Planning for the Future: Children and Youth with Special Health Care Needs (CYSHCN)
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Transcript of Planning for the Future: Children and Youth with Special Health Care Needs (CYSHCN)
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Planning for the Planning for the Future:Future:
Children and Youth Children and Youth with Special Health with Special Health
Care Needs (CYSHCN)Care Needs (CYSHCN)Presented byPresented byGarry Kelley, MsGarry Kelley, Ms
MCH EpidemiologistMCH Epidemiologist
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
CYSHCN Demographics
12-17 20.4
0-5 10.36-11 17.3
0 10 20
Female 16.8
Male 18.7
0 10 20
Percent of Kansas Children with Disability
Gender
Age Group
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
CYSHCN Race/Ethnicity
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
KS 65.6U.S. 57.4
0 10 20 30 40 50 60 70
National Outcome Measures 1
• Percent of CYSHCN whose families are partners in the decision making at all levels and who are satisfied with the services they receive
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
HRSA. 20007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 1b
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
HRSA. 20007 National Survey of Child Health. Data Resource Center.
Percent of CYSHCN (0-5 years) who visit a doctor and was not asked about parental concerns.
U.S. 44.6KS 24.4
0 10 20 30 40 50
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 2
• Percent of CYSHCN who receive coordinated, ongoing, comprehensive care within a medical home
KS 55.3U.S. 47.1
0 10 20 30 40 50 60
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 3
• Percent of CYSHCN who adequate private and/or public insurance to pay for the services they need
KS 62.9U.S. 62
0 10 20 30 40 50 60 70
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 3b
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
• Percent of CYSHCN who have at least one unmet need
U.S. 16.1KS 12
0 10 20
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 4
• Percent of CYSHCN who are screened early and continuously for special health services
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
KS 68.5U.S. 63.8
0 10 20 30 40 50 60 70 80
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 5
• Percent of CYSHCN whose families report the community-based service systems are organized so they can use them easily
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
KS 92.5U.S. 89.1
0 10 20 30 40 50 60 70 80 90 100
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
National Outcome Measures 6
• Percent of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence
HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.
KS 50.3U.S. 41.2
0 10 20 30 40 50 60
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Transitions
• Percent of disabled (18-34) who attended college
KS 30.1U.S. 26.7
0 10 20 30 40
U.S. Census. American Community Survey 2006-2007.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Transitions 2
U.S. Census. American Community Survey 2006-2007.
• Percent of disabled (16-34) who are employedKS 49.6
U.S. 40.8
0 10 20 30 40 50 60
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Overall Health
• Percent of youth with special health care needs whose overall health is excellent or very good
KS, 69.3US, 69.5
0 10 20 30 40 50 60 70
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Oral Health
KS, 67.7US, 64.7
0 10 20 30 40 50 60 70
• Percent of youth with special health care needs whose overall oral health is excellent or very good
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Condition Impact Health
KS, 45.5US, 42.9
0 10 20 30 40 50
• Percent of youth with special health care needs whose health conditions are moderate or severe
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Condition Impact Health 2
• Percent of youth with special health care needs whose conditions consistently or greatly affect their daily activities
HRSA. 2007 National Survey of Child Health. Data Resource Center.
KS, 21.2US, 24
0 10 20 30
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Physical Fitness
KS, 56.9US, 60.9
0 10 20 30 40 50 60 70
• Percent of youth with special health who engage in rigorous physical activity at least 3 times a week
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Physical Fitness 2
• Percent of youth with special health who are overweight or obese
KS, 35.6US, 36.3
0 10 20 30 40
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Child Care 1
• Percent of children with special health needs aged 0-5 years whose parents made different child care arrangements in past month or made employment-related changes due to child care reasons in the past year.
KS, 47.4US, 37.1
0 10 20 30 40 50
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Child Care 2
KS, 18.2US, 10.1
0 10 20 30
• Percent of children with special health needs aged 6-11 years who spent some amount of time alone without adult supervision in the past week
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Employment
• Percent of children with special health needs whose families experienced financial problems due to child's health needs.
KS, 21.4US, 18.1
0 10 20 30
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Employment 2Percent of children with special health needs whose health needs caused family members to cut back or stop working
KS, 20.1US, 23.8
0 10 20 30
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Parents
• Percent of children with special health needs whose parents are often angry, annoyed, or frustrated towards their child
KS, 22.5US, 20
0 10 20 30
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
School
• Percent of children with special health needs who are always engaged at school
KS, 31.8US, 38.6
0 10 20 30 40
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
School 2
KS, 7.1US, 18.5
0 10 20
• Percent of children with special health needs who repeated at least 1 grade since Kindergarten
HRSA. 2007 National Survey of Child Health. Data Resource Center.
Our Vision – Healthy Kansans Living in Safe and Sustainable Environments
Questions?Questions?