” Ancient cities and their reflection to todays world ” 2010-2012
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Transcript of ” Ancient cities and their reflection to todays world ” 2010-2012
”Ancient cities and their reflection to todays world ”
2010-2012
Lithuanian multiple sclerosis union
• Was founded in 2000 with the help of the Danish Multiple Sclerosis Society.
• Unite appr.1000 people but represent the interests of almost 4000 affected people and are helping to solve their problems
1. From 2002 the oorganization is a member of the European MS Platform. was founded in 2000 with the help of the Danish Multiple Sclerosis Society.
2. From 2007 we became a member of Euro carer association.
3. The Organization also is one of the initiator in the founding of the Baltic MS Alliance
People with multiple sclerosis
• What is my diagnosis…• I did not realise other people have the same
diagnosis…• Doctors did not....
AN ATTEMPT IS OF MADE TO CONCEAL THE ILLNESS FROM NOT ONLY EMPLOYERS BUT ALSO THOSE CLOSE TO THE PERSON. DISABILITY IS RAPID AND SEVERE.
Multiple sclerosis is a fundamental neurological illness with a high morbidity, especially among people at a young age of employable morbidity 20-40 years of age.
Four stage model • Out the flat
• what is wrong with me – information about the disease
• Interesting world• Support group activities• Friends, events
• We are citizens• We have right
• We have medical needs• Re-organisation or creation of the care system
Areas of activity
1. include social and psychological consultation
2. representation of patient interests in all state institutions
3. implementation of national and international projects
MS Societies – the beginning ....
• Lectures • Discussions• Support group meetings• Parties• No accountancy• No money• But a lot of enthusiasm
MS diagnosed
healthy
Management issues in MS
impairment
disability
handicap
DMT
Symptom managementrehabilitation
Psychosocial issuesCognitive function
Multiple sclerosis (MS)
• is one of the most common diseases of the central nervous system.
• Today over 2,000,000 people around the world have MS.
EMSP Members
• Latvia• Lithuania• Luxembourg• Malta• Netherlands• Norway• Poland• Portugal• Romania• Russia• Serbia• Slovakia• Slovenia• Spain• Sweden• Switzerland• UK
• Austria• Belarus• Belgium• Bosnia-Herzegovina• Bulgaria• Croatia• Czech Republic• Denmark• Estonia• Finland• France• Germany• Greece• Hungary• Iceland• Ireland• Italy
MS Barometer 2009: overall results
RomaniaPoland
Bulgaria Malta
PortugalEstonia
HungarySpain
IrelandCroatiaLatvia
Bosnia-HerzegovinaLithuania
CyprusSlovakia
SwitzerlandCzech Republic
FranceLuxembourg
ItalyGreece
SloveniaNorwayAustria
UKNetherlands
BelgiumFinland
SwedenIceland
DenmarkGermany
0 50 100 150 200 250
829596100106108
118127130132133134140145145151153
162165170171171173177
192199199202
215231237240
Focus on society
Belgium Estonia Greece Italy UK0
5
10
15
20
25
30
35
40
basicequipmentservicefinancialinformation
Kersten et al 2000
The place of multiple sclerosis in the European Union policy PRESS conference in the Parliament 2009
Our main Principles
To promote Quality of Life for People with MS which draws together the interests of national MS societies worldwide and other community in implementation activities of a global projects.
Celebration DAY without MS ( on the boat)
Summer camp in Estonia
Lithuanian group performance
Last year Lithuania Millennium celebration events. We have also prepared a special program.
Our exhibition of works
We are organizing seminars in non-traditional environments-at the restaurants
…. and in nature
One of the learning project• Partnerinės institucijos:
• Švietimo ir informacijos centras Stylida-Graikija
Nacionalinis Kapodastriano Universitetas,Geologijos fakultetas
Atenai-Graikija
Aplinkosaugos švietimo kolegija Nikosia-Kipras
First presentation in Greece
with colleagues in Nicosia
At the Archaeological Museum
With partners and guests in Lithuania
My presentation of the Lisbon Convention for Persons
with Disabilities in the publication in Greece.
At European Patients forum in London
In Brussels in the European Parliament (information hour for MS)
As always with friends from other Baltic countries.
European carer group working in Sweden seminar.
Pleasant meeting in Estonia celebrating Estonian MS societies 20th anniversary.
It is fun to celebrate for our cooperation.
Estonians like to surprise...
There was a global campaign from New York, flying in
the night over the Tallinn.
Said goodbye to the December 3 meeting in Riga.
Everything is in place
TIME FOR ACTION IS
NOW