Post on 22-Aug-2014
description
7/13/2014 Hyperacusis - Google Forms
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Yes 7 18%
No 33 83%
Yes - currently 10 25%
Yes - in the past 5 13%
No 25 63%
40 responsesView all responses
Summary
Prior to reading this post were you aware of the potential to develophyperacusis as a manifestation of MS?
Have you ever suffered from MS-related hyperacusis?
If you have suffered from MS-related huperacusis how bad was it?
Edit this formgavin@giovannoni.net
7/13/2014 Hyperacusis - Google Forms
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0 8 35%
1 0 0%
2 2 9%
3 2 9%
4 1 4%
5 0 0%
6 4 17%
7 2 9%
8 1 4%
9 3 13%
10 0 0%
N/A - I have never had hyperacusis 8 22%
Yes - in the past 0 0%
Yes - currently 0 0%
No 29 78%
Have you been treated for MS-related hyperacusis?
If you have been treated for MS-related hyperacusis what treatment(s) wereyou give?
Steroids
Comment
I knew I have sensitivity for some noises, especially high ones. I was sure it was related to
my MS, but I did not know it had a name and that other people suffer from it. I've never heard
about others like me. I suppose if no one asks, there is no way to know how frequent is this
phenomenon, like many other symptoms or side effects of drugs that are not asked about
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routinely (i.e. lypoatrophy). Thank you for this post and for the survey. I do not have
hyperacussis but I do seem more and more intolerant of noise. I am quite overwhelmed by
music in shops, busy supermarkets, chatter on trains, open plan offices etc. That may not
be anything to do with MS but it makes me irritable and tense and tired. I do wonder if this
sensory overload is MS related?? It is only in one ear and I can manage it by putting an
ear plug in that ear to stop the noise to that ear. I suspected it was MS related but I have not
mentioned it to neuro. I had facial paralysis as part of a relapse 2 years ago, and I was left
with a ringing in my ears. Loud noises don't hurt, but I avoid them. I always thought it was
more the result of overstimulation, though. Too much input for my weakened CNS.
Hypercausis was one symptom I experienced during an MS attack. This went along with
numbness of the skin on my fave especially the check and chin. To deal with it I would wear
ear protection. The steroids made it eventuality go away. But it returns sometimes when I
am very tired. I experienced over sensitive hearing whilst in the middle of a relapse that
affected my 6th and 7th nerves caused by a brainstem lesion. I had facial paralysis at the
time. Loud noises like dogs barking and children shouting were quite painful. It lasted approx
6 weeks. I was waiting to be diagnosed at the time and no-one really paid a lot of attention to
my hearing. I'm pleased to say it returned to normal, along with my face. My responses
are based on the immense pain induced by using a telephone or an ear piece/head phone
set but only one ear is affected. Various tests have proved inconclusive - so maybe this is
hyperacusis related.... Thanks for this post, I thought it would be a good idea to make the
comment as there seems a bit of knowledge gap about it. I had a relapse. At the time I had
a VI nerve palsy. The hyperacusis was awful at night time when trying to sleep. The noise of
the radiator seemed really loud, also next door neighbours noises seemed to affect me and
noises of the people I was living with too. Sensory overload. But in my opinion a VI nerve
palsy in MS is quite a servere symptom being a swelling on the brain and should be treated
as fairly urgent. I think the hyperacusis to some degree triggered my relapse following on
from that as it caused me horrible night time anxiety attacks. I was very unwell. Hyperacusis
does not seem to be that rare in MS when I discuss it on MS forums patients are opening up
about their experiences. Some people with MS also report sensory sensitivity to bright
lights. I was unaware of this condition. My hearing will sometime become very sensitive
and high pitch noises will be painful. I figured it was part of the migraines that I experience
without headache pain. the facial palsy has happened to me once and lasted one week I do
not remember if this condition coincided with the facial palsy. During and for a couple of
hours after migraines I am extremely sensitive to noise, even normal level noise feels too
much to bear. I also have fairly frequent episodes where some muscle in my right ear is
contracting and relaxing very quickly. Alrwady on combination
gabapentin,lyrica,cymbalta,nortriptyline,clonidine, to control pain and baclofen for muscles
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