An introduction on why the Foundation was established by Robyn Arya & Alan Kohn Page 1 9 July 2008 .
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Transcript of An introduction on why the Foundation was established by Robyn Arya & Alan Kohn Page 1 9 July 2008 .
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An introduction on why the An introduction on why the Foundation was established Foundation was established
byby
Robyn Arya & Alan KohnRobyn Arya & Alan Kohn
Page 1 9 July 2008www.mdakf.com.au
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Mission of the FoundationMission of the Foundation
Page 2 9 July 2008
“To ensure that all children with special needs have the appropriate aids and
equipment to support their health and wellbeing, growth and learning.”
www.mdakf.com.au
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Why was the Foundation Why was the Foundation EstablishedEstablished
In loving memory of our son Dean
Recognised the need for “top up funding” above the government allocated funds
• from our own experiences with Dean
• hearing from and knowing families facing ongoing financial difficulties
• liaising with disability groups
Page 3 9 July 2008www.mdakf.com.au
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Our Personal ExperienceOur Personal Experience• Equipment Dean required
– chairs (panda & ladybird)– standing frame– special needs pusher– therapy equipment e.g. exercise ball, sensory box
• Cost– out of pocket
• Waiting time– average 4 to 12 months
Page 4 9 July 2008Ladybird seating Standing frame Panda
chairMountain Buggywww.mdakf.com.au
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Management of FundsManagement of Funds
• Money raised is distributed by the Foundation members = Robyn, Alan & Joshua
• Based on individual needs of child and family
• Preference is given to financially disadvantaged families
• Every dollar raised goes directly to the purchase of equipment
Page 5 9 July 2008www.mdakf.com.au
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Purpose of Equipment & AidsPurpose of Equipment & Aids
• Assist with mobility, support and seating
• Promote independence with daily activities
• Prevent injury to child and parent/carer(e.g. lifting and transfers)
• Strengthen bones, improve muscle tone and prevent deformity (e.g. due to growth)
• Enhance wellbeing & minimise hospital admissions
Page 6 9 July 2008www.mdakf.com.au
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Children’s Equipment NeedsChildren’s Equipment Needs• Ongoing needs
- not just a one off
• Early years - specialised seating for the home & car- standing frame & walker
• Childhood years- beginning school,- growing taller & heavier e.g. wheelchair, communication devices
• Adolescent years - rapid growth - functional skills may change e.g. bigger chair, toilet adaptation
Page 7 9 July 2008www.mdakf.com.au
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Children’s Equipment NeedsChildren’s Equipment Needs
Vital that appropriate equipment is:
1. correctly prescribed
1. efficiently delivered
to meet a child’s individual and changing needs over time
Page 8 9 July 2008www.mdakf.com.au
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Equipment Expenditure Equipment Expenditure ExamplesExamples
Page 9 9 July 2008
Equipment Age Range
Total Cost
Victorian Aids & Equipment Program Subsidy
Family Out of Pocket Expense
Panda High Chair Infant $4,600 $1,250 $3,350
Hoist & Sling childhood onwards
$5,290 $3,600 $1,660
Standing Frame Infant
Childhood
$1,670
$4,900
$550
$550
$1,120
$4,350
Voice Output Communication Aid
childhood onwards
$14,500 $7,000 $7,500
Vehicle Modification for Wheelchair Access
Childhood onwards
Approx. $10,000 to $30,000
$0
Currently Under Review
$10,000 to $30,000 + cost of vehicle
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Types of EquipmentTypes of Equipment
Page 10 9 July 2008
Wheel Chair $4,430 Hoist & Sling $5,300
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Types of EquipmentTypes of Equipment
Page 11 9 July 2008
Electric Standing Frame $4,900 Car Hoist & Mods $15,000
www.mdakf.com.au
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Foundation RecipientsFoundation Recipients
Examples of just some of the 28 children and their families the Foundation has supported:
• Full purchase of a $6,000 wheelchair for a 13 year old girl from Geelong
• $4,000 co-payment towards the purchase of a $14,500 Dynavox Voice Output Communication Aid for a 6 year old boy from New Gisborne
• $500 co-payment towards the purchase of a $1,800 body splint for a 10 year old girl from Glen Waverly
• $468 co-payment towards the purchase of a $768 Kaye Walker for a 15 year old girl from Hampton
• $489 co-payment towards the purchase of a $3,799 shower/commode chair for a 17 year old boy from East Oakleigh
• $1000 co-payment towards a $4264 panther wheelchair for a 7 year old girl from Seaford
Page 12 9 July 2008www.mdakf.com.au
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How you can help theHow you can help the Dean Arya-Kohn Foundation Dean Arya-Kohn Foundation
• Come along to our fundraisers
• Hold a fundraising event
• Sponsor a Child with special needs
• Ongoing annual support
• Corporate sponsorship
Page 13 9 July 2008www.mdakf.com.au
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Thankyou!!Thankyou!!
Page 14 9 July 2008Dean in Panda Chair Dean in Sensory Boxwww.mdakf.com.au