UKRDC_UKRR_22052014n.ppx
UK Renal Data Collaboration(UKRDC)
UKRR Birmingham22 May 2014
Keith Simpson
medical advisor to the UK Renal Registry
UK Renal Registry UKRR
Scottish Renal Registry SRR
Renal Patient View RPV Renal PatientView
UK Registry for Rare Kidney Diseases RaDaR
British Association for Paediatric Nephrology BAPN
NHS Blood & Transplant
Northern Ireland Nephrology Forum
Welsh Renal Clinical Network
UK Renal Data Collaboration(UKRDC)
UKRDCWebsite
Board
Members IT suppliers
Terminology & coding
Infrastructure
Projects
UKRDC – draft structure
Supports its members to improve use of data to:
1) Care for patients
2) Research
3) Teach & learn
4) Run the services
5) Quality & safety improvement
UK Renal Data Collaboration
RPV
.
Labs
RenalUnits
UKRR
SRR
RaDaR
NHSBT
OtherNational data
BAPN
UK Renal Data
RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
RPV
.
UK Renal Data Collaboration
UKRR
SRR
RaDaR10-20 gps
BAPN
Regular meeting with the UKRDC members
Data sets collected
UKRDC Data Model – bigger picture
.
UK Renal Data Collaboration
Warehouse
Secure server within N3
InterSystems software
FastPowerfulFlexibleExpandableTrainingSupported
Translation engine – middle wareSupports SQL
.
UK Renal Data CollaborationRenalUnits
Presentations at RA Meetings Bournemouth & GlasgowBAPN annual Meeting – BirminghamSRR Meeting AyrClinical Directors Meeting – ManchesterWritten to all CDsarticles on RA website and UKRR newsletters
Renal IT companiesPlenary session BristolIndividual meetings at their offices
Communications:What2 wayDiscussions with HSCIC – Leeds – SNOMED CT for diagnoses & proceduresRCP Health Info Unit – Clinical Document ArchitectureRoyal Col path – Lab results – NLMCWill include ability to send free textmeta data (when what how, ref range, assay used -possible
HowEncryptedLoggedHL7 – possibly ‘FHIR’
Request for a new lab test
JM – Data set group of UK Renal Terminology Committee:Check it is new, get NLMC code, confirm meta data, publish on UKRDC websiteReply to request
Send to Dr James Medcalf
Send to Dr Jamie Traynor
JT – Lead UKRDC Data groupConfigure storage, reporting, use in derived resultsAdd to UKRDC database in collaboration with IT experts & InterSystems
National Laboratory Medicine Catalogue(cross referenced to SNOMED CT)
Request for a new Diagnosis or Procedure
AC – Diagnosis & Procedures groupUK Renal Terminology Committee:Check it is new, get SNOMED CT code, confirm semantic relationshipsPublish on UKRDC websiteReply to request
Send to Dr Afzal Chaudhry
Send to Dr Jamie Traynor
JT – Lead UKRDC Data groupConfigure storage, reporting, use in derived resultsAdd to UKRDC database in collaboration with IT experts & InterSystems
RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
An early project• D4D Grant
Enabling patients to initiate medicine reconciliation via RPV
Summary• A new collaboration for managing data in UK
Renal Medicine• Using industry standard tools• Enabling patients to see and contribute to their
medical record• Enabling our 5 functions
• Support from Patients, Renal units, Renal IT Industry, NHS, Colleges
Top Related