Alzheimer’s Association Update

Keith Fargo, PhDDirector of Scientific Programs

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IDEAS Study Update

• Number of imaging centers: 268

• Number of dementia specialists: 636 physicians (from 380 clinics)

• Number of accruals: 5,391

• Accrual rate: 188 per week

• Number of scans: 3,793

As of October 12th

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IDEAS Add-on Studies

• ANGI

• BHR-IDEAS

• CARE-IDEAS

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Chapters and Regions

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Regions and Centers

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Banner Year for TrialMatch Growth

0

10000

20000

30000

40000

50000

60000

July Aug Sept Oct Nov Dec Jan Feb Mar Apr May June

FY11

FY12

FY13

FY14

FY15

FY16

FY17

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268studies

195,000user profiles

599sites

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Working with Registries – BHR Example

• BHR is listed in TrialMatch– Alzheimer’s Association sent emails to

approximately 10,000 TrialMatch users promoting BHR in 2015

• As of September – 2,467 BHR participants report TrialMatch as

their referral source– 1,399 BHR participants enrolled after clicking

the trackable BHR link in the TrialMatch page

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Working with Registries – BHR Example

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• Demographics compared to overall BHR cohort– More female (83% vs. 73%)– More Caucasian (89% vs. 80%)– More family history of Alzheimer’s (53% vs. 27%)

• Engagement compared to overall BHR cohort– More complete all study tasks at baseline (41% vs. 28%)– More have done at least one cognitive test (73% vs. 58%)– More came back for 6-month follow-up (51% vs. 42%)– More came back for 12-month follow-up (42% vs 32%)

Working with Registries – BHR Example

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Increasing Federal Research Funding

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Alzheimer’s Association Research Website

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