7/13/2014 Hyperacusis - Google Forms

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Yes 7 18%

No 33 83%

Yes - currently 10 25%

Yes - in the past 5 13%

No 25 63%

40 responsesView all responses

Summary

Prior to reading this post were you aware of the potential to develophyperacusis as a manifestation of MS?

Have you ever suffered from MS-related hyperacusis?

If you have suffered from MS-related huperacusis how bad was it?

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7/13/2014 Hyperacusis - Google Forms

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0 8 35%

1 0 0%

2 2 9%

3 2 9%

4 1 4%

5 0 0%

6 4 17%

7 2 9%

8 1 4%

9 3 13%

10 0 0%

N/A - I have never had hyperacusis 8 22%

Yes - in the past 0 0%

Yes - currently 0 0%

No 29 78%

Have you been treated for MS-related hyperacusis?

If you have been treated for MS-related hyperacusis what treatment(s) wereyou give?

Steroids

Comment

I knew I have sensitivity for some noises, especially high ones. I was sure it was related to

my MS, but I did not know it had a name and that other people suffer from it. I've never heard

about others like me. I suppose if no one asks, there is no way to know how frequent is this

phenomenon, like many other symptoms or side effects of drugs that are not asked about

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routinely (i.e. lypoatrophy). Thank you for this post and for the survey. I do not have

hyperacussis but I do seem more and more intolerant of noise. I am quite overwhelmed by

music in shops, busy supermarkets, chatter on trains, open plan offices etc. That may not

be anything to do with MS but it makes me irritable and tense and tired. I do wonder if this

sensory overload is MS related?? It is only in one ear and I can manage it by putting an

ear plug in that ear to stop the noise to that ear. I suspected it was MS related but I have not

mentioned it to neuro. I had facial paralysis as part of a relapse 2 years ago, and I was left

with a ringing in my ears. Loud noises don't hurt, but I avoid them. I always thought it was

more the result of overstimulation, though. Too much input for my weakened CNS.

Hypercausis was one symptom I experienced during an MS attack. This went along with

numbness of the skin on my fave especially the check and chin. To deal with it I would wear

ear protection. The steroids made it eventuality go away. But it returns sometimes when I

am very tired. I experienced over sensitive hearing whilst in the middle of a relapse that

affected my 6th and 7th nerves caused by a brainstem lesion. I had facial paralysis at the

time. Loud noises like dogs barking and children shouting were quite painful. It lasted approx

6 weeks. I was waiting to be diagnosed at the time and no-one really paid a lot of attention to

my hearing. I'm pleased to say it returned to normal, along with my face. My responses

are based on the immense pain induced by using a telephone or an ear piece/head phone

set but only one ear is affected. Various tests have proved inconclusive - so maybe this is

hyperacusis related.... Thanks for this post, I thought it would be a good idea to make the

comment as there seems a bit of knowledge gap about it. I had a relapse. At the time I had

a VI nerve palsy. The hyperacusis was awful at night time when trying to sleep. The noise of

the radiator seemed really loud, also next door neighbours noises seemed to affect me and

noises of the people I was living with too. Sensory overload. But in my opinion a VI nerve

palsy in MS is quite a servere symptom being a swelling on the brain and should be treated

as fairly urgent. I think the hyperacusis to some degree triggered my relapse following on

from that as it caused me horrible night time anxiety attacks. I was very unwell. Hyperacusis

does not seem to be that rare in MS when I discuss it on MS forums patients are opening up

about their experiences. Some people with MS also report sensory sensitivity to bright

lights. I was unaware of this condition. My hearing will sometime become very sensitive

and high pitch noises will be painful. I figured it was part of the migraines that I experience

without headache pain. the facial palsy has happened to me once and lasted one week I do

not remember if this condition coincided with the facial palsy. During and for a couple of

hours after migraines I am extremely sensitive to noise, even normal level noise feels too

much to bear. I also have fairly frequent episodes where some muscle in my right ear is

contracting and relaxing very quickly. Alrwady on combination

gabapentin,lyrica,cymbalta,nortriptyline,clonidine, to control pain and baclofen for muscles

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