Post on 02-Jan-2016
1. What is your role with CYWA? Pick the one that is the best match.
par
ent/f
amily
mem
ber
teac
her/e
ducato
r
adm
inis
trato
r/polic
ymak
er
stu
dent
hea
lth p
rofe
ssio
nal
rese
archer
/NDCPD s
taff
per
son w
ith A
SD
oth
er
15%
42%
12% 12%
0%
3%
13%
3%
a. parent/family memberb. teacher/educatorc. administrator/policymakerd. studente. health professionalf. researcher/NDCPD staffg. person with ASDh. other
CYWA = Children & Youth with Autism
2. Do you live in a rural, urban or remote rural community? (Select one)
urb
an (p
opulatio
n gr..
.
rura
l (pop
ulatio
n bet
...
rem
ote ru
ral (
popula
ti..
35%
23%
43%a. urban (population greater than 50,000)
b. rural (population between 3,000 and 49,999)
c. remote rural (population less than 3,000)
3. Look at the map on the screen. Select the region in which you live in ND.
2%
40%
3%
12%
2%3%
26%
8%
5%
12 3 4
8 7 6 5
a. Region 1b. Region 2c. Region 3d. Region 4e. Region 5f. Region 6g. Region 7h. Region 8i. Other
4. Which professional typically diagnoses autism in your community? (Select one)
ped
iatri
cian
s
clin
ical
psyc
hologist
s
psy
chia
trist
fam
ily p
ract
itioner
s
sch
ool psy
cholo
gists
educa
tional
spec
ialis
ts
none
of t
he a
bove
don’
t know
9%
46%
11%
20%
3%5%3%3%
a. pediatricians
b. clinical psychologists
c. psychiatrist
d. family practitioners
e. school psychologists
f. educational specialists
g. none of the above
h. don’t know
5. In your experience, when are most ND children first diagnosed with ASD?
(Select one)
bef
ore s
econd b
irthda
y
bet
wee
n se
cond-th
ird...
bet
wee
n th
ird-fo
urth
...
bet
wee
n fo
urth-fi
fth b
...
afte
r age
five
don’t
know
5%
30%
18%21%
9%
18%
a. before second birthdayb. between second-third birthdayc. between third-fourth birthdayd. between fourth-fifth birthdaye. after age fivef. don’t know
6. Where do families in your community typically travel to get a diagnosis?
(Select one)
no tr
avel
nee
ded
out o
f sta
te
to w
est s
ide
of sta
te
to e
ast s
ide
of s
tate
don’t
know
40%
6%
18%
24%
12%
a. no travel neededb. out of statec. to west side of stated. to east side of statee. don’t know
7. How are treatments for CYWA typically financed by most families? (Select one)
priv
ate
pay
hea
lth in
sura
nce
sch
ool d
istri
ct
ear
ly in
terv
entio
n
don’t
know
oth
er
17%
21%
2%
22%
8%
29%a. private pay
b. health insurance
c. school district
d. early intervention
e. don’t know
f. other
8. Who is the primary provider for treatments of CYWA in your community?
(Select one)
fam
ily a
t hom
e
pre
-sch
ool pro
gram
s
priv
ate
spec
ialis
ts
public
sch
ools
med
ical
clin
ics
none
avai
lable
oth
er
18%
5% 6%2%4%3%
62%
a. family at home
b. pre-school programs
c. private specialists
d. public schools
e. medical clinics
f. none available
g. other
9. Select one treatment that you believe is most important for CYWA.
ear
ly in
terv
entio
n
beh
avio
r inte
rven
tion
in-h
ome
support
soci
al sk
ill tr
ainin
g
tran
sitio
n support
diet
/nutri
tion
spee
ch & la
nguage
ther
apy
phys
ical
/occu
patio
nal th
erap
y
don’
t know
oth
er
65%
10%7% 6%
1%1%1%
7%
1%1%
a. early interventionb. behavior interventionc. in-home supportd. social skill traininge. transition supportf. diet/nutritiong. speech & language therapyh. physical/occupational therapyi. don’t knowj. other
10. What is your preferred method of training on ASD issues? (Select one)
work
shops
web
inar
s
onlin
e cl
asse
s
books
colle
ge co
urse
s
tech
nical
ass
ista
nce...
59%
2%
27%
5%3%4%
a. workshops
b. webinars
c. online classes
d. books
e. college courses
f. technical assistance on site
11. Does your community offer supports to families of CYWA?
yes n
o
don’t
know
58%
19%23%
a. yes
b. no
c. don’t know
12. Select 3 of the training topics you believe would be most helpful for
professionals to receive or access?
89
2831
63
02
40
2021
111
a. screening & diagnosisb. discrete trial trainingc. pivotal response trainingd. structured teachinge. positive behavior interventionf. social storiesg. picture exchange systemh. diet and medical interventionsi. don’t knowj. other
13. Select 3 training topics that you believe are most helpful for families to receive
or access?
63
1814
31
32
54
25
33
123
a. screening & diagnosisb. discrete trial training c. pivotal response trainingd. structured teachinge. positive behavior interventionf. social storiesg. picture exchange systemh. diet and medical interventionsi. don’t knowj. other
14. Select the support that you believe is most important for families of CYWA?
hom
e vi
sita
tion
inte
nsive
in-h
ome
support
finan
cial
support
sib
ling su
pport
trai
ned re
spite
car
egiv
ers
hom
e m
odifi
catio
ns
oth
er
3%
44%
23%
0%3%
4%
22%
1%
a. home visitationb. intensive in-home supportc. financial supportd. sibling supporte. trained respitef. caregiversg. home modificationsh. other
15. Select 3 changes for North Dakota that you believe should be addressed in the
next year?
Updat
e th
e DPI A
utis...
Est
ablis
h cl
inic
s to
d...
Dev
elop w
ebin
ars
a..
Exa
min
e po
ssib
le u
n...
Dev
elop m
odels
for e
...
Oth
er
60
108
6
134
4250
a. Update the DPI Autism guidelines
b. Establish clinics to diagnose and treat CYWA
c. Develop webinars and modules
d. Examine possible underlying causes for ASD
e. Develop models for early intervention and treatment
f. Other