I-CAN Access Instruction manual An introductory guide to using I-CAN Access.
Introducing Sarcoma UK Roger Wilson. First steps … Roger Wilson – patient (dx 1999) –Journalist Sarcoma UK launched as newsletter –First edition April.
Work Package 2 Dissemination of the project RARECARENet Aidan Hutchison on behalf of Professor Ian Kunkler University of Edinburgh.
1 Behçet’s Syndrome community on RareConnect.org Marta Campabadal, EURORDIS RareConnect Community Coordinator #Behcets2014.
DEVELOPMENT AND STANDARDS OF PALLIATIVE CARE IN HUNGARY Hungarian Hospice Foundation Dr. Katalin Muszbek.
The access to information divide: Breaking down barriers Bas Savenije Director General KB, National Library of the Netherlands Stellenbosch Symposium
From IMI to IMI2 Hugh Laverty Senior Scientific Project Manager
NORD/EURORDIS ONLINE PATIENT COMMUNITIES
Prof Iain Carpenter 5 th June 2014
DEVELOPMENT AND STANDARDS OF PALLIATIVE CARE IN HUNGARY Hungarian Hospice Foundation
The EMPATHiE tender: EMPOWERING PATIENTS IN THE MANAGEMENT OF CHRONIC DISEASES David Somekh, EHFF for the EMPATHiE Consortium PSQCWG meeting December 18.
An Introduction to Genetic Alliance UK’s Work in Scotland Natalie Frankish – Development Officer for Scotland Event:Action Duchenne Scottish Conference.