Are chronic kidney disease patients happy people? · • Although these patients have a chronic...

Are chronic kidney disease patients happy people?

Catarina Santos Cunha, Fresenius Medical Care, NephroCare Fafe, Portugal

48th EDTNA/ERCA International Conference | Prague | 16 September 2019

Are chronic kidney disease patients happy people?, Catarina Santos Cunha © FMC-P EDTNA/ERCA 14-17.09.2019

2

Introduction 1

Objectives 2

Methods 3

Results 4

Conclusion 5

Presentation outline


3

Introduction


4

• To identify the level of happiness of a person under HD programme.

Objectives


5

Methods


6

Results

Variable N % Mean/SD

Gender

Male 32 62.7%

Female 19 37.3%

Age (years) 63.16 (SD=13.12)

Marital status

Single 5 9.8%

Married 37 72.5%

Widowed 4 7.8%

Divorced 5 9.8%

Occupation

Employed 5 9.8%

Unemployed 6 11.8%

Retired 40 78.4%


7

Results

Subjective Happiness Scale: In general I consider myself:

Frequency Percent

A person who is not very happy 6 11.8%

3 3 5.9%

4 7 13.7%

5 15 29.4%

6 10 19.6%

A very happy person 10 19.6%

Total 51 100%


8

Results

Subjective Happiness Scale: Compared with other people like me, I consider myself:

Frequency Percent

Less happy 4 7.8%

2 1 2%

3 2 3.9%

4 13 25.5%

5 12 23.5%

6 8 15.7%

Happier 11 21.6%

Total 51 100%


9

Results

Karnofsky Performance Status Scale

40% Unable, needs special care and help

50% Frequently needs help,

needs frequent medical attention

60% Need some help, able to take care of most of your own

needs

70% Able to take care of

oneself, incapable of

normal activity or

work

80% Normal activity with

some difficulty,

some signs and

symptoms

90% Able to normal

activity, few signs or

symptoms of disease

100% Normal, no complaints, no signs /

symptoms of disease

Total


A person who is not very happy

0 1 3 2 0 0 0 6

3 0 0 1 0 2 0 0 3

4 0 0 0 3 3 1 0 7

5 1 1 2 2 3 3 3 15

6 0 0 1 1 2 4 2 10

A very happy person

1 0 2 1 1 3 2 10

Total 2 2 9 9 11 11 7 51


10

Results

Barthel Index Scale

Severe Functional Impairment

Moderate Functional Incapacity

Slight Functional Incapacity

Total


A person who is not very happy

0 2 4 6

3 0 0 3 3

4 0 0 7 7

5 1 3 11 15

6 0 1 9 10

A very happy person

0 3 7 10

Total 1 9 41 51


11

Results


12

“…happiness consisted of a happy life,

which gives pleasure, not because of what

the happy person possessed but because of

the way in which it reacted to the

circumstances of life.”

Pais-Ribeiro (2015)

Conclusion

• Although these patients have a chronic illness, most of them consider themselves happy. 2 patients even consider themselves happy although incapable according to KPSS and ICC.

• These results can be explained by the cultural habits and customs specific to the local cultural habits.


13


14

Acknowledgments

Ricardo Peralta Nursing Care Coordinator,

Fresenius Medical Care, NephroCare Portugal

Porto, Portugal

Bruno Pinto Nursing Care Coordinator,

Fresenius Medical Care, NephroCare Portugal,

Porto, Portugal

João Fazendeiro Matos Country Nursing Director,

Fresenius Medical Care, NephroCare Portugal,

Porto, Portugal


15

Research Team

Ana Catarina Pereira Renal Nurse,

Fresenius Medical Care, NephroCare Fafe

Fafe, Portugal

Ana Paula Martins Renal Nurse,


Fafe, Portugal

Estela Matos Renal Nurse,


Fafe, Portugal

Isabel Cerqueira Renal Nurse,


Fafe, Portugal

Marta Meneses Cunha Renal Nurse,


Fafe, Portugal

Patrícia Gonçalves Renal Nurse,


Fafe, Portugal

Sara Fernandes Renal Nurse,


Fafe, Portugal

Manuela Fonseca Head Nurse,


Fafe, Portugal

Joaquim Pinheiro Medical Director,


Fafe, Portugal

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