Transparency: Should CF-care centers ”open their books” and publish treatment outcomes? PRO by Erik Wendel, Danish Cystic Fibrosis Association Hamburg.
Patient involvement in rare disease research
Emerging issues in Europe panel Dr Alastair Benbow VP and European Medical Director 6 June 2007, Brussels International Pharmaceutical Regulatory and Compliance.
A testimony from young patients Timo Nerkko Finland Ceapir Budapest, October 25, 2010.
Methodological Innovations in Qualitative Longitudinal Research Liam Berriman, Claude Jousselin, Ester McGeeney, Rachel Thomson, Susie Weller.
Emerging issues in Europe panel Dr Alastair Benbow VP and European Medical Director
Transparency: Should CF-care centers ”open their books” and publish treatment outcomes? PRO
How to influence society? politicians partners in health policy (insurance companies) public opinion media industry & trade unions.
Methodological Innovations in Qualitative Longitudinal Research
Spectrum – Issue 42
