AGENDA OVERVIEW 8:30-9:00am INTRODUCTION

9:00—10:20am MONEY MATTERS: MAXIMIZING PUBLIC BENEFITS, OPTIMIZING PRIVATE RESOURCES

10:20-10:35am BREAK

10:35-noon IPP INTENSIVE

or WRITING TRANSITION PLANS (LK130)

Noon-12:15pm BOX LUNCH, visit sponsor and information tables.

12.15-12.55pm CUONG DO, IDENTIFORPlus brief civil rights presentation

or choose from 5 lunch discussion groups

12:55-1:05pm SHORT BREAK

1.05-2.15pm AFTER YOU'RE GONE: WHO CARES FOR YOUR ADULT CHILD AFTER YOU DIE OR BECOME INCAPACITATED?

or choose from 8 breakout sessions

2:15-2:25pm SHORT BREAK

2.25-3.35pm INNOVATING NEW SUPPORTED LIVING SOLUTIONS

or choose from 8 breakout sessions

3:35-3:50pm BREAK

3.50-5:00pm ACCESSING HEALTH CARE FOR ADULTS WITH AUTISM

or choose from 8 breakout sessions

2016 Conference Program

Welcome to our third annual conference

Our first adult autism conference happened almost by accident. In 2014, Alex Krem and I chatted about hosting a presentation by Desiree Kameka of Madison House Autism Foundation regarding housing options for adults with autism. Somehow that seed grew into the sold-out 200+ person “A Place for Us” housing conference with multiple speakers. Our 2015 meeting, called “Let a Thousand Flowers Bloom” and providing a showcase of local programs, was

held at Santa Clara University and sold out with nearly 350 attendees. Today our conference, “Into the Future,” again switches gears to emphasize long-term planning, and features more than 55 speakers and 400+ attendees.

Increasing numbers of Bay Area families are witnessing their autistic and developmentally disabled children age out of school and into a very uncertain adulthood. There is nothing casual or easy about planning for the long-term care of adults with substantial functional and intellectual limitations, and families are hungry for information and solutions. We cannot possibly answer all concerns today (wish we could), but as California’s adult autism population is poised to quadruple over the next 20 years, it’s increasingly clear we must pursue these difficult challenges forthrightly and work toward solutions together.

We are grateful to our many partners in this conference: our generous sponsors, our talented speakers, our tireless volunteers, and the Stanford Autism Center Parent Advisory Board.

SFASA is a volunteer-run nonprofit aiming to build a stronger autism community here in the Bay Area—please support our work and help us in our quest.

Best to you and your family,

Jill EscherConference chair and president, Autism Society San Francisco Bay Area

Website: sfautismsociety.org Email: info@sfautismsociety.orgPhone: (650) 637-7772

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Conference FAQs Where can I find details about the sessions?Session listings start at page 4. But session details, including summaries, handouts, and slides, are linked from our homepage sfautismsociety.org. Just click on any of the buttons that say “Conference Agenda.”

What sessions are being livestreamed and videotaped?We are livestreaming and videotaping all seven mainstage sessions. —Go to Ustream.tv/channel/savprod or use the Ustream app.

Videos will be posted at sfautismsociety.org after the conference.

For the breakout sessions, you can find handouts and slides (and audio recordings for some, uploaded after the conference) at our website sfautismsociety.org. Just click on any of the buttons that say “Conference Agenda” and click on the sessions of interest.

What if I don’t want to be recorded?If you prefer not to show up on camera or be recorded please save your questions for presenters for the breaks when the cameras are off. In breakout sessions, ask the host if the session is being audiotaped and consider submitting any questions in writing.

How do I access Stanford wifi?(1) Select the SSID Stanford Visitor from your device's list of available wireless networks.(2) Open a browser and load any URL; you will be redirected to an access page (on a mobile phone, the access page should open automatically).(3) Click Accept to acknowledge the terms of use. Your browser will be sent to a confirmation page, and from there you can get online.

How can I access Spanish translation?For real‐time translation of mainstage session use your cell and call: 712-432-4200 For whisper translation for breakouts please visit the Registration desk.

I brought flyers to share. Where are the Information Tables?There are several Information Tables in the foyer. Please feel free to drop off or pick up free literature at these tables.

What sponsors are hosting tables?Gatepath Aspen Network Premier Healthcare, IncGood Shepherd Fund Designs by Siri Coastanoa CommonsLife Services Alternatives Rident Park

What Stanford research groups are hosting tables?Antonio Hardan, MD, Lawrence Fung, MD, PhD, Yael Enav, PhD, and Dennis Wall, PhD.

Is there a conference hashtag?Conference hashtag: #SFASA16Find us on Facebook: facebook.com/AutismSocietySanFranciscoBayAreaFind us on Twitter: @SFAutismSociety

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AGENDA 8-8:30am REGISTRATION AND COFFEE

______________________________________________SESSION 1: 8:30-9:00am

Mainstage:

INTRODUCTIONClaire Hough, chair Stanford Autism Center Parent Advisory BoardLinda Lotspeich, MD Stanford Autism CenterJill Escher, president SFASA: Conference logistics, “Fun with Words,” and more

______________________________________________SESSION 2: 9:00-10:20am

Mainstage:

MONEY MATTERS: MAXIMIZING PUBLIC BENEFITS, OPTIMIZING PRIVATE RESOURCESStephen Dale, attorney The Dale Law FirmJon Elfin, financial planner Jon Elfin Wealth StrategiesChristina Elliott, executive director CalABLE

______________________________________________10:20-10:35 BREAK

______________________________________________SESSION 3: 10:35-noon

Mainstage:

IPP INTENSIVE: HOW TO GET THE MOST OUT OF THE INDIVIDUAL PROGRAM PLAN PROCESSJim Huyck Huyck Consulting

or

First floor lecture hall LK130:

WRITING TRANSITION PLANS FOR INTENDED HIGH SCHOOL GRADUATES (for those not served by regional centers)Jan Johnston-Tyler EvoLibri

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SESSION 4: Noon-12:55pmNoon-12:15:

Grab a box lunch

12:15-12:55pm:

Several program choices for lunchtime, choose mainstage presentations or a breakout room discussion group

Mainstage:

Introduction of lunch speaker by Regina Stoops, comedian and autism mom

Lunch speaker CUONG DO Identifor"Enabling the pursuit of meaningful lives for each individual autistic teen and adult"

Followed by a short presentation:FOUR THINGS AUTISM FAMILIES SHOULD CONSIDER TO PROTECT THEIR CIVIL RIGHTSIrma Velasquez Educating your local law enforcement officials, one person at a timeMarianne Sullivan How to create an Emergency Behavior Response ProtocolEmily Iland Training people with ASD to interact with law enforcementJill Escher SFASA's Autism Civil Rights Project

or

Breakout rooms:

INTRODUCTION TO NON-FAMILY CONSERVATORSHIP AND TRUSTEESHIPTom Avramis, Good Shepherd Fund First floor lecture hall LK130

SFASA FOCUS GROUP: WE WANT TO HEAR FROM YOU!Led by Anne Blenman Hare, treasurer, Autism Society San Francisco Bay Area LK203/204 HOUSING FOR ADULTS WITH AUTISM/DD AND SEVERE BEHAVIORSMatt Omelagah, Omelagah, Inc. LK205/206

WRITING A "LIFESTYLE DIRECTIVE" FOR YOUR ADULT CHILD WITH AUTISM/DD Joanne Wickersham, autism mom LK208

INVESTING IN A COMMUNITY HOUSING MODELLiving Unlimited board members LK 209

______________________________________________12:55-1:05pm SHORT BREAK

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SESSION 5: 1:05-2:15pmMainstage:

AFTER YOU'RE GONE: WHO CARES FOR YOUR ADULT CHILD AFTER YOU DIE OR BECOME INCAPACITATED?Lorna Drope, attorneyStephen Dale, attorneyJim Huyck, former Alta Regional Center directorNina Herndon, case manager, Sage Elder CareJeff Darling, SARC

Breakout rooms:

THE INTERSECTION BETWEEN STATE AND FEDERAL POLICY AND SERVICE DELIVERY FOR ADULTS WITH AUTISM Amy Westling, Association of Regional Center Agencies (ARCA) LK203/204

CREATING NEW HOMES FOR ADULTS WITH DEVELOPMENTAL DISABILITIES Dana Hooper, Life Services Alternatives LK205/206

SOCIAL SKILLS GROWTH THROUGH CONTINUING EDUCATION Pamela Lindsay and Deanna Pursai, College of Adaptive Arts LK208

DON'T LEAVE SAFETY TO CHANCE: ESSENTIAL SKILLS FOR INTERACTING WITH POLICE Emily Iland and Tom Iland LK209

THE TRANSFORMATIVE EXPERIENCE OF A SOCIAL LIVING COMMUNITY Meg Fields, Aspen Network LK304/305 PART A: FROM STANFORD: WALL LAB ON THE 'GAPMAP' Wall Lab staff PART B: ME, MYSELF & YOU: EXPLORING SOCIAL CONNECTION IN ADULTS WITH AUTISM Claire Jacobson, Nina Ligon and Devika Patel LK306

THE JOURNEY TO INTIMACY AND SEX FOR ADULTS ON THE SPECTRUM Karla Amanda Brown LK308

First floor lecture hall LK 130:

INTRODUCTION TO SELF-DETERMINATION David Grady and Sheraden Nicholau, SCDD, with Cheryl Hewitt, self advocate, and Martha Johanson, parent advocate

______________________________________________2:15-2:25pm SHORT BREAK

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SESSION 6: 2:25-3:35pmMainstage:

INNOVATING NEW SUPPORTED LIVING SOLUTIONS PANEL:Heidi Cartan Costanoa CommonsLarry Grotte Rident ParkAnya Hobley Camphill CaliforniaJerry Horton Down Home RanchDesiree Kameka Madison House Autism FoundationSaanen Kerson Vine VillageAlex Krem Living Unlimited (moderator)

Breakout rooms:

PART A: CREATIVE STRATEGIES FOR ADULT EMPLOYMENT Joanna JaegerPART B: THE AUTISM EMPLOYMENT PUZZLE David Platzer LK203/204

PERSON-CENTERED PLANNING: A VISION FOR THE FUTURE Danielle Azzalino and Elizabeth Zirbes, Gatepath LK205/206

PRESENTATION ON CalABLE Christina Elliott, executive director, CalABLE LK208 PANEL ON SEVERE BEHAVIORS Denise Bradley, Harambee, Matt Omelagah, Omelagah, Inc, Lawrence Fung, MD, PhD, Stanford, and Irene Litherland, parent LK209 LORNA DROPE Q&A SESSION Lorna Drope, JD, Law Office of Lorna Drope LK304/305 EXPLORING DIAGNOSIS AND DISCLOSURE IN ADULT LIFE Vanessa Hus Bal, PhD, UCSF LK306

INNOVATIONS AND APPROACHES: SOCIAL ENTERPRISE DEVELOPMENT, WORK READINESS, AND TRANSITIONAL HOUSING Elisabeth Johnson and Ted Kempf, Meristem LK308

First floor lecture hall LK 130:

INTRODUCTION TO PERSON-CENTERED PLANNING Trudy Grable, PHP

______________________________________________3:35-3:50pm BREAK

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SESSION 7: 3:50-5:00pmMainstage:

ACCESSING HEALTH CARE FOR ADULTS WITH AUTISM PANELLawrence Fung, MD, PhD Psychiatric and Medical Challenges in Adults with Autism Lisa Croen, PhD Physician Knowledge and Experience with Autism in AdultsClarissa Kripke, MD Accessing Health Care in the Community: Resources and ToolsKaren Fessel, PhD Autism and Insurance for Adults: The Next Frontier

Discussion moderated by Dr Fung and Linda Lotspeich, MD

Breakout rooms:

PERSON-CENTERED PLANNING: MORE THAN A THEORY, IT CAN AFFECT FUNDING Desiree Kameka, Madison House Autism Foundation LK203/204 Part A: INTRODUCTION TO OCRA Pilar Gonzalez, GGRC Office of Client Right AdvocatesPart B: STEVE DALE Q&A Steve Dale, Dale Law Firm LK205/206 FINANCIAL MANAGEMENT SERVICES IN THE NEW SELF-DETERMINATION PROGRAM Victor Lira, Premier Healthcare Services LK208 ADVOCACY FOR AFFORDABLE HOUSING Rebecca Byrne, Housing Choices Coalition LK209 Part A: THINKING ABOUT HOUSING WITH EXECUTIVE FUNCTIONS IN MIND Nancy Perry, PhDPart B: PERSON-CENTERED PLANNING IN A GROUP HOME ENVIRONMENT Susan LeRitz, Life Services Alternatives LK304/305 CREATING COMMUNITY FOR ADULTS ON THE SPECTRUM: HOW TO HAVE INTEGRATION WITHOUT ISOLATION Donna Feingold, Adaptive Learning Center LK306

HOW TO GET NEW HOUSING BUILT WITH INDIVIDUAL AND CORPORATE FOUNDATION MONEY Bob Ericson, Heckman Financial LK308

First floor lecture hall LK130:

FINANCIAL PLANNING FOR SPECIAL NEEDS FAMILIES Jon Elfin, Jon Elfin Wealth Strategies

______________________________________________

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About SFASA Autism Society San Francisco Bay Area (SFASA) is a grassroots, volunteer-run nonprofit organization of parents, family members, friends and professionals striving to build a stronger, more connected and influential Bay Area autism community. We began in 1967 and cover the six major San Francisco Bay Area counties: Alameda, Contra Costa, Marin, San Francisco, San Mateo and Santa Clara. We are an affiliate of the Autism Society of America.

In 2014, SFASA reinvented itself to focus on improved community outreach and on issues related to addressing the dire need to expand the limited lifespan care options for the dramatically increasing numbers of adults with autism. Rather than serving as a direct service provider to people with autism, we act as a hub for the broader autism community. Our activities include:

Information: A popular website, robust resources lists, information & referral, newsletters, blogs, publications, and social media.Networking and Education: Annual adult autism conference and various events, with an eye toward strengthening connections and knowledge within communities.Advocacy: Fearless advocacy and outreach to the public and policymakers; acting as an authoritative voice on autism in the media and public fora.

Mission

Our mission is to grow a stronger Bay Area autism community. By creating a robust hub of information, resources, networks, and advocacy, we help advance common goals for the Bay Area's 20,000+ autism families. Rather than serving as a direct service provider to individuals with autism and related disabilities, we seek to provide a community focal point.

Vision

We envision a Bay Area where families and individuals with autism are provided appropriate lifespan services and supports, and are thriving, engaged and valued parts of all our communities.

Values and Beliefs (see sfautismsociety.org/about)

SFASA Board of Directors

Jill Escher, President Jackie Forsythe, Vice PresidentJennifer Sullivan, SecretaryAnne Hare, TreasurerStephen PrutsmanIrma VelasquezConnie Boyar FrenzelIrene LitherlandLouise KatzSara Kole

Sue SwezeyUli Chettipally, MDDenise Haas Martha JohansonHeidi Cartan Kym Luqman Committee members:Anna WangCristina MorettoParul Agrawal

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THANKS TO OUR TEAM This conference is brought to you by a dedicated group of volunteers and helpers, including:

Chair: Jill Escher

Registrar: Jackie Forsythe

Conference intern: Ari Shams

Assistant to the chair: Sara Hammer

A/V chair: Uli Chettipally, MD

Translation chair: Martha Johanson

Translator (mainstage): Lucy Navarro

Whisper translators: Esmeralda Ortega Pham; Leilani Durden; Sueyeon Chae; Andrea Lopez; Bianca Alicia Montez; Maxwell Cunningham

Video and livestream: Dan White and Ana Maria, Share-a-Vision

Committee volunteers: Sara Kole, Denise Haas, Anne Bellman, Claire Hough, Michele Bronstein, Gaby Rojas, Heidi Cartan, Kym Luqman, Louise Katz, Lawrence Fung, MD

Registration volunteers: Connie Boyar Frenzel, Sue Swezey, Irma Velasquez, Ted Bernard, Bess Zientek, Pam Kermin

Information tables: Irene Litherland

Still photography: Criss DeGuzman

Conference logo: Gail Vanderhoof / Chris P, Morgan Autism Center

Donor appreciation event: Stephen Prutsman, Daren and Mitch Tuchman

We are grateful for our partnership with the Stanford Autism Center Parent Advisory Board.

The Stanford Autism Center at Packard Children's Hospital is dedicated to providing specialized clinical services and advancing research in Autism Spectrum Disorder. The center is a collaborative of Stanford Children's Health clinics to provide the latest treatment to children with autism with a common mission: To bring together professionals across departments and disciplines at Lucile Packard Children’s Hospital Stanford (LPCHS), Stanford Hospital, and Stanford University, who are committed to improving the diagnosis and treatment of autism spectrum disorder and related developmental disorders through research, professional training, community education, quality or process improvement, and advocacy.

Website: med.stanford.edu/autismcenter

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SPONSORS Thank you to our generous sponsors. This event could not happen without their support.

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JP Bernard

SilverSigrid Van Bladel and Stephen Brotzman

Dr. Deborah Faryniarz and Dr. Stephen Emond

Marnin KligfeldSlice, Inc.

Solutions ATI, IncIdentifor, Inc

GatepathPierre Breber

Claire Hough, Michele Bronstein, Tami Tran, and Lara Sandora

Farmers Insurance—JP Bernard

BronzeCrisanta De Guzman and Bryce Lee

Morgan Autism CenterDesigns by Siri

Rident ParkSara Kole and Michael Batek

Anne and Thomas Hare and FamilyDaren and Mitch Tuchman

Costanoa CommonsFriends of Children with Special Needs

Laura and Dan WinterAspen Network

Elaine and Scott KellerPremier Healthcare, IncGaby and Javier RojasGood Shepherd Fund

Lisa and Jim ZuegelLife Services Alternatives