An introduction on why the Foundation was established by Robyn Arya & Alan Kohn
description
Transcript of An introduction on why the Foundation was established by Robyn Arya & Alan Kohn
An introduction on why the An introduction on why the Foundation was established Foundation was established
byby
Robyn Arya & Alan KohnRobyn Arya & Alan Kohn
Page 1 9 July 2008www.mdakf.com.au
Mission of the FoundationMission of the Foundation
Page 2 9 July 2008
“To ensure that all children with special needs have the appropriate aids and
equipment to support their health and wellbeing, growth and learning.”
www.mdakf.com.au
Why was the Foundation Why was the Foundation EstablishedEstablished
In loving memory of our son Dean
Recognised the need for “top up funding” above the government allocated funds
• from our own experiences with Dean
• hearing from and knowing families facing ongoing financial difficulties
• liaising with disability groups
Page 3 9 July 2008www.mdakf.com.au
Our Personal ExperienceOur Personal Experience• Equipment Dean required
– chairs (panda & ladybird)– standing frame– special needs pusher– therapy equipment e.g. exercise ball, sensory box
• Cost– out of pocket
• Waiting time– average 4 to 12 months
Page 4 9 July 2008Ladybird seating Standing frame Panda
chairMountain Buggywww.mdakf.com.au
Management of FundsManagement of Funds
• Money raised is distributed by the Foundation members = Robyn, Alan & Joshua
• Based on individual needs of child and family
• Preference is given to financially disadvantaged families
• Every dollar raised goes directly to the purchase of equipment
Page 5 9 July 2008www.mdakf.com.au
Purpose of Equipment & AidsPurpose of Equipment & Aids
• Assist with mobility, support and seating
• Promote independence with daily activities
• Prevent injury to child and parent/carer(e.g. lifting and transfers)
• Strengthen bones, improve muscle tone and prevent deformity (e.g. due to growth)
• Enhance wellbeing & minimise hospital admissions
Page 6 9 July 2008www.mdakf.com.au
Children’s Equipment NeedsChildren’s Equipment Needs• Ongoing needs
- not just a one off
• Early years - specialised seating for the home & car- standing frame & walker
• Childhood years- beginning school,- growing taller & heavier e.g. wheelchair, communication devices
• Adolescent years - rapid growth - functional skills may change e.g. bigger chair, toilet adaptation
Page 7 9 July 2008www.mdakf.com.au
Children’s Equipment NeedsChildren’s Equipment Needs
Vital that appropriate equipment is:
1. correctly prescribed
1. efficiently delivered
to meet a child’s individual and changing needs over time
Page 8 9 July 2008www.mdakf.com.au
Equipment Expenditure Equipment Expenditure ExamplesExamples
Page 9 9 July 2008
Equipment Age Range
Total Cost
Victorian Aids & Equipment Program Subsidy
Family Out of Pocket Expense
Panda High Chair Infant $4,600 $1,250 $3,350
Hoist & Sling childhood onwards
$5,290 $3,600 $1,660
Standing Frame Infant
Childhood
$1,670
$4,900
$550
$550
$1,120
$4,350
Voice Output Communication Aid
childhood onwards
$14,500 $7,000 $7,500
Vehicle Modification for Wheelchair Access
Childhood onwards
Approx. $10,000 to $30,000
$0
Currently Under Review
$10,000 to $30,000 + cost of vehicle
www.mdakf.com.au
Types of EquipmentTypes of Equipment
Page 10 9 July 2008
Wheel Chair $4,430 Hoist & Sling $5,300
www.mdakf.com.au
Types of EquipmentTypes of Equipment
Page 11 9 July 2008
Electric Standing Frame $4,900 Car Hoist & Mods $15,000
www.mdakf.com.au
Foundation RecipientsFoundation Recipients
Examples of just some of the 28 children and their families the Foundation has supported:
• Full purchase of a $6,000 wheelchair for a 13 year old girl from Geelong
• $4,000 co-payment towards the purchase of a $14,500 Dynavox Voice Output Communication Aid for a 6 year old boy from New Gisborne
• $500 co-payment towards the purchase of a $1,800 body splint for a 10 year old girl from Glen Waverly
• $468 co-payment towards the purchase of a $768 Kaye Walker for a 15 year old girl from Hampton
• $489 co-payment towards the purchase of a $3,799 shower/commode chair for a 17 year old boy from East Oakleigh
• $1000 co-payment towards a $4264 panther wheelchair for a 7 year old girl from Seaford
Page 12 9 July 2008www.mdakf.com.au
How you can help theHow you can help the Dean Arya-Kohn Foundation Dean Arya-Kohn Foundation
• Come along to our fundraisers
• Hold a fundraising event
• Sponsor a Child with special needs
• Ongoing annual support
• Corporate sponsorship
Page 13 9 July 2008www.mdakf.com.au
Thankyou!!Thankyou!!
Page 14 9 July 2008Dean in Panda Chair Dean in Sensory Boxwww.mdakf.com.au