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ePPOC Data Dictionary and

Technical Guidelines

New Zealand Adult

Version 2 Dataset

Adult ePPOC Data Dictionary and Technical Guidelines – NZ V2.0 Page 1

Table of Contents What is ePPOC? .......................................................................................................................................... 10

Introduction to the Data Dictionary and Technical Guidelines .................................................................. 11

Level 1: Patient ....................................................................................................................................... 11

Level 2: Episode...................................................................................................................................... 12

Level 3: Pathway .................................................................................................................................... 12

Level 4: Service events ........................................................................................................................... 12

Level 5: Patient Reported Outcome Measures (PROMs) ....................................................................... 13

Level 6: Medication ................................................................................................................................ 13

The ePPOC Version 2 Dataset..................................................................................................................... 14

Summary of revisions to the ePPOC dataset ......................................................................................... 14

Supplementary values for ePPOC data items ........................................................................................ 16

epiCentre: the ePPOC data collection system ............................................................................................ 17

ePPOC Version 2 data items ....................................................................................................................... 18

Level 1: Patient Data Items ................................................................................................................... 18

2.1.01 Patient Identifier ............................................................................................................ 18

2.1.02 ePPOC Patient Identifier ................................................................................................. 18

2.1.03 Facility Identifier ............................................................................................................. 18

2.1.04 Patient date of birth ....................................................................................................... 19

2.1.05 Patient sex ...................................................................................................................... 19

2.1.06 Patient Statistical Linkage Key (SLK) ............................................................................... 20

2.1.07 Patient province ............................................................................................................. 21

2.1.08 Patient postcode ............................................................................................................ 21

2.1.09 Patient country of birth, New Zealand or Australia ....................................................... 22

2.1.10 Patient country of birth, other than New Zealand or Australia ..................................... 22

2.1.11 Patient ethnicity – New Zealand European .................................................................... 22

2.1.12 Patient ethnicity – Samoan ............................................................................................ 23

2.1.13 Patient ethnicity – Tongan ............................................................................................. 23

2.1.14 Patient ethnicity – Chinese ............................................................................................. 23

2.1.15 Patient ethnicity – Maori ................................................................................................ 23

2.1.16 Patient ethnicity – Cook Islands Maori ........................................................................... 24

2.1.17 Patient ethnicity – Niuean .............................................................................................. 24

2.1.18 Patient ethnicity – Indian ............................................................................................... 24

2.1.19 Patient ethnicity – Not stated ........................................................................................ 25


2.1.20 Patient ethnicity – Other ................................................................................................ 25

2.1.21 Patient ethnicity – Other detail ...................................................................................... 25

2.1.22 Patient requires interpreter ........................................................................................... 26

2.1.23 Patient interpreter language .......................................................................................... 26

2.1.24 Patient requires communication assistance .................................................................. 26

2.1.25 Patient hearing or vision impaired ................................................................................. 27

2.1.26 Patient name - title ......................................................................................................... 27

2.1.27 Patient family name ....................................................................................................... 27

2.1.28 Patient given name ......................................................................................................... 28

2.1.29 Patient street address .................................................................................................... 28

2.1.30 Patient suburb address ................................................................................................... 28

2.1.31 Patient home telephone number ................................................................................... 28

2.1.32 Patient work telephone number .................................................................................... 29

2.1.33 Patient mobile telephone number ................................................................................. 29

2.1.34 Patient email .................................................................................................................. 29

2.1.35 Urgency category............................................................................................................ 30

Level 2: Episode Data Items .................................................................................................................. 31

Patient Identifier ........................................................................................................ 31

ePPOC Patient Identifier ............................................................................................. 31

Facility Identifier ......................................................................................................... 31

Episode identifier........................................................................................................ 31

EpisodeID .................................................................................................................... 32

Episode referral date .................................................................................................. 32

Episode referral source .............................................................................................. 32

Episode referral source other ..................................................................................... 33

Episode funded by ACC............................................................................................... 33

Episode for cancer pain .............................................................................................. 33

Episode start date ....................................................................................................... 34

Episode start mode ..................................................................................................... 34

Episode pain source .................................................................................................... 35

Episode pain source, other ......................................................................................... 35

Pain duration .............................................................................................................. 36

Comorbidity: heart and circulation problems ............................................................ 36

Comorbidity: high blood pressure .............................................................................. 36


Comorbidity: high cholesterol .................................................................................... 37

Comorbidity: respiratory problems ............................................................................ 37

Comorbidity: diabetes ................................................................................................ 37

Comorbidity: digestive problems ............................................................................... 38

Comorbidity: liver, kidney and pancreas problems .................................................... 38

Comorbidity: mental health ....................................................................................... 38

Comorbidity: PTSD ...................................................................................................... 39

Comorbidity: anxiety .................................................................................................. 39

Comorbidity: depression ............................................................................................ 39

Comorbidity: other mental health ............................................................................. 40

Comorbidity: cancer ................................................................................................... 40

Comorbidity: arthritis ................................................................................................. 40

Comorbidity: muscle, bone and joint problems ......................................................... 40

Comorbidity: neurological problems .......................................................................... 41

Comorbidity: thyroid problems .................................................................................. 41

Comorbidity: other ..................................................................................................... 41

Comorbidity: other, detail .......................................................................................... 42

Episode end date ........................................................................................................ 42

Episode end mode ...................................................................................................... 43

Level 3: Pathway Data Items ................................................................................................................. 44

2.3.01 Patient identifier ......................................................................................................... 44

2.3.02 ePPOC Patient Identifier ............................................................................................. 44

2.3.03 Facility Identifier ......................................................................................................... 44

2.3.04 EpisodeID .................................................................................................................... 44

2.3.05 Episode Identifier ....................................................................................................... 45

2.3.06 Pathway identifier ...................................................................................................... 45

2.3.07 PathwayID................................................................................................................... 45

2.3.08 Pathway type .............................................................................................................. 46

2.3.09 Pathway start date ..................................................................................................... 46

2.3.10 Pathway end date ....................................................................................................... 46

2.3.11 Group program start date .......................................................................................... 47

2.3.12 Group program end date ............................................................................................ 47

Level 4: Service Data Items .................................................................................................................... 48

Patient identifier ......................................................................................................... 48


ePPOC Patient Identifier ............................................................................................. 48

Facility Identifier ......................................................................................................... 48

Episode Identifier ....................................................................................................... 48

EpisodeID .................................................................................................................... 49

Pathway Identifier ...................................................................................................... 49

PathwayID................................................................................................................... 49

Service identifier ......................................................................................................... 49

Service events ............................................................................................................. 50

Date of service ............................................................................................................ 51

Duration of service event ........................................................................................... 51

Flag telehealth ............................................................................................................ 51

Level 5: Patient-Reported Outcomes Data Items .................................................................................. 52

2.5.01 Patient identifier ......................................................................................................... 52

2.5.02 ePPOC Patient Identifier ............................................................................................. 52

2.5.03 Facility Identifier ......................................................................................................... 52

2.5.04 EpisodeID .................................................................................................................... 52

2.5.05 Episode Identifier ....................................................................................................... 53

2.5.06 PathwayID................................................................................................................... 53

2.5.07 Pathway Identifier ...................................................................................................... 53

2.5.08 Questionnaire identifier ............................................................................................. 53

2.5.09 Questionnaire schedule identifier .............................................................................. 54

2.5.10 Questionnaire type ..................................................................................................... 54

2.5.11 Questionnaire type, other .......................................................................................... 54

2.5.12 Questionnaire type, other detail ................................................................................ 55

2.5.13 Questionnaire completion date ................................................................................. 55

2.5.14 Questionnaire generation date .................................................................................. 55

2.5.15 Survey mode ............................................................................................................... 55

2.5.16 Questionnaire sent status .......................................................................................... 56

2.5.17 Questionnaire completion status ............................................................................... 56

2.5.18 Height ......................................................................................................................... 57

2.5.19 Weight ........................................................................................................................ 57

2.5.20 Body Mass Index (BMI) ............................................................................................... 57

2.5.21 Pain description .......................................................................................................... 58

2.5.22 Health service use: general practitioner .................................................................... 58


2.5.23 Health service use: specialist ...................................................................................... 58

2.5.24 Health service use: allied health ................................................................................. 58

2.5.25 Health service use: emergency department .............................................................. 59

2.5.26 Health service use: hospital ........................................................................................ 59

2.5.27 Health service use: diagnostic tests ........................................................................... 59

2.5.28 Body Map: main pain ................................................................................................. 60

2.5.29 Body Map: other pain, head ....................................................................................... 61

2.5.30 Body Map: other pain, face ........................................................................................ 61

2.5.31 Body Map: other pain, neck ....................................................................................... 61

2.5.32 Body Map: other pain, left shoulder .......................................................................... 62

2.5.33 Body Map: other pain, right shoulder ........................................................................ 62

2.5.34 Body Map: other pain, chest ...................................................................................... 62

2.5.35 Body Map: other pain, left upper arm ....................................................................... 63

2.5.36 Body Map: other pain, right upper arm ..................................................................... 63

2.5.37 Body Map: other pain, left elbow .............................................................................. 63

2.5.38 Body Map: other pain, right elbow ............................................................................ 64

2.5.39 Body Map: other pain, left forearm ........................................................................... 64

2.5.40 Body Map: other pain, right forearm ......................................................................... 64

2.5.41 Body Map: other pain, left wrist ................................................................................ 65

2.5.42 Body Map: other pain, right wrist .............................................................................. 65

2.5.43 Body Map: other pain, left hand ................................................................................ 65

2.5.44 Body Map: other pain, right hand .............................................................................. 66

2.5.45 Body Map: other pain, abdomen ............................................................................... 66

2.5.46 Body Map: other pain, left hip ................................................................................... 66

2.5.47 Body Map: other pain, right hip ................................................................................. 67

2.5.48 Body Map: other pain, groin ...................................................................................... 67

2.5.49 Body Map: other pain, left thigh ................................................................................ 67

2.5.50 Body Map: other pain, right thigh .............................................................................. 68

2.5.51 Body Map: other pain, left knee ................................................................................. 68

2.5.52 Body Map: other pain, right knee .............................................................................. 68

2.5.53 Body Map: other pain, left calf ................................................................................... 69

2.5.54 Body Map: other pain, right calf ................................................................................. 69

2.5.55 Body Map: other pain, left ankle ................................................................................ 69

2.5.56 Body Map: other pain, right ankle .............................................................................. 70


2.5.57 Body Map: other pain, left foot .................................................................................. 70

2.5.58 Body Map: other pain, right foot................................................................................ 70

2.5.59 Body Map: other pain, upper back ............................................................................. 71

2.5.60 Body Map: other pain, mid back ................................................................................ 71

2.5.61 Body Map: other pain, low back................................................................................. 71

2.5.62 Body Map: main pain, none ....................................................................................... 72

2.5.63 Body Map: other pain, none....................................................................................... 72

2.5.64 Brief Pain Inventory: Severity - worst pain ................................................................. 72

2.5.65 Brief Pain Inventory: Severity - least pain .................................................................. 73

2.5.66 Brief Pain Inventory: Severity - average pain ............................................................. 73

2.5.67 Brief Pain Inventory: Severity - current pain .............................................................. 74

2.5.68 Brief Pain Inventory: Interference - general activity .................................................. 74

2.5.69 Brief Pain Inventory: Interference - mood ................................................................. 75

2.5.70 Brief Pain Inventory: Interference - walking .............................................................. 75

2.5.71 Brief Pain Inventory: Interference - work ................................................................... 76

2.5.72 Brief Pain Inventory: Interference - relations ............................................................. 76

2.5.73 Brief Pain Inventory: Interference - sleep ................................................................. 77

2.5.74 Brief Pain Inventory: Interference - enjoyment ......................................................... 77

2.5.75 Brief Pain Inventory: Severity score ........................................................................... 78

2.5.76 Brief Pain Inventory: Interference score .................................................................... 78

2.5.77 Brief Pain Inventory: Severity score missing responses ............................................. 79

2.5.78 Brief Pain Inventory: Interference score missing responses: ..................................... 79

2.5.79 Depression Anxiety Stress Scale: Q1 .......................................................................... 79









2.5.88 Depression Anxiety Stress Scale: Q10 ........................................................................ 84













2.5.100 Depression Anxiety Stress Scale: Depression score ................................................... 90

2.5.101 Depression Anxiety Stress Scale: Anxiety score ......................................................... 91

2.5.102 Depression Anxiety Stress Scale: Stress score ............................................................ 92

2.5.103 Depression Anxiety Stress Scale: Total score ............................................................. 92

2.5.104 Depression Anxiety Stress Scale: Depression score missing responses ..................... 93

2.5.105 Depression Anxiety Stress Scale: Anxiety score missing responses ........................... 93

2.5.106 Depression Anxiety Stress Scale: Stress score missing responses.............................. 94

2.5.107 Depression Anxiety Stress Scale: Total score missing responses ............................... 94

2.5.108 Pain Self-Efficacy Questionnaire: Q1 .......................................................................... 94









2.5.117 Pain Self-Efficacy Questionnaire: Q10 ........................................................................ 99

2.5.118 Pain Self-Efficacy Questionnaire: Total score ............................................................. 99

2.5.119 Pain Self-Efficacy Questionnaire: Total score missing responses ............................. 100

2.5.120 Pain Catastrophising Scale: Q1 ................................................................................. 100










2.5.129 Pain Catastrophising Scale: Q10 ............................................................................... 105




2.5.133 Pain Catastrophising Scale: Total score .................................................................... 107

2.5.134 Pain Catastrophising Scale: Rumination score ......................................................... 107

2.5.135 Pain Catastrophising Scale: Magnification score ...................................................... 108

2.5.136 Pain Catastrophising Scale: Helplessness score ....................................................... 108

2.5.137 Pain Catastrophising Scale: Total score missing responses ...................................... 109

2.5.138 Pain Catastrophising Scale: Rumination score missing responses ........................... 109

2.5.139 Pain Catastrophising Scale: Magnification score missing responses ....................... 109

2.5.140 Pain Catastrophising Scale: Helplessness score missing responses ......................... 110

2.5.141 Work status: employed ............................................................................................ 110

2.5.142 Work status: reason for unemployment .................................................................. 110

2.5.143 Work status: employment status ............................................................................. 111

2.5.144 Work status: work hours missed .............................................................................. 111

2.5.145 Work status: number of hours worked .................................................................... 111

2.5.146 Work status: lost productivity .................................................................................. 112

2.5.147 Work status: proportion of time missed .................................................................. 112

2.5.148 Work status: impairment while working .................................................................. 113

2.5.149 Work status: Overall work impairment .................................................................... 113

2.5.150 Medication use ......................................................................................................... 113

2.5.151 Medication, reported ............................................................................................... 114

2.5.152 Medication, opioid ................................................................................................... 114

2.5.153 Medication, paracetamol ......................................................................................... 114

2.5.154 Medication, NSAID ................................................................................................... 115

2.5.155 Medication, antidepressant ..................................................................................... 115

2.5.156 Medication, anticonvulsant ...................................................................................... 115

2.5.157 Medication, benzodiazepine .................................................................................... 116

2.5.158 Medication, medicinal cannabinoids ........................................................................ 116


2.5.159 Daily morphine ......................................................................................................... 116

2.5.160 Opioid frequency ...................................................................................................... 116

2.5.161 Opioid replacement program ................................................................................... 117

2.5.162 Medication inaccuracies ........................................................................................... 117

2.5.163 Global rating of change, overall ............................................................................... 117

2.5.164 Global rating of change, physical ............................................................................. 118

Level 6 Medication level data items ................................................................................................... 119

2.6.01 Patient identifier ..................................................................................................... 119

2.6.02 ePPOC Patient Identifier ......................................................................................... 119

2.6.03 Facility Identifier ..................................................................................................... 120

2.6.04 Episode Identifier .................................................................................................... 120

2.6.05 Questionnaire identifier .......................................................................................... 120

2.6.06 Medication Identifier .............................................................................................. 120

2.6.07 Medication Name ................................................................................................... 121

2.6.08 Medication Strength ............................................................................................... 121

2.6.09 Medication Daily Intake .......................................................................................... 121

2.6.10 Medication Frequency ............................................................................................ 121

References ................................................................................................................................................ 122

Contacts .................................................................................................................................................... 122


What is ePPOC? The electronic Persistent Pain Outcomes Collaboration (ePPOC) is an initiative that utilises standardised information and clinical assessment tools to benchmark and measure outcomes in the area of pain management. It has been established in response to one of the high priority recommendations of the National Pain Strategy: to improve standards in pain management through national benchmarking of care and treatment provided by specialist pain management services (PMSs). PMSs participating in ePPOC routinely collect information about their patients and outcomes, and submit this to ePPOC for reporting and analysis.

The ePPOC protocol collects patient-reported outcome measures at: referral; pathway start (if the referral measures were collected more than 3-6 months ago); pathway end; episode follow-up (collected 3-6 months after the episode end (i.e. the end of the last pathway))

Services may also collect ‘review’ and ‘ad hoc’ outcome assessments if a reassessment of the patient is considered necessary. This may occur, for example, at clinically significant time points (e.g. a multidisciplinary team assessment), throughout long duration treatment pathways or where there has been a significant event or change in a patients’ progress or condition.

The outcomes that ePPOC measures and reports are:

referral to post-episode follow-up referral to the end of the episode pathway start to pathway ends (to assess specific treatment pathways within an episode)


Introduction to the Data Dictionary and Technical Guidelines The ePPOC Data Dictionary and Technical Guidelines provide a reference for:

pain management service staff and researchers to understand and interpret the ePPOC data developers wishing to create a new system or modify an existing IT system to collect the ePPOC data

set. This document includes the rules, dependencies and architecture of the dataset in the context of creating such applications. Developers should note that the guidelines are not prescriptive in how applications should be created, but specify the required clinical inputs and data outputs that ePPOC requires for analysis. The guidelines do, however, recommend particular application functionalities that will minimise operator input and error and provide an efficient means to enter, find, revise and audit data.

The items included in the ePPOC dataset serve the dual purpose of:

defining a common clinical language to aid communication between pain management providers facilitating the routine collection of nationally consistent pain management data for the purpose of

reporting and benchmarking to drive quality improvement.

This document lists and describes all data items collected in relation to ePPOC. These data items include:

items collected by pain management services that will be submitted to ePPOC for analysis and reporting (e.g. patient date of birth, work status, assessment tool scores)

derived or system-generated data items that will be submitted for analysis and reporting (e.g. Episode Identifier, Facility identifier, total and subscale scores for the clinical assessment tools)

data items collected by the pain management services that are not submitted to ePPOC. These items are personally identifying patient details (e.g. full name, address) and items not required for analysis and reporting (e.g. individual medication details). These items are identified in this document by the text ‘For use by PMS only’ in the Usage section for each variable.

The ePPOC dataset consists of five levels of linked information – Patient, Episode, Pathway, Service Event and Patient-Reported Outcome Measures (PROMs). A sixth level, Medications, is collected by pain management services and used to derive other variables, but is not submitted as part of the ePPOC dataset. The remainder of this section provides information about the data items collected at each of these levels.

Level 1: Patient

The highest level of information is the patient level and relates to patient demographics. Patient records are the reference point for lower levels. There will only be one record for each patient at each service. Conceptually, the items collected at the patient level do not change over time (for example, date of birth and country of birth). The items related to a patient’s contact details are exceptions to this. In ePPOC analysis and reporting, patient information defines the patient population and contextualises the patient outcomes.


Level 2: Episode

For the purposes of ePPOC, an episode is defined as a continuous period of care for a patient in one pain management service. An episode of pain management begins with the first clinical contact with the patient and ends when the patient is discharged from the service, or when active treatment is complete. Under this definition a patient may have more than one episode. For example, a patient may receive treatment for pain at more than one PMS, or be re-referred to a service following completion of an earlier episode. The information collected at the episode level reflects the circumstances at the beginning and end of the particular episode. This information may be different in subsequent episodes.

Level 3: Pathway

The “Pathway” describes the type of treatment the patient receives during the episode of care at the PMS. There are four pathways:

Pathway 1 Group pain management program(s)

Pathway 2 Individual appointments with clinicians (e.g. medical, nursing and allied health practitioners)

Pathway 3 Concurrent pathways where group programs and individual appointments are provided at the same time

Pathway 4 One-off interventions, where it is not expected that any further intervention will be provided. These might include a procedural intervention with no further individual appointments planned, or a single appointment with a medical specialist.

More than one pathway may be followed during an episode, however multiple pathways cannot be active at the same time. Depending on the PMS and its specialisation as well as individual patient needs, pathways may:

change during an episode. For example, a patient’s episode may begin with a group pain program but it is then decided that the patient also, and at the same time, requires individual appointments with a clinician. In this case the pathway would change from Pathway 1 to Pathway 3.

be provided sequentially. For example, a patient may complete a group pain program which is then followed by individual appointments. The episode would consist of a Pathway 1 and Pathway 2.

Level 4: Service events

This level describes the service events (also known as occasions of service) provided to the patient during an episode of care. These include individual appointments with a clinician (e.g. physiotherapist, nurse, psychologist, medical specialist), multidisciplinary assessments and discussions, pain management programs, procedures, education/orientation programs. This information is collected to allow assessment of patient outcomes as a function of intensity and focus of the treatment delivered.


Level 5: Patient Reported Outcome Measures (PROMs)

Standardised patient questionnaires are completed by the patient in ‘referral’ and ‘follow-up’ questionnaires at:

initial referral to the PMS the beginning and end of each pathway within an episode follow-up three to six months after the end of the episode.

Reponses to these questionnaires allows assessment of patient improvement and progress throughout and following an episode of care.

Level 6: Medication

This level details the medication(s) the patient is taking, as reported by the patient.


The ePPOC Version 2 Dataset Version 2 of the ePPOC dataset was introduced on 1 January 2018. It replaces Version 1 which was in operation from 2013 to 2017. The changes include the addition of new data items, revision of existing items, and deletion of others. These changes have been agreed to and endorsed by the ePPOC Scientific and Clinical Advisory Committee and the ePPOC Management Advisory Group, and are listed in the tables below.

Summary of revisions to the ePPOC dataset Description of change Data elements revised Data elements added Data elements removed

Capture of patient urgency category

Nil Urgency Category Nil

Episode start: revision of code set options

Episode start mode Nil Nil

Episode end: revision of code set options

Episode end mode Nil Nil

Revision of comorbidity variables

Nil Comorbidity: heart and circulation problems

Comorbidity: high cholesterol

Comorbidity: respiratory problems

Comorbidity: digestive problems

Comorbidity: liver, kidney and pancreas problems

Comorbidity: mental health

Comorbidity: PTSD

Comorbidity: anxiety

Comorbidity: depression

Comorbidity: other mental health

Comorbidity: arthritis

Comorbidity: muscle, bone and joint problems

Comorbidity: neurological problems

Comorbidity: thyroid problems

Comorbidity: heart disease

Comorbidity: lung comorbidity

Comorbidity: ulcer or stomach disease

Comorbidity: kidney disease

Comorbidity: depression/anxiety

Comorbidity: anaemia or other blood disease

Comorbidity: osteoarthritis or degenerative disease

Comorbidity: rheumatoid arthritis

Comorbidity: stroke or other neurological condition

Modification of service event code options

Service events Nil Nil

Addition of variable describing the mode by which a questionnaire is provided to the patient

Nil Survey mode Nil


Description of change Data elements revised Data elements added Data elements removed

Modification of the code options describing whether a questionnaire has been sent to a patient

Questionnaire sent status Nil Nil

Modification to allow patients to indicate that they no longer have pain following treatment

Pain Description

Body Map, main pain, none

Body Map, other pain, none

Nil

Addition of variables permitting specification of the episode event triggering creation of an ad hoc questionnaire

Questionnaire type, other

Questionnaire type, other detail

Nil Nil

Inclusion of questions relating to work status and productivity

Nil Work status: employed

Work status: reason for unemployment

Work status: employment status

Work status: work hours missed

Work status: number of hours worked

Work status: lost productivity

Work status: proportion of time missed

Work status: impairment while working

Work status: overall work impairment

Work status: Full time employment

Work status: Part time employment

Work status: Retired

Work status: Unemployed due to pain

Work status: Unemployed (not due to pain)

Work status: Home duties

Work status: On leave from work

Work status: Student

Work status: Voluntary work

Work status: Retraining

Work status: Limited hours and/or duties

Hours worked (part time)

Work/study hours affected by pain

Work type affected by pain

Changes to questions regarding medication use and the process* for collection

(the process change is described in detail on page 119)

Nil Medication Use

Medication, reported

Medication, opioid

Medication, paracetamol

Medication, NSAID

Medication, antidepressant

Medication, anticonvulsant

Major drug groups, excluding opioids

Major drug groups


Description of change Data elements revised Data elements added Data elements removed

Medication, benzodiazepine

Medication, medicinal cannabinoids

Medication inaccuracies

Introduction of global rating of change questions

Nil Global rating of change, overall

Global rating of change, physical

Nil

The previous version of the ePPOC dataset is described in the ePPOC Data Dictionary and Technical Guidelines Version 1, and can be found on the ePPOC website, at https://ahsri.uow.edu.au/eppoc

Supplementary values for ePPOC data items

Response option Explanation -2, -4, -5 ePPOC data items -2, -4, and -5 indicate that there was no response to the

variable.

-2 The patient or pain management service did not enter a response for this item

-4 A response to this item was not required (i.e. the item was not applicable to that patient)

-5 This value is used for a range of specific situations where data are missing for reasons other than -2 or -4 above. For example, a questionnaire was created in epicentre but the patient has not accessed the questionnaire link to respond, or a questionnaire has been created but not sent.

https://ahsri.uow.edu.au/eppoc


epiCentre: the ePPOC data collection system epiCentre (ePPOC Patient Information Centre) is a purpose built system for the collection of patient- and service-related information.

epiCentre allows:

collection of information used by the PMS for assessment and monitoring of patients extraction of data by individual pain services for research, monitoring and reporting purposes extraction of information required by ePPOC for reporting, benchmarking and research

purposes monitoring and scheduling the collection of PROMs

epiCentre has two components: Desktop application: This application allows the PMS staff to enter information relating to

patients, episodes, pathways, services and outcomes. It also provides integration with REDCap, the online system which can be used to collect the patient-rated measures.

REDCap server: REDCap (Research Electronic Data Capture) is a program which allows users to build and manage online surveys and databases quickly and securely. epiCentre utilises REDCap to securely manage and deliver questionnaires to patients who choose to complete these online.

More detailed information regarding epiCentre can be found on the ePPOC website at: http://ahsri.uow.edu.au/eppoc The use of epiCentre by PMSs is recommended but optional. PMSs may choose to use:

epiCentre for the collection of all data; an existing system to collect the information and later extract the required ePPOC data items for

analysis; or a hybrid of epiCentre and an existing system, with some information extracted from epiCentre

and the remainder from the existing system.

If an existing IT system or hybrid approach is used, the system should, at a minimum, allow users to:

create linked patient, episode, pathway, service and PROM records enter the ePPOC data items, restricting user input to the domains specified by ePPOC extract data from the system in the format required by ePPOC search for records in order to complete, update or correct entered data manage service level identifiers and related information.

The IT system should also incorporate the business rules outlined by ePPOC, to ensure that data entry errors are minimised.

http://ahsri.uow.edu.au/eppoc/index.html


ePPOC Version 2 data items Level 1: Patient Data Items

2.1.01 Patient Identifier

Abbreviation: PatientIdentifier

Conditions: Mandatory

The Patient Identifier must be unique within the PMS.

Definition: A unique patient identifier assigned by the PMS. This may be a medical record/unit record number which is generated for each patient within a service.

Data type: String

Data length: 20 characters maximum

Usage: For use by PMS only

The positive and unique identification of a patient: the Patient Identifier ensures that information recorded at each level (e.g. service and pathway) can be associated with that individual, and also allows tracking of the patient through different episodes of care at a pain management service. This number must be used at all times when recording patient, episode, service, pathway and patient-reported outcome level information in epiCentre.

2.1.02 ePPOC Patient Identifier

Abbreviation: PatientID

Definition: A unique key for each patient at a pain service, assigned by epiCentre.

Data type: String


Usage: The positive and unique identification of a patient: the ePPOC Patient Identifier ensures that information recorded at each level (e.g. service and pathway) can be associated with that individual, and also allows tracking of the patient through different episodes of care at a pain management service.

2.1.03 Facility Identifier

Abbreviation: FacilityIdentifier


Definition: A unique code for each facility assigned by epiCentre.

Data type: String


Usage: The positive and unique identification of a facility.


2.1.04 Patient date of birth

Abbreviation: DateOfBirth


Definition: The date of birth of the patient.

Data type: Date in format DD/MM/YYYY

Data length: 10 characters (including “/” characters)

Usage: To derive age for ePPOC demographic analyses and as a component of the Statistical Linkage Key (see 2.1.06).

Rule: The Date of Birth must be less than the current date.

2.1.05 Patient sex

Abbreviation: Sex


Definition: The sex of the patient; the biological distinction between male and female.

Data type: Numeric

Data domain: Value Description

1 Male 2 Female 9 Not stated/inadequately described

Data length: 1 character

Usage: To enable standardisation of the collection of information relating to sex.

For ePPOC, sex value will be used in the Statistical Linkage Key (SLK) (see 2.1.06), in demographic analysis of ePPOC data and may assist to analyse service utilisation, service needs and epidemiological studies.


2.1.06 Patient Statistical Linkage Key (SLK)

Abbreviation: StatisticalLinkageKey


The SLK will be computed by epiCentre, and requires characters from the mandatory fields GivenNames (2.1.28), FamilyName (2.1.27), DateOfBirth (2.1.04) and Sex (2.1.05).

Definition: The SLK is derived by joining the ‘letters of name’ (2nd, 3rd and 5th letters of the family name, and 2nd and 3rd letters of the first given name), ‘date of birth’, and ‘sex’ to create a 14 character identifier. There are also some instances where the SLK information may be unknown, and substitute characters are used instead.

The format of the key is XXXXXDDMMYYYYN where:

• XXXXX is the 2nd, 3rd and 5th letters of the family name and the 2nd and 3rd letters of the first name. For example: John Smith becomes ‘MIHOH’

• DDMMYYYY is the Patient’s Date of Birth • N is the Patient’s Sex, where 1 = Male and 2 = Female

Non Alphabetic Characters such as spaces and hyphens (“-“) are ignored.

If a name is too short to extract a character, a 2 is substituted for this character.

If a patient is missing a family name or has a single name only, 999 is substituted for the family name component

Data type: Alphanumeric String in the format XXXXXDDMMYYYYN

Data Domain: 22222010119001 to ZZZZZ311221009

Data Length: 14 characters

Rules: The patient’s name, date of birth and sex must be recorded:

[First Name]

[Family Name]

[Date of Birth]

[Sex]

Usage: The SLK is used for deterministic linkage. The linkage key is designed to make it possible to count number of patients and services they received, without counting the same patient more than once. For ePPOC this will allow determination of whether patients have multiple episodes at one or more PMSs, enabling a more accurate picture of patient numbers and patterns of assistance.

It is not necessary for the SLK to be visible to users.

Source: METeOR Identifier 349510


2.1.07 Patient province

Abbreviation: StateOrProvince

Definition: The Province of the patient’s residential address

Data type: Numeric


20 Northland 21 Auckland 22 Waikato

23 Bay of Plenty 24 Gisborne 25 Hawkes Bay 26 Taranaki 27 Manawatu-Wanganui

28 Wellington 29 Tasman 30 Nelson 31 Marlborough

32 West Coast 33 Canterbury 34 Otago 35 Southland

99 Other/Unknown


2.1.08 Patient postcode

Abbreviation: Postcode

Conditions: Data item to be collected for residents of New Zealand and Australia

Definition: The numeric descriptor for a postal delivery area for patient’s address in New Zealand and Australia.

Data type: Numeric

Data length: 5 characters While data length has been set at 5, epiCentre will only accept 4 digits for New Zealand and Australian postcodes


2.1.09 Patient country of birth, New Zealand or Australia

Abbreviation: CountryOfBirth

Definition: Code to represent whether the patient was born in New Zealand, Australia or other country.

Data type: Numeric


1 Born in Australia 2 Born in New Zealand 9 Other country of birth

Data length: 2 character maximum

Rules: Indicate whether the patient was born in New Zealand or Australia. If CountryOfBirth (2.1.09) = 9, record the name of the country of birth at 2.1.10.

2.1.10 Patient country of birth, other than New Zealand or Australia

Abbreviation: CountryOfBirthOther

Conditions: Optional for collection if CountryofBirth (2.1.09) =9

Definition: Patient’s country of birth, for patients not born in New Zealand or Australia

Data type: String


Usage: Country of birth will not be coded for the ePPOC dataset but instead recorded in text form. PMS may wish to refer to Australian Bureau of Statistics (2016) Standard Australian Classification of Countries 2016 (SACC). Cat No. 1269.0.

2.1.11 Patient ethnicity – New Zealand European

Abbreviation: Flag_NZ_EthnicityEuropean

Definition: Whether the patient identifies as being of New Zealand European ethnicity.

Data type: Numeric


0 No, patient does not identify as being of New Zealand European ethnicity.

1 Yes, patient identifies as being of New Zealand European ethnicity.



2.1.12 Patient ethnicity – Samoan

Abbreviation: Flag_NZ_EthnicitySamoan

Definition: Whether the patient identifies as being of Samoan ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Samoan ethnicity. 1 Yes, patient identifies as being of Samoan ethnicity.


2.1.13 Patient ethnicity – Tongan

Abbreviation: Flag_NZ_EthnicityTongan

Definition: Whether the patient identifies as being of Tongan ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Tongan ethnicity.

1 Yes, patient identifies as being of Tongan ethnicity.


2.1.14 Patient ethnicity – Chinese

Abbreviation: Flag_NZ_EthnicityChinese

Definition: Whether the patient identifies as being of Chinese ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Chinese ethnicity. 1 Yes, patient identifies as being of Chinese ethnicity.


2.1.15 Patient ethnicity – Maori

Abbreviation: Flag_NZ_EthnicityMaori

Definition: Whether the patient identifies as being of Maori ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Maori ethnicity.

1 Yes, patient identifies as being of Maori ethnicity.



2.1.16 Patient ethnicity – Cook Islands Maori

Abbreviation: Flag_NZ_EthnicityCookIslands

Definition: Whether the patient identifies as being of Cook Island Maori ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Cook Islands Maori ethnicity. 1 Yes, patient identifies as being of Cook Islands Maori ethnicity.


2.1.17 Patient ethnicity – Niuean

Abbreviation: Flag_NZ_EthnicityNiuean

Definition: Whether the patient identifies as being of Niuean ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Niuean ethnicity.

1 Yes, patient identifies as being of Niuean ethnicity.


2.1.18 Patient ethnicity – Indian

Abbreviation: Flag_NZ_EthnicityIndian

Definition: Whether the patient identifies as being of Indian ethnicity.

Data type: Numeric


0 No, patient does not identify as being of Indian ethnicity. 1 Yes, patient identifies as being of Indian ethnicity.



2.1.19 Patient ethnicity – Not stated

Abbreviation: Flag_NZ_EthnicityNotStated

Definition: Whether the patient responded that they would prefer not to state with which ethnic group(s) they identify.

Data type: Numeric


0 No, patient did not respond that they would prefer not to state. 1 Yes, patient preferred not to state which ethnic group(s) they identified

with.


2.1.20 Patient ethnicity – Other

Abbreviation: Flag_NZ_EthnicityOther

Definition: Record of whether the patient identifies with another ethnic group, not captured in items 2.1.11 to 2.1.18.

Data type: Numeric


0 Not indicated

1 Indicated


Rule: If Flag_NZ_EthnicityOther = 1, complete Patient ethnicity – Other detail (2.1.21)

2.1.21 Patient ethnicity – Other detail

Abbreviation: NZ_EthnicityOther

Definition: Specification of other ethnic group, not captured in items 2.1.11 to 2.1.18.

Data type: String

Data length: 64 characters

Rule: Complete if Flag_NZ_EthnicityOther (2.1.20) = 1


2.1.22 Patient requires interpreter

Abbreviation: Flag_RequireInterpreter

Definition: Record of whether an interpreter service is required for the patient.

Data type: Numeric


0 No 1 Yes


2.1.23 Patient interpreter language

Abbreviation: InterpreterLanguage

Conditions: Optional for collection if Flag_RequireInterpreter (2.1.22) = 1

Definition: For patients who require an interpreter, specification of the language required.

Data type: String


Usage: Preferred language will not be coded for the ePPOC dataset but instead recorded in text form. PMS may choose to refer to Australian Bureau of Statistics (2016) Australian Standard Classification of Languages (ASCL) 2016. Cat. no. 1267.0.

2.1.24 Patient requires communication assistance

Abbreviation: Flag_CommunicationAssist

Definition: Record of whether the patient requires assistance with written or spoken communication.

Data type: Numeric


0 No

1 Yes



2.1.25 Patient hearing or vision impaired

Abbreviation: Flag_HearingSightImpaired

Definition: Record of whether the patient has impairment of hearing or vision.

Data type: Numeric


0 No 1 Yes


2.1.26 Patient name - title

Abbreviation: Title

Definition: Name title is a prefix to a person's name.

Data type: String


Data domain: Mr, Mrs, Ms, Miss

Usage: For use by PMS only.

2.1.27 Patient family name

Abbreviation: FamilyNames


Definition: The part of the patient’s name in common with some other members of his/her family, as distinguished from his/her given names.

Data type: String


Usage: Full name: For use by PMS only.

Selected letters from the name will be provided to ePPOC for use in the SLK (see 2.1.06).


2.1.28 Patient given name

Abbreviation: GivenNames


Definition: The patient's identifying name within the family group or name by which the patient is socially identified.

Data type: String


Usage: Full name: For use by PMS only

Selected letters from the name will be provided to ePPOC for use in the SLK (see 2.1.06).

2.1.29 Patient street address

Abbreviation: AddressStreet

Definition: The name of the street, road or thoroughfare of the patient’s residential address.

Data type: String



2.1.30 Patient suburb address

Abbreviation: AddressSuburb

Definition: The name of the locality/suburb of the patient’s residential address.

Data type: String



2.1.31 Patient home telephone number

Abbreviation: PhoneHome

Definition: The patient’s home phone number.

Data type: String




2.1.32 Patient work telephone number

Abbreviation: PhoneWork

Definition: The patient’s work phone number.

Data type: String



2.1.33 Patient mobile telephone number

Abbreviation: PhoneMobile

Definition: The patient’s mobile phone number.

Data type: String



2.1.34 Patient email

Abbreviation: Email

Definition: An electronic internet contact address, used for communication purposes.

Data type: String

Data domain: <username>@<domain>



Rule: The email must contain ‘@’ in the string


2.1.35 Urgency category

Abbreviation: Urgency

Definition: Record of the urgency category assigned to the patient by the pain management service.

Data type: Numeric


1 Low 2 Moderate 3 High


Usage: This variable was designed to allow PMS to categorise patients by urgency. Note however that some services have indicated that they use this variable to categorise patients on a different measure. It is therefore recommended that researchers interpret results using this variable with caution.


Level 2: Episode Data Items

Patient Identifier

Conditions: See Patient Identifier (2.1.01) for details of format and further usage rules

Usage: Used to link records across different levels.

Rules: This item should be automatically populated by the system from the patient level item. It should not be editable by the user.

Must match a PatientID.

ePPOC Patient Identifier

Conditions: See ePPOC Patient Identifier (2.1.02) for details of format and further usage rules.




Facility Identifier

Conditions: See Facility Identifier (2.1.03) for details of format and further usage rule



Must match a FacilityID.

Episode identifier

Abbreviation: EpisodeIdentifier


This item should be automatically generated by epiCentre and not be editable by the user

Definition: A unique episode identifier for each patient within a pain management service

Data type: Numeric



EpisodeID

Abbreviation: EpisodeID


The episode identifier must be unique within the IT system.


Definition: A unique identifier for each episode at a pain management service.

Data type: Numeric


Episode referral date

Abbreviation: ReferralDate

Definition: The date a PMS receives a referral to provide care for a patient for this episode. It is not the date of the original referral.



Rules: Referral Date being later than the Episode Start date should cause a warning error.

Referral Date being later than the current date should cause a warning error.

A Referral Date earlier than one year ago should produce a warning error.

Episode referral source

Abbreviation: ReferralSource

Definition: The clinician type, facility or organisation from which the patient was referred for this episode.

Data type: Numeric


10 General practitioner/nurse practitioner 11 Specialist practitioner

12 Other pain management service 13 Public hospital 14 Private hospital 15 Rehabilitation provider/private insurer

99 Other



Episode referral source other

Abbreviation: ReferralSourceOther

Conditions: To be completed if ReferralSource (2.2.07) = 99

Definition: Detail of the facility/clinician role from which the patient was referred for this episode.

Data type: String


Episode funded by ACC

Abbreviation: Flag_NZ_FundedACC

Definition: Record of whether the patient’s care at the pain management service is funded by the Accident Compensation Corporation.

Data type: Numeric


0 No

1 Yes


Episode for cancer pain

Abbreviation: CancerPain

Definition: Record of whether the episode is for the management of cancer pain. If the pain is due directly to cancer, or is a consequence of the treatment for cancer even if cancer is no longer present, then the answer to this question should be ‘yes’. This information can be contained in the referral letter or from discussion with the patient.

Data type: Numeric


0 No 1 Yes



Episode start date

Abbreviation: EpisodeStartDate

Definition: The date that pain care commences for this episode, defined as the first clinical contact with the patient.



Rules: ReferralDate being later than EpisodeStartDate should cause a warning error.

Episode start mode

Abbreviation: EpisodeStartMode

Definition: Describes how this episode of pain management commenced.

Data type: Numeric


3 Multidisciplinary assessment and/or treatment 4 Single discipline assessment and/or treatment 5 Education/orientation program


Rules: If two or more contact types are delivered on the same day, apply the hierarchy of multidisciplinary, followed by single clinician and then education/orientation.

Version: Version 1 codes shown below will continue to appear in extracts of data entered under Version 1 of the dataset (e.g. prior to 1 January 2018)

Version 1 (Still valid) Version 2

1 Single or multidisciplinary assessment

3 Multidisciplinary assessment and/or treatment

2 Treatment Start 4 Single Clinician assessment and/or treatment

5 Education/orientation Program


Episode pain source

Abbreviation: PainSource

Definition: Record of the reason for the patient’s main pain for the episode as represented by the code values below.

Data type: Numeric

Data Domain: Value Description

1 Injury at home 2 Injury at work/school 3 Injury in another setting 4 After surgery 5 Motor vehicle crash

6 Cancer 7 Medical condition other than cancer 8 No obvious cause 99 Other cause


Rule: If PainSource (2.2.13) = 99, complete PainSourceOtherDetail (2.2.14)

Episode pain source, other

Abbreviation: PainSourceOtherDetail

Conditions: To be completed if PainSource (2.2.13) = 99

Definition: Specification of the reason for the patient’s main pain for the episode (where reason is not represented by values in PainSource (2.2.13).

Data type: String



Pain duration

Abbreviation: PainDuration

Definition: Record of the length of time the patient’s pain has been present as represented by the code values below.

Data type: Numeric


1 Less than 3 months 2 3-12 months 3 12 months to 2 years 4 2-5 years 5 More than 5 years


Comorbidity: heart and circulation problems

Abbreviation: Flag_CMHeartCirculation

Definition: Record of whether patient has comorbidity of heart and circulation problems at the start of the episode.

Data type: Numeric


0 Not indicated 1 Indicated


Comorbidity: high blood pressure

Abbreviation: Flag_CMBloodPressure

Definition: Record of whether patient has comorbidity of high blood pressure at the start of the episode of care.

Data type: Numeric





Comorbidity: high cholesterol

Abbreviation: Flag_CMCholesterol

Definition: Record of whether patient has comorbidity of high cholesterol at the start of the episode of care.

Data type: Numeric




Comorbidity: respiratory problems

Abbreviation: Flag_CMRespiratory

Definition: Record of whether patient has comorbidity of respiratory problems at the start of the episode of care.

Data type: Numeric




Comorbidity: diabetes

Abbreviation: Flag_CMDiabetes

Definition: Record of whether patient has comorbidity of diabetes at the start of the episode of care.

Data type: Numeric





Comorbidity: digestive problems

Abbreviation: Flag_CMDigestive

Definition: Record of whether patient has comorbidity of digestive problems at the start of the episode of care.

Data type: Numeric




Comorbidity: liver, kidney and pancreas problems

Abbreviation: Flag_CMLiverKidneyPancreas

Definition: Record of whether patient has comorbidity of liver, kidney and/or pancreas problems at the start of the episode of care.

Data type: Numeric




Comorbidity: mental health

Abbreviation: Flag_CMMentalHealth

Definition: Record of whether patient has comorbidity of mental health condition at the start of the episode of care.

Data type: Numeric





Comorbidity: PTSD

Abbreviation: Flag_CMPTSD

Definition: Record of whether patient has comorbidity of post-traumatic stress disorder at the start of the episode of care.

Data type: Numeric




Comorbidity: anxiety

Abbreviation: Flag_CMAnxiety

Definition: Record of whether patient has comorbidity of anxiety at the start of the episode of care.

Data type: Numeric




Comorbidity: depression

Abbreviation: Flag_CMDepression

Definition: Record of whether patient has comorbidity of depression at the start of the episode of care.

Data type: Numeric





Comorbidity: other mental health

Abbreviation: ComorbiditiesMentalHealthOther

Definition: Specification of other mental health condition (not captured in items 0 to 2.2.26).

Data type: String


Comorbidity: cancer

Abbreviation: Flag_CMCancer

Definition: Record of whether patient has comorbidity of cancer at the start of the episode of care.

Data type: Numeric


0 Not indicated

1 Indicated


Comorbidity: arthritis

Abbreviation: Flag_CMArthritis

Definition: Record of whether patient has comorbidity of arthritis at the start of the episode of care.

Data type: Numeric




Comorbidity: muscle, bone and joint problems

Abbreviation: Flag_CMMuscle

Definition: Record of whether patient has muscle, bone and joint problems other than arthritis at the start of the episode of care.

Data type: Numeric





Comorbidity: neurological problems

Abbreviation: Flag_CMNeurological

Definition: Record of whether patient has comorbidity of neurological problems at the start of this episode of care.

Data type: Numeric




Comorbidity: thyroid problems

Abbreviation: Flag_CMThyroid

Definition: Record of whether patient has comorbidity of thyroid problems at the start of this episode of care.

Data type: Numeric




Comorbidity: other

Abbreviation: Flag_CMOther

Definition: Record of whether patient has other comorbidity not listed in Error! Reference source not found. to 2.2.32 at the start of the episode of care.

Data type: Numeric




Rule: If Flag_CMOther (2.2.33) = 1, complete ComorbiditiesOther (2.2.34)


Comorbidity: other, detail

Abbreviation: ComorbiditiesOther

Definition: Specification of other patient comorbidity (not captured in items 2.2.16 to 2.2.32).

Data type: String


Rule: Complete if Flag_CMOther (2.2.33) = 1

Episode end date

Abbreviation: EpisodeEndDate

Definition: The date the patient’s episode of care at the PMS ends



Rules: EpisodeEndDate before EpisodeStartDate should cause a critical error.


Episode end mode

Abbreviation: EpisodeEndMode

Definition: The reason that the episode of PMS ended as represented by the code values below.

Data type: Numeric

Data Domain: Value Description

1 Treatment complete – self management/referral to primary care 2 Referral to another pain service 3 Patient discontinued by choice 4 Died 5 Active treatment complete – ongoing review

6 Referral did not proceed to episode start 7 Lost to contact/Not to follow-up


Version: The code set for this item was modified for Version 2, with the mapping of codes shown below.

Version 1 Version 2

1 Pain management service treatment completed

1 Treatment complete – self management/referral to primary care

2 Referral to another pain management service

2 Referral to another pain service

3 Did not complete treatment 3 Patient discontinued by choice

4 Died 4 Died

5 Primary treatment completed (ongoing review)

5 Active treatment complete – ongoing review

9 Other 6 Referral did not proceed to episode start

7 Lost to contact/Not to follow-up


Level 3: Pathway Data Items

2.3.01 Patient identifier




Must match a PatientIdentifier.







Conditions: See Facility Identifier (2.1.03) for details of format and further usage rules



Must match a FacilityID.

2.3.04 EpisodeID

Conditions: See EpisodeID (2.2.04) for details of format and further usage rules


Rules: This item should be automatically populated by the system from the episode level item. It should not be editable by the user.

Must match an EpisodeID.


2.3.05 Episode Identifier

Conditions: See EpisodeIdentifier (2.2.04) for details of format and further usage rules



Must match an EpisodeIdentifier.

2.3.06 Pathway identifier

Abbreviation: PathwayIdentifier



Definition: A unique pathway identifier for each patient within a pain management service

Data type: Numeric


2.3.07 PathwayID

Abbreviation: PathwayID


The pathway identifier must be unique within the IT system.


Definition: A unique identifier for each pathway at a pain management service.

Data type: Numeric



2.3.08 Pathway type

Abbreviation: PathwayType

Definition: The type of intervention provided to the patient as defined by the code values below.

Data type: Numeric

Data Domain: Value Meaning

1 Group pain management program(s) 2 Individual appointments 3 Concurrent pathway 4 One-off intervention

Data Length: 1 character

2.3.09 Pathway start date

Abbreviation: PathwayStartDate


Definition: The date that treatment commences for the pathway. This could be, for example, the first day of a pain management program, the first appointment with a clinician for the management of a patient’s pain or the day on which a patient underwent a procedural intervention.



2.3.10 Pathway end date

Abbreviation: PathwayEndDate


Definition: The date that the treatment pathway ends. This could be, for example, the last day of a pain management program or the last appointment with a clinician.




2.3.11 Group program start date

Abbreviation: GroupProgramStartDate

Conditions: Can be collected if PathwayType=3 (2.3.08)

Definition: This additional start date can only be used during Concurrent pathways, where a group program is offered concurrently with individual clinical appointments. Under the ePPOC protocol, the start and end of a group program trigger a patient-reported outcome assessment. Therefore, for concurrent pathways, the start dates of both the pathway as a whole and the group program can be entered. If the concurrent pathway begins with the start of the group pain management program, these two dates will be the same.



Usage: For ePPOC, the start and end of a group program trigger a patient-reported outcome assessment. Therefore, for concurrent pathways, the start dates and end dates of both the pathway as a whole and the group program can be entered in order to assess outcomes based on elapsed time and intervention type.

2.3.12 Group program end date

Abbreviation: GroupProgramEndDate

Conditions: Can be collected if PathwayType=3

Definition: This additional end date can only be used during Concurrent pathways, where a group program is offered concurrently with individual clinical appointments. Under the ePPOC protocol, the start and end of a group program trigger a patient-reported outcome assessment. Therefore, for concurrent pathways, the start dates of both the pathway as a whole and the group program can be entered. If the concurrent pathway ends with the completion of the group pain management program, these two dates will be the same.



Usage: For ePPOC, the start and end of a group program trigger a patient-reported outcome assessment. Therefore, for concurrent pathways, the start dates and end dates of both the pathway as a whole and the group program can be entered in order to assess outcomes based on elapsed time and intervention type


Level 4: Service Data Items

Patient identifier

Conditions: See Patient Identifier (2.1.01) for details of format and further use




ePPOC Patient Identifier





Facility Identifier




Must match a FacilityIdentifier.

Episode Identifier

Conditions: See Episode Identifier (2.2.04) for details of format and further usage





EpisodeID





Pathway Identifier

Conditions: See Pathway Identifier (2.3.06) for details of format and further usage


Rules: This item should be automatically populated by the system from the Pathway level item. It should not be editable by the user.

Must match a PathwayIdentifier.

PathwayID

Conditions: See PathwayID (2.3.07) for details of format and further usage rules


Rules: This item should be automatically populated by the system from the Pathway level item. It should not be editable by the user.

Must match a PathwayID

Service identifier

Abbreviation: ServiceEventID

Definition: A unique identifier for the service assigned by epiCentre

Data type: Numeric


Rules: This item should be automatically generated by the system and not be editable by the user.



Service events

Abbreviation: ServiceEvents

Definition: The type of service provided to the patient as represented by the values below.

Note:

• Some patients are not suitable to participate in a group pain program, but instead receive the contents of the group program on an individual basis. The service events below therefore distinguish between ‘pain management program (group)’ and ‘pain management program (individual)’

• Telephone/email consultations (with patient/carer or with another clinician) must involve provision of advice and/or pain management strategies. Administrative tasks (such as making appointments) are not recorded.

Data type: Numeric

Data domain: Value Meaning

1 Individual appointment with medical practitioner 2 Individual appointment with physiotherapist 3 Individual appointment with psychologist 4 Individual appointment with occupational therapist 5 Individual appointment with nurse 6 Individual appointment with one or more clinicians 7 Individual appointment – other 8 Multidisciplinary team assessment 9 Multidisciplinary panel discussion 10 Telephone/email consultation with patient/carer 11 Telephone/email consultation with another clinician 12 Pain management program – group 13 Pain management program – individual 14 Procedural intervention – implant (drug delivery) 15 Procedural intervention – implant (neurostimulation) 16 Procedural intervention – non-implant 17 Procedural intervention – cancer block 18 Procedural intervention – other 19 Education/Orientation Program 99 Other


Version information: The values ‘18 – Procedural intervention – other’, and ‘19 – Education/Orientation Program’ were introduced in Version 1.6 of epiCentre in March 2016.


Date of service

Abbreviation: DateOfService

Definition: The date that the service was provided to the patient.



Duration of service event

Abbreviation: DurationOfService

Definition: The length of time (in minutes) of the service event delivered to the patient.

Data type: Numeric

Data Length: 4 characters

Flag telehealth

Abbreviation: Flag_Telehealth

Definition: Record of whether the service event was provided via Telehealth, that is, via teleconferencing or videoconferencing. One-on-one phone consultations with a patient or patient’s physician are not considered telehealth.

Data type: Numeric


0 No 1 Yes



Level 5: Patient-Reported Outcomes Data Items
















2.5.04 EpisodeID







Conditions: See EpisodeIdentifier (2.2.05) for details of format and further usage rules




2.5.06 PathwayID

Conditions: See PathwayID (2.3.07) for details of format and further usage rules



Must match a PathwayID.

2.5.07 Pathway Identifier

Conditions: See PathwayIdentifier (2.3.06) for details of format and further usage rules



Must match a PathwayIdentifier.

2.5.08 Questionnaire identifier

Abbreviation: PatientSurveyKey

Definition: A unique identifier for each questionnaire generated at the level of the pain management service, assigned by epiCentre.

Data type: Numeric

Data length: 12 Characters maximum




2.5.09 Questionnaire schedule identifier

Abbreviation: SurveyScheduleID

Definition: A unique identifier for each online questionnaire used by REDCap.

Data type: Numeric

Data length: 12 Characters maximum



2.5.10 Questionnaire type

Abbreviation: SurveyCategoryID

Definition: The episode event triggering the collection of the questionnaire

Data type: Numeric


1 Episode referral 2 Pathway start

3 Group program start (within a concurrent pathway) 4 Pathway review 5 Group program end (within a concurrent pathway) 6 Pathway end 7 Episode follow-up

8 Ad hoc Data length 1 Character


2.5.11 Questionnaire type, other

Abbreviation: SurveyCategoryOtherID

Definition: The episode event triggering the creation of ad hoc questionnaires

Data type: Numeric


1 1 month episode follow-up 2 3 month episode follow-up 3 6 month episode follow-up

4 12 month episode follow-up 99 Other

Data length 2 Character


2.5.12 Questionnaire type, other detail

Abbreviation: SurveyDescription

Conditions: To be completed if SurveyCategoryOtherID (2.5.11) = 99

Definition: Record of the reason for creation of the ad hoc questionnaire where this is not specified in 2.5.11

Data type: String


2.5.13 Questionnaire completion date

Abbreviation: Derived_CompletionDate

Definition: The date that the questionnaire was completed by the patient.



2.5.14 Questionnaire generation date

Abbreviation: GenerationDate

Definition: This item is created by epiCentre, and refers to the date that the questionnaire was generated in epiCentre.



2.5.15 Survey mode

Abbreviation: SurveyModeID

Definition: This variable describes how the questionnaire was provided to the patient for completion

Data type: Numeric


1 Post 2 Email 3 In clinic 4 Telephone

Data length 2 Character


2.5.16 Questionnaire sent status

Abbreviation: Derived_SentStatusID

Definition: This item is created by epiCentre, and provides information about whether the questionnaire was sent to the patient

Data type: Numeric


2 Scheduled (questionnaire is due to be sent) 3 Sent 4 Not sent (a decision was made not to send the questionnaire to the

patient) 5 Cancelled


2.5.17 Questionnaire completion status

Abbreviation: Derived_CompletedStatusID

Definition: This item is created by epiCentre, and provides information regarding the completion status of a sent questionnaire.

Data type: Numeric


1 Awaiting response (the patient is yet to complete the questionnaire) 2 To be followed up (the questionnaire was sent more than two weeks

ago and has not been returned by the patient)*

3 Reissued awaiting response (a questionnaire has been reissued) 4 Expired (the questionnaire was sent more than four weeks ago and has

not been returned by the patient)* 5 Received (the patient has returned the questionnaire) 6 Completed (the PMS has completed the questions regarding medication

and opioid use) Data length: 1 character

Usage: *Note that individual pain management services may change the default period of two and four weeks


2.5.18 Height

Abbreviation: Height

Definition: The patient’s self-reported height, measured in centimetres.

Data type: Numeric


Usage: Used along with Weight (2.5.19) to calculate a patient’s Body Mass Index (2.5.20).

2.5.19 Weight

Abbreviation: Weight

Definition: The patient’s self-reported weight, measured in kilograms.

Data type: Numeric


Usage: Used along with Height (2.5.18) to calculate a patient’s Body Mass Index (2.5.20).

2.5.20 Body Mass Index (BMI)

Abbreviation: Derived_BMI

Definition: A measure of a person's weight (body mass) relative to height used to assess the extent of weight deficit or excess.

Data type: Numeric

Data length: 5 characters maximum; format NN[N].N[N]

Usage: BMI is a measure of body fat based on a person’s height and weight, calculated using the formula:

BMI = weight in kg/(height in metres)2

Interpretation: Underweight <18.5 Normal 18.5 – 24.99

Overweight 25 – 29.99 Obese >=30


2.5.21 Pain description

Abbreviation: PainDescription

Definition: Patient description of their pain as represented by the values below.

Data type: Numeric


1 Always present (always the same intensity) 2 Always present (level of pain varies) 3 Often present (pain free periods last less than 6 hours) 4 Occasionally present (pain occurs once to several times per day, lasting

up to an hour)

5 Rarely present (pain occurs every few days or weeks)

6 Pain no longer present (Note: available in follow-up questionnaires only)


2.5.22 Health service use: general practitioner

Abbreviation: CountHSUGP

Definition: Patient report of the number of times in the last three months they have seen a general practitioner in regard to pain.

Data type: Numeric


2.5.23 Health service use: specialist

Abbreviation: CountHSUSpecialist

Definition: Patient report of the number of times in the last three months they have seen a specialist in regard to pain.

Data type: Numeric


2.5.24 Health service use: allied health

Abbreviation: CountHSUAlliedHealth

Definition: Patient report of the number of times in the last three months they have seen an allied health professional in regard to pain.

Data type: Numeric



2.5.25 Health service use: emergency department

Abbreviation: CountHSUED

Definition: Patient report of the number of times in the last three months they have visited an emergency department in regard to pain.

Data type: Numeric


2.5.26 Health service use: hospital

Abbreviation: CountHSUHospital

Definition: Patient report of the number of the times in the last three months they have been admitted to hospital due to pain.

Data type: Numeric


2.5.27 Health service use: diagnostic tests

Abbreviation: CountHSUDiagnosticTests

Definition: Patient report of the number of diagnostic tests they have had in the last three months relating to their pain.

Data type: Numeric



2.5.28 Body Map: main pain

Abbreviation: PainSiteMain

Definition: Patient report of the area where they feel the most pain.

Data type: Numeric


51 Head 52 Face 53 Neck 54 Left Shoulder 55 Right Shoulder 56 Chest 57 Left Upper Arm 58 Right Upper Arm 59 Left Elbow 60 Right Elbow 61 Left Forearm 62 Right Forearm 63 Left Wrist 64 Right Wrist 65 Left Hand 66 Right Hand 67 Abdomen 68 Left Hip 69 Right Hip 70 Groin 71 Left Thigh 72 Right Thigh 73 Left Knee 74 Right Knee 75 Left Calf 76 Right Calf 77 Left Ankle 78 Right Ankle 79 Left Foot 80 Right Foot 81 Upper Back 82 Mid Back 83 Low Back


Reference: Childhood Arthritis and Rheumatology Research Alliance 1


2.5.29 Body Map: other pain, head

Abbreviation: Flag_PainSiteOtherHead

Definition: Patient reports that they have head pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.30 Body Map: other pain, face

Abbreviation: Flag_PainSiteOtherFace

Definition: Patient reports that they have face pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.31 Body Map: other pain, neck

Abbreviation: Flag_PainSiteOtherNeck

Definition: Patient reports that they have neck pain in addition to the main pain.

Data type: Numeric


0 No

1 Yes Data length: 1 character



2.5.32 Body Map: other pain, left shoulder

Abbreviation: Flag_PainSiteOtherShoulderLeft

Definition: Patient reports that they have left shoulder pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.33 Body Map: other pain, right shoulder

Abbreviation: Flag_PainSiteOtherShoulderRight

Definition: Patient reports that they have right shoulder pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.34 Body Map: other pain, chest

Abbreviation: Flag_PainSiteOtherChest

Definition: Patient reports that they have chest pain in addition to the main pain.

Data type: Numeric


0 No




2.5.35 Body Map: other pain, left upper arm

Abbreviation: Flag_PainSiteOtherUpperArmLeft

Definition: Patient reports that they have left upper arm pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.36 Body Map: other pain, right upper arm

Abbreviation: Flag_PainSiteOtherUpperArmRight

Definition: Patient reports that they have right upper arm pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.37 Body Map: other pain, left elbow

Abbreviation: Flag_PainSiteOtherElbowLeft

Definition: Patient reports that they have left elbow pain in addition to the main pain.

Data type: Numeric


0 No




2.5.38 Body Map: other pain, right elbow

Abbreviation: Flag_PainSiteOtherElbowRight

Definition: Patient reports that they have right elbow pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.39 Body Map: other pain, left forearm

Abbreviation: Flag_PainSiteOtherForearmLeft

Definition: Patient reports that they have left forearm pain in addition to the main pain.

Data type: Numeric


0 No

1 Yes



2.5.40 Body Map: other pain, right forearm

Abbreviation: Flag_PainSiteOtherForearmRight

Definition: Patient reports that they have right forearm pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.41 Body Map: other pain, left wrist

Abbreviation: Flag_PainSiteOtherWristLeft

Definition: Patient reports that they have left wrist pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.42 Body Map: other pain, right wrist

Abbreviation: Flag_PainSiteOtherWristRight

Definition: Patient reports that they have right wrist pain in addition to the main pain.

Data type: Numeric


0 No

1 Yes



2.5.43 Body Map: other pain, left hand

Abbreviation: Flag_PainSiteOtherHandLeft

Definition: Patient reports that they have left hand pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.44 Body Map: other pain, right hand

Abbreviation: Flag_PainSiteOtherHandRight

Definition: Patient reports that they have right hand pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.45 Body Map: other pain, abdomen

Abbreviation: Flag_PainSiteOtherAbdomen

Definition: Patient reports that they have pain in the abdomen in addition to the main pain.

Data type: Numeric


0 No

1 Yes



2.5.46 Body Map: other pain, left hip

Abbreviation: Flag_PainSiteOtherHipLeft

Definition: Patient reports that they have left hip pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.47 Body Map: other pain, right hip

Abbreviation: Flag_PainSiteOtherHipRight

Definition: Patient reports that they have right hip pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.48 Body Map: other pain, groin

Abbreviation: Flag_PainSiteOtherGroin

Definition: Patient reports that they have pain in the groin region in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.49 Body Map: other pain, left thigh

Abbreviation: Flag_PainSiteOtherThighLeft

Definition: Patient reports that they have left thigh pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.50 Body Map: other pain, right thigh

Abbreviation: Flag_PainSiteOtherThighRight

Definition: Patient reports that they have right thigh pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.51 Body Map: other pain, left knee

Abbreviation: Flag_PainSiteOtherKneeLeft

Definition: Patient reports that they have left knee pain in addition to the main pain.

Data type: Numeric


0 No

1 Yes



2.5.52 Body Map: other pain, right knee

Abbreviation: Flag_PainSiteOtherKneeRight

Definition: Patient reports that they have right knee pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.53 Body Map: other pain, left calf

Abbreviation: Flag_PainSiteOtherCalfLeft

Definition: Patient reports that they have left calf pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.54 Body Map: other pain, right calf

Abbreviation: Flag_PainSiteOtherCalfRight

Definition: Patient reports that they have right calf pain in addition to the main pain.

Data type: Numeric


0 No

1 Yes



2.5.55 Body Map: other pain, left ankle

Abbreviation: Flag_PainSiteOtherAnkleLeft

Definition: Patient reports that they have left ankle pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.56 Body Map: other pain, right ankle

Abbreviation: Flag_PainSiteOtherAnkleRight

Definition: Patient reports that they have right ankle pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.57 Body Map: other pain, left foot

Abbreviation: Flag_PainSiteOtherFootLeft

Definition: Patient reports that they have left foot pain in addition to the main pain.

Data type: Numeric


0 No

1 Yes



2.5.58 Body Map: other pain, right foot

Abbreviation: Flag_PainSiteOtherFootRight

Definition: Patient reports that they have right foot pain in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.59 Body Map: other pain, upper back

Abbreviation: Flag_PainSiteOtherUpperBack

Definition: Patient reports that they have pain in the upper back region in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.60 Body Map: other pain, mid back

Abbreviation: Flag_PainSiteOtherMidBack

Definition: Patient reports that they have pain in the mid back region in addition to the main pain.

Data type: Numeric


0 No 1 Yes



2.5.61 Body Map: other pain, low back

Abbreviation: Flag_PainSiteOtherLowBack

Definition: Patient reports that they have pain in the low back region in addition to the main pain.

Data type: Numeric


0 No 1 Yes




2.5.62 Body Map: main pain, none

Abbreviation: Flag_PainSiteMainNone

Definition: Patient reports that they no longer have pain on the Main Pain body chart. This variable is only available in Follow-up Questionnaires.

Data type: Numeric


0 No 1 Yes



2.5.63 Body Map: other pain, none

Abbreviation: Flag_PainSiteOtherNone

Definition: Patient reports that they no longer have pain on the Other Pain body chart. This variable is only available in Follow-up Questionnaires.

Data type: Numeric


0 No 1 Yes


Reference: Childhood Arthritis and Rheumatology Research Alliance

2.5.64 Brief Pain Inventory: Severity - worst pain

Abbreviation: BPIWorst

Definition: Patient rating of pain at its worst in the last week.

Data type: Numeric

Data domain: Likert scale 0-10

Value Meaning

0 No pain

10 Pain as bad as you can imagine


Usage: This score contributes to the average BPI Severity score (see 2.5.75).

Reference: Brief Pain Inventory 2


2.5.65 Brief Pain Inventory: Severity - least pain

Abbreviation: BPILeast

Definition: Patient rating of pain at its least in the last week.

Data type: Numeric


Value Meaning

0 No pain 10 Pain as bad as you can imagine




2.5.66 Brief Pain Inventory: Severity - average pain

Abbreviation: BPIAverage

Definition: Patient rating of pain on average.

Data type: Numeric


Value Meaning

0 No pain

10 Pain as bad as you can imagine





2.5.67 Brief Pain Inventory: Severity - current pain

Abbreviation: BPINow

Definition: Patient rating of current pain (i.e. response to ‘how much pain do you have right now?’).

Data type: Numeric


Value Meaning

0 No pain 10 Pain as bad as you can imagine




2.5.68 Brief Pain Inventory: Interference - general activity

Abbreviation: BPIActivity

Definition: Patient rating of how much the pain interfered with general activity in the last week.

Data type: Numeric


Value Meaning

0 Does not interfere 10 Completely interferes


Usage: This score contributes to the average BPI Interference score (2.5.76).



2.5.69 Brief Pain Inventory: Interference - mood

Abbreviation: BPIMood

Definition: Patient rating of how much the pain interfered with their mood in the last week.

Data type: Numeric


Value Meaning





2.5.70 Brief Pain Inventory: Interference - walking

Abbreviation: BPIWalking

Definition: Patient rating of how much the pain interfered with walking ability in the last week.

Data type: Numeric


Value Meaning






2.5.71 Brief Pain Inventory: Interference - work

Abbreviation: BPIWork

Definition: Patient rating of how much the pain interfered with normal work in the last week.

Data type: Numeric


Value Meaning





2.5.72 Brief Pain Inventory: Interference - relations

Abbreviation: BPIRelations

Definition: Patient rating of how much the pain interfered with their relations with other people in the last week.

Data type: Numeric


Value Meaning






2.5.73 Brief Pain Inventory: Interference - sleep

Abbreviation: BPISleep

Definition: Patient rating of how much the pain interfered with sleep in the last week.

Data type: Numeric


Value Meaning





2.5.74 Brief Pain Inventory: Interference - enjoyment

Abbreviation: BPIEnjoyment

Definition: Patient rating of how much the pain interfered with enjoyment in the last week.

Data type: Numeric


Value Meaning

0 Does not interfere

10 Completely interferes





2.5.75 Brief Pain Inventory: Severity score

Abbreviation: Derived_BPIPainSeverity

Definition: A derived average rating of pain severity based on the patient’s self-reported BPI scores for severity data items (items 2.5.64 to 2.5.67)

Data type: Numeric

Data length: 3 character maximum; format N[N].[N]

Usage: The average rating of pain severity is calculated by summing the BPI severity scores items, divided by the number of questions, i.e. the sum of items 2.5.64 to 2.5.67, divided by 4.

Interpretation: 0-4 = mild pain 5-6 = moderate pain 7-10 = severe pain

Rules: All severity data items must be completed by the patient in order to calculate a valid Severity score.

If more than one number has been circled for a question, use the highest score for 2a, 2c, and 2d, and the lowest score for 2b.


2.5.76 Brief Pain Inventory: Interference score

Abbreviation: Derived_BPIPainInterference

Definition: A derived average rating of pain interference with activities of daily living based on the patient’s self-reported BPI scores for the items measuring interference (see items 2.5.68 to 2.5.74)

Data type: Numeric

Data length: 3 character maximum; format N[N].[N]

Usage: An average rating of pain interference with activities of daily living is calculated by summing the responses to the BPI interference items, and dividing by the number of questions the patient completed, i.e. the sum of items 2.5.68 to 2.5.74, divided by the number of items the patient completed.

Interpretation: Higher scores equal greater interference.

Rules: At least 4 of the 7 interference data items must be scored by the patient to calculate a valid average interference score.

If more than one number has been circled for a question, use the highest score.



2.5.77 Brief Pain Inventory: Severity score missing responses

Abbreviation: Derived_BPIPainSeverityEmpty

Definition: The number of BPI severity data items (items 2.5.64 to 2.5.67) not completed by the patient.

Data type: Numeric


Usage: If this item does not equal zero, justifies why average severity score (2.5.75) could not be calculated.


2.5.78 Brief Pain Inventory: Interference score missing responses:

Abbreviation: Derived_BPIPainInterferenceEmpty

Definition: The number of BPI interference data items (items 2.5.68 to 2.5.74) not completed by the patient.

Data type: Numeric


Usage: Informs the clinician of the number of interference items included in the average interference score (2.5.76) or justifies why the score has not been calculated if the number of missing items is > 3 (see 2.5.76)


2.5.79 Depression Anxiety Stress Scale: Q1

Abbreviation: DASSQ1

Definition: Patient response to DASS statement “I found it hard to wind down” from selection of responses detailed in values below.

Data type: Numeric


0 Did not apply to me at all 1 Applied to me to some degree, or some of the time 2 Applied to me to a considerable degree, or a good part of the time 3 Applied to me very much, or most of the time


Usage: The score on this item contributes to the DASS stress score (see 2.5.102).

Reference: Depression Anxiety Stress Scale 3




Definition: Patient response to DASS statement “I was aware of dryness of my mouth” from selection of responses detailed in values below.

Data type: Numeric




Usage: The score on this item contributes to the DASS anxiety score (see 2.5.101).




Definition: Patient response to DASS statement “I couldn’t seem to experience positive feeling at all” from selection of responses detailed in values below.

Data type: Numeric


0 Did not apply to me at all 1 Applied to me to some degree, or some of the time

2 Applied to me to a considerable degree, or a good part of the time 3 Applied to me very much, or most of the time


Usage: The score on this item contributes to the DASS depression score (see 2.5.100).





Definition: Patient response to DASS statement “I experienced breathing difficulty (e.g. excessively rapid breathing, breathlessness in the absence of physical exertion)” from selection of responses detailed in values below.

Data type: Numeric









Definition: Patient response to DASS statement “I found it difficult to work up the initiative to do things” from selection of responses detailed in values below.

Data type: Numeric


0 Did not apply to me at all 1 Applied to me to some degree, or some of the time 2 Applied to me to a considerable degree, or a good part of the time

3 Applied to me very much, or most of the time







Definition: Patient response to DASS statement “I tended to over-react to situations” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I experienced trembling (e.g. in the hands)” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I felt that I was using a lot of nervous energy” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I was worried about situations in which I might panic and make a fool of myself” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I felt that I had nothing to look forward to” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I found myself getting agitated” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I found it difficult to relax” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I felt down-hearted and blue” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I was intolerant of anything that kept me from getting on with what I was doing” from selection of responses detailed in values below.

Data type: Numeric









Definition: Patient response to DASS statement “I felt I was close to panic” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I was unable to become enthusiastic about anything” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I felt I wasn’t worth much as a person” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I felt that I was rather touchy” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I was aware of the action of my heart in the absence of physical exertion (e.g. sense of heart rate increase, heart missing a beat)” from selection of responses detailed in values below.

Data type: Numeric










Definition: Patient response to DASS statement “I felt scared without any good reason” from selection of responses detailed in values below.

Data type: Numeric








Definition: Patient response to DASS statement “I felt that life was meaningless” from selection of responses detailed in values below.

Data type: Numeric








2.5.100 Depression Anxiety Stress Scale: Depression score

Abbreviation: Derived_DASSDepression

Definition: The DASS is a set of three scales designed to measure the negative emotional states of depression, anxiety and stress. ePPOC uses the short version of the DASS, the DASS21. This derived data item calculates the score for depression.

Data type: Numeric


Usage: The total depression score is calculated by summing the scores for the relevant items and multiplying this total by 2. Scores are multiplied by 2 to enable comparison with the full scale DASS42, for which norms exist. Therefore, the total depression score is calculated by summing the scores for DASS21 questions 3, 5, 10, 13, 16, 17, 21 and multiplying this number by 2.

Interpretation: 0-9 = normal 10-13 = mild 14-20 = moderate

21-27 = severe 28+ = extremely severe

Rules: The developers of the DASS suggest that while there is no “fixed standard”, the rule of thumb is that there should be no more than one missing item per 7-item subscale. ePPOC computes a subscale score where at least 6 of the 7 items have been completed.




2.5.101 Depression Anxiety Stress Scale: Anxiety score

Abbreviation: Derived_DASSAnxiety

Definition: The DASS is a set of three self-report scales designed to measure the negative emotional states of depression, anxiety and stress. ePPOC uses the short version of the DASS, the DASS21. This derived data item calculates the score for anxiety.

Data type: Numeric


Usage: The total anxiety score is calculated by summing the scores for the relevant items and multiplying this total by 2. Scores are multiplied by 2 to enable comparison with the full scale DASS42, for which norms exist. Therefore, the total anxiety score is calculated by summing the scores for DASS21 questions 2, 4, 7, 9, 15, 19, 20 and multiplying this number by 2.







2.5.102 Depression Anxiety Stress Scale: Stress score

Abbreviation: Derived_DASSStress

Definition: The DASS is a set of three self-report scales designed to measure the negative emotional states of depression, anxiety and stress. ePPOC uses the short version of the DASS, the DASS21. This derived data item calculates the score for stress.

Data type: Numeric


Usage: The total stress score is calculated by summing the scores for the relevant items and multiplying this total by 2. Scores are multiplied by 2 to enable comparison with the full scale DASS42, for which norms exist. Therefore, the total stress score is calculated by summing the scores for DASS21 questions 1, 6, 8, 11, 12, 14, 18 and multiplying this number by 2.






2.5.103 Depression Anxiety Stress Scale: Total score

Abbreviation: Derived_DASSTotal

Definition: The DASS is a set of three self-report scales designed to measure the negative emotional states of depression, anxiety and stress. ePPOC uses the short version of the DASS, the DASS21. This derived data item calculates the total score for the DASS.

Data type: Numeric


Usage: The total score is calculated by summing the scores for all items (i.e. 2.5.79 to 2.5.99) and multiplying this total by 2. Scores are multiplied by 2 to enable comparison with the full scale DASS42, for which norms exist.

Rules: If more than one number has been circled for a question, use the highest score.



2.5.104 Depression Anxiety Stress Scale: Depression score missing responses

Abbreviations: Derived_DASSDepressionEmpty

Definition: This derived data item provides a count of the number of DASS depression items that were not completed by the patient.

Data type: Numeric


Usage: This item informs the clinician of how many data items were not completed by the patient and therefore not included in the total depression score (2.5.100).

Rule: ePPOC computes a subscale score where at least 6 of the 7 items have been completed. However as there is no “fixed standard” for the number of items that should be completed in order to compute a valid depression score, users should take the number of missing items into account when interpreting the total depression score for a patient.


2.5.105 Depression Anxiety Stress Scale: Anxiety score missing responses

Abbreviations: Derived_DASSAnxietyEmpty

Definition: This derived data item provides a count of the number of DASS anxiety items that were not completed by the patient.

Data type: Numeric


Usage: This item informs the clinician of how many data items were not completed by the patient and therefore not included in the total anxiety score (2.5.101).




2.5.106 Depression Anxiety Stress Scale: Stress score missing responses

Abbreviations: Derived_DASSStressEmpty

Definition: This derived data item provides a count of the number of DASS stress items that were not completed by the patient.

Data type: Numeric


Usage: This item informs the clinician of how many data items were not completed by the patient and therefore not included in the total stress score (2.5.102).



2.5.107 Depression Anxiety Stress Scale: Total score missing responses

Abbreviations: Derived_DASSTotalEmpty

Definition: This derived data item provides a count of how many DASS items were not completed by the patient.

Data type: Numeric


Usage: This item informs the clinician of how many data items were not completed by the patient and therefore not included in the derived total DASS score (2.5.103).


2.5.108 Pain Self-Efficacy Questionnaire: Q1

Abbreviation: PSEQQ1

Definition: Patient rating for PSEQ statement “I can enjoy most things, despite the pain”.

Data type: Numeric


Value Meaning

0 Not at all confident 6 Completely confident


Usage: The score on this item contributes to the PSEQ total score (see 2.5.118).

Reference: Pain Self-Efficacy Questionnaire 4




Definition: Patient rating for PSEQ statement “I can do most of the household chores (e.g. tidying up, washing dishes etc.), despite the pain”.

Data type: Numeric


Value Meaning







Definition: Patient rating for PSEQ statement “I can socialise with my friends or family members as often as I used to, despite the pain”.

Data type: Numeric


Value Meaning








Definition: Patient rating for PSEQ statement “I can cope with my pain in most situations”.

Data type: Numeric


Value Meaning







Definition: Patient rating for PSEQ statement “I can do some form of work, despite the pain (“work” includes housework, paid and unpaid work)”.

Data type: Numeric


Value Meaning








Definition: Patient rating for PSEQ statement “I can still do many of the things I enjoy doing, such as hobbies or leisure activity, despite the pain”.

Data type: Numeric


Value Meaning







Definition: Patient rating for PSEQ statement “I can cope with my pain without medication”.

Data type: Numeric


Value Meaning








Definition: Patient rating for PSEQ statement “I can still accomplish most of my goals in life, despite the pain”.

Data type: Numeric


Value Meaning







Definition: Patient rating for PSEQ statement “I can live a normal lifestyle, despite the pain”.

Data type: Numeric


Value Meaning








Definition: Patient rating for PSEQ statement 10 “I can gradually become more active, despite the pain”.

Data type: Numeric


Value Meaning





2.5.118 Pain Self-Efficacy Questionnaire: Total score

Abbreviation: Derived_PSEQTotal

Definition: The Pain Self-Efficacy Questionnaire (PSEQ) is a measure of how confident a patient is that he or she can do a range of activities, despite their pain. This derived data item uses the PSEQ items to calculate the total PSEQ score.

Data type: Numeric


Scoring: Sum the scores of all items to give a total score (i.e. 2.5.108 to 2.5.117)

Interpretation: <20 = severe 20-30 = moderate 31-40 = mild >40 = minimal

Higher scores indicate higher levels of self-efficacy. The median scores for patients attending a pain clinic are around 24-25. This level is associated with moderate pain-related disability. Scores close to 40 are associated with working despite pain. Scores below about 18 are associated with stronger beliefs that pain relief must come before participation in a Pain Management Program.

Rule: At least 9 of the 10 items should be completed for the total PSEQ score to be considered valid.

If more than one number has been circled for a question, use the lowest score.

Reference: Patient Self-Efficacy Questionnaire 4


2.5.119 Pain Self-Efficacy Questionnaire: Total score missing responses

Abbreviation: Derived_PSEQEmpty

Definition: This derived data item provides a count of how many PSEQ scores were not completed by the patient and therefore not included in the PSEQ total score (2.5.118).

Data type: Numeric


Usage: This informs the clinician of the number of items included in the PSEQ total score (2.5.118) or justifies why the score has not been calculated if the number of missing responses is > 1

Reference: Patient Self-Efficacy Questionnaire 4

2.5.120 Pain Catastrophising Scale: Q1

Abbreviation: PCSQ1

Definition: Patient response to PCS statement “I worry all the time about whether the pain will end” from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all 1 To a slight degree 2 To a moderate degree 3 To a great degree 4 All the time


Usage: The score on this item contributes to the PCS total score (see 2.5.133) and the Helplessness subscale total (2.5.136).

Reference: Pain Catastrophising Scale 5



Abbreviation: PCSQ2

Definition: Patient response to PCS statement “I feel I can’t go on” from selection of responses detailed in the values below.

Data type: Numeric







Abbreviation: PCSQ3

Definition: Patient response to PCS statement “It’s terrible and I think it’s never going to get any better” from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all

1 To a slight degree 2 To a moderate degree 3 To a great degree 4 All the time






Abbreviation: PCSQ4

Definition: Patient response to PCS statement “It’s awful and I feel it overwhelms me” from selection of responses detailed in the values below.

Data type: Numeric







Abbreviation: PCSQ5

Definition: Patient response to PCS statement “I feel I can’t stand it anymore” from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all







Abbreviation: PCSQ6

Definition: Patient response to PCS statement “I become afraid that the pain will get worse” from selection of responses detailed in the values below.

Data type: Numeric




Usage: The score on this item contributes to the PCS total score (see 2.5.133) and the Magnification subscale total (2.5.135).



Abbreviation: PCSQ7

Definition: Patient response to PCS statement “I keep thinking of other painful events” from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all







Abbreviation: PCSQ8

Definition: Patient response to PCS statement “I anxiously want the pain to go away” from selection of responses detailed in the values below.

Data type: Numeric




Usage: The score on this item contributes to the PCS total score (see 2.5.133) and the Rumination subscale total (2.5.134).



Abbreviation: PCSQ9

Definition: Patient response to PCS statement “I can’t seem to keep it out of my mind”from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all







Abbreviation: PCSQ10

Definition: Patient response to PCS statement “I keep thinking about how much it hurts” from selection of responses detailed in the values below.

Data type: Numeric








Definition: Patient response to PCS statement “I keep thinking about how badly I want the pain to stop” from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all








Definition: Patient response to PCS statement “There’s nothing I can do to reduce the intensity of the pain” from selection of responses detailed in the values below.

Data type: Numeric








Definition: Patient response to PCS statement “I wonder whether something serious may happen” from selection of responses detailed in the values below.

Data type: Numeric


0 Not at all






2.5.133 Pain Catastrophising Scale: Total score

Abbreviation: Derived_PCSTotal

Definition: The Pain Self Catastrophising Scale (PCS) is a measure of an individual’s thoughts and feelings relating to their pain. This derived data item calculates the total score for the PCS.

Data type: Numeric


Usage: The total score is calculated by summing the scores for all PCS items (i.e. 2.5.120 to 2.5.132).

Interpretation: A total score of <20 = mild, 20-30 = high, >30 = severe

Rules: At least 12 of the 13 items must be completed by the patient to calculate a valid total PCS score.



2.5.134 Pain Catastrophising Scale: Rumination score

Abbreviation: Derived_PCSRumination

Definition: The Pain Self Catastrophising Scale (PCS) is a measure of an individual’s thoughts and feelings relating to their pain. The scale includes three sub scales measuring the dimensions of Rumination, Magnification and Helplessness. This derived data item calculates the score for rumination.

Data type: Numeric


Usage: The total rumination score is calculated by summing the scores for PCS questions 8, 9, 10 and 11 (i.e. 2.5.127, 2.5.128, 2.5.129 and 2.5.130).

Interpretation: A rumination score of 11 is at the 75th percentile, indicating a clinically significant score.

Rules: All subscale items must be completed by the patient to calculate a valid rumination score.




2.5.135 Pain Catastrophising Scale: Magnification score

Abbreviation: Derived_PCSMagnification

Definition: The Pain Self Catastrophising Scale (PCS) is a measure of an individual’s thoughts and feelings relating to their pain. The scale includes three sub scales measuring the dimensions of Rumination, Magnification and Helplessness. This derived data item calculates the score for magnification.

Data type: Numeric


Usage: The total magnification score is calculated by summing the scores for PCS questions 6, 7 and 13 (i.e. 2.5.125, 2.5.126 and 2.5.132).

Interpretation: A magnification score of 5 is at the 75th percentile, indicating a clinically significant score.

Rules: All subscale items must be completed by the patient to calculate a valid magnification score.



2.5.136 Pain Catastrophising Scale: Helplessness score

Abbreviation: Derived_PCSHelplessness

Definition: The Pain Self Catastrophising Scale (PCS) is a measure of an individual’s thoughts and feelings relating to their pain. The scale includes three sub scales measuring the dimensions of Rumination, Magnification and Helplessness. This derived data item calculates the score for helplessness.

Data type: Numeric


Usage: The total helplessness score is calculated by summing the scores for PCS questions 1, 2, 3, 4, 5 and 12 (i.e. 2.5.120, 2.5.121, 2.5.122, 2.5.123, 2.5.124, and 2.5.131).

Interpretation: A helplessness score of 13 is at the 75th percentile, indicating a clinically significant score.

Rules: All subscale items must be completed by the patient to calculate a valid helplessness score.




2.5.137 Pain Catastrophising Scale: Total score missing responses

Abbreviation: Derived_PCSTotalEmpty

Definition: The total number of items on the PCS that the patient did not complete.

Data type: Numeric


Usage: Informs the clinician of the number of PCS items included in the total score (2.5.133) or justifies why the score has not been calculated if the number of missing items is > 1


2.5.138 Pain Catastrophising Scale: Rumination score missing responses

Abbreviation: Derived_PCSRuminationEmpty

Definition: The total number of rumination items on the PCS that the patient did not complete.

Data type: Numeric


Usage: If 2.5.138 does not equal zero, justifies why the rumination score (2.5.134) could not be calculated.


2.5.139 Pain Catastrophising Scale: Magnification score missing responses

Abbreviation: Derived_PCSMagnificationEmpty

Definition: The total number of magnification items on the PCS that the patient did not complete.

Data type: Numeric


Usage: If 2.5.139 does not equal zero, justifies why the magnification score (2.5.135) could not be calculated.



2.5.140 Pain Catastrophising Scale: Helplessness score missing responses

Abbreviation: Derived_PCSHelplessnessEmpty

Definition: The total number of helplessness items on the PCS that the patient did not complete.

Data type: Numeric


Usage: If 2.5.140 does not equal zero, justifies why the helplessness score (2.5.136) could not be calculated.


2.5.141 Work status: employed

Abbreviation: Flag_WPAIEmployed

Definition: Patient report of whether or not they are employed.

Data type: Numeric


0 No 1 Yes


2.5.142 Work status: reason for unemployment

Abbreviation: WPAINotEmployedCause

Condition: To be completed if Flag_WPAIEmployed (2.5.141) = 0

Definition: Patient report of the reason they are not employed.

Data type: Numeric


1 Unable to work due to a condition other than pain 2 Unable to work due to pain 3 Not working by choice (student, retired, homemaker) 4 Seeking employment


Reference: International Consortium for Health Outcomes Measurement


2.5.143 Work status: employment status

Abbreviation: WPAIEmployedStatus


Definition: Patient report of their work status as part-time or full-time.

Data type: Numeric


1 Part-time 2 Full-time


2.5.144 Work status: work hours missed

Abbreviation: WPAINumberHoursMissed


Definition: Patient report of the number of work hours missed due to pain in the past week.

Data type: Numeric

Data length: 3 characters maximum, 0 to 100

Usage: Used along with 2.5.145 to calculate 2.5.147, ratio of work hours missed due to pain

Reference: Work Productivity and Activity Impairment Questionnaire6

2.5.145 Work status: number of hours worked

Abbreviation: WPAINumberHoursWorked


Definition: Patient report of the number of hours worked in the past week.

Data type: Numeric

Data length: 3 characters maximum, ranging from 0 to 100

Usage: Used along with 2.5.144 to calculate 2.5.147, ratio of work hours missed due to pain



2.5.146 Work status: lost productivity

Abbreviation: WPAIProductivityLoss


Definition: Patient report of the degree to which pain negatively affected productivity while working in the past week.


Value Meaning

0 Pain had no effect on my work 10 Pain completely prevented me from working

Data type: Numeric


Usage: Used to calculate 2.5.148, derived variable of lost productivity


2.5.147 Work status: proportion of time missed

Abbreviation: Derived_WPAIWorkTimeMissedRatio

Condition: Calculated if Flag_WPAIEmployed (2.5.141) = 1

Definition: The ratio of time missed to time worked due to pain.

Data type: Numeric


Usage: Can be multiplied by 100 to express as a percentage. The variable is calculated using the formula:

Time missed/(Time missed + time worked)

i.e. 2.5.144/(2.5.144 + 2.5.145)



2.5.148 Work status: impairment while working

Abbreviation: Derived_WPAIPainAffectedProductivity


Definition: A measure of the impairment while working due to pain.

Data type: Numeric



Degree pain affected productivity while working/10

i.e. 2.5.146/10


2.5.149 Work status: Overall work impairment

Abbreviation: Derived_WPAIOverallWorkImpairment


Definition: The overall work impairment due to pain.

Data type: Numeric



Proportion of time missed due to pain + (1 – proportion of time missed due to pain * impairment while working)

i.e. 2.5.147 + ((1 - 2.5.147) * 2.5.148)


2.5.150 Medication use

Abbreviation: Flag_MedicationConsumed

Definition: Patient response to the question “Are you taking any medications?”

Data type: Numeric


0 No 1 Yes



2.5.151 Medication, reported

Abbreviation: Flag_MedicationReported

Definition: Pain management service staff report of whether the patient included a list of medications in the ePPOC questionnaire

Data type: Numeric


0 No 1 Yes


2.5.152 Medication, opioid

Abbreviation: Flag_DrugGroupOpioid

Definition: Patient report that they are taking opioid medication.

Data type: Numeric


0 No 1 Yes


2.5.153 Medication, paracetamol

Abbreviation: Flag_DrugGroupParacetamol

Definition: Patient report that they are taking medication containing paracetamol.

Data type: Numeric


0 No 1 Yes



2.5.154 Medication, NSAID

Abbreviation: Flag_DrugGroupNSAID

Definition: Patient report that they are taking non-steroidal anti-inflammatory medication.

Data type: Numeric


0 No 1 Yes


2.5.155 Medication, antidepressant

Abbreviation: Flag_DrugGroupAntidepressant

Definition: Patient report that they are taking antidepressant medication.

Data type: Numeric


0 No

1 Yes


2.5.156 Medication, anticonvulsant

Abbreviation: Flag_DrugGroupAnticonvulsant

Definition: Patient report that they are taking anticonvulsant medication.

Data type: Numeric


0 No 1 Yes



2.5.157 Medication, benzodiazepine

Abbreviation: Flag_DrugGroupBenzodiazepine

Definition: Patient report that they are taking benzodiazepine medication.

Data type: Numeric


0 No 1 Yes


2.5.158 Medication, medicinal cannabinoids

Abbreviation: Flag_DrugGroupMedicalCannabis

Definition: Patient report that they are taking medicinal cannabinoids.

Data type: Numeric


0 No

1 Yes


2.5.159 Daily morphine

Abbreviation: DailyMorphine

Definition: This item records the PMS clinician determination of the daily oral morphine equivalent in mg. If the patient reports no opioid medication (i.e. 2.5.152 = 0), a figure of 0 mg is entered.

Data type: Numeric


2.5.160 Opioid frequency

Abbreviation: Flag_OpioidFreq

Definition: If the response to Flag_DrugGroupOpioid (2.5.152) = 1, this item records the PMS clinician determination of whether the patient is taking opioid medication on more than 2 days per week.

Data type: Numeric


0 No 1 Yes



2.5.161 Opioid replacement program

Abbreviation: Flag_OpioidMaint

Definition: Determination by PMS clinician that patient is on an opioid replacement/substitution program.

Data type: Numeric


0 No 1 Yes


2.5.162 Medication inaccuracies

Abbreviation: Flag_MedicationInaccuracy

Definition: Determination by PMS clinician that there are inconsistencies in the patient-reported medication information compared to the information from another source (e.g. the referrer).

Data type: Numeric


0 No

1 Yes


2.5.163 Global rating of change, overall

Abbreviation: GRCOverallImprovement

Definition: Patient response to the question “Compared with before receiving treatment at this pain management service, how would you describe yourself now overall?”

This question is not asked at referral, but at all subsequent questionnaire collection occasions.

Data type: Numeric

Data domain: Likert scale -3 to 3

Value Meaning

-3 Very much worse

0 Unchanged

-3 Very much better



2.5.164 Global rating of change, physical

Abbreviation: GRCPhysicalImprovement

Definition: Patient response to the question “Compared with before receiving treatment at this pain management service, how would you describe physical abilities now?”

This question is not asked at referral, but at all subsequent questionnaire collection occasions.

Data type: Numeric

Data domain: Likert scale -3 to 3

Value Meaning

-3 Very much worse 0 Unchanged

-3 Very much better



Level 6 Medication level data items

Historical changes to the collection of medication information:

Under Version 1 of the dataset, limited data was collected for patients participating in a methadone treatment program for drug addiction. For these patients, only the number of major drug groups (excluding opioids) was recorded, and the amount of methadone used (as oMEDD) was not collected in epiCentre. Methadone used for pain relief was also not recorded in epiCentre. While the daily dose of methadone could be entered into the opioid conversion table, it did not have a conversion factor and was not included in the total oMEDD for each patient.

In 2016, the ePPOC Scientific and Clinical Advisory Committee made the following recommendations;

Collect methadone use and dose for all patients, regardless of whether it is used for pain management or opioid substitution

Add a conversion rate for methadone of x3 in the opioid calculator Update the opioid calculator to include methadone in the TOTAL oMEDD

Staff at pain management services were advised of these changes in 2016, and asked to begin implementing these changes prior to the release of Version 2.

Use of ePPOC data that spans this period should therefore take these changes into consideration when interpreting the data.


















Conditions: See Episode Identifier (2.2.04) for details of format and further usage rules




2.6.05 Questionnaire identifier

Abbreviation: See Questionnaire identifier (2.5.08) for details of format and further usage rules



Must match a PatientSurveyKey

2.6.06 Medication Identifier

Abbreviation: MedicationID

Definition: A unique code for each medication the patient reports in a questionnaire, assigned by epiCentre

Data type: Numeric


Usage: For use by PMS only.


2.6.07 Medication Name

Abbreviation: MedicationName

Definition: The name of the medicine the patient is taking, as on the label. This information is provided by the patient in the patient questionnaire.

Data type: String


Usage: For use by PMS only. PMS clinicians use the medications listed by the patient in the questionnaires to determine variables 2.5.141 to 2.5.162.

2.6.08 Medication Strength

Abbreviation: MedicationStrength

Definition: The strength of the medication the patient is taking, as on the label. This information is provided by the patient in the patient questionnaire.

Data type: String


Usage: For use by PMS only. PMS clinicians use this information to determine variables 2.5.141 to 2.5.162.

2.6.09 Medication Daily Intake

Abbreviation: DailyIntake

Definition: Detail of the daily intake of the medication. This information is provided by the patient in the patient questionnaire.

Data type: String



2.6.10 Medication Frequency

Abbreviation: MedicationFrequency

Definition: The number of days per week the medication is taken by the patient. This information is provided by the patient in the patient questionnaire.

Data type: String




References 1 Von Bayer CL, et al. (2011) Pain charts (body maps or manikins) in assessment of location of paediatric pain. Pain Management, 2011; 1(1):61-68 (Source: Childhood Arthritis and Rheumatology Research Alliance, www.carragroup.org). 2 Modified Brief Pain Inventory, reproduced with acknowledgement of the Pain Research Group, University of Texas, MD Anderson Cancer Centre, USA.

3 Lovibond SH and Lovibond PF (1995) Manual for the Depression Anxiety Stress Scales (2nd Edition). Sydney: Psychology Foundation. ISBN 7334-1423-0

4 Nicholas MK (1989) Self-efficacy and chronic pain. In Paper presented at the annual conference British Psychological Society, St. Andrews, Scotland: 1989.

5 Sullivan MJL, Bishop SR and Pivik J (1995) Pain Catastrophising Scale (PCS): Development and validation. Psychological Assessment. Vol 7. Pp. 524-532. 6 Work productivity questions from the Work Productivity and Activity Impairment Questionnaire, Reilly MC, Zbrozek AS & Dukes EM (1993).

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