldhavesimilarpowerstothoseofapersonresponsible—thepowertoconsenttoorwithholdconsenttoanymedicaltreatmentotherthanaspecialprocedure.NewguardianshiplegislationshouldalsocontainaprocesssimilartothatintheG&AActthatpermitsaregisteredpractitionertoproceedwhenconsenthasbeenwithheldafterthehealthdecisionmakerandthePublicAdvocatehavebeengivenareasonableopportunitytoseekarulingfromVCATabouttheproposedtreatment.
122 Theformsetoutinsch4oftheG&AActforusewhenappointinganenduringguardianreferstoapower‘toconsenttoanyhealthcarethatisinmybestinterests’andsubsequentlyrefersinanotetothepowerofanenduringguardian‘toconsentorwithholdconsenttomedicalordentaltreatment’.Thiswordingisunfortunatebecauseadecisionaboutmedicaltreatmentcouldbeapositivedecisiontorefusethattreatmentratherthananequivocaldecisiontowithholdconsent.
123 LoaneSkene,Law and Medical Practice: Rights, Duties, Claims and Defences(LexisNexisButterworths,3rded,2008)329.124 Guardianship and Administration Act 1986(Vic)s39(1)(b).125 Ibids42L.
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13Chapter 13 Medical treatment
RECOmmENdaTIONSThe powers of guardians and health decision makers
205.Newguardianshiplegislationshouldclearlyindicatethatapersonalguardianwiththepowertomakehealthcareormedicaltreatmentdecisionshasthepowertoconsenttoorrefuseany‘medicaltreatment’,otherthana‘specialprocedure’,fortherepresentedpersonwhenthatpersonlacksthecapacitytomaketheirowndecisionaboutthematter.
206.Ahealthdecisionmakershouldbepermittedtoconsentorwithholdconsenttoany‘medicaltreatment’,otherthana‘specialprocedure’,fortherepresentedpersonwhenthatpersonlacksthecapacitytomaketheirowndecisionaboutthematter.
207.Newguardianshiplegislationshouldcontainaprocesssimilartothatsetoutinsections42L,42Mand42NoftheGuardianship and Administration Act 1986(Vic),whichpermitsaregisteredpractitionertoproceedwithtreatmentwhenconsenthasbeenwithheldbythehealthdecisionmakerafterthehealthdecisionmakerandthePublicAdvocatehavebeengivenareasonableopportunitytoseekarulingfromthetribunalabouttheproposedtreatment.
hierarchy of health decision makers13.107 TheCommissionrecommendsretentionofthepersonresponsiblehierarchyinthe
G&AActsubjecttotwochanges.First,forthereasonsjustgiven,thehierarchyshouldnotincludeanenduringpersonalguardianoraguardianappointedbyVCATwithmedicaltreatmentpowersbecausetheautomaticprocessshouldonlycomeintoeffectwhenthereisnopersonalguardianwithauthoritytomakemedicaltreatmentdecisions.
13.108 Secondly,inChapter9,theCommissionproposedtheintroductionofanewjointdecision-makingarrangementknownasa‘co-decisionmakingorder’.Insomecircumstances,apersonwithimpaireddecision-makingabilitywhohasaco-decisionmakerinrelationtomedicaltreatmentmaylosetheabilitytoparticipateinthosedecisions.Inthissituation,theco-decisionmakershouldbecomethehealthdecisionmaker.
13.109 TheCommissionacknowledgesthattheprocessofchoosingamedicalsubstitutedecisionmakerforapersonbyuseofastatutoryautomaticappointmentsystemisnotwithoutitsflaws.Apersonwhoisautomaticallyappointedtomakedecisionsforanotherisnotrequiredtomeetthesuitabilityrequirementsinsections23and47oftheG&AActthatVCATmustconsiderbeforeitmakesanappointment.Additionally,thispersonmightnotbetheonewhowouldhavebeenchosentoactinthisrolebythepersonwhoisunabletomaketheirownmedicaltreatmentdecisions.
13.110 Differentcultureshavedifferentconceptsoftheroleoffamily,andsometimestheirbroadercommunity,indecisionmaking.Someculturesaremoreinclinedtorecognisemultipledecisionmakersandextendedfamily,whilesomehavearoleforcommunityelders.Intheconsultationpaper,theCommissionacknowledgedthechallengeofdesigningasystemthatcanadapttodifferentculturalcircumstancesandyetremainworkableforthirdparties,suchasmedicalpractitioners,whooftenneedtoidentifyasubstitutedecisionmakerquickly.
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13.111 Theautomaticappointmentschemegivesstatutoryrecognitiontothelongstandingpracticeofaskingaperson’snextofkintomakemedicaltreatmentdecisionswhentheyareunabletodoso.Whiletheentireprocess,andparticularlythedefinitionof‘nearestrelative’,126isopentocriticism,theschemeisaworkable,yetimperfect,meansofseekingauthorisationtotreatapersonwhoisincapableofmakingtheirowndecisionaboutthematterwhenitisnotpracticaltoconductahearingtodecidewhothemostappropriatepersonistomakethedecisionsinquestion.
RECOmmENdaTIONHierarchy of health decision makers
208.Thehierarchyofstatutorilyappointedhealthdecisionmakersinnewguardianshiplegislationshouldbe:
(a) thepatient’sco-decisionmakerwithauthorityinrelationtomedicaltreatmentdecisions
(b) thepatient’sspouseordomesticpartner
(c) thepatient’sprimarycarer
(d) thepatient’snearestrelative.
The public advocate as decision maker of last resort13.112 TheCommissionrecommendsthatthePublicAdvocateshouldbecomethedecision
makeroflastresortwhenthereisnopersonalguardianwithmedicaltreatmentpowersorahealthdecisionmakerwhoisavailabletomakeadecisionabout‘significanttreatment’forapersonwhoisunabletomaketheirowndecision.ThisproposalmirrorsthepositioninQueensland,wheretheAdultGuardianisthehealthdecisionmakeroflastresort.127
13.113 Thecurrentsystemofpermittingaregisteredpractitionertoproceedintheabsenceofconsent,ifthepractitionerhasmadereasonableeffortstolocateasubstitutedecisionmakerandifthepractitionernotifiesthePublicAdvocateofanintentiontoproceedwithoutconsent,128doesnotappeartooperatesuccessfully.ItseemsthatthePublicAdvocatereceivesrelativelyfewnotices,perhapsbecausetheprocessistimeconsumingandnotwidelyknown.
13.114 Itisimportantthatsignificantmedicalproceduresareauthorisedbysomeonewhoisresponsibleforthewellbeingofthepersonconcernedandwhoisnotdirectlyinvolved,eitherprofessionallyorfinancially,intheadministrationofthoseprocedures.Itisalsoimportantthatthisprocessofexternalauthorisationisrestrictedtosignificantmedicalproceduresandthathealthprofessionalsareabletoadministerroutinetreatmenttoapersonwhoisunabletomaketheirowndecisions,withouttheneedforexternalauthorisationorunhelpfulreportingrequirements.
13.115 ThePublicAdvocate’sroleasthedecisionmakeroflastresortshouldbelimitedtothosemattersthatconstitute‘significantprocedures’,becauseoftheneedtoensurethatthePublicAdvocate’sresourcesandthetimeofhealthprofessionalsisexpendedwisely.Thedistinctionbetween‘significantprocedures’and‘routineprocedures’isdiscussedbelow.
126 Guardianship and Administration Act 1986(Vic)s3.127 Powers of Attorney Act 1998 (Qld)s63.128 Guardianship and Administration Act 1986(Vic)s42K.
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13Chapter 13 Medical treatment
RECOmmENdaTIONThe Public Advocate as decision maker of last resort
209.ThePublicAdvocateshouldbepermittedtoconsenttoorrefuseany‘medicaltreatment’,whichis‘significanttreatment’,forapersonwhodoesnothavethecapacitytoconsenttothattreatmentandwhodoesnothaveapersonalguardianwiththerelevantpowers,orahealthdecisionmaker,toactastheperson’ssubstitutedecisionmaker.
definition of medical treatment13.116 TheCommissionrecommendschangestothestatutorydescriptionoftherangeof
medicaltreatmentthatrequirestheconsentofasubstitutedecisionmakerifapersonisunabletoconsenttotheirownmedicaltreatment.TheCommissionbelievesthatthestatutorydefinitionofmedicaltreatmentshouldbeexpandedtoincludesomemedicalproceduresthatarecurrentlyexcluded.Itshouldalsobedividedintotwocategories—’significantprocedures’and‘routineprocedures’—forthepurposesofdeterminingtheprocessestofollowwhenthereisnopersonalguardianorhealthdecisionmakertomakedecisionsforapersonwhoisunabletoconsenttotheirownmedicaltreatment.
13.117 TheCommissionbelievesthatthestatutorydefinitionofmedicaltreatmentshouldencompasstheadministrationofprescriptionpharmaceuticaldrugs.Allpharmaceuticaldrugs—prescriptionandnon-prescriptiondrugs—areexpresslyexcludedfromthecurrentdefinitionofmedicaltreatmentintheG&AAct.129Thismeansthat,inpractice,prescriptiondrugsareoftengiventoapersonwhoisunabletoconsenttotheirownmedicaltreatmentwithoutanyauthorisationbyaguardianorapersonresponsible.
13.118 Thecurrentdefinitionisalsolimitedto‘medicaltreatment’or‘dentaltreatment’.Whilethesetermsarenotdefinedexhaustively,theyarelimitedtotreatmentcarriedout‘byorunderthesupervisionofaregisteredpractitioner’.Thisprobablymeansthatintrusivetreatmentscarriedoutbyalliedhealthprofessionals,whichmighttechnicallyconstituteanassaultifperformedwithoutconsent,donotfallwithintheauthorisationpowersofapersonresponsible.
13.119 TheCommissionbelievesthatthestatutorydefinitionofmedicaltreatmentshouldalsobeexpandedtoincludeproceduresperformedbyalliedhealthprofessionalswhichareintrusiveandwhichwouldconstituteanassaultintheabsenceofconsent.
13.120 Therewaswidespreadsupportforincludingtheadministrationofpharmaceuticaldrugswithinthestatutorydefinitionofmedicaltreatment.Theadministrationofsomeprescriptiondrugsmaybeassignificantandintrusiveforapersonasothermedicaltreatmentproceduresthatfallwithinthestatutorydefinition.Somepeopleexpressedconcernabouttheliberaluseofpsychotropicmedicationinsomeagedcarefacilitieswithoutanyauthorisationbyaguardianorpersonresponsible.Itisappropriatethatsubstitutedecisionmakersmaketheseimportanthealthcaredecisions.
13.121 Theadministrationofnon-prescriptionmedicationseemslessproblematic.Itappearssufficienttorelyonnormalcareprinciplesforensuringthatthosemedicationsarenotmisusedoroverusedbypeoplewhoareunabletomaketheirowndecisions.TheCommissionbelievesthatthenewdefinitionofmedicaltreatmentshouldspecificallyexcludemedicationthatcanbeobtainedwithoutaprescriptionandisnormallyself-administered,provideditisadministeredinaccordancewiththemanufacturer’sinstructions.ThisapproachistakeninQueenslandguardianshiplegislation.
129 Ibids3.
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RECOmmENdaTIONDefinition of medical treatment
210.Newguardianshiplegislationshouldcontainadefinitionof‘medicaltreatment’thatisinsimilartermstothedefinitionof‘medicalordentaltreatment’insection3oftheGuardianship and Administration Act 1986(Vic)exceptasfollows:
(a) Theadministrationofpharmaceuticaldrugsforwhichaprescriptionisrequiredshouldfallwithinthedefinition.
(b) Paramedicalandalliedhealthprocedureswhichinvolveatouchingoftheperson’sbodyandwhichareintrusiveshouldfallwithinthedefinition.
Significant and routine medical procedures13.122 Asnotedearlier,thecurrentsystemofpermittingaregisteredpractitionerto
administermedicaltreatmentintheabsenceofconsent,ifthepractitionerhasmadereasonableeffortstolocateasubstitutedecisionmakerandifthepractitionernotifiesthePublicAdvocateofanintentiontoproceedwithoutconsent,130isunwieldyandshouldnotberetainedinnewguardianshiplegislation.
13.123 TheCommissionproposesthatthePublicAdvocateshouldbecomethedecisionmakeroflastresortwhenthetreatmentinquestionis’significant’.Whenthetreatmentinquestionis’routine’,thehealthprofessionalconcernedshouldbepermittedtoproceedintheabsenceofanyauthorisation,ifappropriatenotesaremadeofunsuccessfulattemptstolocateapersonalguardianorhealthdecisionmakerforsubstituteconsent.
13.124 Itisnoteasytodeviseprincipledandpracticaldefinitionsof‘significant’and’routine’medicaltreatment.TheCommissionbelievesthatatwo-stepprocessisrequired.Newguardianshiplegislationshoulddefinetheconceptsinbroadterms,withtheirpracticalmeaningamplifiedbyguidelinespreparedbythePublicAdvocateinconjunctionwithrelevantprofessionalbodiesandinterestgroups.
13.125 Animportantprincipletobearinmindwhenseekingtodefine‘significanttreatment’isthatpeoplewhoareunabletoconsenttotheirowntreatmentshouldbedealtwithinthesameway,wheneverpossible,aspeoplewhoareabletoconsenttotheirowntreatment.Ifahealthprofessionalwouldordinarilyseekspecificconsenttoperformingaparticularprocedurefromapersonwithcapacitytoconsenttotheirowntreatment,thisprocedureshouldpresumptivelybe‘significanttreatment’thatrequiresexternalauthorisationwhenperformeduponapersonwhoisunabletoconsent.
13.126 Anotherimportantprincipletobearinmindissubjectiveassessmentofthesignificanceofsomeprocedures.Whilesomemedicalanddentalproceduresmightberoutinefromaprofessionalperspective,thedegreeofintrusionormomentarypainthatpeoplemightexperiencecouldcausethemtoregardtheprocedureassignificant.
13.127 TheCommissionsuggeststhatthefollowingmattersshouldfallwithinthestatutorydefinitionof‘significanttreatment’:
• ‘significantdegreeofbodilyintrusion’,whichmayincludeinternalandintimateexaminations
• ‘significantrisk’tothepatient,includingtreatmentsthatmayresultinsomeseriousbodilydamage
130 Ibids42K.
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13Chapter 13 Medical treatment• ‘significantlynegativesideeffects’,includingtheadministrationofpharmaceutical
drugswithseriousadverseeffects
• ‘significantdistress’,includingthedistressapersonmayfeelwhentheyareabouttoreceiveaninjectionoraparticulartreatmentthatisknowntocausethemfearandanxiety.
13.128 Thestatutorydefinitionof‘significanttreatment’shouldbecomplementedbyguidelinespreparedbythePublicAdvocateinconsultationwithprofessionalassociationsandgroupsthatrepresenttheinterestsofconsumersofhealthservices.Theguidelinesshouldindicate,withreasonableprecision,theproceduresthatfallwithintheconceptof‘significanttreatment’orforwhichthePublicAdvocateisthedecisionmakeroflastresort.
13.129 TheCommissionproposesthataregisteredpractitionershouldbeauthorisedtoperforma‘routineprocedure’onapersonwhoisunabletoconsentandwhodoesnothaveapersonalguardianorhealthdecisionmakertoprovidesubstituteconsent,ifreasonableattemptshavebeenmadetolocatesuchapersonandnotesarekeptofthestepstaken.ThisrecommendationwouldovercomethecurrentrequirementthataregisteredpractitionernotifythePublicAdvocateinwritingoftheirintenttoperformtreatmentuponapersonwhoisunabletoconsentandwhodoesnothavealocatablesubstitutedecisionmaker.
13.130 TheCommissionrecommendsthatregisteredpractitionersshouldberequiredtotakereasonablestepstolocateapersonalguardianorhealthdecisionmakerbeforetheyareauthorisedtoperformaroutineprocedureonapersonwhoisunabletoconsenttothatprocedure.
13.131 Thisrequirementwouldnotaffecttheabilityofaregisteredpractitionertoperformanynecessarytreatmentinanemergency,becausetheCommissionproposesthattheexistingemergencytreatmentpowersintheG&AAct131shouldbereproducedinnewguardianshiplegislation.
RECOmmENdaTIONSSignificant and routine medical procedures
211.Newguardianshiplegislationshoulddefine‘significanttreatment’asamedicalordentalprocedure,otherthananemergencyprocedureoraspecialprocedurethat:
(a) involvesasignificantdegreeofbodilyinvasion,or
(b) involvesasignificantrisktothepatient,or
(c) islikelytohavesignificantlynegativeorunpleasantsideeffectsforthepatient,or
(d) islikelytoresultinsignificantdistressforthepatient,and
(e) wouldordinarilycauseamedicalpractitionertoseekspecificconsentfromapersonwithcapacitybeforeproceeding.
Guidelines to be developed by the Public Advocate
212.ThePublicAdvocateshoulddevelopandpublishguidelinesinconsultationwithrelevantprofessionalbodiesandotherinterestedorganisationstoassistregisteredpractitionerswhendeterminingwhetheraparticularprocedureis‘significanttreatment’.
131 Ibids42A.
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Definition of routine treatment
213.Newguardianshiplegislationshoulddefine‘routinetreatment’asamedicalordentalprocedurethatisnotan‘emergencyprocedure’,a‘significantprocedure’ora‘specialprocedure’.
Consent to a significant medical treatment
214.Newguardianshiplegislationshouldprovidethatifapersonisunabletoconsentto‘significanttreatment‘,theregisteredpractitionermayundertakethatprocedureonlywiththeconsentof:
(a) apersonalguardianwiththepowertomakedecisionsaboutthematter,orifthereisnosuchpersonorthatpersoncannotbereasonablylocated
(b) ahealthdecisionmaker,orifthereisnosuchpersonorthatpersoncannotbereasonablylocated
(c) thePublicAdvocate.
Consent to a routine medical treatment
215.Newguardianshiplegislationshouldprovidethatifapersonisunabletoconsenttoa‘routineprocedure’,theregisteredpractitionermayundertakethatprocedure:
(a) withtheconsentofapersonalguardianwiththepowertomakedecisionsaboutthematter,orifthereisnosuchpersonorthatpersoncannotbereasonablylocated
(b) withtheconsentofahealthdecisionmaker,orifthereisnosuchpersonorthatpersoncannotbereasonablylocated
(c) intheabsenceofconsentiftheregisteredpractitionerhastakenreasonablestepstolocateapersonalguardianorahealthdecisionmakerandtheregisteredpractitionerbelievesthetreatmentwillpromotethepersonalandsocialwellbeingofthepersonconcerned.
216.Newguardianshiplegislationshouldrequirearegisteredpractitionerwhoperformsa‘routineprocedure’uponapersonintheabsenceofconsenttomakenotesinthatperson’sfileofattemptsmadetolocateanypersonalguardianorhealthdecisionmaker.
addITIONaL CONSIdERaTIONS TO GuIdE mEdICaL dECISION makING13.132 InChapter6,theCommissionrecommendsthatallpeoplewhohavediscretionary
powersundernewguardianshiplegislationshouldbeguidedbystatutoryprincipleswhenexercisingthosepowers.
13.133 TheCommissionbelievesthatthereisvalueinlistingadditionalconsiderationstoguidepersonalguardiansandhealthdecisionmakerswhenmakingmedicaltreatmentdecisionsforanotherperson.ManyoftheseconsiderationsaredrawnfromtheexistingprovisionsoftheG&AAct.
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13Chapter 13 Medical treatment
RECOmmENdaTIONAdditional considerations for personal guardians and health decision makers
217.Newguardianshiplegislationshouldcontainalistofmattersforpersonalguardiansandhealthdecisionmakerstoconsiderwhenmakingmedicaltreatmentdecisionsforarepresentedperson.Thoseconsiderationsare:
(a) anyinstructionaldirectivepreparedbytherepresentedperson
(b) whethertherepresentedpersonislikelytobeabletomakeadecisionaboutthetreatmentthemselveswithinareasonabletime,andtheeffectontheperson’sconditionofwaitingforthepersontomakethedecisionthemselves
(c) theextenttowhichtheproposedtreatmentislikelytobeofbenefittotheperson
(d) theextenttowhichtheproposedtreatmentislikelytocausedistresstotheperson
(e) alternativetreatmentsavailable,andtheextenttowhichthesearelikelytobenefitthepatientortocausedistresstotheperson
(f) otherlikelyrisksassociatedwiththeproposedtreatment,oranyalternativetreatmentsavailable,fortheperson.
EmERGENCy pROCEduRES13.134 TheG&AActauthorisesaregisteredpractitionertoundertakeanyformofmedical
treatmentwithoutconsentwhereitis‘necessary,asamatterofurgency’to‘savethepatient’slife’,‘preventseriousdamagetothepatient’shealth’,or‘preventthepatientfromsufferingorcontinuingtosuffersignificantpainordistress’.132Thisauthorityappearstobebroaderthanthecommonlawpowertoprovidetreatmentwithoutconsent‘incasesofemergencyornecessity’.133Itisunclearwhetherthecommonlawpowerextendstotreatmentgivenwithoutconsentto‘preventseriousdamagetothepatient’shealth’or‘preventsignificantpainordistress’.134Aregisteredpractitionerwhoreliesuponthisauthorityingoodfaithisnotliableforanycriminal,civilorprofessionalconsequencesthatmightotherwiseresultfromtreatingapatientwithoutconsent.135
13.135 TheCommissiondidnotreceiveanysuggestionstochangetheemergencytreatmentpowersintheG&AActanditisunawareofanycircumstancesinwhichtheextentofthispowerhasbeencontentious.TheCommissionbelievesthatsection42AoftheG&AActcontainsafairandreasonabledescriptionofthosecircumstancesinwhicharegisteredpractitionershouldhavetheauthoritytotreatanypersonwithoutconsent.Thissectionshouldberetainedinnewlegislation.
132 Ibids42A(1).133 Rogers v Whitaker(1992)175CLR479,489.134 SeeSkene,Law and Medical Practice,aboven123,113–14foradiscussionoftherelevantcaselaw.135 Guardianship and Administration Act 1986(Vic)s42A(2).
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RECOmmENdaTIONEmergency procedures
218.Newguardianshiplegislationshouldcontinuetoauthorisea‘registeredpractitioner’toperform‘medicaltreatment’uponapersonwhodoesnothavethecapacitytoconsenttothattreatmentinemergencies.Section42AoftheGuardianship and Administration Act 1986(Vic)shouldbereproducedinnewlegislation.
SpECIaL pROCEduRES13.136 OnlyVCATcanauthorisea‘specialprocedure’forapersonwhoisunabletomake
theirowndecisionsaboutmedicaltreatment.136ApersoncannotauthoriseanenduringguardianoranagentappointedundertheMedicalTreatmentActtoconsenttoaspecialprocedureforthem.VCATcannotappointaguardiantomakeadecisionaboutaspecialprocedureanditisbeyondthepowerofapersonresponsibletoconsenttoaspecialprocedure.
13.137 Specialproceduresaremedicalprocedureswithpermanentconsequences.Atpresentthreeproceduresareincludedwithinthestatutorydefinitionofaspecialprocedure.Theyare:
• permanentsterilisations
• abortions
• removaloftissueforthepurposeofdonationtoanotherperson.137
13.138 Itissoundpolicytorequireanindependent,experttribunaltodecidewhetherapersonwhoisunabletomaketheirownmedicaltreatmentdecisionsshouldhaveamedicalprocedurethathassignificant,irreversibleconsequences.TheCommissionbelievesthatthe‘specialprocedure’processshouldberetainedinnewguardianshiplegislation.TheCommissionseesnoneedtorecommendthatanyproceduresbeaddedtoorremovedfromtheexistinglistofspecialprocedures.
RECOmmENdaTIONSpecial procedures
219.NewguardianshiplegislationshouldcontinuetorequireVCATauthorisationbeforea‘specialprocedure’canbeperformeduponapersonwholacksthecapacitytoconsenttothatprocedure.
136 Ibids39(1)(a).137 Ibids3.Therearecurrentlynoadditionalspecialproceduressetoutinregulations.