Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Planning for the Planning for the Future:Future:

Children and Youth Children and Youth with Special Health with Special Health

Care Needs (CYSHCN)Care Needs (CYSHCN)Presented byPresented byGarry Kelley, MsGarry Kelley, Ms

MCH EpidemiologistMCH Epidemiologist

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

CYSHCN Demographics

12-17 20.4

0-5 10.36-11 17.3

0 10 20

Female 16.8

Male 18.7

0 10 20

Percent of Kansas Children with Disability

Gender

Age Group

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

CYSHCN Race/Ethnicity

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

KS 65.6U.S. 57.4

0 10 20 30 40 50 60 70

National Outcome Measures 1

• Percent of CYSHCN whose families are partners in the decision making at all levels and who are satisfied with the services they receive

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

HRSA. 20007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 1b

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

HRSA. 20007 National Survey of Child Health. Data Resource Center.

Percent of CYSHCN (0-5 years) who visit a doctor and was not asked about parental concerns.

U.S. 44.6KS 24.4

0 10 20 30 40 50

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 2

• Percent of CYSHCN who receive coordinated, ongoing, comprehensive care within a medical home

KS 55.3U.S. 47.1

0 10 20 30 40 50 60

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 3

• Percent of CYSHCN who adequate private and/or public insurance to pay for the services they need

KS 62.9U.S. 62

0 10 20 30 40 50 60 70

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 3b

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

• Percent of CYSHCN who have at least one unmet need

U.S. 16.1KS 12

0 10 20

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 4

• Percent of CYSHCN who are screened early and continuously for special health services

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

KS 68.5U.S. 63.8

0 10 20 30 40 50 60 70 80

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 5

• Percent of CYSHCN whose families report the community-based service systems are organized so they can use them easily

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

KS 92.5U.S. 89.1

0 10 20 30 40 50 60 70 80 90 100

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

National Outcome Measures 6

• Percent of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence

HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

KS 50.3U.S. 41.2

0 10 20 30 40 50 60

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Transitions

• Percent of disabled (18-34) who attended college

KS 30.1U.S. 26.7

0 10 20 30 40

U.S. Census. American Community Survey 2006-2007.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Transitions 2

U.S. Census. American Community Survey 2006-2007.

• Percent of disabled (16-34) who are employedKS 49.6

U.S. 40.8

0 10 20 30 40 50 60

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Overall Health

• Percent of youth with special health care needs whose overall health is excellent or very good

KS, 69.3US, 69.5

0 10 20 30 40 50 60 70

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Oral Health

KS, 67.7US, 64.7

0 10 20 30 40 50 60 70

• Percent of youth with special health care needs whose overall oral health is excellent or very good

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Condition Impact Health

KS, 45.5US, 42.9

0 10 20 30 40 50

• Percent of youth with special health care needs whose health conditions are moderate or severe

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Condition Impact Health 2

• Percent of youth with special health care needs whose conditions consistently or greatly affect their daily activities

HRSA. 2007 National Survey of Child Health. Data Resource Center.

KS, 21.2US, 24

0 10 20 30

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Physical Fitness

KS, 56.9US, 60.9

0 10 20 30 40 50 60 70

• Percent of youth with special health who engage in rigorous physical activity at least 3 times a week

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Physical Fitness 2

• Percent of youth with special health who are overweight or obese

KS, 35.6US, 36.3

0 10 20 30 40

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Child Care 1

• Percent of children with special health needs aged 0-5 years whose parents made different child care arrangements in past month or made employment-related changes due to child care reasons in the past year.

KS, 47.4US, 37.1

0 10 20 30 40 50

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Child Care 2

KS, 18.2US, 10.1

0 10 20 30

• Percent of children with special health needs aged 6-11 years who spent some amount of time alone without adult supervision in the past week

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Employment

• Percent of children with special health needs whose families experienced financial problems due to child's health needs.

KS, 21.4US, 18.1

0 10 20 30

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Employment 2Percent of children with special health needs whose health needs caused family members to cut back or stop working

KS, 20.1US, 23.8

0 10 20 30

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Parents

• Percent of children with special health needs whose parents are often angry, annoyed, or frustrated towards their child

KS, 22.5US, 20

0 10 20 30

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

School

• Percent of children with special health needs who are always engaged at school

KS, 31.8US, 38.6

0 10 20 30 40

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

School 2

KS, 7.1US, 18.5

0 10 20

• Percent of children with special health needs who repeated at least 1 grade since Kindergarten

HRSA. 2007 National Survey of Child Health. Data Resource Center.

Our Vision – Healthy Kansans Living in Safe and Sustainable Environments

Questions?Questions?