The role of the patient in improving quality
Paul Wicks, PhD.
Engines
Aerodynamicist
Performance
Strategists
Testing
Tyres
Management
Systems
Dynamicist
So how have you
been in the last 6
months?
Lewis Trevor
Electronic Sensors Multiple, continuous,
sophisticated
Intermittent,
cumbersome, outdated
Iteration Continuous Glacial
Systems modeling Experts Absent
Purpose of the system Make an advertising
billboard move around
Live a meaningful life
Rewards for a
measured incremental
improvement
Keep your job Money, glory
Rewards for winning Money, glory Keep your job
Two Approaches to Quality Improvement
PROMs / Outcomes
Social Networking
& conversations
Provider Ratings
Case Management
PatientsLikeMe
PatientsKnowBest HealthUnlocked
GP Ratings App
I Want Great Care
Patient Opinion
HealthTalk
Online
CPRD / GPRD
Database
“Where Can I Get The Best Care?”
“How Do I Find a Patient Like Me?”
What does good care look like?
Wicks & Fountain (2012) Patient assessment of physician performance of epilepsy quality of care measures. Neurology Clinical Practice 2:335
23% - I have had fewer visits to the ER
28% - PatientsLikeMe gave me more and better control over my condition
59% -the site has given me a better understanding of my seizures
49% - recording my seizures helps me manage my condition
50% - PatientsLikeMe helped me understand side effects
2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life
30% - PatientsLikeMe helped me be more adherent
One-third of respondents had no one in “the real world” with whom to discuss their epilepsy. After joining PatientsLikeMe, two-thirds reported a connection to at least one other person with epilepsy.
2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life
Genetics
EEG Telemetry
Cognition
Quality of Care
Treatments
Safety
Carer Support
Co-morbidities
Strategy
Systems
Dynamicist
“Technology makes things possible, people make things happen”
The role of the patient in improving quality
Paul Wicks, PhD.
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