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Transcript of Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th...
![Page 1: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/1.jpg)
Choosing Core NILS data and its impact on Research
Rónán AdamsMáire Brolly
NILS User Forum11th December 2009
![Page 2: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/2.jpg)
Aims:
• Understand the structure of the NILS
• Understand the level/impact of Census Imputation and List Inflation
• Understand the research implications
![Page 3: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/3.jpg)
Identifying the Core NILS data
• requirement to have a core data source
• coverage of the data source
• complete information on dates of birth
• existing linkages between the data sources
![Page 4: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/4.jpg)
Core Data SetOptions:
Data sets in Research Proposal – Agreement• Census• Health Card Registrations (CHI)
Issues: • Census
– Census Office only require Age– Any missing day/month Imputed to 1st
– 1st too high, all other dates too low– Person imputation (95%)
• Health Card registrations– List Inflation (105%)
![Page 5: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/5.jpg)
Existing Links between Data Sources
NICR Data
Central HealthIndex
GRO Births
GRO Deaths
2001 CensusRecords
![Page 6: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/6.jpg)
Proposed Links between Data Sources
NICR Data
Central HealthIndex
GRO Births
GRO Deaths
2001 CensusRecords
![Page 7: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/7.jpg)
NILS/NIMS
NILS• c28% of population
• Sample members from Health Card Registrations
• List Inflation an issue
• Census Imputation
NIMS• 100% of deaths
• Census members linked to deaths
• Only enumerated people can be linked
![Page 8: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/8.jpg)
Sample Selection in NI
• 104 dates – 100 NI, 4 E&W
• For each download (6 monthly)– Is the DDMM of the DOB a NILS date? If so
then they are in the sample
• NILS sample – a person who has ever been in one of the 6-monthly downloads
![Page 9: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/9.jpg)
Contextual Data NILS Core Data Events
Health Card Registrations
Key demographic information on NILS
members(514,000 live)
@ Census Date
New members (c40,000)
2001 Census
Database
1991 Census
Births Data (baby linked to
Birth Registration)1997 births onwards
Deaths
Births to Mothers
Births to Fathers
Stillbirths & Infant Deaths
Migration (Immigrants, Emigrants,
Re-Entrants & Within NI Movers)
VLA/Rating DataPOINTER
Address Database
![Page 10: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/10.jpg)
NILS E&W LS SLS
Number Dates 104 4 20
Size 500,000 (28%) 500,000 (1%) 300,000 (5%)
Start Date 2001 1971 1991
Number of Censuses
1 4 2
Source Health Card Registration
Census + GRO Births + NHSCR
Immigrants
Census + GRO Births + NHSCR
Immigrants
Includes Enumerated,
Imputed and List Inflation – can look at enumerated only
Enumerated only Enumerated only
The 3 LSs
![Page 11: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/11.jpg)
SG Discussion
• LS and SLS reps included on NILS SG
• Recognition and Agreement between 3 LSs
• NILS methodology would allow future ‘UK’ analyses
![Page 12: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/12.jpg)
![Page 13: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/13.jpg)
Health Card Registrations
Central Health Index
All Live Patients
(4th May 2001)
1,768,473
Published 2001
census population
One Number
(29th April 2001)
1,685,267
Enumerated 2001
census population
(29th April 2001)
1,603,641
Imputed Records81,626
Imputed Records81,626
Enumerated 2001
census population
(29th April 2001)
1,603,641
List Inflation83,206
4.6%
90.7%
4.7%
![Page 14: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/14.jpg)
Imputation and List Inflation: different profiles by age, gender,
geography and other characteristics
NOT 4.6% & 4.7% across all groupings
![Page 15: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/15.jpg)
Age All PatientsPublished Census Enumeration Imputation Inflation
0 16321 21683 19542 2141 -5362
1 22170 22363 20860 1503 -193
2 23389 23264 21757 1507 125
3 23800 23584 22142 1442 216
The very young
![Page 16: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/16.jpg)
Female vs Male
![Page 17: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/17.jpg)
All People
![Page 18: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/18.jpg)
Imputation
![Page 19: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/19.jpg)
List Inflation
![Page 20: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/20.jpg)
Geographical Area
• Small geographies
• Urban – Rural
• Administrative Areas
• Settlements
• Deprivation
![Page 21: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/21.jpg)
Urban/Rural
![Page 22: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/22.jpg)
Urban/Rural
![Page 23: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/23.jpg)
Assembly Areas / Parliamentary Constituencies
![Page 24: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/24.jpg)
DECILE Enumerated ImputedList
Inflation % LI, Imp
Least Deprived 157,974 5,710 2,525 5%
156,166 5,375 -4,652 0%
158,522 6,122 -273 4%
162,774 6,546 1,150 5%
162,128 8,177 2,133 6%
166,973 8,897 3,644 7%
162,667 7,946 10,109 10%
162,913 9,324 11,422 11%
159,247 10,095 23,688 18%
most Deprived 154,277 13,434 33,458 23%
MDM - Deciles
![Page 25: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/25.jpg)
• List Inflation– Age, gender, geographical area
• Census Imputation– All Census characteristics
![Page 26: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/26.jpg)
Imputation level – Marital Status
![Page 27: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/27.jpg)
Imputation level – Economic Activity
![Page 28: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/28.jpg)
Imputation level – Community Background
![Page 29: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/29.jpg)
Summary
• Characteristics of List Inflation & Imputation are different from Enumerated
– Highest in deprived, urban areas– Affects males more than females– Affects 17-35 year olds most– Unemployed, students, living alone
![Page 30: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/30.jpg)
Impact on NILS
• Imputed people can’t be linked – no names, DOBs etc.
• List inflation people unlikely to be on other administrative data (births, deaths, …)
• Can only expect to link a proportion of population
![Page 31: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/31.jpg)
Estimate for NILS 28% sample
• Don’t know who is ‘list inflation’
• Don’t know who is ‘imputed’
• Assume 28% is representative
4.6%
90.7%
4.7%
Health Card Registrations
with NILS Date
Central Health Index
All Live Patients
(4th May 2001)
508,279
Imputation23,460
Enumerated
460,904
List Inflation23,914
![Page 32: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/32.jpg)
4.6%
90.7%
4.7%
Health Card Registrations
with NILS Date
Central Health Index
All Live Patients
(4th May 2001)
508,279
Imputation23,460
Enumerated
460,904
List Inflation23,914
Imputation23,460
Matched
447,457
List Inflation23,914
Unmatched13,447
88%MatchRate
97%Match RateAdjusted
NILS Match Rate (MCR-Census)
![Page 33: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/33.jpg)
Core NILS – Census LI, Imp 91%
Core NILS – Births LI 95%
Core NILS – Births – Census LI, Imp 91%
Core NILS – Deaths LI 95%
Core NILS – Deaths – Census LI, Imp 91%
NIMS – Deaths – Census Imp 95%
What % can we expect to match?
![Page 34: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/34.jpg)
Hypothetical Example
• General Fertility Rate – – number of births per 1,000 women aged 16-44
• 8,000 births
• NILS members (16-44) – 130,000– GFR = 62.1 per 1,000
• NILS members with Census link (16-44) – 110,000– GFR = 72.7 per 1,000
• ‘true’ estimate– 120,000– GFR = 67.2 per 1,000
![Page 35: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/35.jpg)
Dental Registrations - Males
![Page 36: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/36.jpg)
Dental Registrations - Females
![Page 37: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/37.jpg)
Dental Registrations – Relative differences
![Page 38: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/38.jpg)
Summary
• List inflation & imputation are issues
• Imputation can be measured – lots of information• LI cannot be easily measured – limited information
• Match rates cannot be easily determined
• Characteristics of imputed and list inflation different from ‘normal’ population
• Need to consider impact on your research
![Page 39: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/39.jpg)
Aim:
• Understand the structure of the NILS
• Understand the level/impact of Census Imputation and List Inflation
• Understand the research implications
![Page 40: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/40.jpg)
Choosing Core NILS data and its impact on Research
Rónán Adams
Máire Brolly
![Page 41: Choosing Core NILS data and its impact on Research Rónán Adams Máire Brolly NILS User Forum 11 th December 2009.](https://reader035.fdocuments.us/reader035/viewer/2022081519/56649f065503460f94c1b5af/html5/thumbnails/41.jpg)
• CSA• FPS • CHI• NHAIS• BSO• H&C, CHIN
HEALTH CARD REGISTRATIONS